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Vanishing White Matter (VWM) disease
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March is Blood Clot Awareness Month #BCAM
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
3 months ago
March is Blood Clot Awareness Month #BCAM
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
3 months ago
The arrhythmia nurse wants me to reduce my bisoprolol dose after my cardioversion - fear of early relapse.
I had a 2nd successful cardioversion 5 days ago, and the arrhythmia nurse told me to reduce my dose of bisoprolol immediately from 7.5mg to 5mg as my heart rate was around 50bpm. However, unless I maintain NSR for 6 weeks after the cardioversion, they won't offer another one, so I'm reluctant to reduce
I had a 2nd successful cardioversion 5 days ago, and the arrhythmia nurse told me to reduce my dose of bisoprolol immediately from 7.5mg to 5mg as my heart rate was around 50bpm. However, unless I maintain NSR for 6 weeks after the cardioversion, they won't offer another one, so I'm reluctant to reduce
Belle11
in
Atrial Fibrillation Support
3 months ago
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Celiac and CKD
I am wondering if anyone here has celiac? I have stage 4 kidney disease and celiac. I’m tired all the time to the point that I am not exercising like I should. I need procrit shots weekly just to keep my iron levels at the bare minimum. I’m not particularly interested in eating which may make the situation
I am wondering if anyone here has celiac? I have stage 4 kidney disease and celiac. I’m tired all the time to the point that I am not exercising like I should. I need procrit shots weekly just to keep my iron levels at the bare minimum. I’m not particularly interested in eating which may make the situation
ZenPDX
in
Kidney Dialysis
7 months ago
Remission now flare.
Hi all, Not been on here for a while. I have sero neg rheumatoid arthritis, diagnosed 2010. Have been luckily in remission for a long time probably 10 years anyway seem to be having a flare, pain in shoulder, both knees and one hip plus pain in jaw. But bloods show no inflammation, not sure what is going
Hi all, Not been on here for a while. I have sero neg rheumatoid arthritis, diagnosed 2010. Have been luckily in remission for a long time probably 10 years anyway seem to be having a flare, pain in shoulder, both knees and one hip plus pain in jaw. But bloods show no inflammation, not sure what is going
pool0009
in
NRAS
4 months ago
treatment or no treatment?
it’s been almost 3 years since i was diagnosed with a Gleason 8 prostate cancer, confined to the prostate. To date I have elected not to be treated but instead have been monitoring my PSA levels. Originally this was 6 now 15. I am 66 with no symptoms and no other health issues. I have declined treatment
it’s been almost 3 years since i was diagnosed with a Gleason 8 prostate cancer, confined to the prostate. To date I have elected not to be treated but instead have been monitoring my PSA levels. Originally this was 6 now 15. I am 66 with no symptoms and no other health issues. I have declined treatment
Mark2025
in
Advanced Prostate Cancer
7 months ago
6 years post tah bso awaiting surgery for extensive adhesions and endo .
I thought I'd seen the back of the gyne ward . Absolutely sick of living in pain . Had a MRI that confirmed adhesions were causing all my organs to fuse together . I can't walk most days . My bowel ,bladder , vaginal vault all stuck . Constant kidney pain . Just arghhhhh.
I thought I'd seen the back of the gyne ward . Absolutely sick of living in pain . Had a MRI that confirmed adhesions were causing all my organs to fuse together . I can't walk most days . My bowel ,bladder , vaginal vault all stuck . Constant kidney pain . Just arghhhhh.
endoaftertahbso
in
Endometriosis UK
7 months ago
Newly diagnosed metastatic PC treatment options
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
Hi, I'm 68 years old. Here are the key points in my story so far: In July 2023 a blood test showed a PSA value of 45. On September 26 2023, prostate MRI showed a dominant tumor in the prostate with extension into the right seminal vesicle. Also the fat plane between the rectum and prostate is lost
ShorePine
in
Advanced Prostate Cancer
7 months ago
high alp. Very worried
hello. I posted before but I need to clarify a few points. I had blood test recently which came back Alp 177 and Alt 50. Everything else ok. I do not currently have a diagnosis of liver disease…..well not yet! I am not on any medication. Over the years I have drunk too much white wine but never
hello. I posted before but I need to clarify a few points. I had blood test recently which came back Alp 177 and Alt 50. Everything else ok. I do not currently have a diagnosis of liver disease…..well not yet! I am not on any medication. Over the years I have drunk too much white wine but never
Watersk
in
British Liver Trust
7 months ago
Hello
Hi I'm under going tests for lupus I have symptoms, I'm just looking for more information at the moment
Hi I'm under going tests for lupus I have symptoms, I'm just looking for more information at the moment
Tray68
in
LUPUS UK
4 months ago
blood results
can you help with my latest result please. As usual come back normal. Levothyroxine reduced 6 months ago from 125 to 100. I have Hashimotos. Sjrogren TSH. 4.6 T4 11.6 serum creatine kinase. 81
can you help with my latest result please. As usual come back normal. Levothyroxine reduced 6 months ago from 125 to 100. I have Hashimotos. Sjrogren TSH. 4.6 T4 11.6 serum creatine kinase. 81
Elaine22
in
Thyroid UK
7 months ago
switching to a carnivore diet has put my PMR into total remission
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
benhemp
in
PMRGCAuk
4 months ago
Liver Palms
Hi everyone. I have been diagnosed with fatty liver and have the red "Liver palms" I have been told this is a warning sign for a damaged liver. I have been abstaining for 2 weeks now.Can anyone tell me roughly how long this will last or does it only go away when my liver is back to normal? Thanks in
Hi everyone. I have been diagnosed with fatty liver and have the red "Liver palms" I have been told this is a warning sign for a damaged liver. I have been abstaining for 2 weeks now.Can anyone tell me roughly how long this will last or does it only go away when my liver is back to normal? Thanks in
Betsy5
in
British Liver Trust
7 months ago
Pain when breathing and short of breathe post ablation update
Thanks guys fir all your advice .I ended up at a n e after ringing 111 for advice. They red flagged me and did an immediate ecg to rule out a heart attack. Followed by bloods and a xray of my lungs .. All tests can back normal and they couldn't find and concerns . So I was sent hone and it's a mystery
Thanks guys fir all your advice .I ended up at a n e after ringing 111 for advice. They red flagged me and did an immediate ecg to rule out a heart attack. Followed by bloods and a xray of my lungs .. All tests can back normal and they couldn't find and concerns . So I was sent hone and it's a mystery
Sunnyann
in
Atrial Fibrillation Support
3 months ago
help !
last couple days Iv had serve chest pains it’s right in the middle of my chest and now it’s round my back like ribs feels all tight! When I press down it hurts so much and I’m getting shortness of breathe but I don’t think it’s a heart attack but I’m panicking it is! When I google it says it could be
last couple days Iv had serve chest pains it’s right in the middle of my chest and now it’s round my back like ribs feels all tight! When I press down it hurts so much and I’m getting shortness of breathe but I don’t think it’s a heart attack but I’m panicking it is! When I google it says it could be
Kaaayla
in
Anxiety Support
3 months ago
lupus
hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due to go in to hospital tomorrow for a skin biopsy on my face. Has any one ever had one ? Also do you think my rash looks like a lupus rash ? Thanks everyone.
hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due to go in to hospital tomorrow for a skin biopsy on my face. Has any one ever had one ? Also do you think my rash looks like a lupus rash ? Thanks everyone.
Pea_m
in
LUPUS UK
4 months ago
Bisoprolol and Mechanism of Action- Breathlessness
So I am on a tiny, baby dose of Bisporolol (1.25mg) after taking 2.5/made me dizzy and have pauses after PACs. I am getting this weird breathlessness. It is so hard to explain. I hiked a trail in our woods today with ko problem, but then sat on the couch and watched a movie and felt like I couldnt
So I am on a tiny, baby dose of Bisporolol (1.25mg) after taking 2.5/made me dizzy and have pauses after PACs. I am getting this weird breathlessness. It is so hard to explain. I hiked a trail in our woods today with ko problem, but then sat on the couch and watched a movie and felt like I couldnt
MeganMN
in
Atrial Fibrillation Support
3 months ago
Lupie Diary - International 4+Syamsi Dhuha Foundation
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 months ago
Medication for Vasculitis
Hi. I have had Vasculitis for four years and my current medication is Prednisolone 5.5 mg daily and Methotextrate Injection 25mg weekly. Following the onset of my illness I now have to use a wheeled walker to get around and can no longer drive a motor vehicle.
Hi. I have had Vasculitis for four years and my current medication is Prednisolone 5.5 mg daily and Methotextrate Injection 25mg weekly. Following the onset of my illness I now have to use a wheeled walker to get around and can no longer drive a motor vehicle.
oscar294
in
Vasculitis UK
3 months ago
misdiagnosed cirrhosis?
I was diagnosed with cirrhosis approximately a year ago. Had all the classic symptoms with ascites being the worst. Every time the gastroenterologist sent me for an MRI, the ascites has interfered with the test. He reluctantly gave me a diagnosis of cirrhosis when pushed but didn’t seem confident. Been
I was diagnosed with cirrhosis approximately a year ago. Had all the classic symptoms with ascites being the worst. Every time the gastroenterologist sent me for an MRI, the ascites has interfered with the test. He reluctantly gave me a diagnosis of cirrhosis when pushed but didn’t seem confident. Been
juneblue
in
British Liver Trust
7 months ago
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