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Sweet's syndrome
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Lessons from last Dr. appt: drug testing for kratom and a Suboxone issue
Hi, All. I went to a new doctor last week and she did a blood test which gave immediate results. Posters have mentioned being worried about kratom and drug testing…but she said there is no test for kratom...just wanted to pass that along. The Delta 8 gummies showed up, as did Suboxone. I learned another
Hi, All. I went to a new doctor last week and she did a blood test which gave immediate results. Posters have mentioned being worried about kratom and drug testing…but she said there is no test for kratom...just wanted to pass that along. The Delta 8 gummies showed up, as did Suboxone. I learned another
TeddiJ
in
Restless Legs Syndrome
2 years ago
Vaginal bleeding following bowel movement.
I have had a pessary ring in place, successfully for about 10 years. I am using vaginal oestrogen crem. Recently had a slightly difficult bowel movement bowel movement, after which I experienced slight vaginal bleeding. I will make an appointment with my GP, but wondered if anyone else had experienced
I have had a pessary ring in place, successfully for about 10 years. I am using vaginal oestrogen crem. Recently had a slightly difficult bowel movement bowel movement, after which I experienced slight vaginal bleeding. I will make an appointment with my GP, but wondered if anyone else had experienced
young-at-heart48
in
Pelvic Pain Support Network
2 years ago
Sleep cocktail regimen for rls?,
Hello everyone, For the past few weeks I have been taking 50 mgs. Trazodone with 100 mgs Gabapentin two hours before bed and then 300mgs. Gabapentin about half hour before bed. I take a break every four days. At which point I take 1 mg. Clonazepam. This has been helping me both with my RLS and my
Hello everyone, For the past few weeks I have been taking 50 mgs. Trazodone with 100 mgs Gabapentin two hours before bed and then 300mgs. Gabapentin about half hour before bed. I take a break every four days. At which point I take 1 mg. Clonazepam. This has been helping me both with my RLS and my
zeusop
in
Restless Legs Syndrome
2 years ago
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Most effective medications for suppressing Periodic Limb Movements of Sleep (PLMS)
An interesting article from the Journal of Clinical Sleep Medicine (Jan 24, 2023) https://doi.org/10.5664/jcsm.10440 I'm unable to access the full article but here's part of the abstract. STUDY OBJECTIVES:Periodic limb movements during sleep (PLMS) are a frequent finding in restless legs syndrome (
An interesting article from the Journal of Clinical Sleep Medicine (Jan 24, 2023) https://doi.org/10.5664/jcsm.10440 I'm unable to access the full article but here's part of the abstract. STUDY OBJECTIVES:Periodic limb movements during sleep (PLMS) are a frequent finding in restless legs syndrome (
Hidden
in
Restless Legs Syndrome
2 years ago
methadone and shortness of breath
Hi all, Apologize in advance for length of this post. I've had RLS for since my early 40s and spent about 14 years on DA drugs. A not unusual story with augmentation and switching over to pregabalin about 3 years ago- but the pregabalin not being entirely effective for symptoms. At that time I was
Hi all, Apologize in advance for length of this post. I've had RLS for since my early 40s and spent about 14 years on DA drugs. A not unusual story with augmentation and switching over to pregabalin about 3 years ago- but the pregabalin not being entirely effective for symptoms. At that time I was
KClark68
in
Restless Legs Syndrome
2 years ago
Burning Mouth Syndrome
I haven't been on here for a while so, apologies. I have had pneumonia twice in the past 8 weeks & have been left with a terrible burning pain in my mouth. Has anyone ever had this? If so how do you treat it. Dr say there is no cure for it, it is driving me insane. Jackie
I haven't been on here for a while so, apologies. I have had pneumonia twice in the past 8 weeks & have been left with a terrible burning pain in my mouth. Has anyone ever had this? If so how do you treat it. Dr say there is no cure for it, it is driving me insane. Jackie
JustJaxx
in
Fibromyalgia Action UK
2 years ago
up coming urology procedure and sick day rules?
i am waiting to have laser surgery with general anaesthetic on a benign prostate problem shortly. I am successfully reducing my pred for PMR for the second time in 3 and half years from 10 to 7.5 currently and taking it very slowly. Do I follow the sick day rules when having this procedure and if so
i am waiting to have laser surgery with general anaesthetic on a benign prostate problem shortly. I am successfully reducing my pred for PMR for the second time in 3 and half years from 10 to 7.5 currently and taking it very slowly. Do I follow the sick day rules when having this procedure and if so
Pommygranny
in
PMRGCAuk
2 years ago
Treatment of RLS with Pramipexole
I was diagnosed with RLS about 6 months ago. My consultant prescribed Ropinirole but after reading adverse comments about it , I told my GP I did not want to take it and I am now taking 300mg of pregabalin twice per day. Unfortunately my symptoms are not improving . My GP has now prescribed Pramipexole
I was diagnosed with RLS about 6 months ago. My consultant prescribed Ropinirole but after reading adverse comments about it , I told my GP I did not want to take it and I am now taking 300mg of pregabalin twice per day. Unfortunately my symptoms are not improving . My GP has now prescribed Pramipexole
DonWilliams
in
Restless Legs Syndrome
2 years ago
treatment and relationship - couples therapy?
Hi everyone, my partner and I have been together for 6 years and we plan to have a cheeky small wedding in February ☺️ Generally our relationship is great and he’s so kind but after a difficult pregnancy in 2021 where I really suffered with my mental health, then miscarriage and a mental health breakdown
Hi everyone, my partner and I have been together for 6 years and we plan to have a cheeky small wedding in February ☺️ Generally our relationship is great and he’s so kind but after a difficult pregnancy in 2021 where I really suffered with my mental health, then miscarriage and a mental health breakdown
honeybeanbee
in
Fertility Network UK
2 years ago
Tramadol has been a life saver for me
I try to alternate between mirapexin(unfortunately) and tramadol. Its the only thing that seems to work for me. Ive tried most other meds except methadone and the one which makes you feel nauseous as they wont give it to me. Lately though Im not doing so well as when I come off the tram I wake up every
I try to alternate between mirapexin(unfortunately) and tramadol. Its the only thing that seems to work for me. Ive tried most other meds except methadone and the one which makes you feel nauseous as they wont give it to me. Lately though Im not doing so well as when I come off the tram I wake up every
Coeso
in
Restless Legs Syndrome
2 years ago
RLS under anesthesia
Has anyone had RLS while under anesthesia ? I didn't know it would be possible but my Dr told my husband I was probably a secret opioid addict because my legs were twitching a lot during the procedure...... 1. I don't take opioids. Even when I tried them for RLS years ago it didn't really work and
Has anyone had RLS while under anesthesia ? I didn't know it would be possible but my Dr told my husband I was probably a secret opioid addict because my legs were twitching a lot during the procedure...... 1. I don't take opioids. Even when I tried them for RLS years ago it didn't really work and
SkyCop
in
Restless Legs Syndrome
2 years ago
sickness and fibromyalgia taking betahistine dihydrochloride.
hi I have been sick again this morning and I only seem to get this in the morning. I am wretching a little bit after but trying to get better. I have been given betahistine dihydrochloride for the dizziness etc and I hope this is helpful. I am so sick of this stuff happening to me. I am sorry to moan
hi I have been sick again this morning and I only seem to get this in the morning. I am wretching a little bit after but trying to get better. I have been given betahistine dihydrochloride for the dizziness etc and I hope this is helpful. I am so sick of this stuff happening to me. I am sorry to moan
fibrogirl41
in
Fibromyalgia Action UK
2 years ago
Ropinirole
I’ve been on 3.5 milligrams of Ropinirole for about 4 years now but my RLS is getting much worse- legs and arms. Even though I take it throughout the day and am very active I cannot sit down and take a rest without the RLS kicking in. I am fortunately getting some sleep. Should I switch to pregabalin
I’ve been on 3.5 milligrams of Ropinirole for about 4 years now but my RLS is getting much worse- legs and arms. Even though I take it throughout the day and am very active I cannot sit down and take a rest without the RLS kicking in. I am fortunately getting some sleep. Should I switch to pregabalin
milly-22
in
Restless Legs Syndrome
2 years ago
Intralipid infussion
Good morning Lovely Girls, I am having my second transfer in Spain next Tuesday and yesterday I had my first intralipid infussion to treat for recurrent miscarriage. The Clinic told me that I would need to have the second one in 3 weeks time if I am pregnant. Please could you let me know if the
Good morning Lovely Girls, I am having my second transfer in Spain next Tuesday and yesterday I had my first intralipid infussion to treat for recurrent miscarriage. The Clinic told me that I would need to have the second one in 3 weeks time if I am pregnant. Please could you let me know if the
Strawberryice
in
Fertility Network UK
2 years ago
shock - fight or flight response.
sometimes I wonder weather restless leg syndrome is induced by a traumatic experience in earlier life. The fight or flight response that is constantly on overdrive! Never being able to relax…. I’ve had the disorder for most of my life. Contrary to belief my symptoms stated at a very early age. Practitioners
sometimes I wonder weather restless leg syndrome is induced by a traumatic experience in earlier life. The fight or flight response that is constantly on overdrive! Never being able to relax…. I’ve had the disorder for most of my life. Contrary to belief my symptoms stated at a very early age. Practitioners
Dark71
in
Restless Legs Syndrome
2 years ago
Statins & Steroids
I’ve been advised to take statins due to high cholesterol levels of 7.0, Serum triglycerides 2.3, HDL 2.5, HDL ratio 2.8, LDL 3.4, non HDL 4.5. I’m reluctant to take more meds but I’m unclear of the meaning of all the results and if I should take statins or not. I’ve read some articles stating that
I’ve been advised to take statins due to high cholesterol levels of 7.0, Serum triglycerides 2.3, HDL 2.5, HDL ratio 2.8, LDL 3.4, non HDL 4.5. I’m reluctant to take more meds but I’m unclear of the meaning of all the results and if I should take statins or not. I’ve read some articles stating that
Griggser
in
PMRGCAuk
2 years ago
Buprenorphine patch failure. Now very few med options left.
I have PLMD only. It wakes me 3 to 4 times a night and continues until I walk it off. As with many (most?) of you, my sleep architecture is wrecked. In my case I haven't had a continuous night's sleep for 13 years.So, after regimes of Clonazepam, Baclofen, Ropinirole, Gabapentin (twice) and Pregabalin
I have PLMD only. It wakes me 3 to 4 times a night and continues until I walk it off. As with many (most?) of you, my sleep architecture is wrecked. In my case I haven't had a continuous night's sleep for 13 years.So, after regimes of Clonazepam, Baclofen, Ropinirole, Gabapentin (twice) and Pregabalin
dickJones
in
Restless Legs Syndrome
2 years ago
Pregabalin/ropinirole
Hello there i haven't posted for a long time on this forum but I do read and keep an interest in other people's posts/views. I find it helps, sadly, knowing that other people are also experiencing what you are going through. so Ii have been taking Ropinirole for 18+ years. Drs decided I needed to
Hello there i haven't posted for a long time on this forum but I do read and keep an interest in other people's posts/views. I find it helps, sadly, knowing that other people are also experiencing what you are going through. so Ii have been taking Ropinirole for 18+ years. Drs decided I needed to
SilverEvie
in
Restless Legs Syndrome
2 years ago
Paying for Horizant
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
grassgree
in
Restless Legs Syndrome
2 years ago
Sore, dry mouth
Hi, I have Fibromyalgia and ME/CFS and I suffer terribly with sore mouth, tongue and also dry mouth and throat. I’ve just been putting up with it for ages but it seems to be more constant now. I also have no idea what toothpaste or toothbrush to use as they keep making my sores worse. If anyone has
Hi, I have Fibromyalgia and ME/CFS and I suffer terribly with sore mouth, tongue and also dry mouth and throat. I’ve just been putting up with it for ages but it seems to be more constant now. I also have no idea what toothpaste or toothbrush to use as they keep making my sores worse. If anyone has
Keswick73
in
Fibromyalgia Action UK
2 years ago
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