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Actemra issues
Anyone else having issues with the Actemra (
Tocilizumab
) wearing off before the next infusion? I am finding that my infusions hold for around 3 weeks. Then the pain, stiffness and fatigue set in hard!
Anyone else having issues with the Actemra (
Tocilizumab
) wearing off before the next infusion? I am finding that my infusions hold for around 3 weeks. Then the pain, stiffness and fatigue set in hard!
dwsurquhart
in
NRAS
7 years ago
Whether to switch to Tocilizumab
Hi just hoping for some feedback on
Tocilizumab
( wish they came up with easier names 😀) RA active again after few years on Humira and they have asked me to consider this . Apart from Humira everything else causes me sickness so feedback on Side effects experienced most welcome. Thank you
Hi just hoping for some feedback on
Tocilizumab
( wish they came up with easier names 😀) RA active again after few years on Humira and they have asked me to consider this . Apart from Humira everything else causes me sickness so feedback on Side effects experienced most welcome. Thank you
Pennyjones1
in
NRAS
7 years ago
actemra
Food and Drug Administration (FDA) has accepted the company’s supplemental biologics license application (sBLA) for Actemra/RoActemra (
tocilizumab
) for the treatment of GCA, a chronic, potentially life-threatening autoimmune condition.
Food and Drug Administration (FDA) has accepted the company’s supplemental biologics license application (sBLA) for Actemra/RoActemra (
tocilizumab
) for the treatment of GCA, a chronic, potentially life-threatening autoimmune condition.
mamacline
in
PMRGCAuk
7 years ago
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A little about me
Currently being treated with
Tocilizumab
to bring CRP numbers down. Supposed to be <3, mine was 157. Weird stuff these biologics.
Currently being treated with
Tocilizumab
to bring CRP numbers down. Supposed to be <3, mine was 157. Weird stuff these biologics.
dwsurquhart
in
NRAS
7 years ago
Leeds research
I have been told that there was an article in the Mail on 21 st. on PMR GCA mentioning that
Tocilizumab
may be available in the near future, I have yet to look it up. We must be optimistic !
I have been told that there was an article in the Mail on 21 st. on PMR GCA mentioning that
Tocilizumab
may be available in the near future, I have yet to look it up. We must be optimistic !
Mourneriver
in
PMRGCAuk
7 years ago
Giving Up
I am on monthly infusions of
Tocilizumab
at half the usual dose due to neutropenic. I take morphine for pain along with the usual concoction to treat RA & I'm really down at the minute & wondering what's the point🤐.....
I am on monthly infusions of
Tocilizumab
at half the usual dose due to neutropenic. I take morphine for pain along with the usual concoction to treat RA & I'm really down at the minute & wondering what's the point🤐.....
donnalouisec
in
NRAS
7 years ago
Breakthrough Treatment for Rheumatics
Am new to the site, but just noticed an article in the Mail on Sunday which advises that a common arthritis drug is effective in treating GCA and PMR without the side effects of steroids - the drug is
tocilizumab
.
Am new to the site, but just noticed an article in the Mail on Sunday which advises that a common arthritis drug is effective in treating GCA and PMR without the side effects of steroids - the drug is
tocilizumab
.
Joan217
in
PMRGCAuk
7 years ago
Tocilizumab , injections or infusions?
Happy Wednesday fellow RA warriors. I am self injecting but the results are not fantastic after 6months. No side effects and I am feeling a bit better but my hands and feet are really swollen and painful by evening. Does anyone know if infusions are more effective for a Sero negative RA sufferer? Thanks
Happy Wednesday fellow RA warriors. I am self injecting but the results are not fantastic after 6months. No side effects and I am feeling a bit better but my hands and feet are really swollen and painful by evening. Does anyone know if infusions are more effective for a Sero negative RA sufferer? Thanks
LesBev
in
NRAS
8 years ago
Decision looming
If anyone's on
Tocilizumab
and had good results, I could use a little encouragement! Thanks for reading. S.
If anyone's on
Tocilizumab
and had good results, I could use a little encouragement! Thanks for reading. S.
scotslass333
in
NRAS
8 years ago
Tocilizumab and Giant Cell Arteritis
John Mills on behalf of VUK is Interested in hearing about the experiences of anyone who has been treated with
Tocilizumab
for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation. Please contact John.mills@vasculitis.org.uk
John Mills on behalf of VUK is Interested in hearing about the experiences of anyone who has been treated with
Tocilizumab
for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation. Please contact John.mills@vasculitis.org.uk
Suzym2u
in
PMRGCAuk
8 years ago
Tocilizumab for Giant Cell Arteritis (Temporal Arteritis)
John Mills on behalf of VUK are interested in hearing about the experiences of anyone who has been treated with
Tocilizumab
for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation.
John Mills on behalf of VUK are interested in hearing about the experiences of anyone who has been treated with
Tocilizumab
for treating GCA. (Good or Bad) NICE are doing an appraisal of this drug and VUK have been invited to take part in the consultation.
Suzym2u
Vasculitis UK
in
Vasculitis UK
8 years ago
The start of something?...
I have been on a cocktail of medication, as I have been resistant to most of them, including several biologics and I have recently been put on
Tocilizumab
as a last attempt to find something to calm my symptoms.
I have been on a cocktail of medication, as I have been resistant to most of them, including several biologics and I have recently been put on
Tocilizumab
as a last attempt to find something to calm my symptoms.
Suki1088
in
NRAS
8 years ago
Tocilizumab for GCA
Someone has just posted on the patient.info forum that on October 4th 2016
tocilizumab
(Actrema) was approved by the FDA in the USA for use in GCA. I imagine it will be a while before it is approved in the UK - but it is on its way!!
Someone has just posted on the patient.info forum that on October 4th 2016
tocilizumab
(Actrema) was approved by the FDA in the USA for use in GCA. I imagine it will be a while before it is approved in the UK - but it is on its way!!
PMRpro
Ambassador
in
PMRGCAuk
8 years ago
Downward Spiral
Called
Tocilizumab
; after the first infusion no after effects. Three days after the second one I was right back to square one, the pain is dreadful. This was explained to the consultant before my third infusion and I was given a steroid injection.
Called
Tocilizumab
; after the first infusion no after effects. Three days after the second one I was right back to square one, the pain is dreadful. This was explained to the consultant before my third infusion and I was given a steroid injection.
michaelegan
in
NRAS
8 years ago
Tocilizumab and weight gain
Has anyone else experienced Wright gain while on
tocilizumab
?
Has anyone else experienced Wright gain while on
tocilizumab
?
ruth_p
in
NRAS
8 years ago
Tocilizumab and travel
Anybody know of anything else I can use which will keep
tocilizumab
cold enough or will I have to leave my injections at home or just no fly anymore.
Anybody know of anything else I can use which will keep
tocilizumab
cold enough or will I have to leave my injections at home or just no fly anymore.
Ozzy
in
NRAS
8 years ago
GCA and lefumomide
Dasgupta about me having
Tocilizumab
although it is not yet licensed for GCA. Well I guess I made some progress and at least I know what to do next. I have had so many problems getting anyone to answer my questions.
Dasgupta about me having
Tocilizumab
although it is not yet licensed for GCA. Well I guess I made some progress and at least I know what to do next. I have had so many problems getting anyone to answer my questions.
christine2715
in
PMRGCAuk
8 years ago
tocilizumab for gpa?
hi all, my wife was diagnosed with gpa almost five years ago which seems to be rumbling on and has been refused funding for rituximab but has been told she can have
tocilizumab
. have any of you had treatment with this drug for small and medium vessel vasculitis and with what results as most of the
hi all, my wife was diagnosed with gpa almost five years ago which seems to be rumbling on and has been refused funding for rituximab but has been told she can have
tocilizumab
. have any of you had treatment with this drug for small and medium vessel vasculitis and with what results as most of the
roobub
in
Vasculitis UK
8 years ago
Biologics on holiday
Mine are weekly injections of
Tocilizumab
and I don't want to miss my holidays! Thanks, Lesley
Mine are weekly injections of
Tocilizumab
and I don't want to miss my holidays! Thanks, Lesley
LesBev
in
NRAS
8 years ago
Continuing to improve
Last week I posted about the amazing turnaround in my RA since straring
Tocilizumab
nearly two weeks ago. This past week I have managed to cycle to Troon from my home in Prestwick which was a 9 mile round trip in absoulutely glorious weather.
Last week I posted about the amazing turnaround in my RA since straring
Tocilizumab
nearly two weeks ago. This past week I have managed to cycle to Troon from my home in Prestwick which was a 9 mile round trip in absoulutely glorious weather.
Chezis21
in
NRAS
8 years ago
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