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Vanishing White Matter (VWM) disease
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Cholesterol level and Q Risk
I don't remember seeing any discussions about the Q Risk with relation to a stroke or heart attack. My last bloods came back normal, no action. My cholesterol was 5.3 and I'm on 2mg pred.I asked the nurse what the Q risk was and it came up as 25% chance of a stroke or heart attack within the next 10
I don't remember seeing any discussions about the Q Risk with relation to a stroke or heart attack. My last bloods came back normal, no action. My cholesterol was 5.3 and I'm on 2mg pred.I asked the nurse what the Q risk was and it came up as 25% chance of a stroke or heart attack within the next 10
diana1998
in
PMRGCAuk
1 month ago
heart rate 134 when out walking
Hi all, I have PAF diagnosed Sept 23, I’m taking 1.25 Bisoprolol and 5mg x 2. I recently had my Bisoprolol reduced from 2.50 as it was making me very lacking in energy. I’m 73. We went out for a walk today, it involved a couples of inclines but nothing major, we stopped for lunch after about two miles
Hi all, I have PAF diagnosed Sept 23, I’m taking 1.25 Bisoprolol and 5mg x 2. I recently had my Bisoprolol reduced from 2.50 as it was making me very lacking in energy. I’m 73. We went out for a walk today, it involved a couples of inclines but nothing major, we stopped for lunch after about two miles
Crumbling
in
Atrial Fibrillation Support
1 month ago
Trigeminy and Flecainide
I’m a female, 72 and have been in constant Trigeminy for a week now. Can someone tell me if taking 100 mg of Flecainide twice a day will help with the Trigeminy? My EP doctor prescribed the Flecainide in March for Afib however I haven’t started taking it yet because I have not been having problems with
I’m a female, 72 and have been in constant Trigeminy for a week now. Can someone tell me if taking 100 mg of Flecainide twice a day will help with the Trigeminy? My EP doctor prescribed the Flecainide in March for Afib however I haven’t started taking it yet because I have not been having problems with
Debjimmay
in
Atrial Fibrillation Support
1 month ago
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Atrial Fibrillation
Hi, I have suffered with AF since 2018 resulting in 4 cardioversions and 3 ablations (the last was on Friday 17th May and was an AV node ablation linked with connection of a previously implanted Pacemaker. I had hoped that I would be feeling great, no breathlessness. Unfortunately that is not the case
Hi, I have suffered with AF since 2018 resulting in 4 cardioversions and 3 ablations (the last was on Friday 17th May and was an AV node ablation linked with connection of a previously implanted Pacemaker. I had hoped that I would be feeling great, no breathlessness. Unfortunately that is not the case
hollyandivy
in
Atrial Fibrillation Support
1 month ago
Exercise induced AF
I’ve had a great 4 years since my AF diagnosis, able to live pretty normally in terms of my choice of exercise with 3 years AF free following my cardioversion and just a few increasing episodes of paroxysmal AF in the last year. Recently I felt that a triathlon bike/run training session set off my AF
I’ve had a great 4 years since my AF diagnosis, able to live pretty normally in terms of my choice of exercise with 3 years AF free following my cardioversion and just a few increasing episodes of paroxysmal AF in the last year. Recently I felt that a triathlon bike/run training session set off my AF
Daisy2908
in
Atrial Fibrillation Support
1 month ago
Statins
I had a call from my GP surgery about taking statins.Apparently my cholesterol is okay but I have a 38% risk of having a stroke or heart attack. Even though I take anticoagulant statins work in a different way and are recommended for me as I am in persistent afib I do not want to take statins but wondered
I had a call from my GP surgery about taking statins.Apparently my cholesterol is okay but I have a 38% risk of having a stroke or heart attack. Even though I take anticoagulant statins work in a different way and are recommended for me as I am in persistent afib I do not want to take statins but wondered
Swimsyroke
in
Atrial Fibrillation Support
1 month ago
newbie
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
hello there, I’m Steve. I have been living with auto immune liver disease for 20+ years now and I was recommended to join by a social prescriber at my local doctors surgery today! I’m just looking for support from people with autoimmune hepatitis and other liver conditions, who have found it difficult
Northernsouthener31
in
British Liver Trust
3 months ago
digoxin
Have been on Digoxin now for 6/12 and it has had a profound effect. Unable to take more modern drugs because I have Asthma. I am certainly much better than I was. I think it’s probably your hypotension drug causing your problems and have a consultation with your Gp.
Have been on Digoxin now for 6/12 and it has had a profound effect. Unable to take more modern drugs because I have Asthma. I am certainly much better than I was. I think it’s probably your hypotension drug causing your problems and have a consultation with your Gp.
Decrepit
in
Atrial Fibrillation Support
1 month ago
Anniversary of varices bleed
Up until 23rd December 2022 I thought I was quite well and healthy and rarely needed to visit our GP. Out of the blue on the 23rd December 2022, I started to vomit up approx. 3 - 4 pints of blood, as you can imagine my wife and I were in shock from the whole episode. Following an emergency admission
Up until 23rd December 2022 I thought I was quite well and healthy and rarely needed to visit our GP. Out of the blue on the 23rd December 2022, I started to vomit up approx. 3 - 4 pints of blood, as you can imagine my wife and I were in shock from the whole episode. Following an emergency admission
foofighter1
in
British Liver Trust
6 months ago
"Failed" exercise stress test
I have AF, gradually worsening, with chest and throat pain during episodes. Cardiologist did an exercise stress test on Tuesday and stopped the test after 3 minutes. He told me I have ischaemic heart disease - which is a bit galling as I have never smoked and do not eat red meat, cheese, eggs etc. -
I have AF, gradually worsening, with chest and throat pain during episodes. Cardiologist did an exercise stress test on Tuesday and stopped the test after 3 minutes. He told me I have ischaemic heart disease - which is a bit galling as I have never smoked and do not eat red meat, cheese, eggs etc. -
Singingforever
in
Atrial Fibrillation Support
1 month ago
Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
3 months ago
Travel with Afib
Plan to travel overseas in July. Permanent afib trying to adjust meds now to minimize side effects. On Digoxin, Lopressor, Eliquis. Any thoughts etc.
Plan to travel overseas in July. Permanent afib trying to adjust meds now to minimize side effects. On Digoxin, Lopressor, Eliquis. Any thoughts etc.
farewelltoarms
in
Atrial Fibrillation Support
1 month ago
Bisoprolol
Hello, The cardiologist has swapped my medication from Verapamil to Bisoprolol, 2.5mg/day. So far so good as far as side effects go 👍 but there is one thing. I can't seem to get warm since the swap. The temperature here in the north east has dropped since our couple of days of summer but it's more than
Hello, The cardiologist has swapped my medication from Verapamil to Bisoprolol, 2.5mg/day. So far so good as far as side effects go 👍 but there is one thing. I can't seem to get warm since the swap. The temperature here in the north east has dropped since our couple of days of summer but it's more than
Ilovedogs12
in
Atrial Fibrillation Support
1 month ago
Oximeters
I have just been diagnosed with a fib, after years of suspecting something was amiss, but never having episodes when a doctor, and even a cardiologist, was seeing me. I bought a Kardia6L, which showed many afib episodes. I took that to my GP of 13 years, and he immediately swung into impressive action
I have just been diagnosed with a fib, after years of suspecting something was amiss, but never having episodes when a doctor, and even a cardiologist, was seeing me. I bought a Kardia6L, which showed many afib episodes. I took that to my GP of 13 years, and he immediately swung into impressive action
Corazon17
in
Atrial Fibrillation Support
1 month ago
Paul's last day today
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
Debbie_kinsey
Administrator
in
LUPUS UK
3 months ago
Permanent AFib
Started on Digoxin .25 daily for past six days and cut Lopressor down to 25 twice a day. Am going to try to wean off. HR 80-110. Generally do not feel well and am going to revisit ablation. I had blurring of vision and dizziness on higher doses of Lopressor alone. Last cardioversion only lasted
Started on Digoxin .25 daily for past six days and cut Lopressor down to 25 twice a day. Am going to try to wean off. HR 80-110. Generally do not feel well and am going to revisit ablation. I had blurring of vision and dizziness on higher doses of Lopressor alone. Last cardioversion only lasted
farewelltoarms
in
Atrial Fibrillation Support
1 month ago
Just diagnosed with 4.0 cm aneurysm of ascending aorta and severe calcification
Hi Friends I cannot express how shocked and dismayed I am finding out that I have severe calcification of my aorta and a 4.0 cm aneurysm. I have read that the aneurysm can be monitored yearly with imaging but there is nothing that can be done for the calcification. In the past 3 years, I have had
Hi Friends I cannot express how shocked and dismayed I am finding out that I have severe calcification of my aorta and a 4.0 cm aneurysm. I have read that the aneurysm can be monitored yearly with imaging but there is nothing that can be done for the calcification. In the past 3 years, I have had
Wewo01
in
MPN Voice
6 months ago
Possible urinary biomarkers of lupus nephritis identified in study
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
Root cause of autoimmune B12 def
Hello- I was just diagnosed with PA and was prescribed injections (cyanocobalamin unfortunately). This was from a hematology referral for low white blood cells. That turned out to be ok, but the doc noticed my B12 was "low" at 310. I was already supplementing B12 so she just said keep doing that.
Hello- I was just diagnosed with PA and was prescribed injections (cyanocobalamin unfortunately). This was from a hematology referral for low white blood cells. That turned out to be ok, but the doc noticed my B12 was "low" at 310. I was already supplementing B12 so she just said keep doing that.
mchimes
in
Pernicious Anaemia Society
6 months ago
Radiation PSA, Orgovyx, Bone density
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
alperk
in
Advanced Prostate Cancer
6 months ago
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