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Experiences with
Vitamin B12 deficiency
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New Blood results - still have brain fog
24 male, diagnosed with autoimmune hypo at 16. Was on 200mcg levothyroxine (Synthroid) for years and felt amazing, 0 symptoms. Blood test I have from past on 200mcg; FT4 18 (9-19), and tsh 1.46. Again, felt great, tons of energy. Went off meds for 16 days Nov 2022, felt like crap, tsh 224 and FT4
24 male, diagnosed with autoimmune hypo at 16. Was on 200mcg levothyroxine (Synthroid) for years and felt amazing, 0 symptoms. Blood test I have from past on 200mcg; FT4 18 (9-19), and tsh 1.46. Again, felt great, tons of energy. Went off meds for 16 days Nov 2022, felt like crap, tsh 224 and FT4
Johnfishman22
in
Thyroid UK
7 months ago
Advice
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Hi, I'm not sure if this is the right place to post, but im looking for some advice please. I've been back and fourth to the doctors since around June 2022 with symptoms of overwhelming constant exhaustion that doesn't go away even after a full night's sleep, making it hard to start the day, weakness
Kma123
in
Pernicious Anaemia Society
5 months ago
Low iron test results and a way forward please
I had some blood tests recently and am wanting advice on a way forward, please. My serum iron level and my transferrin saturation index are both below the minimum level on the reference ranges. My serum ferritin is only just above the minimum on the reference range. I am struggling with symptoms I remember
I had some blood tests recently and am wanting advice on a way forward, please. My serum iron level and my transferrin saturation index are both below the minimum level on the reference ranges. My serum ferritin is only just above the minimum on the reference range. I am struggling with symptoms I remember
yorkshiregirl4
in
Pernicious Anaemia Society
10 months ago
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Post Covid B12 and Vitamin D crash
Hi,I have had multiple health problems since my first bout of Covid in 2022, and blood panels revealed low B12, D and very low ferritin (11). I started having B12 injections and got my ferritin to 159 and my folate up to 45 from 5. I was feeling healthy and many of my symptoms had stopped. I had been
Hi,I have had multiple health problems since my first bout of Covid in 2022, and blood panels revealed low B12, D and very low ferritin (11). I started having B12 injections and got my ferritin to 159 and my folate up to 45 from 5. I was feeling healthy and many of my symptoms had stopped. I had been
Skater21
in
Pernicious Anaemia Society
12 days ago
hEDS and B12 comorbidity?
Possibly a bit of a long shot but does anyone here also have a diagnosis of hypermobile Ehlers-Danlos syndrome and/or joint problems related to hypermobility as well as PA? I recently saw a rheumatologist and whilst we’re waiting on test results to rule out other autoimmune diseases, I think she was
Possibly a bit of a long shot but does anyone here also have a diagnosis of hypermobile Ehlers-Danlos syndrome and/or joint problems related to hypermobility as well as PA? I recently saw a rheumatologist and whilst we’re waiting on test results to rule out other autoimmune diseases, I think she was
MindfulSquirrel
in
Pernicious Anaemia Society
6 months ago
B12 deficiency
I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 weeks. Not sure if the covid knocked my B12 down. I had first injection today. I woke up out of my sleep my body burning and dry month. I had that feeling first week of covid it went away. Now I'm not sure if the B12 is fighting
I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 weeks. Not sure if the covid knocked my B12 down. I had first injection today. I woke up out of my sleep my body burning and dry month. I had that feeling first week of covid it went away. Now I'm not sure if the B12 is fighting
Michbell45
in
Pernicious Anaemia Society
6 months ago
Numb hands 😞
Hello, I have been suffering with numb hands at night and during the day for a while. They really hurt at night and wake me up. It seems that it's made worse by laying on my side and not so connected to the position of my wrists. Splints don't make much difference. Has anyone had anything similar and
Hello, I have been suffering with numb hands at night and during the day for a while. They really hurt at night and wake me up. It seems that it's made worse by laying on my side and not so connected to the position of my wrists. Splints don't make much difference. Has anyone had anything similar and
Auntbessy
in
Thyroid UK
7 months ago
Update
I had a call from surgery re blood test to say I should pick up a script for 50mcg Levothyroxine which is double the daily dose I have been on. Another blood test in 6 weeks. My problem is I have been fine on 25mcg lots of energy as long as I get my B12 I wonder at GP changing meds without any consultation
I had a call from surgery re blood test to say I should pick up a script for 50mcg Levothyroxine which is double the daily dose I have been on. Another blood test in 6 weeks. My problem is I have been fine on 25mcg lots of energy as long as I get my B12 I wonder at GP changing meds without any consultation
Monbretia
in
Thyroid UK
11 months ago
B1 effect?:)
Hi everybody , I just started the B1 HCL yesterday with initial dose 200 mg thiamine in the morning and 200 mg evening.. Today I woke up and felt somehow stronger with better balance and strength in my legs and generally feeling better... I'm just wondering..is it possible to feel better so fast?
Hi everybody , I just started the B1 HCL yesterday with initial dose 200 mg thiamine in the morning and 200 mg evening.. Today I woke up and felt somehow stronger with better balance and strength in my legs and generally feeling better... I'm just wondering..is it possible to feel better so fast?
realk
in
Cure Parkinson's
7 months ago
Update
I am still working out my next trial. I am having issues with procurement which is no fun. I now can reduce or eliminate a supplement and in a few days tell what the effect is, to my satisfaction. I call it incipit symptoms. I can tell they are going to return with a vengeance due to prior trials.
I am still working out my next trial. I am having issues with procurement which is no fun. I now can reduce or eliminate a supplement and in a few days tell what the effect is, to my satisfaction. I call it incipit symptoms. I can tell they are going to return with a vengeance due to prior trials.
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Test results. Can you advise please.
After great advice on this forum regarding my thyroid nodules, I requested from my GP surgery the same tests as are provided in the Blue Horizon Golden Thyroid Test. The clinician seemed to want to help and I thought almost everything would be tested. However, these are my results and, as is clear
After great advice on this forum regarding my thyroid nodules, I requested from my GP surgery the same tests as are provided in the Blue Horizon Golden Thyroid Test. The clinician seemed to want to help and I thought almost everything would be tested. However, these are my results and, as is clear
assambeatty
in
Thyroid UK
22 days ago
High T4
Hi Greygoose, I've seen your reply to Helen'shubby. Just wondering about my T4 and T3 . I'm awaiting new test results but my last test showed T4 at 22.4 ( 7.5- 21.1) ( 109.56%) FT3 4.9 (3.8-6.8) (36.67%) TSH is always undetectable B12 351 (110- 914.0) I am supplementing now (nature provides 3000mcg daily
Hi Greygoose, I've seen your reply to Helen'shubby. Just wondering about my T4 and T3 . I'm awaiting new test results but my last test showed T4 at 22.4 ( 7.5- 21.1) ( 109.56%) FT3 4.9 (3.8-6.8) (36.67%) TSH is always undetectable B12 351 (110- 914.0) I am supplementing now (nature provides 3000mcg daily
Shellian
in
Thyroid UK
5 months ago
Test results.. Confused..
Hi. Peeps... Confused about recent blood tests.... My last thyroid test approx 5 months ago i forgot to take my t3 within 12 hrs of test, ( last dose was 4 pm day before am test) so theoretical it may have been lower than it should have been.. Since then i increased my T 3 slightly from 17.5 mcg
Hi. Peeps... Confused about recent blood tests.... My last thyroid test approx 5 months ago i forgot to take my t3 within 12 hrs of test, ( last dose was 4 pm day before am test) so theoretical it may have been lower than it should have been.. Since then i increased my T 3 slightly from 17.5 mcg
MrsClanger
in
Thyroid UK
6 months ago
B12 deficiency
Hi. Have been taking levothyroxine for some time for autoimmune thyroiditis. Over past few years have suffered with ataxia. Total instability when walking. Initially very random but deteriorating. Fractured wrist then shoulder then foot. Finally referred to a falls clinic and first diagnosis is low
Hi. Have been taking levothyroxine for some time for autoimmune thyroiditis. Over past few years have suffered with ataxia. Total instability when walking. Initially very random but deteriorating. Fractured wrist then shoulder then foot. Finally referred to a falls clinic and first diagnosis is low
Shenka
in
Thyroid UK
11 months ago
b12 deficiency - when to have Pernicious anaemia test?
hi, I am rather new to all this and would be very grateful for some advice. I recently had a blood test as I had moved GP surgeries and it came back with low B12 (70). I am on a course of 6 injections over 2 weeks, just had my 5th today. I have been given a blood form for ‘pernicious anaemia
hi, I am rather new to all this and would be very grateful for some advice. I recently had a blood test as I had moved GP surgeries and it came back with low B12 (70). I am on a course of 6 injections over 2 weeks, just had my 5th today. I have been given a blood form for ‘pernicious anaemia
Digbydog123
in
Pernicious Anaemia Society
11 months ago
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range?
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Another question: did anyone have all their joints crunching, clicking, and sore when their b12 dropped into deficiency range? My joints in my spine, and hips, shoulder, especially. They click and crunch since I dipped into serious neuro symptoms when b12 likely tanked last September. I also had genitourinary
Suffering_sunny
in
Pernicious Anaemia Society
4 months ago
Low b12
I’ve been diagnosed with low b12 and about to get injections. What I’m wondering does this interfere with thyroid blood tests ? Im sure I read that you have to stop taking supplements too before you get tested? Is this correct, if so how long?
I’ve been diagnosed with low b12 and about to get injections. What I’m wondering does this interfere with thyroid blood tests ? Im sure I read that you have to stop taking supplements too before you get tested? Is this correct, if so how long?
Roma2975
in
Thyroid UK
11 months ago
T3 Trial and feeling worse
Medichecks end Jan 2024 Hypothyroid (after RAI in c2004) Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Dec 2023 - Trial of T3
Medichecks end Jan 2024 Hypothyroid (after RAI in c2004) Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Dec 2023 - Trial of T3
Rambling9
in
Thyroid UK
5 months ago
Rasagiline/Azilect?
Hi ! My hwp (77) diagnosed 2017. But of course with hindsight symptoms manifested earlier. Started C/L last year : 25/100 @ 3 times a day. Azilect 1 mg once a day . Walking became a really serious problem a month ago. Partly because of ongoing "sciatica" but also freezing a few times a day. Two weeks
Hi ! My hwp (77) diagnosed 2017. But of course with hindsight symptoms manifested earlier. Started C/L last year : 25/100 @ 3 times a day. Azilect 1 mg once a day . Walking became a really serious problem a month ago. Partly because of ongoing "sciatica" but also freezing a few times a day. Two weeks
ghoegap
in
Cure Parkinson's
5 months ago
Fed Up
Hi I posted a while ago about the brand of thyroxine I’m on (Accord), just had my blood results. Recently moved doctors. After getting my results doctor has advised if you take thyroxine the NHS will only test TSH now. My old doctors used to do T4 and TSH. I could never get T3 done. On a positive
Hi I posted a while ago about the brand of thyroxine I’m on (Accord), just had my blood results. Recently moved doctors. After getting my results doctor has advised if you take thyroxine the NHS will only test TSH now. My old doctors used to do T4 and TSH. I could never get T3 done. On a positive
Sam_antha1234
in
Thyroid UK
5 months ago
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