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Venclyxto
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O & V treatment and lymph nodes
Please can someone who has CLL and swollen neck nodes tell me how long into treatment with Gazyva and Venclexta does it take for nodes to shrink and stay shrunk. Mine go down when I get the the steroid with treatment but return in about 5/6 days. I'm so discouraged. Haven't started Venclexta yet.
Please can someone who has CLL and swollen neck nodes tell me how long into treatment with Gazyva and Venclexta does it take for nodes to shrink and stay shrunk. Mine go down when I get the the steroid with treatment but return in about 5/6 days. I'm so discouraged. Haven't started Venclexta yet.
Gradyboy
in
CLL Support
2 years ago
VenClexta side affects… Has anyone figured out how to stop the nausea and vomiting ?
Hi I’m a 24 year CLL patient. I have had my share of chemo treatments and battles with mucor mycosis lung infections, sinus infections the entire gamut. I recently started VenClexta about 4 months ago. Once ai reached the full dosage, I have to say for me it may be worse than my most intense chemotherapy
Hi I’m a 24 year CLL patient. I have had my share of chemo treatments and battles with mucor mycosis lung infections, sinus infections the entire gamut. I recently started VenClexta about 4 months ago. Once ai reached the full dosage, I have to say for me it may be worse than my most intense chemotherapy
999990Bruno
in
CLL Support
2 years ago
venclexta side affects
Has anyone taking venclexta had problems with their teeth chipping? My teeth seem to be disintegrating.
Has anyone taking venclexta had problems with their teeth chipping? My teeth seem to be disintegrating.
gardenman68
in
CLL Support
2 years ago
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acalabrutinib stopped working. Can switching to venclexta help?
I am on acalabrutinib for two years. In first year my wbc went down from 150k to 18k, and for the second year from from 18k to 14k. My hgb is 15, plt 200k. My spleen decreased in size from 21cm to 14cm. I feel generally better, and no side effects. My dr think about switching to venclexta. I am scared
I am on acalabrutinib for two years. In first year my wbc went down from 150k to 18k, and for the second year from from 18k to 14k. My hgb is 15, plt 200k. My spleen decreased in size from 21cm to 14cm. I feel generally better, and no side effects. My dr think about switching to venclexta. I am scared
Belkin123
in
CLL Support
2 years ago
Venclexta
Hi everyone, I receive Venclexta via UPS. The hospital pharmacy sent it out yesterday and it was scheduled to be delivered today(Friday). I just received a tracking note stating that the meds will be delivered on Monday. The last time I received the monthly supply of venclexta the meds were hot to the
Hi everyone, I receive Venclexta via UPS. The hospital pharmacy sent it out yesterday and it was scheduled to be delivered today(Friday). I just received a tracking note stating that the meds will be delivered on Monday. The last time I received the monthly supply of venclexta the meds were hot to the
Gman2
in
CLL Support
2 years ago
Hurray, Three Cheers for Venclexta & Rituxan
After 10 years, 5 months and 24 days since a Stage IV diagnosis of CLL, including 8 rounds of chemo/immunotherapy, I have been found to have no residual cancer cells after a bone marrow biopsy at Dana Farber on July 21, 2022! Three cheers for 6 doses of Rituxan and 24 months of Venclexta!! I have
After 10 years, 5 months and 24 days since a Stage IV diagnosis of CLL, including 8 rounds of chemo/immunotherapy, I have been found to have no residual cancer cells after a bone marrow biopsy at Dana Farber on July 21, 2022! Three cheers for 6 doses of Rituxan and 24 months of Venclexta!! I have
KevinCLLITP
in
CLL Support
2 years ago
Venclexta Rash
Good Morning, Has anyone broken out in a rash on their hand or elsewhere from taking Venclexta. I am taking 600mg daily and have been since November of 2021. The rash is on the palm of my hand. I am also loosing weight, tired and lost my appetite. I am working with my Oncologist and will discuss
Good Morning, Has anyone broken out in a rash on their hand or elsewhere from taking Venclexta. I am taking 600mg daily and have been since November of 2021. The rash is on the palm of my hand. I am also loosing weight, tired and lost my appetite. I am working with my Oncologist and will discuss
brooklyn7672
in
CLL Support
2 years ago
Venclexta
Good Morning. Anyone experiencing lower back pain and diarrhea while taking Venclexta. I am taking 600 mg a day. (200 at 9am, 200 at 1pm and 200 at 5pm) Thanks, Rosa
Good Morning. Anyone experiencing lower back pain and diarrhea while taking Venclexta. I am taking 600 mg a day. (200 at 9am, 200 at 1pm and 200 at 5pm) Thanks, Rosa
brooklyn7672
in
CLL Support
2 years ago
CLL and Diverticulitis
Hi everyone, I just turned 70 yrs old and started the O and V treatment at the end of Sept 2021. I found out I had cll Feb 2019 when I had surgery for diverticulitis. I saw in a post yesterday as well as in the past that a number of us have a history of diverticulitis. My blood work started off with
Hi everyone, I just turned 70 yrs old and started the O and V treatment at the end of Sept 2021. I found out I had cll Feb 2019 when I had surgery for diverticulitis. I saw in a post yesterday as well as in the past that a number of us have a history of diverticulitis. My blood work started off with
Gman2
in
CLL Support
2 years ago
Venclexta and achey legs
I just started Venclexta and my legs are really achey have anyone experienced this do you think it's related to this drug
I just started Venclexta and my legs are really achey have anyone experienced this do you think it's related to this drug
Wiggynugget
in
CLL Support
2 years ago
After 2 Vaccinations and 2 Boosters Still Zero Antibodies!!
Received my LabCorp antibodies report yesterday (Feb 21, 2022). After 3 full-dose Moderna vaccinations and 1 half-dose Moderna booster, I show "No detectable antibodies....". Very disappointing news because I have read that many immunocompromised folks have developed a response after a fourth shot.
Received my LabCorp antibodies report yesterday (Feb 21, 2022). After 3 full-dose Moderna vaccinations and 1 half-dose Moderna booster, I show "No detectable antibodies....". Very disappointing news because I have read that many immunocompromised folks have developed a response after a fourth shot.
DanBro1
in
CLL Support
2 years ago
CLL experience
I was diagnosed with CLL in September 2015 - started on Imbruvica in January 2016 - after 2 1/2 years it no longer was effective - started on Venclexta for 2 years - white cells have been normal for 2 1/2 years - had no reactions from Venclexta - have had 3 shots of Moderna with no reaction - have not
I was diagnosed with CLL in September 2015 - started on Imbruvica in January 2016 - after 2 1/2 years it no longer was effective - started on Venclexta for 2 years - white cells have been normal for 2 1/2 years - had no reactions from Venclexta - have had 3 shots of Moderna with no reaction - have not
soapstone
in
CLL Support
2 years ago
STARTING 4th CYCLE OF NX-2127 TRIAL
Here's an update from my newest clinical trial, Nurex-2127. This first phase is the dose finding part. I started on 300mg, the max amount at the time. Things started off well, but after three weeks, my anc dropped to 1.0, the study requires 1.5 or higher. I found myself off of the study until I got
Here's an update from my newest clinical trial, Nurex-2127. This first phase is the dose finding part. I started on 300mg, the max amount at the time. Things started off well, but after three weeks, my anc dropped to 1.0, the study requires 1.5 or higher. I found myself off of the study until I got
steve5441
in
CLL Support
2 years ago
CoPay Assistance from LLS (Leukemia & Lymphoma Society) USA
I just started taking Acalabrutinib / Calquence one week ago and the $2500 per month that my Medicare Part D does not pay is being covered by assistance from the LLS. And my 2020 tax return AGI Gross was well above what I thought any of the charitable agencies would approve. - It was incredibly easy
I just started taking Acalabrutinib / Calquence one week ago and the $2500 per month that my Medicare Part D does not pay is being covered by assistance from the LLS. And my 2020 tax return AGI Gross was well above what I thought any of the charitable agencies would approve. - It was incredibly easy
lankisterguy
Volunteer
in
CLL Support
2 years ago
Weight Loss
Good Morning. I have been taking 600mg of Venclexta daily since November and my weight is down about 10 pounds from 168 to 158. I wish to gain the weight back. Is anyone experiencing the weight loss? Also, does anyone know of a good diet so that I can gain the weight back. Thanks Rosa
Good Morning. I have been taking 600mg of Venclexta daily since November and my weight is down about 10 pounds from 168 to 158. I wish to gain the weight back. Is anyone experiencing the weight loss? Also, does anyone know of a good diet so that I can gain the weight back. Thanks Rosa
brooklyn7672
in
CLL Support
2 years ago
Severe Neutropenia 2 months after reaching UMRD?
Many of you have heard my saga with husband's CLL journey. Was able to stop treatment in November when blood work and bone marrow biopsy confirmed he had reached undetected minimal residual disease. He had become very neutropenic during the final weeks of receiving Venclexa which led first to dose reduction
Many of you have heard my saga with husband's CLL journey. Was able to stop treatment in November when blood work and bone marrow biopsy confirmed he had reached undetected minimal residual disease. He had become very neutropenic during the final weeks of receiving Venclexa which led first to dose reduction
Palmetto
in
CLL Support
2 years ago
IVIG seems to have shared some antibodies from previous COVID patient
This has been discussed before here, but want to add my bit. I have had three Moderna mRNA jabs ( last on 10/15/21) and have been getting IVIG for ITP (immune system gobbling up platelets) dx 7/21. I am also in the US LLS study, and as mono Venclexta patient, have been producing some level of antibodies
This has been discussed before here, but want to add my bit. I have had three Moderna mRNA jabs ( last on 10/15/21) and have been getting IVIG for ITP (immune system gobbling up platelets) dx 7/21. I am also in the US LLS study, and as mono Venclexta patient, have been producing some level of antibodies
E-Lynn
in
CLL Support
2 years ago
V&O Update - After 6 months
Hi all. Many of you have seen my prior posts about husband's up and down course with CLL. Many times I have protested that he was over treated but this time it may have been worth it. Due to plummeting neutrophil levels after less than 6 months on Venclexta yet normal other blood results, doctor
Hi all. Many of you have seen my prior posts about husband's up and down course with CLL. Many times I have protested that he was over treated but this time it may have been worth it. Due to plummeting neutrophil levels after less than 6 months on Venclexta yet normal other blood results, doctor
Palmetto
in
CLL Support
2 years ago
Weight loss with Venclexta
I am taking 600mg of Venclexta daily and am loosing weight. Is anyone taking this and how do I gain the weight back.
I am taking 600mg of Venclexta daily and am loosing weight. Is anyone taking this and how do I gain the weight back.
brooklyn7672
in
CLL Support
3 years ago
After Regeneron Drop In Neutrophils? Did I make a mistake?
Update. Husband had 5 months of Gazyva/Venclexta. Had gotten up to 400 mg. of Venclexta when neutrophils started dropping too low. Twice had to hold and get GSF. First time resumed Venclexta at 200 mg. Had to stop again and get injections again but then resumed at 100 mg. at my request, but neutrophils
Update. Husband had 5 months of Gazyva/Venclexta. Had gotten up to 400 mg. of Venclexta when neutrophils started dropping too low. Twice had to hold and get GSF. First time resumed Venclexta at 200 mg. Had to stop again and get injections again but then resumed at 100 mg. at my request, but neutrophils
PalmettoMiami
in
CLL Support
3 years ago
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