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On my 3rd week of Rituxan and Nplate, every week my plates and red white counts drop. Is this not working?
It seems I should have had improvement by now. WBC - 2.4, RBC - 2.38, Platelets 9k. I had steroids and that didn't work either. In 2012 I had a 6 day nosebleed in the hospital Had several transfusions, nplate and cyclosporin, My platelets went to 80,000 for a brief period. Now I am back to this again
It seems I should have had improvement by now. WBC - 2.4, RBC - 2.38, Platelets 9k. I had steroids and that didn't work either. In 2012 I had a 6 day nosebleed in the hospital Had several transfusions, nplate and cyclosporin, My platelets went to 80,000 for a brief period. Now I am back to this again
Pilily
in
ITP Support Association
10 years ago
Moving to Dubai, how can I take Nplate injections with me?
I'm moving to Dubai and Nplates injections could cost me £1k a week if purchased there!! My current doctor, in London, wont give me prescription for more than 2 months and not sure if health insurance in Dubai will cover it. Any Ideas? Thanks
I'm moving to Dubai and Nplates injections could cost me £1k a week if purchased there!! My current doctor, in London, wont give me prescription for more than 2 months and not sure if health insurance in Dubai will cover it. Any Ideas? Thanks
Mkanizi
in
ITP Support Association
10 years ago
Does anyone no of a specialist on itp in the Midwest we live in Iowa??? Our 32 old daughter is at 14,000 and nplate is not working,
She was told she had itp last August 2013. She has never gotten over 160,00 with steroids. She is being seen by a Doctor who wants to take her spleen out asap. Don't no if I agree.
She was told she had itp last August 2013. She has never gotten over 160,00 with steroids. She is being seen by a Doctor who wants to take her spleen out asap. Don't no if I agree.
cjoh
in
ITP Support Association
11 years ago
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Nplate
Hey yall I have a five year old that was diagnosed last july with itp and they want to try her on nplate has anyone ever heard of this medican?
Hey yall I have a five year old that was diagnosed last july with itp and they want to try her on nplate has anyone ever heard of this medican?
Destinys_mommy9788
in
ITP Support Association
11 years ago
Splenectomy
We'll,it seems that you have to get your spleen out in Australia before they will give you NPlate or Electompag,my wife's is booked,still not sure though....
We'll,it seems that you have to get your spleen out in Australia before they will give you NPlate or Electompag,my wife's is booked,still not sure though....
Ozjock13
in
ITP Support Association
11 years ago
Does anyone know if you can receive NPlate treatment in Australia,on pbs before having a splenectomy??
Treatment options in Australia...
Treatment options in Australia...
Ozjock13
in
ITP Support Association
11 years ago
Hi Folks,does anyone know if NPlate is an option on PBS in Oz before a splenectomy?
Curious??
Curious??
Ozjock13
in
ITP Support Association
11 years ago
Nplate
If anyone managed to get Nplate treatment in the UK, how did you go about convincing the doctors? Have you had to fail every single treatment before that? That's my current understanding but probably it's not correct. Thank you
If anyone managed to get Nplate treatment in the UK, how did you go about convincing the doctors? Have you had to fail every single treatment before that? That's my current understanding but probably it's not correct. Thank you
lc12345
in
ITP Support Association
11 years ago
To those of you on NPlate, how often is a normal injection, how much and what is the goal set by your doctor as far as count?
My husband was diagnosed in May. Nothing but NPlate raises hiis count. Rituxan, IVIG, platelet transfusions and prednisone were of no real help. I keep reading everyones comments about their count being 20,000 to 50,000 but his Dr keeps giving injections and wants him about 300,000 because about every
My husband was diagnosed in May. Nothing but NPlate raises hiis count. Rituxan, IVIG, platelet transfusions and prednisone were of no real help. I keep reading everyones comments about their count being 20,000 to 50,000 but his Dr keeps giving injections and wants him about 300,000 because about every
rsmonte
in
ITP Support Association
11 years ago
Does anyone know of anywhere in the U.S. that performs the indium screening test? My hemo says it's officially "not recommended here.
I had a splenctomy 8 months ago, with no positive results, and now they've discovered an accessory spleen, and want to yank that out too. I've been on various steroids, ivig, rituxan, danazol, and am now approaching the highest dose of nplate, with counts stil hovering at 10 and below, but am not anxious
I had a splenctomy 8 months ago, with no positive results, and now they've discovered an accessory spleen, and want to yank that out too. I've been on various steroids, ivig, rituxan, danazol, and am now approaching the highest dose of nplate, with counts stil hovering at 10 and below, but am not anxious
Catlee
in
ITP Support Association
11 years ago
Confused and tired of no help from doctors
At present trying to get off clenil, now on one puff a day at 200mg was on 1000mg beginning of June due to a chest infection. I am trying my hardest to come of steroid inhalers but gradually. Cannot take tilade as for me after a few weeks i start heading for an asthma attack. I have been on Intal
At present trying to get off clenil, now on one puff a day at 200mg was on 1000mg beginning of June due to a chest infection. I am trying my hardest to come of steroid inhalers but gradually. Cannot take tilade as for me after a few weeks i start heading for an asthma attack. I have been on Intal
Hidden
in
Asthma Community Forum
12 years ago
Nedocromil / Tilade Inhaler
Hi all, Just wanted a bit of advice please and this is usually the best place to come! I am currently on Fostair and Qvar, 2 puffs 3 times daily. My cons has just added in Tilae / Nedocromil Inhaler, 2 puffs, 4 times a day. I took it for the first time this morning but it is such a strong puff of
Hi all, Just wanted a bit of advice please and this is usually the best place to come! I am currently on Fostair and Qvar, 2 puffs 3 times daily. My cons has just added in Tilae / Nedocromil Inhaler, 2 puffs, 4 times a day. I took it for the first time this morning but it is such a strong puff of
Hidden
in
Asthma Community Forum
15 years ago
Medication advice needed please
I am seeing my asthma nurse on Tuesday for my annual review on Tuesday and my asthma has been pretty poor this year compared to last year and at the minute my pfs are running 60-80% of my predicted despite taking my double dose of flixotide. My current meds are Flixotide inhaler or nebs Salbitamol
I am seeing my asthma nurse on Tuesday for my annual review on Tuesday and my asthma has been pretty poor this year compared to last year and at the minute my pfs are running 60-80% of my predicted despite taking my double dose of flixotide. My current meds are Flixotide inhaler or nebs Salbitamol
Hidden
in
Asthma Community Forum
18 years ago
Tilade
Just wondering if anybody else is on this and has any tips to make is tase not so revolting/ has a way to take it that doesn't make you gag every time? Em x
Just wondering if anybody else is on this and has any tips to make is tase not so revolting/ has a way to take it that doesn't make you gag every time? Em x
Hidden
in
Asthma Community Forum
15 years ago
Told off for using A&E!
Hi all, just wanted some feed back on what happened last month with my son. Don't quite know how to take it. Jay is 11 and has difficult to control Asthma. He currently takes symbicort, ventolin, singulair, slo-phyllin, tilade and 10mg alternate day pred. At the beginning of last month Jay came
Hi all, just wanted some feed back on what happened last month with my son. Don't quite know how to take it. Jay is 11 and has difficult to control Asthma. He currently takes symbicort, ventolin, singulair, slo-phyllin, tilade and 10mg alternate day pred. At the beginning of last month Jay came
Hidden
in
Asthma Community Forum
17 years ago
Is rape seed still a problem??
hi all, just a quickie. Being a townie I have no idea about rape seed flowing times and need a little advice. My son is going on school journey this week to a little farm house in the middle of no where. We are proper city folk living in the centre of London so do not know if Jayden will be affected
hi all, just a quickie. Being a townie I have no idea about rape seed flowing times and need a little advice. My son is going on school journey this week to a little farm house in the middle of no where. We are proper city folk living in the centre of London so do not know if Jayden will be affected
Hidden
in
Asthma Community Forum
17 years ago
,Nplate and anti enxiety medicin
Does enyone on Nplate know if there are anti enxiety medicins that can be taken with it?
Does enyone on Nplate know if there are anti enxiety medicins that can be taken with it?
Nole
in
ITP Support Association
13 years ago
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