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Urso
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PBC & nausea
I just wondered is this likely to be a symptom of PBC or a side effect of the reflux drug or
URSO
. Anyone have anything similar and found a solution? Thanks Bev
I just wondered is this likely to be a symptom of PBC or a side effect of the reflux drug or
URSO
. Anyone have anything similar and found a solution? Thanks Bev
Bevmc
in
British Liver Trust
6 years ago
Pbc costs:treatment&tests&evaluation
So i am from Romania and the costs are: -
Urso
250 mg (ursofalk) 100pcs - about 25 euro -fibroscan 50/60 euro -mri 200-250 euro - 3month test: ast/alt/ggt/bilirubin direct/indirect /trigicerid/cholesterol /AMA, etc :40 euro -dr evaluation 35-55 euro -ultrasound 25 euro Best of luck to all
So i am from Romania and the costs are: -
Urso
250 mg (ursofalk) 100pcs - about 25 euro -fibroscan 50/60 euro -mri 200-250 euro - 3month test: ast/alt/ggt/bilirubin direct/indirect /trigicerid/cholesterol /AMA, etc :40 euro -dr evaluation 35-55 euro -ultrasound 25 euro Best of luck to all
Andrei
in
PBC Foundation
6 years ago
MRE with evidence of fibrosis ptogression
I was diagnosed in 2016 and have been on
URSO
since then. Thought to have been in very early stages. Labs initially only slightly elevated (Alk phos and ALT) but quickly normalized.
I was diagnosed in 2016 and have been on
URSO
since then. Thought to have been in very early stages. Labs initially only slightly elevated (Alk phos and ALT) but quickly normalized.
gallatracy
in
PBC Foundation
6 years ago
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Is there a connection?
Should I be asking for
Urso
treatment, even if my Lfts (Alk-Phos particularly) return to normal or near-normal levels? It's been 10 years and I'm nearing 50 - maybe it's time to stop watching and waiting? Thanks for any thoughts you might have.
Should I be asking for
Urso
treatment, even if my Lfts (Alk-Phos particularly) return to normal or near-normal levels? It's been 10 years and I'm nearing 50 - maybe it's time to stop watching and waiting? Thanks for any thoughts you might have.
gallnaemare
in
British Liver Trust
6 years ago
Any views please, PSC, Urso, late results
Before I arrange to go and see him, any questions I should ask, any side effects or
Urso
?
Before I arrange to go and see him, any questions I should ask, any side effects or
Urso
?
scampi2122
in
British Liver Trust
6 years ago
Fibroscan
Hi, I have a diagnosis of PBC since 2008 and I am on
urso
750 daily. I have a yearly US and I am wondering what is the purpose of a fibroscan. I know it will give a better indication of where you are at but it won’t change medication or treatment as a result ?
Hi, I have a diagnosis of PBC since 2008 and I am on
urso
750 daily. I have a yearly US and I am wondering what is the purpose of a fibroscan. I know it will give a better indication of where you are at but it won’t change medication or treatment as a result ?
Gwelos
in
PBC Foundation
6 years ago
Reply to Rleo re Urso
Hi Rleo I’ve always taken my unsolicited with all my other pills then had a glass of milk or yogurt then 12 hours later repeat for the evening pills I only take pain killers at lunch time if needed My dr put me on slow release tramadol 100mgstwelve hours apart. Again yogurt or banana. Hope that helps
Hi Rleo I’ve always taken my unsolicited with all my other pills then had a glass of milk or yogurt then 12 hours later repeat for the evening pills I only take pain killers at lunch time if needed My dr put me on slow release tramadol 100mgstwelve hours apart. Again yogurt or banana. Hope that helps
Haylsnewc
in
PBC Foundation
6 years ago
Should I get liver biopsy? Advise and guidance needed.
During pregnancy I was diagnosed with cholestasis (high bile acids, normal LFT) and put on
urso
. After pregnancy I had slightly elevated alt (41) and tested positive for AMA. Not on
urso
anymore. I guess the positive AMA and symptoms is what makes the doctor suggest a biopsy.
During pregnancy I was diagnosed with cholestasis (high bile acids, normal LFT) and put on
urso
. After pregnancy I had slightly elevated alt (41) and tested positive for AMA. Not on
urso
anymore. I guess the positive AMA and symptoms is what makes the doctor suggest a biopsy.
Blueandyellow
in
PBC Foundation
6 years ago
Endoscopy
So 5 months taking
URSO
I am finding inch getting a lot worse. I`m seeing GP soon can he give me anything that helps? Liver specialist at hospital wants me to have an endoscopy. As I have a fear of swollowing anything even the
URSO
is a struggle I don`t want this done.
So 5 months taking
URSO
I am finding inch getting a lot worse. I`m seeing GP soon can he give me anything that helps? Liver specialist at hospital wants me to have an endoscopy. As I have a fear of swollowing anything even the
URSO
is a struggle I don`t want this done.
millieja
in
PBC Foundation
6 years ago
Optavia and urso
Are there any conflicts with Optavia and
urso
? Want to lose some weight and hearing great things about optavia. Ty
Are there any conflicts with Optavia and
urso
? Want to lose some weight and hearing great things about optavia. Ty
jplitt
in
PBC Foundation
6 years ago
Liver biopsy negative but specialist says I have PBC
He is putting me back on
Urso
and gave me that aweful powder for the itching (still trying to figure out how to take it). He did say it is really early so that is good for the future. I’m frustrated that this is th beginning of another life long problem that I have to manage.
He is putting me back on
Urso
and gave me that aweful powder for the itching (still trying to figure out how to take it). He did say it is really early so that is good for the future. I’m frustrated that this is th beginning of another life long problem that I have to manage.
Rottiemommy
in
PBC Foundation
6 years ago
Alternative pbc treatment if can’t take Urso or Ocaliva
What can I take for pbc if I can’t tolerate
Urso
or Ocaliva?
What can I take for pbc if I can’t tolerate
Urso
or Ocaliva?
Gangee
in
PBC Foundation
6 years ago
Skdavis
Have taken
Urso
since 2011. Now have a lot of symptoms and other things going on lately. I also have the thyroid issue, fatigue and lots of muscle and joint pain. Also have osteo arthritis. Loss lots of hair last fall; still comes out but not quite as bad.
Have taken
Urso
since 2011. Now have a lot of symptoms and other things going on lately. I also have the thyroid issue, fatigue and lots of muscle and joint pain. Also have osteo arthritis. Loss lots of hair last fall; still comes out but not quite as bad.
skdavis59
in
PBC Foundation
6 years ago
Huge spike in LFTs
My doctor also thinks I have an overlap of Autoimmune Hepatits but we are only treating the PBC with
urso
at this point.
My doctor also thinks I have an overlap of Autoimmune Hepatits but we are only treating the PBC with
urso
at this point.
littysgirl
in
PBC Foundation
6 years ago
How often do people get a scan?
I am delighted that
urso
appears to be working but I was under the impression that we may still progress even with normal bloods. What’s everyone else’s experience?
I am delighted that
urso
appears to be working but I was under the impression that we may still progress even with normal bloods. What’s everyone else’s experience?
Angel_b
in
PBC Foundation
6 years ago
Hello
I’m not trying to be negative but I’m still new to this as I start
Urso
in a couple days and I’m waiting to find out if I have AIH as well as PBC...doctors are ruling it out by blood tests results ...Just been hearing a lot of stories about life altering PBC ..that it has been difficult for people to
I’m not trying to be negative but I’m still new to this as I start
Urso
in a couple days and I’m waiting to find out if I have AIH as well as PBC...doctors are ruling it out by blood tests results ...Just been hearing a lot of stories about life altering PBC ..that it has been difficult for people to
Irisw
in
PBC Foundation
6 years ago
Tattoo and pbc
Hi everyone, Can anyone tell weather permanent body tattoo cause pbc and should we take vitamin k and D injections life long or as long as we are in
Urso
.
Hi everyone, Can anyone tell weather permanent body tattoo cause pbc and should we take vitamin k and D injections life long or as long as we are in
Urso
.
Elfajasthi
in
PBC Foundation
6 years ago
OCALIVA /Fibroscan Results
But I do wish I could have stayed on
Urso
. My personal feeling is OCA has not slowed progression.
But I do wish I could have stayed on
Urso
. My personal feeling is OCA has not slowed progression.
gwillistexas
in
PBC Foundation
6 years ago
PBC & Scleroderma
I’ve been diagnosed with PBC about 28 yrs ago , I’m now 70 , been on
urso
from day one 2 cap / 250 mg and now I’m on 3 caps .
I’ve been diagnosed with PBC about 28 yrs ago , I’m now 70 , been on
urso
from day one 2 cap / 250 mg and now I’m on 3 caps .
Arlie
in
PBC Foundation
6 years ago
Urso and itching
Was anyone’s itching still bad even after taking
Urso
? My doctor thinks because I’m on
Urso
and my numbers are going down I should not be itching anymore. It is worse than ever but she won’t beleive me. Thanks
Was anyone’s itching still bad even after taking
Urso
? My doctor thinks because I’m on
Urso
and my numbers are going down I should not be itching anymore. It is worse than ever but she won’t beleive me. Thanks
Rottiemommy
in
PBC Foundation
6 years ago
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