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Venetoclax
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ASH 2017: Dr. Richard Furman on the importance of MCL-1 in CLL (chronic lymphocytic leukemia)
From the CLL Society website: As good as
venetoclax
is as a single agent, there are now many studies that show even more remarkable responses occur when it is used in combination with ibrutinib or rituximab. See this on the Murano trial from ASH 2017 that combined V+ rituximab.
From the CLL Society website: As good as
venetoclax
is as a single agent, there are now many studies that show even more remarkable responses occur when it is used in combination with ibrutinib or rituximab. See this on the Murano trial from ASH 2017 that combined V+ rituximab.
hsouter
in
CLL Support
6 years ago
Combination therapy with Ibrutinib and Venetoclax?
Does anyone know if you can get the combination of Ibrutinib and
Venetoclax
without being in a trial? We live in the US ( Wisconsin). I am reading that the two together gives a great punch to that CLL. My husband has been on Ibrutinib for 2 months now.
Does anyone know if you can get the combination of Ibrutinib and
Venetoclax
without being in a trial? We live in the US ( Wisconsin). I am reading that the two together gives a great punch to that CLL. My husband has been on Ibrutinib for 2 months now.
kathymac52
in
CLL Support
6 years ago
CLL Live 2018 Videos Posted https://cllpag.ca/
CLLPAG Urges Quebec Minister to Approve
Venetoclax
Venetoclax
(Venclexta) was recently recommended for interim funding by all provinces (except Quebec) by pCODR - see E-Bulletin #13. In Quebec, the Minister of Health and Social Services decided not to fund
Venetoclax
.
CLLPAG Urges Quebec Minister to Approve
Venetoclax
Venetoclax
(Venclexta) was recently recommended for interim funding by all provinces (except Quebec) by pCODR - see E-Bulletin #13. In Quebec, the Minister of Health and Social Services decided not to fund
Venetoclax
.
lankisterguy
Volunteer
in
CLL Support
6 years ago
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CLL: FLAIR Trial site list and update to design
This will leave an equal chance of randomisation between FCR, ibrutinib alone (I) and ibrutinib +
venetoclax
(I+V). To provide a bit of background, the trial began as a comparison between FCR and IR in September 2014. In July 2017 we adapted the trial to add in the I and I+V arms.
This will leave an equal chance of randomisation between FCR, ibrutinib alone (I) and ibrutinib +
venetoclax
(I+V). To provide a bit of background, the trial began as a comparison between FCR and IR in September 2014. In July 2017 we adapted the trial to add in the I and I+V arms.
AdrianUK
in
Leukaemia CARE
6 years ago
Venetoclax ramp up
My mother has advanced CLL and has just begun taking
Venetoclax
. The doctors have decided to accelerate the drug ramp up to take only ten days to get to the 400mg, whilst under medical supervision. I was wondering if anyone had had a similar experience and how well the journey went
My mother has advanced CLL and has just begun taking
Venetoclax
. The doctors have decided to accelerate the drug ramp up to take only ten days to get to the 400mg, whilst under medical supervision. I was wondering if anyone had had a similar experience and how well the journey went
Kat1969
in
CLL Support
6 years ago
Seems Good, But How Good?
Just reading article about this week's Phase II findings of CAPTIVATE trial at ASCO (
Venetoclax
/Ibrutinib frontline) https://www.onclive.com/conference-coverage/asco-2018/frontline-ibrutinib-
venetoclax
-combo-shows-high-mrd-negative-responses-for-cll Can anyone interepret results?
Just reading article about this week's Phase II findings of CAPTIVATE trial at ASCO (
Venetoclax
/Ibrutinib frontline) https://www.onclive.com/conference-coverage/asco-2018/frontline-ibrutinib-
venetoclax
-combo-shows-high-mrd-negative-responses-for-cll Can anyone interepret results?
gemit2000
in
CLL Support
6 years ago
Dizziness when getting up too fast or bending over.
I have been pretty inactive the last year due to bad fatigue from the Ibrutinib plus
Venetoclax
trial I’m in. Could this be do to lack of exercise and being out of shape? Any of you ever experience this? It’s kinda scary.
I have been pretty inactive the last year due to bad fatigue from the Ibrutinib plus
Venetoclax
trial I’m in. Could this be do to lack of exercise and being out of shape? Any of you ever experience this? It’s kinda scary.
lukejensen27
in
CLL Support
6 years ago
ARQ 531 trial
Hi all, I’ve been on the full dosage of
Venetoclax
since July, but it’s stopped working, so now I’ll be doing a clinical trial if ARQ-531. Is anyone here in this trial, and are you experiencing any side effects? Thanks so much! Mindy
Hi all, I’ve been on the full dosage of
Venetoclax
since July, but it’s stopped working, so now I’ll be doing a clinical trial if ARQ-531. Is anyone here in this trial, and are you experiencing any side effects? Thanks so much! Mindy
MelindaBates
in
CLL Support
6 years ago
International Prognostic Index Calculator
All the signs suggest that these results may well be much better in the era of FCR, Ibritunib,
Venetoclax
, other agents, and stem cell transplants where needed.
All the signs suggest that these results may well be much better in the era of FCR, Ibritunib,
Venetoclax
, other agents, and stem cell transplants where needed.
AdrianUK
in
CLL Support
6 years ago
Thoughts on CLL treatment and watch and wait
Sequential treatments Often a treatment flow will go something like FCR, hopefully get a response and wait, then ibrutinib hopefully get a response and wait, then if you get another relapse
venetoclax
.
Sequential treatments Often a treatment flow will go something like FCR, hopefully get a response and wait, then ibrutinib hopefully get a response and wait, then if you get another relapse
venetoclax
.
AdrianUK
in
CLL Support
6 years ago
Post venetoclax fatigue
Has anyone else stopped
venetoclax
in complete remission and felt fatigue? I took it for 22 months. Two months after stopping I get very tired.
Has anyone else stopped
venetoclax
in complete remission and felt fatigue? I took it for 22 months. Two months after stopping I get very tired.
Corin850
in
CLL Support
6 years ago
Transplant in sight
Ibruitinib and
Venetoclax
combination is having an amazing impact with WBC now in the normal range at 8.90. Lymphocytes down to 5.90 and once they reach 4.50 or below, my bone marrow will be checked for % of CLL.
Ibruitinib and
Venetoclax
combination is having an amazing impact with WBC now in the normal range at 8.90. Lymphocytes down to 5.90 and once they reach 4.50 or below, my bone marrow will be checked for % of CLL.
KAS8
in
CLL Support
6 years ago
Interruption of Venetoclax
Question was whether to inject again with filgrastim or to interrupt
Venetoclax
. My doc choose for the option of interruption. Next week another check to see if neutrophils go up and probably a reduction then of the
Venetoclax
.
Question was whether to inject again with filgrastim or to interrupt
Venetoclax
. My doc choose for the option of interruption. Next week another check to see if neutrophils go up and probably a reduction then of the
Venetoclax
.
Yvbb
in
CLL Support
6 years ago
Lessons from five years of ibrutinib experience
Or would we be better hitting the illness harder with a combination of specific drugs say ibrutinib plus either rituximab or
venetoclax
so it’s completely wiped our and doesn’t have the chance to evolve and come back.
Or would we be better hitting the illness harder with a combination of specific drugs say ibrutinib plus either rituximab or
venetoclax
so it’s completely wiped our and doesn’t have the chance to evolve and come back.
AdrianUK
in
CLL Support
6 years ago
Venetoclax
Has anyone out there tried
Venetoclax
? Any insights or advice? My Oncologist said it can be a little dicey the first 4-6 weeks as compels the release of toxins in my body. Any truth?
Has anyone out there tried
Venetoclax
? Any insights or advice? My Oncologist said it can be a little dicey the first 4-6 weeks as compels the release of toxins in my body. Any truth?
GlobalScouttoo
in
CLL Support
6 years ago
Venetoclax
Yesterday I saw my oncologist my blood work is out of wack I’ve been on Imbruvica for 4 yrs this month, he ordered a CT scan and researching switching me to
Venetoclax
, can someone give me their experience with this drug, is it as expensive as Imbruvica? Thank you
Yesterday I saw my oncologist my blood work is out of wack I’ve been on Imbruvica for 4 yrs this month, he ordered a CT scan and researching switching me to
Venetoclax
, can someone give me their experience with this drug, is it as expensive as Imbruvica? Thank you
MartiP2009
in
CLL America Support
6 years ago
CLL Society patient support group meeting in New York City on Sunday April 22
There is a CLL Society patient support group meeting on Sunday April 22 in New York City and at our last meeting I believe we had 5 patients taking
Venetoclax
. https://cllsociety.org/event/new-york-city-cll-support-group-2018-02-11-2018-04-08/ Please click the link and RSVP if you plan to attend.
There is a CLL Society patient support group meeting on Sunday April 22 in New York City and at our last meeting I believe we had 5 patients taking
Venetoclax
. https://cllsociety.org/event/new-york-city-cll-support-group-2018-02-11-2018-04-08/ Please click the link and RSVP if you plan to attend.
lankisterguy
Volunteer
in
CLL Support
6 years ago
Side Effects of Ibrutinib/Venetoclax
Started Ibrutinib 9 months ago and Ventetoclax 6months ago on the Ibrutinib/
Venetoclax
Trial. I guess I am lucky as diarrhea only kicked in 4 months ago while on holiday in Thailand.
Started Ibrutinib 9 months ago and Ventetoclax 6months ago on the Ibrutinib/
Venetoclax
Trial. I guess I am lucky as diarrhea only kicked in 4 months ago while on holiday in Thailand.
jonrha
in
CLL Support
6 years ago
I am now in the next phase of the Captivate Imbruvica plus Venetoclax trial. I have been Ramdomized!!!
Ucsd has told me that many people who were on
Venetoclax
have gone at least a year without needing treatment again . Hopefully with the addition of imbruvica there will have even a deeper remission. I will keep you posted!! Be well!, Hoffy
Ucsd has told me that many people who were on
Venetoclax
have gone at least a year without needing treatment again . Hopefully with the addition of imbruvica there will have even a deeper remission. I will keep you posted!! Be well!, Hoffy
Hoffy
in
CLL Support
6 years ago
Side Effects of Long Term use of acyclovir when on Ibrutinib+venetoclax
I am on a clinical trial of ibrutinib (for two months) and then adding
venetoclax
until I achieve MRD negative. I started ibrutinib 3 weeks ago and so far doing fine, except some minor side effects.
I am on a clinical trial of ibrutinib (for two months) and then adding
venetoclax
until I achieve MRD negative. I started ibrutinib 3 weeks ago and so far doing fine, except some minor side effects.
Mansy
in
CLL Support
6 years ago
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