Log in
Functional Neurological Disorder - FND Hope
2,783 members1,513 posts

Vagus Nerve Stimulation

I have seizures that happen often and make daily life nearly impossible. I started having seizures in November 2013. I have 2-5 Grand Mals a day. I found out about the VNS and wondered if it would be worth asking about. I have nonepileptic seizures, but they have the same triggers as Epilepsy and the movement is the same. The on,y difference is that my seizures last five to ten minutes. I Sam planning to return to college, but I'm not confident that I can deal with classes. I am turning 20 in June so it's pretty important to me that I can reduce my seizures. Will the VNS help with the seizures? They are thaught to be caused by Functional Neurological Disorder, but also had been thaught to be from Guillian-Barre. I've seen nine different doctors and even my primary has no idea what's causing them. Would I have to get a confirmed diagnosis or can I just ask to see if the VNS helps?

2 Replies

My son has the v n s and is been helping some but some times takes longer I meet a lady at the clinic she said it was helping her son it was having less sizures I think is worth try it good luck.


Please take a look at fndhope.org which is run by sufferers of FND. You will find at the bottom of the Homepage a link to request inclusion in the private Facebook group where there are some 700 people whose help and support may prove invaluable. Good luck and remember YOU ARE NOT ALONE.


You may also like...