Hi my name is Rickey and am 34 and i have itp, was diagnosed a little over a year ago, my levels have varied dramatically lowest being 12. They have tried the prednizone, which worked for a week then stopped, the Nplate shot, which didnt work and lastly the promacta which i have had some success with in the past until my ins said it wasnt "medically neccessary" now they are trying to get me "free drug" so i can get the meds that work. Just am confused about why the ins company is allowed to deem what is medically necessary and what isnt. Long story short itp sucks and has turned my world upside down, its nice to know there are other people out there who has this. I dont feel so alone now ❤️
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