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Tildiem Retard
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Sinemet vs. Rytary
Does anyone have experience with these? How does Sinemet perform vs. Rotary. Which do you prefer and why. My neurologist recommended the latter, but I'm not so sure that's the best choice. Would love your opinions.
Does anyone have experience with these? How does Sinemet perform vs. Rotary. Which do you prefer and why. My neurologist recommended the latter, but I'm not so sure that's the best choice. Would love your opinions.
JimmyA1974
in
Cure Parkinson's
1 year ago
Diabetes, A1C level 6.1, RYTARY re: to kindey disease???
My A1C is 6.1, i have read articles diabetes and PD are inter twined? ALong with kidney function?
My A1C is 6.1, i have read articles diabetes and PD are inter twined? ALong with kidney function?
cjCardio53
in
Cure Parkinson's
1 year ago
Rytary update
I may be getting close to going back to regular C/L . Rytary does give me longer ON times, which allow me to eat three times per day. I had lost 20 lbs last year, and had been able to slow the weight loss, but not stop it entirely. Now I’ve gained a couple of pounds. BUT. I had finally stabilized
I may be getting close to going back to regular C/L . Rytary does give me longer ON times, which allow me to eat three times per day. I had lost 20 lbs last year, and had been able to slow the weight loss, but not stop it entirely. Now I’ve gained a couple of pounds. BUT. I had finally stabilized
rebtar
in
Cure Parkinson's
1 year ago
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Rytary… might stop??
After 6 days the following impressions… I do get about an hour longer ON per dose. I was on a four hour cycle with IR, with about 2-3.5 ON per dose, depending on food. Rytary gives me 4 hour ON on a 5 hour dose cycle, BUT, the afternoon slump around 3 pm (halfway between doses, but when endogenous
After 6 days the following impressions… I do get about an hour longer ON per dose. I was on a four hour cycle with IR, with about 2-3.5 ON per dose, depending on food. Rytary gives me 4 hour ON on a 5 hour dose cycle, BUT, the afternoon slump around 3 pm (halfway between doses, but when endogenous
rebtar
in
Cure Parkinson's
1 year ago
Rytary switching, tips from your success?
My MDS has recommended switching to Rytary. She says "most" people do better on Rytary. I have been taking one 25/100 immediate release and one 25/100 Continuous release generic C/L at 8, 12, 3:30-4ish and 7:30ish. I also have added citicoline. I get wearing off at about the 3-3.5 hour mark, and I do
My MDS has recommended switching to Rytary. She says "most" people do better on Rytary. I have been taking one 25/100 immediate release and one 25/100 Continuous release generic C/L at 8, 12, 3:30-4ish and 7:30ish. I also have added citicoline. I get wearing off at about the 3-3.5 hour mark, and I do
rebtar
in
Cure Parkinson's
1 year ago
Medication cocktail
My heart attack was in October, 4 stents inserted & now on the following cocktail of prescribed medications: Aspirin, Atorvastatin, Lansoprazole 30mg, Ramipril 25mg, Prasugrel 10mg, Nicorandil 20mg & Tildiem 300mg. Was wondering if anyone has found any side effects from any of the above medication.
My heart attack was in October, 4 stents inserted & now on the following cocktail of prescribed medications: Aspirin, Atorvastatin, Lansoprazole 30mg, Ramipril 25mg, Prasugrel 10mg, Nicorandil 20mg & Tildiem 300mg. Was wondering if anyone has found any side effects from any of the above medication.
Blindheart
in
British Heart Foundation
1 year ago
Rytary and Deep Brain Stimulation
my husband has been taking Rytary for a year. We noticed his veins get large and tingle which he says at time hurts. It gives him a terrible headache more then the the plain C/L. The Dr wants him to consider DBS now . He said it has benefits but won’t last forever then back to square one. He doesn’
my husband has been taking Rytary for a year. We noticed his veins get large and tingle which he says at time hurts. It gives him a terrible headache more then the the plain C/L. The Dr wants him to consider DBS now . He said it has benefits but won’t last forever then back to square one. He doesn’
Blueyedgirlky
in
Cure Parkinson's
1 year ago
Rytary
1 -25/100 and 145 mg Rytary helps with off time when I run out of dopamine, I have to sit down and wait for pills to kick in, but the Rytary helps with that now, but I’m very stiff and achy in leg and arm since on Rytary, anyone else experiencing stiffness with Rytary? I wish these meds didn’t have
1 -25/100 and 145 mg Rytary helps with off time when I run out of dopamine, I have to sit down and wait for pills to kick in, but the Rytary helps with that now, but I’m very stiff and achy in leg and arm since on Rytary, anyone else experiencing stiffness with Rytary? I wish these meds didn’t have
akgirlsrock
in
Cure Parkinson's
1 year ago
Starting on Flecainide
My history is that I was first diagnosed with AF in A & E in the early hours of the morning in November 2021 after a very hot curry and half a bottle of wine. I was prescribed anti coagulants and beta blockers. I had a brief reoccurrence in March 2022 but I went back into NSR as soon as they called
My history is that I was first diagnosed with AF in A & E in the early hours of the morning in November 2021 after a very hot curry and half a bottle of wine. I was prescribed anti coagulants and beta blockers. I had a brief reoccurrence in March 2022 but I went back into NSR as soon as they called
Sandych55
in
Atrial Fibrillation Support
1 year ago
Sweat every day
~1 year into my PD Recently I have started hanging around with my nephews (11 and 13) and am doing MUCH more exercise. My goal now is to sweat every day - from pickleball, hiking, running, etc. Results: much less stiffness, better sleep, occasionally skip 1 dose of Rytary at night since I don't
~1 year into my PD Recently I have started hanging around with my nephews (11 and 13) and am doing MUCH more exercise. My goal now is to sweat every day - from pickleball, hiking, running, etc. Results: much less stiffness, better sleep, occasionally skip 1 dose of Rytary at night since I don't
SanMateoPD
in
Cure Parkinson's
1 year ago
Is the Parkinson's honeymoon over for me?
History: I am 69, female, diagnosed in 2015,7 months after suicide of my soulmate (we were together33 years). More than one neuro has agreed that the PD was triggered by the emotional trauma. I was a dancer and a cyclist and worked out for many years prior to PD. On Rytary 145’s 2 at 7am, 2 at 11am
History: I am 69, female, diagnosed in 2015,7 months after suicide of my soulmate (we were together33 years). More than one neuro has agreed that the PD was triggered by the emotional trauma. I was a dancer and a cyclist and worked out for many years prior to PD. On Rytary 145’s 2 at 7am, 2 at 11am
Jmellano
in
Cure Parkinson's
1 year ago
rytary
Does anyone take Rytary around the clock. My dr told me to play with it to figure out what works best. I know this is an unusual dosage, but to prevent dyskinesia I take one 195 every three hours until eight pm, after that very little sleep until my next dose at 5 am. Now that doesn’t appear to be
Does anyone take Rytary around the clock. My dr told me to play with it to figure out what works best. I know this is an unusual dosage, but to prevent dyskinesia I take one 195 every three hours until eight pm, after that very little sleep until my next dose at 5 am. Now that doesn’t appear to be
Ep0522
in
Cure Parkinson's
1 year ago
Extreme stomach issues
Anyone else suffering stomach issues with medications? I’m currently on: Prasugral Ramipril Atorvastatin Asprin 75mg Tildiem Lansoprazole Mebeveerine And also cocodamol if the angina attacks; Currently very much constipated and extreme flatulence. Taking prunes daily in my porridge and loads
Anyone else suffering stomach issues with medications? I’m currently on: Prasugral Ramipril Atorvastatin Asprin 75mg Tildiem Lansoprazole Mebeveerine And also cocodamol if the angina attacks; Currently very much constipated and extreme flatulence. Taking prunes daily in my porridge and loads
Blindheart
in
British Heart Foundation
1 year ago
My visit to a new MDS
I had a great 1st visit with a new MDS last week. To be honest, I wasn’t expecting much. To be honest, I am very pleased! The visit lasted over 3 hours one on one. He told me I have no symptoms of MSA or PSP, so he recommended against a DAtScan. He conducted a cognitive exam, found no evidence of
I had a great 1st visit with a new MDS last week. To be honest, I wasn’t expecting much. To be honest, I am very pleased! The visit lasted over 3 hours one on one. He told me I have no symptoms of MSA or PSP, so he recommended against a DAtScan. He conducted a cognitive exam, found no evidence of
House2
in
Cure Parkinson's
1 year ago
No Longer Have PD.
On 13 FEB 2023, i was re-diagnosed. I no longer have PD. Instead, I have PLS (Primary Lateral Sclerosis. The end game is still the same but so far the muscle tighness has gotten better. Since the diagnosis, i have weaned myself from Rytary and have been prescribed Baclofen. The symptoms of PLS have
On 13 FEB 2023, i was re-diagnosed. I no longer have PD. Instead, I have PLS (Primary Lateral Sclerosis. The end game is still the same but so far the muscle tighness has gotten better. Since the diagnosis, i have weaned myself from Rytary and have been prescribed Baclofen. The symptoms of PLS have
billPD
in
Cure Parkinson's
1 year ago
Heart spasms
I have coronary heart and microvasular desease. I endured 15 minutes of sharp stabbing pains in the left side of my heart. I have been prescribed ranolazine and tildiem, but spasms are spontaneous and very scary and not with exertion. took my spray and it calmed down. I have not been told what causes
I have coronary heart and microvasular desease. I endured 15 minutes of sharp stabbing pains in the left side of my heart. I have been prescribed ranolazine and tildiem, but spasms are spontaneous and very scary and not with exertion. took my spray and it calmed down. I have not been told what causes
siennfaith
in
British Heart Foundation
2 years ago
Lewy body disease
So my hwp had his new neurology appt. with UCSD today and she said she didn't think he has Parkinsons. So they are doing testing - brain MRI, Neuro testing, heart test, Neuro urology appt. etc. My guess is to confirm LBD which has been my fear all along. He was diagnosed in 2019 with "Parkinson's
So my hwp had his new neurology appt. with UCSD today and she said she didn't think he has Parkinsons. So they are doing testing - brain MRI, Neuro testing, heart test, Neuro urology appt. etc. My guess is to confirm LBD which has been my fear all along. He was diagnosed in 2019 with "Parkinson's
slimweiss
in
Cure Parkinson's
1 year ago
Rytary and new side effect
my husband has been on Rytary for several months. He has noticed shortly after that when the medication begins to work his veins in his arms are noticeably visible and his hair on his arms stand up. Anyone else notice this?
my husband has been on Rytary for several months. He has noticed shortly after that when the medication begins to work his veins in his arms are noticeably visible and his hair on his arms stand up. Anyone else notice this?
Blueyedgirlky
in
Cure Parkinson's
1 year ago
Constipation
Hi, it's been 6 weeks after my heart attack, and having 4 stents inserted. I am currently on Aspirin, Atorvastatin, Lansoprazole, Prasugrel, Ramipril, Melatonin, Tildiem and Diltiazem. I am experiencing severe constipation, despite taking multiple laxative drinks. Is this a normal side effect & if
Hi, it's been 6 weeks after my heart attack, and having 4 stents inserted. I am currently on Aspirin, Atorvastatin, Lansoprazole, Prasugrel, Ramipril, Melatonin, Tildiem and Diltiazem. I am experiencing severe constipation, despite taking multiple laxative drinks. Is this a normal side effect & if
Blindheart
in
British Heart Foundation
2 years ago
Lots of OFF and Food interference
I've been losing weight, hard to eat enough to maintain. OFF interferes a lot with both eating and exercise. I've been offered to consider Entacapone, Neupro patch, Apomorphine sublingual, Rytary. All have pros and cons. I don't want to add to anticholinergic load, so as I understand, that leaves either
I've been losing weight, hard to eat enough to maintain. OFF interferes a lot with both eating and exercise. I've been offered to consider Entacapone, Neupro patch, Apomorphine sublingual, Rytary. All have pros and cons. I don't want to add to anticholinergic load, so as I understand, that leaves either
rebtar
in
Cure Parkinson's
1 year ago
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