Search
Search
About
Log in
Join
Experiences with
Urso
Posts
Communities
1,399 public posts
Filter results
High ALP and itching
After a year on
Urso
my ALP is still in the mid-500's (down from mid 700"s). Wondering if the occasional really itchy day is related to the high ALP level? I take 3 prescription meds. for the itch and it is better than a year ago.
After a year on
Urso
my ALP is still in the mid-500's (down from mid 700"s). Wondering if the occasional really itchy day is related to the high ALP level? I take 3 prescription meds. for the itch and it is better than a year ago.
kp1234
in
PBC Foundation
6 years ago
Feeling frustrated and despondent LFTs rising
I went to a herbalist friend who made up a herbal tincture especially for the PBC and I took my
URSO
. Gradually my LFTs came down and by January 2017 all were normal except for the GGT which had come down from 247 to 49 (just slightly above normal).
I went to a herbalist friend who made up a herbal tincture especially for the PBC and I took my
URSO
. Gradually my LFTs came down and by January 2017 all were normal except for the GGT which had come down from 247 to 49 (just slightly above normal).
Hils67
in
PBC Foundation
6 years ago
Newly diagnosed - Urso & side effects.
However, I have a question - re
Urso
and side effects! I only started the
Urso
on Saturday (1 500mg twice a day for the first 3 months) so I'm only on day 3, but woke up this morning with the most random back pain.
However, I have a question - re
Urso
and side effects! I only started the
Urso
on Saturday (1 500mg twice a day for the first 3 months) so I'm only on day 3, but woke up this morning with the most random back pain.
Rachie34
in
PBC Foundation
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Spacing between medications
I take my last
Urso
with or right after dinner. How long should I wait befor I take my cholesterol meds(Lipitor)?
I take my last
Urso
with or right after dinner. How long should I wait befor I take my cholesterol meds(Lipitor)?
Ellyne
in
PBC Foundation
6 years ago
Fibro scans
Does progress keep going even while taking
urso
?
Does progress keep going even while taking
urso
?
KevinHall10_
in
PBC Foundation
6 years ago
Generic brand of urso
I'm a non-responder to
urso
but been told to continue to take it as well as Obeticholic acid
I'm a non-responder to
urso
but been told to continue to take it as well as Obeticholic acid
Rosie2410
in
PBC Foundation
6 years ago
Mayo clinic
I take
Urso
regularly and see gastro once a year. My results are not normal but it’s only slightly high. I was wondering if Mayo Clinic’s diagnosis be any different from already diagnosed PBC. Many people told me that I should get myself checked up again with them.
I take
Urso
regularly and see gastro once a year. My results are not normal but it’s only slightly high. I was wondering if Mayo Clinic’s diagnosis be any different from already diagnosed PBC. Many people told me that I should get myself checked up again with them.
Mg40
in
PBC Foundation
6 years ago
LFT`s Results
I am on
URSO
2X500 / day since April 2017. My doctor said to stop Simvastatin for 30 days and checkup again. I appreciate your comments.
I am on
URSO
2X500 / day since April 2017. My doctor said to stop Simvastatin for 30 days and checkup again. I appreciate your comments.
ritarobainapbc
in
PBC Foundation
6 years ago
High Platelet count
I checked and there were 40 blood tests done this morning.....I was only worried about ALP (was still over 500 after almost 9 months of
Urso
). Looking for experience with HIGH platelet count. I know my spleen is enlarged (slightly) and have had one swollen lymph node for almost a month.
I checked and there were 40 blood tests done this morning.....I was only worried about ALP (was still over 500 after almost 9 months of
Urso
). Looking for experience with HIGH platelet count. I know my spleen is enlarged (slightly) and have had one swollen lymph node for almost a month.
kp1234
in
PBC Foundation
6 years ago
Pbc trigger and possible treatment
Urso
is only slowing the progression.We need to stop the progression The liver is the only organ that can regenerate itself.If we could stop the agression of the nkt, i think that is the answer
Urso
is only slowing the progression.We need to stop the progression The liver is the only organ that can regenerate itself.If we could stop the agression of the nkt, i think that is the answer
Andrei
in
PBC Foundation
6 years ago
Alt phas creeping up
So I guess the
Urso
is doing its job at slowing down the process of the disease. Dr. Didn’t seem concerned about the raise in labs. He said we would repeat labs in three months.
So I guess the
Urso
is doing its job at slowing down the process of the disease. Dr. Didn’t seem concerned about the raise in labs. He said we would repeat labs in three months.
LorraineLouise
in
PBC Foundation
6 years ago
Itching in hands and feet only - anyone else have this?
I am on
urso
, my liver seems to be doing really well and I'm generally reasonably healhy except for the itching I have been struggling with for the last 3-4 years.
I am on
urso
, my liver seems to be doing really well and I'm generally reasonably healhy except for the itching I have been struggling with for the last 3-4 years.
RockPrincess
in
PBC Foundation
6 years ago
Acupuncture and Naturopathy
Have been on
URSO
since. As of today I am an
URSO
responder and I am asymptomatic. I have been doing a lot of research on trying to heal the body and reduce inflammation. In hopes of "reversing the disease". I recently met with a naturopathy doctor. After all her testing.
Have been on
URSO
since. As of today I am an
URSO
responder and I am asymptomatic. I have been doing a lot of research on trying to heal the body and reduce inflammation. In hopes of "reversing the disease". I recently met with a naturopathy doctor. After all her testing.
kishna
in
PBC Foundation
6 years ago
I'm venting...... 🙁
I've been on
URSO
for 2 years. It's never brought my alk-phos to normal. That's the only lft that's been elavated. Recently my liver enzymes have been climbing. Ast, alt, and alk-phos. My doctors are like "Eh... Let's watch them." Like it's a sporting event.
I've been on
URSO
for 2 years. It's never brought my alk-phos to normal. That's the only lft that's been elavated. Recently my liver enzymes have been climbing. Ast, alt, and alk-phos. My doctors are like "Eh... Let's watch them." Like it's a sporting event.
Ktltel
in
PBC Foundation
6 years ago
Acid
Hi I’ve got PBC ( diagnosed in Jan 2015)Struggle on full dose of
urso
so only take 450 mg which has brought my gut down from 130 to normal.I was primarily diagnosed because of nodules on my liver and pancreas which they tell me is ‘normal’ .In fact if I don’t kick off they don’t check them.Ive now got
Hi I’ve got PBC ( diagnosed in Jan 2015)Struggle on full dose of
urso
so only take 450 mg which has brought my gut down from 130 to normal.I was primarily diagnosed because of nodules on my liver and pancreas which they tell me is ‘normal’ .In fact if I don’t kick off they don’t check them.Ive now got
cazz22
in
British Liver Trust
6 years ago
Pbc joint pain
Does anyone get joint pain from pbc or is it from taking the urso.Also would like to know about any experience of getting reflux after taking
urso
for 3 years.
Does anyone get joint pain from pbc or is it from taking the urso.Also would like to know about any experience of getting reflux after taking
urso
for 3 years.
Ballgrl
in
PBC Foundation
6 years ago
Just been diagnosed with PBC
I am now on the
Urso
tablets and see the specialist again end of Nov. Don't really know what to expect now. It is good to know there are other people out there and don't feel as scared about it now.
I am now on the
Urso
tablets and see the specialist again end of Nov. Don't really know what to expect now. It is good to know there are other people out there and don't feel as scared about it now.
nunbrook
in
PBC Foundation
6 years ago
Alk Phas Rising
I’m on 1000 mg of
Urso
daily. My alk phas has always run between 130 and 140. My dr was happy with those numbers. All of the sudden it has jumped up to 175. I always maintain a healthy diet and exercise along with yoga.
I’m on 1000 mg of
Urso
daily. My alk phas has always run between 130 and 140. My dr was happy with those numbers. All of the sudden it has jumped up to 175. I always maintain a healthy diet and exercise along with yoga.
LorraineLouise
in
PBC Foundation
6 years ago
CONFUSED.COM sorry its so long winded but its do it all in one go or chicken out and not do it at all.
But whats PBC i asked so was given a leafle told it explained everything put on 2
URSO
2 twice daily and would be seen at regular intervals to monitor my condition.
But whats PBC i asked so was given a leafle told it explained everything put on 2
URSO
2 twice daily and would be seen at regular intervals to monitor my condition.
123PAT
in
PBC Foundation
6 years ago
Constant hot flushes causing itch to worsen
Hi all, I’ve been on
URSO
since Dec 2015 and had intermittent bouts of itching. More noticeable when I’m tired or stressed, but my LFTs have come right down to normal levels and fibroscan shows liver is healthy.
Hi all, I’ve been on
URSO
since Dec 2015 and had intermittent bouts of itching. More noticeable when I’m tired or stressed, but my LFTs have come right down to normal levels and fibroscan shows liver is healthy.
Hils67
in
PBC Foundation
6 years ago
1
...
24
25
26
...
70
Next page
10
20
30
40
50
60
70
Filter results
Clear filters
Posted in
All communities
PBC Foundation
1263 results
British Liver Trust
78 results
PBCers Organization
35 results
View top 10 communities
Sort by
Most Relevant
Newest