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Tysabri
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Thankful
I was on
Tysabri
. However, was never comfortable because of risk of PML. I am sorry if I sound like I am complaining but I needed to vent. I know there is so much to be thankful for despite MS. Everyday I wake up is a blessing! My daughter is in college, playing sports and doing well academically.
I was on
Tysabri
. However, was never comfortable because of risk of PML. I am sorry if I sound like I am complaining but I needed to vent. I know there is so much to be thankful for despite MS. Everyday I wake up is a blessing! My daughter is in college, playing sports and doing well academically.
lexsarset
in
My MSAA Community
7 years ago
Introducing me
Over the years, I have been on Betaseron, Avonex, and
Tysabri
. I fell and broke my left hip (Nov. 2015).Because it did not heal, I had two additional hip replacement surgeries All 3 surgeries within 7 months of each other.
Over the years, I have been on Betaseron, Avonex, and
Tysabri
. I fell and broke my left hip (Nov. 2015).Because it did not heal, I had two additional hip replacement surgeries All 3 surgeries within 7 months of each other.
DebbyLou
in
My MSAA Community
7 years ago
Tysabri. Long wait thanks for the information
I just finished my first infusion of
Tysabri
two months after my neurologist ordered it...better late than never. Insurance they know better than your doctor. Hopefully it will do the job...God willing. ππ» So far no side affects ππ»
I just finished my first infusion of
Tysabri
two months after my neurologist ordered it...better late than never. Insurance they know better than your doctor. Hopefully it will do the job...God willing. ππ» So far no side affects ππ»
Pbargal
in
My MSAA Community
7 years ago
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New here but not to MS
I was on Copaxone until it stopped working for me and have been on
Tysabri
the last 5 years despite being JVC+. A few months ago my Neuro started me on the extended infusion schedule so I'm now going every 56 days instead of every 28 days.
I was on Copaxone until it stopped working for me and have been on
Tysabri
the last 5 years despite being JVC+. A few months ago my Neuro started me on the extended infusion schedule so I'm now going every 56 days instead of every 28 days.
Raingrrl
in
My MSAA Community
7 years ago
Introduction
Changed to
Tysabri
and had one infusion then they took it off the market. Went back to Copaxone then changed later to Rebif. My liver didn't like Rebif so went back on Copaxone. I have changed since to Aubagio and haven't had issues since starting more than a year ago.
Changed to
Tysabri
and had one infusion then they took it off the market. Went back to Copaxone then changed later to Rebif. My liver didn't like Rebif so went back on Copaxone. I have changed since to Aubagio and haven't had issues since starting more than a year ago.
megraham
in
My MSAA Community
7 years ago
MS for 19 years but holding my own
I was diagnosed in 1997, injected Avonex for 10 years, then switched to
Tysabri
. Just had my 113th infusion at Johns Hopkins!
I was diagnosed in 1997, injected Avonex for 10 years, then switched to
Tysabri
. Just had my 113th infusion at Johns Hopkins!
sophiekerr1977
in
My MSAA Community
7 years ago
Depression after Tysabri?
I've been taking
Tysabri
for a year with little side effects. After the last treatment, I've felt fairly despondent, brain-fogged, and unable to care about much. I love the holidays, but I don't feel like getting ready for them this year. Is this normal?? Or MS normal?
I've been taking
Tysabri
for a year with little side effects. After the last treatment, I've felt fairly despondent, brain-fogged, and unable to care about much. I love the holidays, but I don't feel like getting ready for them this year. Is this normal?? Or MS normal?
jbix
in
My MSAA Community
7 years ago
Fed Up and Stopping dmd and all other rx's
Worse even is that on
Tysabri
my disease has progressed as much as in previous years without
Tysabri
and on other dmd's. I want to stop all the meds I possibly can. Plus every year I fall into the donut hole for my Medicare part D and have to beg, borrow do without to pay for my meds.
Worse even is that on
Tysabri
my disease has progressed as much as in previous years without
Tysabri
and on other dmd's. I want to stop all the meds I possibly can. Plus every year I fall into the donut hole for my Medicare part D and have to beg, borrow do without to pay for my meds.
techyjtmb
in
My MSAA Community
7 years ago
Sadness
I have been on
Tysabri
since 2010. Fast forward to a few years ago when I developed severe gastroparesis (delayed stomach emptying) which threw me for a loop and FOREVER changed me. I lost a ton of weight and a ton of friends, but more importantly, I lost myself.
I have been on
Tysabri
since 2010. Fast forward to a few years ago when I developed severe gastroparesis (delayed stomach emptying) which threw me for a loop and FOREVER changed me. I lost a ton of weight and a ton of friends, but more importantly, I lost myself.
ajtiny
in
Mental Health Support
7 years ago
Sick of feeling sad and helpless
I have been on
Tysabri
since 2010. Fast forward to a few years ago when I developed severe gastroparesis (delayed stomach emptying) which threw me for a loop and FOREVER changed me. I lost a ton of weight and a ton of friends, but more importantly, I lost myself.
I have been on
Tysabri
since 2010. Fast forward to a few years ago when I developed severe gastroparesis (delayed stomach emptying) which threw me for a loop and FOREVER changed me. I lost a ton of weight and a ton of friends, but more importantly, I lost myself.
ajtiny
in
My MSAA Community
7 years ago
Great news from cancer doc
They think it was the
tysabri
causing the high lymphocytes. I am so relieved. And I thank you all for your support and prayers! Can't express my love and gratitude. We all have so much to be thankful for, in spite of difficulties. Happy holidays! Kelly
They think it was the
tysabri
causing the high lymphocytes. I am so relieved. And I thank you all for your support and prayers! Can't express my love and gratitude. We all have so much to be thankful for, in spite of difficulties. Happy holidays! Kelly
Amore55
in
My MSAA Community
7 years ago
Still going after ALL these years.
Next, I went on
Tysabri
, and I LOVED that drug!! I FELT better, I LOOKED better, and I DID better. BUT, after I'd been taking it for a few years, I tested positive for JCV, so I got off. I DIDN'T WANT to, but I did. Then I went on Tecfidera, and I'm still on it.
Next, I went on
Tysabri
, and I LOVED that drug!! I FELT better, I LOOKED better, and I DID better. BUT, after I'd been taking it for a few years, I tested positive for JCV, so I got off. I DIDN'T WANT to, but I did. Then I went on Tecfidera, and I'm still on it.
mepilot61
in
My MSAA Community
7 years ago
Visit with cancer doc
The doc said it MIGHT be from
tysabri
,but my numbers are higher than what he usually sees from
tysabri
. He said I could be in the early stages of CLL, a type of leukemia. Or it could be large granular lymphocyte leukemia.
The doc said it MIGHT be from
tysabri
,but my numbers are higher than what he usually sees from
tysabri
. He said I could be in the early stages of CLL, a type of leukemia. Or it could be large granular lymphocyte leukemia.
Amore55
in
My MSAA Community
7 years ago
PML odds have gone crazy
I got a call Thursday from my infusionist for
Tysabri
, she said my Jc number has gone super high all of a sudden. Before my odds of pml were staying about one in a thousand, but now it is one in 117! So, I will be going off
tysabri
after 72 doses.
I got a call Thursday from my infusionist for
Tysabri
, she said my Jc number has gone super high all of a sudden. Before my odds of pml were staying about one in a thousand, but now it is one in 117! So, I will be going off
tysabri
after 72 doses.
Amore55
in
My MSAA Community
7 years ago
Valproic Acid
Surprisingly easy, but he'd just said no to
Tysabri
.
Surprisingly easy, but he'd just said no to
Tysabri
.
monkeybus
in
AMN EASIER
7 years ago
MS has met "its" match !
I have used Copaxzone, Rebif:
Tysabri
; Tecfadera & now I in March of this yr. I had the Lemtrada infusions. So far I have noticed some positive results, my gait doesn't make me look like a drunk & my "word finding" is not happening as much.
I have used Copaxzone, Rebif:
Tysabri
; Tecfadera & now I in March of this yr. I had the Lemtrada infusions. So far I have noticed some positive results, my gait doesn't make me look like a drunk & my "word finding" is not happening as much.
Me63
in
My MSAA Community
8 years ago
Tysabri
My neurologist wants to put me on
Tysabri
because I had a legion this summer on my MRI. Has anyone been on this? What was your experience if you were?
My neurologist wants to put me on
Tysabri
because I had a legion this summer on my MRI. Has anyone been on this? What was your experience if you were?
Pbargal
in
My MSAA Community
8 years ago
Tysabri
Is anyone taking this? If yes, what have your experiences been like?
Is anyone taking this? If yes, what have your experiences been like?
MS2014
in
My MSAA Community
8 years ago
Hi from Texas
I have been on 3 different meds and about to go back on
Tysabri
as long as my blood work comes back ok. I went from Rebif to
Tysabri
to Techfidera back to
Tysabri
and now on Techfidera again. I am getting weaker again so I talked to my Dr about going back on Ty since I seem to do better on it.
I have been on 3 different meds and about to go back on
Tysabri
as long as my blood work comes back ok. I went from Rebif to
Tysabri
to Techfidera back to
Tysabri
and now on Techfidera again. I am getting weaker again so I talked to my Dr about going back on Ty since I seem to do better on it.
Justrubl
in
My MSAA Community
8 years ago
Hello! Introduction for Sarah_Ann
They cut off my insurance the day they fired me, a few hours before I was supposed to have my first dosage of
Tysabri
. Then I had to do the long twisted process of getting on Medicaid and eventually the free drug program after Medicaid denied me for
Tysabri
.
They cut off my insurance the day they fired me, a few hours before I was supposed to have my first dosage of
Tysabri
. Then I had to do the long twisted process of getting on Medicaid and eventually the free drug program after Medicaid denied me for
Tysabri
.
Sarah_Ann
in
My MSAA Community
8 years ago
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