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Tysabri
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Shingles
Got the old bad shingles has anyone had them that take
tysabri
and if they did how long did they stay off it
Got the old bad shingles has anyone had them that take
tysabri
and if they did how long did they stay off it
Kookies
in
My MSAA Community
7 years ago
Ocrevus News from ECTRIMS
I'm still concerned about switching from
Tysabri
to Ocrevus when this has not been studied at all.
I'm still concerned about switching from
Tysabri
to Ocrevus when this has not been studied at all.
Raingrrl
in
My MSAA Community
7 years ago
Approved for Ocrevus
But...because it took so long, I had to have another dose of
Tysabri
starting the 12 week counter all over again. I'm scheduled to get the first half dose Dec. 8th. I first have to make sure I have the financial support in place since I'm not anywhere close to be able to pay for it on my own.
But...because it took so long, I had to have another dose of
Tysabri
starting the 12 week counter all over again. I'm scheduled to get the first half dose Dec. 8th. I first have to make sure I have the financial support in place since I'm not anywhere close to be able to pay for it on my own.
Raingrrl
in
My MSAA Community
7 years ago
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Why is it never easy?
, while getting infusions every month in new town of residence 5: Only one infusion center anywhere near new town of residence is certified to infuse
Tysabri
.
, while getting infusions every month in new town of residence 5: Only one infusion center anywhere near new town of residence is certified to infuse
Tysabri
.
Texandyroe
in
My MSAA Community
7 years ago
I want HELP- please...
I am going to Ocrevus from
Tysabri
. I do not have any PML now. Just wanted to hear from those that changed.
I am going to Ocrevus from
Tysabri
. I do not have any PML now. Just wanted to hear from those that changed.
Sggmcswain
in
My MSAA Community
7 years ago
MRIs are over 😊
I'm hoping/expecting no change since last year b/c of the
Tysabri
. I'm still a groggy from the Valium. Thank you everyone for your advise and concern!! I love this group of people!!!
I'm hoping/expecting no change since last year b/c of the
Tysabri
. I'm still a groggy from the Valium. Thank you everyone for your advise and concern!! I love this group of people!!!
Juleigh21
in
My MSAA Community
7 years ago
Need Assistance
I am going from
Tysabri
to Ocrevus. Would like anybody to comment on their switch. I am nervous to say the very least. I keep deleting my connection. Thank you in advance
I am going from
Tysabri
to Ocrevus. Would like anybody to comment on their switch. I am nervous to say the very least. I keep deleting my connection. Thank you in advance
Sggmcswain
in
My MSAA Community
7 years ago
Fun
Been on Copaxone, had tissue damage, swapped to
Tysabri
and now (October) being swapped to Ocrivus System keeps spelling, I know correct way to spell and say. Am nervous about switching!
Been on Copaxone, had tissue damage, swapped to
Tysabri
and now (October) being swapped to Ocrivus System keeps spelling, I know correct way to spell and say. Am nervous about switching!
Sggmcswain
in
My MSAA Community
7 years ago
I finally got to start my Ocrevus yesterday, Monday September 18th. Yae!
So I jumped into the Ocrevus full force, even though I was on
Tysabri
for over 2 1/2 years and my JC positive virus count had risen significantly over two and I was going into a higher risk category than I thought was acceptable for the lack of results I was getting after the first year on
Tysabri
.
So I jumped into the Ocrevus full force, even though I was on
Tysabri
for over 2 1/2 years and my JC positive virus count had risen significantly over two and I was going into a higher risk category than I thought was acceptable for the lack of results I was getting after the first year on
Tysabri
.
Fancy1959
CommunityAmbassador
in
My MSAA Community
7 years ago
Fatigued and Frustrated
Which caused a nearly 4 week delay in my monthly infusion of
Tysabri
. I never did "perk up" after the infusion that I finally got, and was looking forward to the next one, which would hopefully refill my tank to the level I was used to. I was scheduled for that infusion today.
Which caused a nearly 4 week delay in my monthly infusion of
Tysabri
. I never did "perk up" after the infusion that I finally got, and was looking forward to the next one, which would hopefully refill my tank to the level I was used to. I was scheduled for that infusion today.
Texandyroe
in
My MSAA Community
7 years ago
Tecfidera Shows Promise as Replacement MS Therapy for Tysabri, Study Shows
I received an email about this today and thought others may be interested (created a shorter link): http://bit.ly/2wz0Jje
I received an email about this today and thought others may be interested (created a shorter link): http://bit.ly/2wz0Jje
bxrmom
in
My MSAA Community
7 years ago
Neuro appointment today
I'm nervous about switching to be honest because of that one patient who switched from
Tysabri
to Ocrevus and got PML. It doesn't matter to me that they are blaming the PML on
Tysabri
...I'm freaked out because it happened at all!
I'm nervous about switching to be honest because of that one patient who switched from
Tysabri
to Ocrevus and got PML. It doesn't matter to me that they are blaming the PML on
Tysabri
...I'm freaked out because it happened at all!
Raingrrl
in
My MSAA Community
7 years ago
Tysabri
I think when I go to my doctor next week he may suggest
Tysabri
again. So I would like any information available.
I think when I go to my doctor next week he may suggest
Tysabri
again. So I would like any information available.
cljones
in
My MSAA Community
7 years ago
Tysabri
I'm going to be getting to take
tysabri
next month and I wanted anybody's feedback on that infusion and what do experiences have been Thank you Lisa I'm new to the community
I'm going to be getting to take
tysabri
next month and I wanted anybody's feedback on that infusion and what do experiences have been Thank you Lisa I'm new to the community
Leahdevora
in
My MSAA Community
7 years ago
New to the group
Thanks to everybody giving me advice on
tysabri
. Very nervous because I am JC virus positive although my doctor swears I'm still safe because it's a low number but I'm very nervous. Is anybody else in the same boat as me?
Thanks to everybody giving me advice on
tysabri
. Very nervous because I am JC virus positive although my doctor swears I'm still safe because it's a low number but I'm very nervous. Is anybody else in the same boat as me?
Leahdevora
in
My MSAA Community
7 years ago
Ocrevus
I don't know how much being off
Tysabri
for so long is having an effect on the Ocrevus. According to my doctor, I have a severe case of MS and I'm not sure how my body supposed to feel. I don't feel any different.
I don't know how much being off
Tysabri
for so long is having an effect on the Ocrevus. According to my doctor, I have a severe case of MS and I'm not sure how my body supposed to feel. I don't feel any different.
Shelly36
in
My MSAA Community
7 years ago
Feeling Accomplished
46 lbs down on my 90 day Wahls Protocol Anniversary, 7 weeks
Tysabri
free, and in less pain with improved walking. I'm so happy that I finally made the choice to start making healthy decisions. It was not a difficult choice to make such a drastic lifestyle change.
46 lbs down on my 90 day Wahls Protocol Anniversary, 7 weeks
Tysabri
free, and in less pain with improved walking. I'm so happy that I finally made the choice to start making healthy decisions. It was not a difficult choice to make such a drastic lifestyle change.
Hidden
in
My MSAA Community
7 years ago
Trying Tysabri since I still have active lesions on Mri after Copaxone and Tecfidera thankful no new symptoms
Having MRI in August
Having MRI in August
Don-Lee
in
My MSAA Community
7 years ago
Hoping this won't be me!
Had my
Tysabri
infusion yesterday. Felt totally wiped out all day yesterday.
Had my
Tysabri
infusion yesterday. Felt totally wiped out all day yesterday.
Juleigh21
in
My MSAA Community
7 years ago
GOOD TO BE BACK
I asked about Ocrevus and he said that the one reported case of PML has been finally determined to be connected to the
Tysabri
that the patient had been on before switching to Ocrevus.
I asked about Ocrevus and he said that the one reported case of PML has been finally determined to be connected to the
Tysabri
that the patient had been on before switching to Ocrevus.
Sukie427
in
My MSAA Community
7 years ago
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