Vagus Nerve Stimulation: I have... - Functional Neurol...

Functional Neurological Disorder - FND Hope

6,116 members3,374 posts

Vagus Nerve Stimulation

Allyw profile image
2 Replies

I have seizures that happen often and make daily life nearly impossible. I started having seizures in November 2013. I have 2-5 Grand Mals a day. I found out about the VNS and wondered if it would be worth asking about. I have nonepileptic seizures, but they have the same triggers as Epilepsy and the movement is the same. The on,y difference is that my seizures last five to ten minutes. I Sam planning to return to college, but I'm not confident that I can deal with classes. I am turning 20 in June so it's pretty important to me that I can reduce my seizures. Will the VNS help with the seizures? They are thaught to be caused by Functional Neurological Disorder, but also had been thaught to be from Guillian-Barre. I've seen nine different doctors and even my primary has no idea what's causing them. Would I have to get a confirmed diagnosis or can I just ask to see if the VNS helps?

Written by
Allyw profile image
Allyw
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Lovedaniel profile image
Lovedaniel

My son has the v n s and is been helping some but some times takes longer I meet a lady at the clinic she said it was helping her son it was having less sizures I think is worth try it good luck.

EnglishIslander profile image
EnglishIslanderFND HopeVolunteer

Please take a look at fndhope.org which is run by sufferers of FND. You will find at the bottom of the Homepage a link to request inclusion in the private Facebook group where there are some 700 people whose help and support may prove invaluable. Good luck and remember YOU ARE NOT ALONE.

Not what you're looking for?

You may also like...

Non epileptic attack disorder

Hi I am wondering if anyone out there has just seizures. My husband only has seizures and it would...
Swim-summer profile image

Perimenopause has worsened FND symptoms

Hi I’m 50 years old and was diagnosed with FND in 2019 after being misdiagnosed since 2008. My...

I just got diagnosed with dystonia. Does that mean I don't have FND?

Yeah so my Dr diagnosed dystonia and I'm going to a movement disorder specialist later this month....
Jesdue profile image

Is the weather pressure linked to seizures ?

I have had epilepsy and fnd for a number of years, almost this year seizure free. When out of the...
Ksjones profile image

Non-epileptic seizures vs epileptic seizures

I developed seizures and then was diagnosed with CD 4 months later due to paralysis. I was just...

Moderation team

See all
FND_ profile image
FND_Administrator
1fnd profile image
1fndAdministrator
hope4fnd profile image
hope4fndModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.