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Experiences with
Vagus nerve stimulation (VNS)
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'Beyond Hope?' Anyone got advice or help for migraine prevention?
Has anyone been told by their GP or consultant that they've tried everything and they don't know what else to do? I am feeling hopeless. 34yrs, mum of 3yr old, working, lots commitments/interests, dieting, enjoy cycling/swimming/walking when well. Been told I'm in worst 5% migraine sufferers in the UK
Has anyone been told by their GP or consultant that they've tried everything and they don't know what else to do? I am feeling hopeless. 34yrs, mum of 3yr old, working, lots commitments/interests, dieting, enjoy cycling/swimming/walking when well. Been told I'm in worst 5% migraine sufferers in the UK
loosingit2017
in
National Migraine Centre
8 years ago
Any other ideas??
Has anyone been told by their GP, nurse or consultant that they've tried everything and they don't know what else to do? I am feeling hopeless. 34yrs, mum of 3yr old, working, lots commitments/interests, dieting, enjoy cycling/swimming/walking when well. Been told I'm in worst 5% migraine sufferers
Has anyone been told by their GP, nurse or consultant that they've tried everything and they don't know what else to do? I am feeling hopeless. 34yrs, mum of 3yr old, working, lots commitments/interests, dieting, enjoy cycling/swimming/walking when well. Been told I'm in worst 5% migraine sufferers
loosingit2017
in
Migraine Support
8 years ago
Report of today's consultation with my EP Cardiologist - I can have one more ablation
Dear all, I had my follow up appointment with my EP Cardiologist this morning as a follow up to my last (5th) ablation September 8th. My visit did not start well as I could not get into the car park and had to park about ½ mile away on a 2 hour parking bay. When I got to the outpatients department I
Dear all, I had my follow up appointment with my EP Cardiologist this morning as a follow up to my last (5th) ablation September 8th. My visit did not start well as I could not get into the car park and had to park about ½ mile away on a 2 hour parking bay. When I got to the outpatients department I
pottypete1
in
Atrial Fibrillation Support
8 years ago
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4am musings...
It's another 4am cup of tea job. Woken by some guy shouting in the street after what was clearly the end of an unsuccessful night out and now hands are keeping me awake! Just wondering if anyone out there has had a straight answer out of their consultant about when and if this me miracle vagus nerve
It's another 4am cup of tea job. Woken by some guy shouting in the street after what was clearly the end of an unsuccessful night out and now hands are keeping me awake! Just wondering if anyone out there has had a straight answer out of their consultant about when and if this me miracle vagus nerve
Bon1
in
NRAS
8 years ago
Epilepsy
Hi my child has suffered with generalised epilepsy since he was 7 he is now 19, most medication and cocktails did not work so he had fitted a
vns
stimulator which for a few years has worked very well.
Hi my child has suffered with generalised epilepsy since he was 7 he is now 19, most medication and cocktails did not work so he had fitted a
vns
stimulator which for a few years has worked very well.
Chaddy96
in
Epilepsy Research Institute
8 years ago
Is vagus nerve stimulation an effective alternative in children?
A recent study has added to our knowledge that vagus nerve stimulation (
VNS
) is a safe and efficient treatment for children living with drug-resistant epilepsy who are unable to receive surgery. https://www.epilepsy.org.uk/news/news/vagus-nerve-stimulation-effective-alternative-children-66041
A recent study has added to our knowledge that vagus nerve stimulation (
VNS
) is a safe and efficient treatment for children living with drug-resistant epilepsy who are unable to receive surgery. https://www.epilepsy.org.uk/news/news/vagus-nerve-stimulation-effective-alternative-children-66041
EpilepsyAction1
Epilepsy Action
in
Epilepsy Action
9 years ago
Epilepsy Types
Does anybody out there have a V.N.S. fitted this is short for vagal nerve stimulator. I had one over a year ago. Everything is going fine so far they are meant to reduce any type of seizure. My specialist suggested me having one, because all of the medication that I was taking didn't seem to work and
Does anybody out there have a V.N.S. fitted this is short for vagal nerve stimulator. I had one over a year ago. Everything is going fine so far they are meant to reduce any type of seizure. My specialist suggested me having one, because all of the medication that I was taking didn't seem to work and
Barney1942
in
Epilepsy Research Institute
9 years ago
Refractory epilepsy - where do we go from here?
Because her seizures are generalised, we have been told by her consultant at Addenbrooke's that surgery isn't an option, neither is
VNS
. The drug zonisamide has been suggested as the next option but in the same breath, our consultant has said it's unlikely to have any benefit.
Because her seizures are generalised, we have been told by her consultant at Addenbrooke's that surgery isn't an option, neither is
VNS
. The drug zonisamide has been suggested as the next option but in the same breath, our consultant has said it's unlikely to have any benefit.
EpilepsyMum
in
Epilepsy Research Institute
10 years ago
Vagus nerve stimulation Radi4 program
I listened to "Frontier" on Radio 4 last Tuesday @ 21:00. It was about inflammatory disease and alternatives to DMARDs and biological drugs. There are trials happening in the USA and Europe which look very promising. It might be worth listening to the program on IPlayer if you are interested. This is
I listened to "Frontier" on Radio 4 last Tuesday @ 21:00. It was about inflammatory disease and alternatives to DMARDs and biological drugs. There are trials happening in the USA and Europe which look very promising. It might be worth listening to the program on IPlayer if you are interested. This is
stbernhard
in
NRAS
10 years ago
Vagus Nerve Stimulation
Would I have to get a confirmed diagnosis or can I just ask to see if the
VNS
helps?
Would I have to get a confirmed diagnosis or can I just ask to see if the
VNS
helps?
Allyw
in
Functional Neurological Disorder - FND Hope
10 years ago
i have been having some worries after having my tablets reduced
i used to have sezuires where i used to bite my tonge all the time and after i had the
vns
i stopped having sezuires and now my tablets have been reduced i have started biting my tonge alot more then u would normally without any sign of sezuire but i'm feeling drained after i have bit my tonge is there
i used to have sezuires where i used to bite my tonge all the time and after i had the
vns
i stopped having sezuires and now my tablets have been reduced i have started biting my tonge alot more then u would normally without any sign of sezuire but i'm feeling drained after i have bit my tonge is there
pheobe20
in
Epilepsy Action
12 years ago
I'm a carer to my wife who has difficult to control Epilepsy
We have tried most drugs and last week she started the more recent one Perampanel.Lisa had limited surgery to her left temporal lobe (1991) and tried the
VNS
in 2005 (vagal nerve stimulator) without much luck.Approx 2 years ago we got refferred to The Walton Centre in Liverpool where we're looking into
We have tried most drugs and last week she started the more recent one Perampanel.Lisa had limited surgery to her left temporal lobe (1991) and tried the
VNS
in 2005 (vagal nerve stimulator) without much luck.Approx 2 years ago we got refferred to The Walton Centre in Liverpool where we're looking into
Paul72
in
Epilepsy Society
12 years ago
Vagus Nerve Stimulation Shows Early Promise in Fibromyalgia
The women were surgically implanted with a vagus nerve stimulation (
VNS
) device. After 2 weeks of recovery, they began a 2-week stimulation adjustment period during which
VNS
intensity was increased to deliver as high a current as could be comfortably tolerated.
The women were surgically implanted with a vagus nerve stimulation (
VNS
) device. After 2 weeks of recovery, they began a 2-week stimulation adjustment period during which
VNS
intensity was increased to deliver as high a current as could be comfortably tolerated.
Hidden
in
Fibromyalgia Action UK
12 years ago
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