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Urso
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Dry skin & Urso
I have a question about dry skin after starting
Urso
. I itch of course, but my skin is dryer than it’s ever been. I use Shea lotion on my body and organic Shea butter on my face. Any other suggestions?
I have a question about dry skin after starting
Urso
. I itch of course, but my skin is dryer than it’s ever been. I use Shea lotion on my body and organic Shea butter on my face. Any other suggestions?
Stephanellie
in
PBC Foundation
7 years ago
2 weeks on "real" drug URSO Forte. Changed from generic. Update...
My doctor agreed to take me off of the generic
URSO
and try me on the real
URSO
Forte. After a week of phone calls back n' forth to my reluctant insurance company, they finally agreed to cover me taking the real drug. So, my most recent labs showed an improvement.
My doctor agreed to take me off of the generic
URSO
and try me on the real
URSO
Forte. After a week of phone calls back n' forth to my reluctant insurance company, they finally agreed to cover me taking the real drug. So, my most recent labs showed an improvement.
Ktltel
in
PBC Foundation
7 years ago
Diastolic
Hi, anyone’s diastolic blood pressure gone up since being diagnosed with PBC or taking
Urso
. Mine has jumped 20 points .
Hi, anyone’s diastolic blood pressure gone up since being diagnosed with PBC or taking
Urso
. Mine has jumped 20 points .
Gillian61
in
PBC Foundation
7 years ago
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Obstetric cholestatis! Scared to take the urso!!
, I've had the itching since aroubd 31 weeks but only yesterday they prescribed me the
urso
! I'm on 250mg twice a day, and after reading the horrible side effects it's scared me stiff into not wanting to take em!
, I've had the itching since aroubd 31 weeks but only yesterday they prescribed me the
urso
! I'm on 250mg twice a day, and after reading the horrible side effects it's scared me stiff into not wanting to take em!
Mrsdravenx
in
Pregnancy and Parenting Support
7 years ago
6-week update on ocaliva
Went on
urso
which was helping but then plateaued over the summer. Started Ocaliva 11/13. I was very nervous about it. Was really itchy weeks 2-4, it’s better now.
Went on
urso
which was helping but then plateaued over the summer. Started Ocaliva 11/13. I was very nervous about it. Was really itchy weeks 2-4, it’s better now.
Ottley3
in
PBC Foundation
7 years ago
Hair Loss
I have been on
Urso
for about a month now for PBC and now see an alarming loss of hair around the hairline in the front and sides of my face. It has receded a good half an inch or more. I've read posts from the past that say this is down to PBC and not just the
Urso
.
I have been on
Urso
for about a month now for PBC and now see an alarming loss of hair around the hairline in the front and sides of my face. It has receded a good half an inch or more. I've read posts from the past that say this is down to PBC and not just the
Urso
.
Carly92
in
British Liver Trust
7 years ago
Newbie Here
Urso
, AMA, etc? Thinking about all this on top of the Fibro/CFS/ME is frightening after reading what everyone is going through. Is PBC more debilitating that Fibro/CFS/ME? My Dr. appt is next week, had Fibro/CFS/ME for 20 years and never heard of PBC before, but have all the hallmarks.
Urso
, AMA, etc? Thinking about all this on top of the Fibro/CFS/ME is frightening after reading what everyone is going through. Is PBC more debilitating that Fibro/CFS/ME? My Dr. appt is next week, had Fibro/CFS/ME for 20 years and never heard of PBC before, but have all the hallmarks.
CMThomas99
in
PBC Foundation
7 years ago
To biopsy or not
I’m sure it’s a lower percentage, but a biopsy could have caught in a early stage when
Urso
would’ve done the most good. And there’s sometimes other possible co morbid liver diseases it can detect such as AIH, fatty liver etc.
I’m sure it’s a lower percentage, but a biopsy could have caught in a early stage when
Urso
would’ve done the most good. And there’s sometimes other possible co morbid liver diseases it can detect such as AIH, fatty liver etc.
Zelda5
in
PBC Foundation
7 years ago
Why does Urso just quit
I am reading that so many with pbc or psc took
Urso
for years and then all of a sudden it stops working for them. Does anyone know why
Urso
stops doing its job? I also read somewhere that if you have pbc that you can’t get psc. That you can not have both diseases. Is this true
I am reading that so many with pbc or psc took
Urso
for years and then all of a sudden it stops working for them. Does anyone know why
Urso
stops doing its job? I also read somewhere that if you have pbc that you can’t get psc. That you can not have both diseases. Is this true
Hidden
in
PBC Foundation
7 years ago
My wife can't take URSO
Hello, My wife has early stage PBC and was subscribed
URSO
, but gets paralysing stomach cramps when she takes a single tablet. So now she's stopped taking them. What's left for her now? I'm so wirrued for her, I can't sleep at night.
Hello, My wife has early stage PBC and was subscribed
URSO
, but gets paralysing stomach cramps when she takes a single tablet. So now she's stopped taking them. What's left for her now? I'm so wirrued for her, I can't sleep at night.
Nicholas101
in
PBC Foundation
7 years ago
Thyroid
Wasn’t sure about
Urso
. I have GI appt tomorrow so will definitely discuss.
Wasn’t sure about
Urso
. I have GI appt tomorrow so will definitely discuss.
gwillistexas
in
PBC Foundation
7 years ago
New Biopsy report: The submitted biopsy does not have any diagnostic features of primary biliary cirrhosis
I have been on
Urso
this whole time. My labs have been normal except for one outlier. I had another biopsy (my choice) to check for progression.
I have been on
Urso
this whole time. My labs have been normal except for one outlier. I had another biopsy (my choice) to check for progression.
Komiko
in
PBC Foundation
7 years ago
Had my first Appointment with Hepatologist...
Went to Cleveland Clinic on Thursday.Everybody is so welcoming and caring there.Anyways,we talked a lot about PBC and basic questions plus new blood work.Dr.O'Shea is very thorough and we understood a lot more by talking to him then my local Docs.I started
Urso
in May and was diagnosed also.I had more
Went to Cleveland Clinic on Thursday.Everybody is so welcoming and caring there.Anyways,we talked a lot about PBC and basic questions plus new blood work.Dr.O'Shea is very thorough and we understood a lot more by talking to him then my local Docs.I started
Urso
in May and was diagnosed also.I had more
PBCTracy
in
PBC Foundation
7 years ago
Pbc
old Have positive amas Referred to hepatologist for further investigation More blood tests done at the hospital Hepatologist phoned me to say two of the blood tests were positive for pbc but final test which is a definitive blood test for pbc negative confusing Anyway hepatologist wants me to go on
urso
old Have positive amas Referred to hepatologist for further investigation More blood tests done at the hospital Hepatologist phoned me to say two of the blood tests were positive for pbc but final test which is a definitive blood test for pbc negative confusing Anyway hepatologist wants me to go on
urso
Ballymahon2
in
PBC Foundation
7 years ago
Current Labs and starting "real" URSO Forte Dec. 11th.
In the meantime, my insurance has approved me getting the "real"
URSO
Forte. I start that on Monday Dec. 11th. $75 a month with insurance. $1,300 a month without it. I'm so thankful they approved it for me. So, for now, that's good news to me and I'll take it!!
In the meantime, my insurance has approved me getting the "real"
URSO
Forte. I start that on Monday Dec. 11th. $75 a month with insurance. $1,300 a month without it. I'm so thankful they approved it for me. So, for now, that's good news to me and I'll take it!!
Ktltel
in
PBC Foundation
7 years ago
Urso
After taking
urso
for 6 weeks my levels are all normal, should I now stop taking
urso
and look closer at my immune system? I am still unsure my diagnosis of PBC was correct.
After taking
urso
for 6 weeks my levels are all normal, should I now stop taking
urso
and look closer at my immune system? I am still unsure my diagnosis of PBC was correct.
Gillian61
in
PBC Foundation
7 years ago
medication after knee replacement and pic
hi not been on here for a long time, i was diagnosed 9 years ago, my ALP GGT were high but ok ish with
urso
2 months ago i had a knee replacement and at first was on morphine but had really bad reaction, i was then on tramadol and paracetamol, but only take tramadol at bedtime now and try to manage with
hi not been on here for a long time, i was diagnosed 9 years ago, my ALP GGT were high but ok ish with
urso
2 months ago i had a knee replacement and at first was on morphine but had really bad reaction, i was then on tramadol and paracetamol, but only take tramadol at bedtime now and try to manage with
silvi
in
PBC Foundation
7 years ago
Fibroscan norm?
I had a ama at 90, so they had started me on
urso
too early. Does the fibroscan mean I do not have pbc? Do i take
urso
? What other causes raise ama?
I had a ama at 90, so they had started me on
urso
too early. Does the fibroscan mean I do not have pbc? Do i take
urso
? What other causes raise ama?
Sdone
in
PBC Foundation
7 years ago
WEIGHT GAIN
Does anyone else on
URSO
have this or should I stop blaming the
URSO
and step away from the fridge, biscuits, cupboards etc ha ha
Does anyone else on
URSO
have this or should I stop blaming the
URSO
and step away from the fridge, biscuits, cupboards etc ha ha
zoesteve
in
PBC Foundation
7 years ago
Starting Ocaliva
I am starting on Ocaliva next week as I am not responding to
URSO
after 9 months. Anyone have any pointers for me as I start this new drug
I am starting on Ocaliva next week as I am not responding to
URSO
after 9 months. Anyone have any pointers for me as I start this new drug
happy0507
in
PBC Foundation
7 years ago
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