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Epithelial Haemangiendothelioma - has anyone else been diagnosed with this rare cancer please?
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
alipali
in
CLL Support
4 months ago
Friend in need of help
A very close friend (82 years old) was admitted to the hospital on New Years eve with severe back and Chess pain. After tests, scans, MRI and blood tests he was diagnosed as follow: PSA 3882 up from 7.6 the prior year. stage 4 prostate CANCER (T3/T4) that has metastasized to his spine, lesions
A very close friend (82 years old) was admitted to the hospital on New Years eve with severe back and Chess pain. After tests, scans, MRI and blood tests he was diagnosed as follow: PSA 3882 up from 7.6 the prior year. stage 4 prostate CANCER (T3/T4) that has metastasized to his spine, lesions
old64horn
in
Advanced Prostate Cancer
6 months ago
Divergent second opinion
My husband was recently diagnosed with PCa with 6-7 mets to the bones as seen on the PSMA Pet scan (see profile for details), The first MO we met at an NCCN center recommended triplet therapy. He has started Firmagon + Darulotomide with Docetaxel planned in the coming weeks. We also got a second opinion
My husband was recently diagnosed with PCa with 6-7 mets to the bones as seen on the PSMA Pet scan (see profile for details), The first MO we met at an NCCN center recommended triplet therapy. He has started Firmagon + Darulotomide with Docetaxel planned in the coming weeks. We also got a second opinion
Cali3
in
Advanced Prostate Cancer
6 months ago
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PC no longer castrate resistant
Hello all, my latest pet/ct scan indicates my PC is no longer castrate resistant as there is new disease growth in my lungs. Largest lesion is 2.5 centimeters. I'm no longer taking xtandi, so it can be "washed out" of my system prior to new treatment, however I'm still getting quarterly lupron shots
Hello all, my latest pet/ct scan indicates my PC is no longer castrate resistant as there is new disease growth in my lungs. Largest lesion is 2.5 centimeters. I'm no longer taking xtandi, so it can be "washed out" of my system prior to new treatment, however I'm still getting quarterly lupron shots
brokenyoyo
in
Advanced Prostate Cancer
6 months ago
PSA Rising
Asking for a friend of my father this time. He had surgery in december 2022 and everything was removed including glands. Gleason 4+5. His PSA has risen från 0.1 to 0.14 in 12 months. His doctor says to do nothing until it hits 0.2. But shouldn’t he do more? Maybe he doesn’t have advanced cancer yet.
Asking for a friend of my father this time. He had surgery in december 2022 and everything was removed including glands. Gleason 4+5. His PSA has risen från 0.1 to 0.14 in 12 months. His doctor says to do nothing until it hits 0.2. But shouldn’t he do more? Maybe he doesn’t have advanced cancer yet.
TheTopBanana
in
Advanced Prostate Cancer
6 months ago
I am so affraid :(
I dont know what to do 09.01 is coming so slow,,, new chemo treatment after 3 month off during DVT and covid and so on… mom is vomiting aprox 2 month…start with 1-2 times a week now after every food… CT done no obstructions.. we were affraid that because of vomiting her hemoglobin will be very low..
I dont know what to do 09.01 is coming so slow,,, new chemo treatment after 3 month off during DVT and covid and so on… mom is vomiting aprox 2 month…start with 1-2 times a week now after every food… CT done no obstructions.. we were affraid that because of vomiting her hemoglobin will be very low..
Inguc_is
in
My Ovacome
6 months ago
Another Xray but why ?
Hi all. I haven't been here for quite a long time so I hope that you are all coping and getting all the help and support you need. This forum helped me so much. Unfortunately, I now have multiple problems because of the lung misdiagnosis and because of negligence by our hospital. Another long story
Hi all. I haven't been here for quite a long time so I hope that you are all coping and getting all the help and support you need. This forum helped me so much. Unfortunately, I now have multiple problems because of the lung misdiagnosis and because of negligence by our hospital. Another long story
Danni54
in
Lung Cancer Support
6 months ago
accidental overdose of thyroxine
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
Tjqui00
in
Thyroid UK
6 months ago
MSK Consult Today
Thanks to everyone who has given me excellent advice regarding my husband’s pca recurrence. Today we met with an MSK uro oncologist for a second opinion. He completely agreed and supported the plan of radiating the high pelvic nodes (including the lower abdominal nodes along the bifurcation) and slightly
Thanks to everyone who has given me excellent advice regarding my husband’s pca recurrence. Today we met with an MSK uro oncologist for a second opinion. He completely agreed and supported the plan of radiating the high pelvic nodes (including the lower abdominal nodes along the bifurcation) and slightly
103532
in
Advanced Prostate Cancer
6 months ago
No benefit of chemo for ER+HER2- invasive lobular beyond estrogen therapy
Just found this in the digest I get of medical journal articles (MD Edge): Women with estrogen receptor (ER)–positive, human epidermal growth factor receptor 2 (HER2)–negative invasive lobular carcinoma who are treated with endocrine therapy do not derive any additional survival benefit from neoadjuvant
Just found this in the digest I get of medical journal articles (MD Edge): Women with estrogen receptor (ER)–positive, human epidermal growth factor receptor 2 (HER2)–negative invasive lobular carcinoma who are treated with endocrine therapy do not derive any additional survival benefit from neoadjuvant
TammyCross
in
SHARE Metastatic Breast Cancer
6 months ago
1 Year out Radiation treatment
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
rickyfish56
in
Advanced Prostate Cancer
6 months ago
FDA Clearance of IND Application for FK-PC101, a Novel Personalized Cancer Immunotherapy for Prostate Cancer
FK-PC101, another step in the right direction it seems! https://www.prnewswire.com/news-releases/cellvax-therapeutics-announces-fda-clearance-of-ind-application-for-fk-pc101-a-novel-personalized-cancer-immunotherapy-302046986.html
FK-PC101, another step in the right direction it seems! https://www.prnewswire.com/news-releases/cellvax-therapeutics-announces-fda-clearance-of-ind-application-for-fk-pc101-a-novel-personalized-cancer-immunotherapy-302046986.html
Maxone73
in
Advanced Prostate Cancer
4 months ago
panicking!
Hi, My husband was diagnosed over 10 years ago with Prostate cancer with PSA 18 and Gleeson 4+3. He was never offered prostatectomy as they said there was a small metastases on the pelvis. So he had 2 weeks of radiation on his hip, and was then treated with 6 monthly injections of Decapeptyl, which
Hi, My husband was diagnosed over 10 years ago with Prostate cancer with PSA 18 and Gleeson 4+3. He was never offered prostatectomy as they said there was a small metastases on the pelvis. So he had 2 weeks of radiation on his hip, and was then treated with 6 monthly injections of Decapeptyl, which
Hidden
in
Advanced Prostate Cancer
6 months ago
Do I need an Oncologist?
Originally had PSA test that came back 28+ and was referred to Urologist. I was not interested in Surgery so the Urologist referred me to a Radiation Oncologist. After the radiation treatments were over I went back to the Urologist to continue the Lupron treatments. My last visit with the Radiation Team
Originally had PSA test that came back 28+ and was referred to Urologist. I was not interested in Surgery so the Urologist referred me to a Radiation Oncologist. After the radiation treatments were over I went back to the Urologist to continue the Lupron treatments. My last visit with the Radiation Team
johnson2691
in
Advanced Prostate Cancer
6 months ago
Please Join Us! Tuesday January 9th, Gathering HOPE Community Social
Hello, Happy New Year! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, January 9th, at 5pm
Hello, Happy New Year! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, January 9th, at 5pm
Michelezeh
Partner
in
Lung Cancer Support
6 months ago
Next step..
Gleason 9, s/practice RP. PSA UP to 0.2 8 months later. PSMA showed 4 hot spots all in pelvis. Started on zytiga and lupron same time as radiation started. PSA has remained < 0.04 for 17 months now. Considering the aggressive nature of my cancer, should I insist on a scan even when PSA <0.04 or
Gleason 9, s/practice RP. PSA UP to 0.2 8 months later. PSMA showed 4 hot spots all in pelvis. Started on zytiga and lupron same time as radiation started. PSA has remained < 0.04 for 17 months now. Considering the aggressive nature of my cancer, should I insist on a scan even when PSA <0.04 or
rfgh20
in
Advanced Prostate Cancer
6 months ago
Barrigel is now preferred over "SpaceOAR" gel?
Consulted by video with the doctor who is supposed to install my SpaceOAR in preparation for my IMRT. His first words were "we don't use SpaceOAR gel anymore. We use Barrigel." He explains it has fewer side effects but the same radiation absorption characteristics. Here is what "UroToday" says:
Consulted by video with the doctor who is supposed to install my SpaceOAR in preparation for my IMRT. His first words were "we don't use SpaceOAR gel anymore. We use Barrigel." He explains it has fewer side effects but the same radiation absorption characteristics. Here is what "UroToday" says:
mababa
in
Advanced Prostate Cancer
4 months ago
PSA Rising and MRI Negative
My husband PSA has been rising after Prostatectomy. A recent PET Scan showed cancer cells in the Prostate bed, but the MRI didn't pick-up any disease. The Oncologist is checking labs, and will start my husband on HT.Question for the group. Why would PET scan pick-up cancer cells, and not the MRI?
My husband PSA has been rising after Prostatectomy. A recent PET Scan showed cancer cells in the Prostate bed, but the MRI didn't pick-up any disease. The Oncologist is checking labs, and will start my husband on HT.Question for the group. Why would PET scan pick-up cancer cells, and not the MRI?
Inquisitive_one
in
Advanced Prostate Cancer
6 months ago
Sudden increase of PSA...
My PSA numbers after 3 years of Lupron were steady at 0.2...then last month it went to 13....My oncologist has ordered tests but i am worried...Has anyone experienced a similar rise...?
My PSA numbers after 3 years of Lupron were steady at 0.2...then last month it went to 13....My oncologist has ordered tests but i am worried...Has anyone experienced a similar rise...?
Max24
in
Advanced Prostate Cancer
6 months ago
Cabazitaxel or Phase 1 drug trial
Never posted on here before but I have a dilemma? RP 2008, Bicalutimide 2008 until 2019, Enzalutamide 2019 - 2022, Zoladex 3 monthly implant 2019 ongoing. Phase 1 drug trial at Royal Marsden in London Jan 2023 - June 2023 (failed). Doxetaxel August 2023 - November 2023 - but gave up after 5 infusion
Never posted on here before but I have a dilemma? RP 2008, Bicalutimide 2008 until 2019, Enzalutamide 2019 - 2022, Zoladex 3 monthly implant 2019 ongoing. Phase 1 drug trial at Royal Marsden in London Jan 2023 - June 2023 (failed). Doxetaxel August 2023 - November 2023 - but gave up after 5 infusion
Petertanner
in
Advanced Prostate Cancer
6 months ago
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