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Club B12 - UK group sharing B12 research
Hi All, I guess this may have been posted in past so apologies if it has but thought recent new members might be interested. Club B12 is a group of researchers and other interested people who share research about B12. I believe PAS (Pernicious Anaemia Society) has some input into this group. Club
Hi All, I guess this may have been posted in past so apologies if it has but thought recent new members might be interested. Club B12 is a group of researchers and other interested people who share research about B12. I believe PAS (Pernicious Anaemia Society) has some input into this group. Club
Sleepybunny
in
Pernicious Anaemia Society
1 year ago
Primary Hypothyroidism with Hashis
Hello everyone, thank you for all your informative posts, I wish I had gotten more involved in monitoring my own thyroid status over these past 28 years! I took 2 Advanced Thyroid Function Blood Tests with Medichecks on 29/3/23 and 29/11/23. Please could you help with your observations of the 2 tests
Hello everyone, thank you for all your informative posts, I wish I had gotten more involved in monitoring my own thyroid status over these past 28 years! I took 2 Advanced Thyroid Function Blood Tests with Medichecks on 29/3/23 and 29/11/23. Please could you help with your observations of the 2 tests
Welshlady88
in
Thyroid UK
5 months ago
Update following long-awaited GP appointment for results of Thyroid blood test
Following my last post, I have finally had my GP appointment. I thought it was solely to discuss my annual Thyroid blood test but it seems they had also tested for cholesterol. Had a long lecture about high LDL and the risk. I explained that I couldn't really do any more to improve it as I already
Following my last post, I have finally had my GP appointment. I thought it was solely to discuss my annual Thyroid blood test but it seems they had also tested for cholesterol. Had a long lecture about high LDL and the risk. I explained that I couldn't really do any more to improve it as I already
Izziethecat
in
Thyroid UK
5 months ago
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update on subacute thyroiditis
Just posting an update on my experience with subacute thyroiditis. Thanks for the support in this forum! Since mid August I was quite unwell with classic symptoms of thyroiditis (significant neck pain, high inflammatory markers) and became quite thyrotoxic. I was eventually given a course of steroids
Just posting an update on my experience with subacute thyroiditis. Thanks for the support in this forum! Since mid August I was quite unwell with classic symptoms of thyroiditis (significant neck pain, high inflammatory markers) and became quite thyrotoxic. I was eventually given a course of steroids
Morey53
in
Thyroid UK
7 months ago
Advice on non-medication treatment of RLS required
I'm afraid I haven't posted for a long time! I am 74 and my symptoms have become more severe, causing real loss of sleep. A neurologist I saw recently wanted to put me on dopamine-agonist patches which I refused, tho' I am following her recommended course of B12 injections. I've had 9 of the 12 jabs
I'm afraid I haven't posted for a long time! I am 74 and my symptoms have become more severe, causing real loss of sleep. A neurologist I saw recently wanted to put me on dopamine-agonist patches which I refused, tho' I am following her recommended course of B12 injections. I've had 9 of the 12 jabs
argyll1
in
Restless Legs Syndrome
5 months ago
2 years today , no afib episodes
My last episode was a high stress move out of state 2 years ago. I'm 68. I've had afib for 10 years . Regular episodes every 6 months on average though more frequent in the early years before I got a proper diagnosis which took 3 years. I take flecainide , metoprolol , and Xarelto. No ablations. I'm
My last episode was a high stress move out of state 2 years ago. I'm 68. I've had afib for 10 years . Regular episodes every 6 months on average though more frequent in the early years before I got a proper diagnosis which took 3 years. I take flecainide , metoprolol , and Xarelto. No ablations. I'm
Anafib
in
AF Association
7 months ago
Is it Just Me????
Good morning Community Family,. It's Monday morning, I just gobbled down my ritual of 5 pills (Nurtec, Midodrine, Lasik, Vitamin D and Aspirin. Last but not least.... Copaxone Injection šŖ. I think when I take my injection it makes me "hyper sensitive" - in other words: I can
Good morning Community Family,. It's Monday morning, I just gobbled down my ritual of 5 pills (Nurtec, Midodrine, Lasik, Vitamin D and Aspirin. Last but not least.... Copaxone Injection šŖ. I think when I take my injection it makes me "hyper sensitive" - in other words: I can
GratefulNeeC
in
My MSAA Community
5 months ago
Thyroid Genetic Panel - Results
Hi my Thyroid Genetic Panel results from Blue Horizon show the following: COMT - very slow clearance of stress and oestrogen. DI01 - is normal not increased DI01 activity & conversion of FT4 to T3 also, the T Allele on rs11206244 is associated with lower of rT3 from circulation and lower conversion
Hi my Thyroid Genetic Panel results from Blue Horizon show the following: COMT - very slow clearance of stress and oestrogen. DI01 - is normal not increased DI01 activity & conversion of FT4 to T3 also, the T Allele on rs11206244 is associated with lower of rT3 from circulation and lower conversion
irishmary78
in
Thyroid UK
5 months ago
Advice about recent NDT thyroid blood tests and high SHBG
Hi there! Is there any connection between high SHBG and taking NDT thyroid medication? I've been feeling better than ever on my Erfa thyroid medication and I don't feel over medicated at all, but I had high SHBG. My estradiol also seems high. I've read that one reason for high SHBG can be hyperthyroidism
Hi there! Is there any connection between high SHBG and taking NDT thyroid medication? I've been feeling better than ever on my Erfa thyroid medication and I don't feel over medicated at all, but I had high SHBG. My estradiol also seems high. I've read that one reason for high SHBG can be hyperthyroidism
RatherBeSleeping
in
Thyroid UK
5 months ago
Blood Pressure experience and views sought
Hi allI have been feeling ropey,v lethargic and a bit slow for a few months now, despite increase in Levothyroxine. I had attributed this to constant blood loss(months) following HRT which didn't suit me,however this stopped 2 months ago. Previous blood tests showed haemoglobin on the low side so have
Hi allI have been feeling ropey,v lethargic and a bit slow for a few months now, despite increase in Levothyroxine. I had attributed this to constant blood loss(months) following HRT which didn't suit me,however this stopped 2 months ago. Previous blood tests showed haemoglobin on the low side so have
Pebble23
in
Thyroid UK
5 months ago
just a quick one at the mo-
I have been treated for many years, and following my early breast cancer in 2021, the subsequent aromatose inhibitor (to reduce the oestrogen levels in my body to help prevent recurrance) has played havoc with my BP, cholesterol and thyroid meds. I saw an Endo, who eventually decided to try adding a
I have been treated for many years, and following my early breast cancer in 2021, the subsequent aromatose inhibitor (to reduce the oestrogen levels in my body to help prevent recurrance) has played havoc with my BP, cholesterol and thyroid meds. I saw an Endo, who eventually decided to try adding a
Hidden
in
Thyroid UK
5 months ago
Aching legs
I've just started my b12 injections had 2 another due today ,yesterday didn't feel so bad today aching upper thighs.I've heard about b12 injections making you feel worse does this include body aches
I've just started my b12 injections had 2 another due today ,yesterday didn't feel so bad today aching upper thighs.I've heard about b12 injections making you feel worse does this include body aches
gpw61
in
Pernicious Anaemia Society
5 months ago
Drās appointment this morning to discuss dose increase for my daughter, āurgentā help required š
Good morning everyone, My daughter (17, nearly 18) was diagnosed with hypothyroidism is the summer, initially prescribed 25mcg which was obviously inadequate so she requested dose increase which was granted. Sheās been on 50mcg since beginning of September, she initially felt an improvement in symptoms
Good morning everyone, My daughter (17, nearly 18) was diagnosed with hypothyroidism is the summer, initially prescribed 25mcg which was obviously inadequate so she requested dose increase which was granted. Sheās been on 50mcg since beginning of September, she initially felt an improvement in symptoms
J972
in
Thyroid UK
5 months ago
changing hydroxo and methyl dosage.
Iāve been taking hydroxo 1500ug one injection a day for 2 years with folic acid and no improvement. A month ago I added methyl 1500ug one injection a day with adeno and itās been helping but as not much as I hoped my physio has noticed a difference. I feel one injection isnāt enough! Iāve now decided
Iāve been taking hydroxo 1500ug one injection a day for 2 years with folic acid and no improvement. A month ago I added methyl 1500ug one injection a day with adeno and itās been helping but as not much as I hoped my physio has noticed a difference. I feel one injection isnāt enough! Iāve now decided
qwertystar
in
Pernicious Anaemia Society
5 months ago
alcohol
does having a drink every night (moderational)deplete your b12 even if injection every 3 months .
does having a drink every night (moderational)deplete your b12 even if injection every 3 months .
Triggert5656
in
Pernicious Anaemia Society
5 months ago
Help Needed! Have I got Pernicious Anaemia?
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
Grannypants
in
Pernicious Anaemia Society
3 months ago
b12 tablets
hi Iāve Pv and recently been given b12 tablets I thought b12 helped make red blood cells confusing or what ??????? Iād rather ask here than doctors š¤«š³
hi Iāve Pv and recently been given b12 tablets I thought b12 helped make red blood cells confusing or what ??????? Iād rather ask here than doctors š¤«š³
Badger1
in
MPN Voice
5 months ago
My B12 Stuffy Head
This came to me in part from my collaboration with Wwwdot utilizing PM. My B12 Stuffy Head is now my sign that I need more B12 which for me is more frequent injections which results in higher amounts in a 24 hour period. My sign for years was pain that was probably not necessary at the levels I experienced
This came to me in part from my collaboration with Wwwdot utilizing PM. My B12 Stuffy Head is now my sign that I need more B12 which for me is more frequent injections which results in higher amounts in a 24 hour period. My sign for years was pain that was probably not necessary at the levels I experienced
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
A Missed Goal
I made a goal of making it to the winter solstice without being sun energy deprived. I failed. I did not know I was failing until there were two days in New Hampshire USA that were 4.5 degrees with no wind to speak of. I got two days of good sun and then crashed for three days. Part of the reason
I made a goal of making it to the winter solstice without being sun energy deprived. I failed. I did not know I was failing until there were two days in New Hampshire USA that were 4.5 degrees with no wind to speak of. I got two days of good sun and then crashed for three days. Part of the reason
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
B12 def and itchy skin?
Can B12 deficency / pernicious anaemia cause itchy skin.
Can B12 deficency / pernicious anaemia cause itchy skin.
Whiskymack
in
Pernicious Anaemia Society
5 months ago
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