Diagnosed with PMR 8 years ago and stabilised with Prednisolone what joy!. With the passage of time and constant flares I was subsequently diagnosed with osteoarthritis and then rheumatoid arthritis if that is not enough I have osteoporosis and AF.
The pain I am experiencing is getting progressively worse and affects neck, shoulders wrists and thumbs.
I have been treated with a host of different drugs sulfthalazine, methrotrexate, enbral.
Recently prescribed an infusion monthly. Called Tocilizumab; after the first infusion no after effects. Three days after the second one I was right back to square one, the pain is dreadful. This was explained to the consultant before my third infusion and I was given a steroid injection.
The pain has continued unabated in spite of the injection and is intensifying by the day.
I wrote to the consultant a week ago and have not had a response. I had hoped to have had a phone call with the purpose of reviewing my treatment?
So far as pain management is concerned I am taking Paracetamol 2 four times a day. Tramadol was tried but made me sleep all the time. Amitriptyline set my AF off.
So that's my story.
I stay as active as I can but certain things are dreaded; dressing in the mornings; Lifting or reaching above shoulder level, towelling after a shower; donning/ removing coats going out/coming home.
I know there are people a lot worse than me but I am fiercely independent and just want the progress of the disease to be brought under control and pain managed in a way that makes it tolerable