Trying Tysabri since I still have active lesions on Mri after Copaxone and Tecfidera thankful no new symptoms

[Don-Lee]

Having MRI in August

[Iona60]

Don-Lee I went from Copaxone to Gilenya. Tysabri will be my next step if I have another relapse on Gilenya.

[Morllyn]

Sorry about the active lesions Don-Lee , I know that can be scary but, no new symptoms is good.

[Don-Lee in reply to Morllyn]

Yes active lesions are a concern because of mother/brother history with MS. Good news is that I have minor issues with MS if I didn’t tell someone they probably wouldn’t know thankful for that!

[Morllyn in reply to Don-Lee]

I kinda know what you mean also. My symptoms are mostly sensory types, numb left side from head to toes with pain in the same area, new muscle cramps all over since last Sept., fatigue, on and off blurry vision, strange feeling, itches, vibrations that come and go. Nothing that anyone can see.

I get out and work in my yard and garden then recover for a day or two (or 7) and everyone who sees me says that I look just fine to them. I want to keep the yard nice as long as I can.

[melack01]

Don-Lee I also have minor physical symptoms. I unfortunately have some mental affects and cognitive issues. I'm newly diagnosed and have been on Tecfidera for about a month and a half. Will see my neuro the beginning of August and he will possibly schedule me for an MRI. Hoping for no new lesions. But need to ask him about the JC virus since as far as I know I haven't been tested for that.

[WAshingtongirl]

Hi Don-Lee , I think you may be new here. Welcome! With a mom and brother with MS, you probably know even more about how this disease affects us all so differently. Praying the Tysabri works for you and your symptoms remain as they are (or even better--they disappear!). 💕

[Don-Lee in reply to WAshingtongirl]

Yes I forgot to mention I am new here👍Thx for your prayers! I was diagnosed by accident. Meaning I had a minor accident at work and had to get cat scan that showed lesions so then did all the ms tests at neurologist didn’t start having symptoms til 6 yrs later sorry for the long post! Just giving history.

[greaterexp]

Don-Lee , welcome to a great site. It's great that your symptoms have remained fairly quiet for some time. Our prayers are that things stay quiet for a very long time!

[Amore55]

Don-Lee I was on Tysabri for six years and loved it. It is a great med. I hope it does the job for you. 🙂 Keep coming back this is a wonderful forum. Kelly

[Juleigh21]

Don-Lee I started on Copaxone and then did Tecfidera and am now taking Tysabri. I had many relapses, new symptoms, and new lesions while taking the first two. I'm doing much better on Tysabri. It has stopped my MS from progressing. I get new MRIs in September and I'm hoping and expecting no new activity! Good luck with Tysabri!

[Don-Lee in reply to Juleigh21]

Thank you

[Don-Lee in reply to Juleigh21]

That’s good to hear!

[Juleigh21 in reply to Don-Lee]

I've had 18 doses of Tysabri now Don-Lee . I still have MS symptoms every day but my MS is stable and it was pretty aggressive before Tysabri. Tysabri has honestly changed my life! I hope you experience the same thing I did. MS doesn't totally control my life like it once did.