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My Allergist/Pulmonologist is not taking my Bronchiectasis seriously.
I have been given Trelegy Elipta inhaler, nothing more, and told that my Broncheictiasis is mild so not to worry about it and dismissed. I am to short of breath to go up our stairs to do laundry, and even walking at a brisk pace is impossible anymore. I have read about therapy for this condition, but
I have been given Trelegy Elipta inhaler, nothing more, and told that my Broncheictiasis is mild so not to worry about it and dismissed. I am to short of breath to go up our stairs to do laundry, and even walking at a brisk pace is impossible anymore. I have read about therapy for this condition, but
BabaBunny2
in
Bronchiectasis Support
6 years ago
Ongoing fatigue post chest infection
Just need some advice please. I was admitted to hospital after 3 weeks of having a chest infection, hacking cough and feeling poorly. I had 6 days of IV antibiotics and nebulisers. I underwent various investigations such as CT Scan of my lungs to rule out a ‘flare up’ of my Vasculitis and saw the ENT
Just need some advice please. I was admitted to hospital after 3 weeks of having a chest infection, hacking cough and feeling poorly. I had 6 days of IV antibiotics and nebulisers. I underwent various investigations such as CT Scan of my lungs to rule out a ‘flare up’ of my Vasculitis and saw the ENT
Essex-jill
in
Vasculitis UK
6 years ago
Snowed in with Asthma flare up.
My asthma with its amazingly good timing as always has decided to flare up badly now that I am stuck at home behind half a mile of snowdrifts between me and the car. The road to the doctors or to hospital is blocked with drifts in both directions. I’m ok for now, had a really rough night sat up not
My asthma with its amazingly good timing as always has decided to flare up badly now that I am stuck at home behind half a mile of snowdrifts between me and the car. The road to the doctors or to hospital is blocked with drifts in both directions. I’m ok for now, had a really rough night sat up not
Emily-G
in
Asthma Community Forum
6 years ago
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Asthma ruling my life
I'm so sorry about this post but I needed to rant I have brittle asthma and have had so many issues over the winter I was admitted to hospital on Friday and was discharged yesterday afternoon and two weeks before that I had was in hospital with the same problem asthma and I was also in A&E on Boxing
I'm so sorry about this post but I needed to rant I have brittle asthma and have had so many issues over the winter I was admitted to hospital on Friday and was discharged yesterday afternoon and two weeks before that I had was in hospital with the same problem asthma and I was also in A&E on Boxing
Erin001
in
Asthma Community Forum
6 years ago
Home Nebuliser
Hello I'm a brittle asthmatic and I've been hospital and needed more nebulisers this last year than ever before and I am now starting to question whether a home neb would be any good? Whether you use one or not please give me your opinion on using them at home Thx in advance for your advice x
Hello I'm a brittle asthmatic and I've been hospital and needed more nebulisers this last year than ever before and I am now starting to question whether a home neb would be any good? Whether you use one or not please give me your opinion on using them at home Thx in advance for your advice x
Erin001
in
Asthma Community Forum
6 years ago
Nebuliser for Emphysema
I have Emphysema and my Doctor and Consultant have mentioned do I have a nebuliser. I don't have one so told to take 4 puffs off Ventolin before II get up. I have seen many different nebulisers for sale anyone recommend any. Also can you get one from NHS for free? What do I put in nebuliser?
I have Emphysema and my Doctor and Consultant have mentioned do I have a nebuliser. I don't have one so told to take 4 puffs off Ventolin before II get up. I have seen many different nebulisers for sale anyone recommend any. Also can you get one from NHS for free? What do I put in nebuliser?
andyput
in
Lung Conditions Community Forum
6 years ago
Anyone else struggling
I love the snow because it means I don't have to go to college but it hasn't been good on my lungs though I'm a brittle asthmatic and the dramatic changes in the weather has definitely made this week hard I had paramedics out last night for nebuliser and wasn't taken to hospital because I didn't feel
I love the snow because it means I don't have to go to college but it hasn't been good on my lungs though I'm a brittle asthmatic and the dramatic changes in the weather has definitely made this week hard I had paramedics out last night for nebuliser and wasn't taken to hospital because I didn't feel
Erin001
in
Lung Conditions Community Forum
6 years ago
Has anyone seen GMB?
I've just been watching Good Morning Britain and there was a really sad story of a little girl who was sent home by her GP because she was a few minutes late to an emergency appointment and she died. It's ridiculous she was obviously needing to be seen A couple of weeks ago I went to the GP after
I've just been watching Good Morning Britain and there was a really sad story of a little girl who was sent home by her GP because she was a few minutes late to an emergency appointment and she died. It's ridiculous she was obviously needing to be seen A couple of weeks ago I went to the GP after
Erin001
in
Asthma Community Forum
6 years ago
Went to er last nite.
I had a racing heart and sob after doing duo nebs and could barely talk. The oxygen in the ambulance helped and calmed it down a lot. My chest xray and ct scan were fine. The er doctor just thought tachycardia and that it was tachycardia and albuterol that made it go out of control. However, i read
I had a racing heart and sob after doing duo nebs and could barely talk. The oxygen in the ambulance helped and calmed it down a lot. My chest xray and ct scan were fine. The er doctor just thought tachycardia and that it was tachycardia and albuterol that made it go out of control. However, i read
Patish6
in
Lung Conditions Community Forum
6 years ago
Brittle Asthma ecacerbation
Hi folks, I have had asthma on and off in cycles since I was 7yrs old. Recently my asthma has become a lot worse and was told I had brittle asthma. Most of the time I can control it with my meds but very so often it just hits me and I am floored an need to attend A&E to go on nebs. I am suffering at
Hi folks, I have had asthma on and off in cycles since I was 7yrs old. Recently my asthma has become a lot worse and was told I had brittle asthma. Most of the time I can control it with my meds but very so often it just hits me and I am floored an need to attend A&E to go on nebs. I am suffering at
Kel8778
in
Asthma Community Forum
6 years ago
Travel help (taking meds to US)
Hi, I’ve ducked in looking for advice regarding taking some medication to Florida (changing in Texas en route). My 10 yo has fairly severe CF, and as there’s no community on here just for that, I figured you lovely people on the BLF might be the best people to ask. Although I used to be a seasoned traveller
Hi, I’ve ducked in looking for advice regarding taking some medication to Florida (changing in Texas en route). My 10 yo has fairly severe CF, and as there’s no community on here just for that, I figured you lovely people on the BLF might be the best people to ask. Although I used to be a seasoned traveller
Hidden
in
Lung Conditions Community Forum
6 years ago
Deciding whether to go in or not...
So it’s is the magic 6 weeks since my last admission and thinks are starting to go down hill again! I and slowly getting more shirt if breath and tight but an not overly wheezy ( but that is not unusually). However I had a bit of a disagreement with my consultant last time I was in and have not seen
So it’s is the magic 6 weeks since my last admission and thinks are starting to go down hill again! I and slowly getting more shirt if breath and tight but an not overly wheezy ( but that is not unusually). However I had a bit of a disagreement with my consultant last time I was in and have not seen
Kashwi1
in
Asthma Community Forum
6 years ago
Hot hands on occasion
I had this for the past 10 years, it doesn't happen all the time. My wife said it was the gift Jesus gave me when someone needed healing, because her issue went away when my hands got hot and I prayed for her. Maybe so but my hands don't heat up all the time, sometimes in the morning when I wake and
I had this for the past 10 years, it doesn't happen all the time. My wife said it was the gift Jesus gave me when someone needed healing, because her issue went away when my hands got hot and I prayed for her. Maybe so but my hands don't heat up all the time, sometimes in the morning when I wake and
FlyJesus58
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Bronchiectasis - Feeling of Sticking or trapping of Cough in Lungs & heavy chest , 2 months after Chest Infections
I have been diagnosed with Bilateral Bronchial walls thickening and mild Bronchiectasis in my both lower lobes. Accordingly, I had severe chest infections in January and after taking the antibiotics treatments, serious coughing has gone but still 2 months after chest infections, I had lots of feeling
I have been diagnosed with Bilateral Bronchial walls thickening and mild Bronchiectasis in my both lower lobes. Accordingly, I had severe chest infections in January and after taking the antibiotics treatments, serious coughing has gone but still 2 months after chest infections, I had lots of feeling
enm1sg
in
Lung Conditions Community Forum
6 years ago
Portable nebulizer
Sorry if this is posted twice ,can anyone advise me on portable nebulizer s as they seem to differ in price are the cheaper ones not as powerful ,i don't want to buy the wrong one and waste my money as these are non returnable thank you
Sorry if this is posted twice ,can anyone advise me on portable nebulizer s as they seem to differ in price are the cheaper ones not as powerful ,i don't want to buy the wrong one and waste my money as these are non returnable thank you
Me1953
in
Lung Conditions Community Forum
6 years ago
P-ANCA & ANTI GBM (GOODPASTURE S)
P-ANCA AND ANTI-GBM (GOODPASTURES) I got sick end of March 2017, 2 days after my first XOLAIR shot. Docs thought i had pneumonia for 4 months, 100% right lung-75% left lung, no hospital ir bloodwork, just meds and nebulizer. Another Doc finally did bloodwork, I ended up in ICU for 15 days: eGFR 10,
P-ANCA AND ANTI-GBM (GOODPASTURES) I got sick end of March 2017, 2 days after my first XOLAIR shot. Docs thought i had pneumonia for 4 months, 100% right lung-75% left lung, no hospital ir bloodwork, just meds and nebulizer. Another Doc finally did bloodwork, I ended up in ICU for 15 days: eGFR 10,
macarena1
in
Kidney Disease
6 years ago
ANCA AND GOODPASTURE VASCULITIS
I got sick end of March 2017, 2 days after my first XOLAIR shot. Docs thought i had pneumonia for 4 months, 100% right lung-75% left lung, no hospital ir bloodwork, just meds and nebulizer. Another Doc finally did bloodwork, I ended up in ICU for 15 days: eGFR 10, Creatinine 4.75. Lungs and kidneys
I got sick end of March 2017, 2 days after my first XOLAIR shot. Docs thought i had pneumonia for 4 months, 100% right lung-75% left lung, no hospital ir bloodwork, just meds and nebulizer. Another Doc finally did bloodwork, I ended up in ICU for 15 days: eGFR 10, Creatinine 4.75. Lungs and kidneys
macarena1
in
Thyroid UK
6 years ago
Liquid medications
Thanks everyone for the replies to my post very useful. I've rang my GP and they are going to write a letter explaining about the nebuliser and the liquid medication I am also taking a prescription with me to the airport so hopefully all will be ok ..
Thanks everyone for the replies to my post very useful. I've rang my GP and they are going to write a letter explaining about the nebuliser and the liquid medication I am also taking a prescription with me to the airport so hopefully all will be ok ..
karens66
in
Asthma Community Forum
6 years ago
Liquid medication when flying
Firstly thank you everyone for for your replies to my post on portable nebuliser I think I will be getting the omron as I am new to all this nebuliser stuff can I ask what is the best way of taking the liquid ventolin in my hand luggage I rang Ryanair and I have a medical waiver letter for my main nebuliser
Firstly thank you everyone for for your replies to my post on portable nebuliser I think I will be getting the omron as I am new to all this nebuliser stuff can I ask what is the best way of taking the liquid ventolin in my hand luggage I rang Ryanair and I have a medical waiver letter for my main nebuliser
karens66
in
Asthma Community Forum
6 years ago
Worst night ever!
Hi everyone, Well after feeling breathless and tight chested for a few days i finally relented and phoned 111. I was directed to my out of hours and by the time i got there i was struggling to speak... Well suprise suprise i got told no wheeze im fine, but made me go to a n e because i was shaking! Tried
Hi everyone, Well after feeling breathless and tight chested for a few days i finally relented and phoned 111. I was directed to my out of hours and by the time i got there i was struggling to speak... Well suprise suprise i got told no wheeze im fine, but made me go to a n e because i was shaking! Tried
Melanie1989
in
Asthma Community Forum
6 years ago
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