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DBS Pre-op. What's involved?
It feels like my DBS surgery is getting nearer. I have an appointment for a pre-op on Sunday and was wondering if anyone knows what to expect?Is there anything I should prepare for? Cheers
It feels like my DBS surgery is getting nearer. I have an appointment for a pre-op on Sunday and was wondering if anyone knows what to expect?Is there anything I should prepare for? Cheers
gingerj
in
Cure Parkinson's
25 days ago
Transcranial Magnetic Stimulation (TMS)
Has anyone tried TMS treatment for tinnitus?
Has anyone tried TMS treatment for tinnitus?
Eddy75
in
Tinnitus UK
27 days ago
Symptoms suddenly taking a turn for the worse
Hello everyone. I am new to the forum, and have some questions to ask, but also want to share my RLS story, as well as some things that I have found helpful in living with RLS. I have had RLS for over 40 years. At first it was fairly easily controlled with a good run or long walk, and later with magnesium
Hello everyone. I am new to the forum, and have some questions to ask, but also want to share my RLS story, as well as some things that I have found helpful in living with RLS. I have had RLS for over 40 years. At first it was fairly easily controlled with a good run or long walk, and later with magnesium
restlegs1
in
Restless Legs Syndrome
11 months ago
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Anoro
A few weeks ago I had a text to arrange my annual COPD review. This is normally with the practice nurse who can prescribe medications too. I was surprised to be given a Doctor appointment. I am mild COPD and was taking Salmeterol and Carbocisteine. It seemed quite effective. The doctor advised that I
A few weeks ago I had a text to arrange my annual COPD review. This is normally with the practice nurse who can prescribe medications too. I was surprised to be given a Doctor appointment. I am mild COPD and was taking Salmeterol and Carbocisteine. It seemed quite effective. The doctor advised that I
kc110
in
Lung Conditions Community Forum
9 months ago
I am feeling hopeless
Hello everyone I am new here, I hope it is safe to express how I feel. I have struggled with depression and anxiety all my life on and off and it has been debilitating at times. I was in a good mental state for a long time I had hobbies and friends and loving wife and i was happy. All that changed
Hello everyone I am new here, I hope it is safe to express how I feel. I have struggled with depression and anxiety all my life on and off and it has been debilitating at times. I was in a good mental state for a long time I had hobbies and friends and loving wife and i was happy. All that changed
Hidden
in
Major Depressive Disorder (MDD) Support
2 months ago
How I’m doing 3 years after deep brain stimulation for Parkinson’s
https://parkinsonsnewstoday.com/columns/how-im-doing-3-years-after-deep-brain-stimulation-parkinsons/
https://parkinsonsnewstoday.com/columns/how-im-doing-3-years-after-deep-brain-stimulation-parkinsons/
Farooqji
in
Cure Parkinson's
2 months ago
Which DBS device to use?
I am planning to go through a DBS surgery in near future. I believe there are two brands supplying the devices - Boston Scientific - Medtronix Can someone refer me to some literature where two devices are compared for directional rechargeable type? As I patient should I even care or let the neurologist
I am planning to go through a DBS surgery in near future. I believe there are two brands supplying the devices - Boston Scientific - Medtronix Can someone refer me to some literature where two devices are compared for directional rechargeable type? As I patient should I even care or let the neurologist
sutensera
in
Cure Parkinson's
2 months ago
Vagus Nerve Stimulation?
Anyone looked into this? I've been looking into this a little bit on and off. I have Graves disease and my heart rate variability is somewhat low (disturbingly low 😂) anyway, I've suffered a lot of trauma in life and apparently this can affect the Vagus Nerve which in turn has negative affects on the
Anyone looked into this? I've been looking into this a little bit on and off. I have Graves disease and my heart rate variability is somewhat low (disturbingly low 😂) anyway, I've suffered a lot of trauma in life and apparently this can affect the Vagus Nerve which in turn has negative affects on the
nooneimportant
in
Thyroid UK
2 months ago
mucana
Hi everyone My husband had DBS done a 1 1/2 years ago. Very successful for him , he doesn’t take any medication anymore but I found that he is slowing down. I saw that there has been studies on mucana supplements. I would like to try but I don’t know where to buy it( good quality) and how much he should
Hi everyone My husband had DBS done a 1 1/2 years ago. Very successful for him , he doesn’t take any medication anymore but I found that he is slowing down. I saw that there has been studies on mucana supplements. I would like to try but I don’t know where to buy it( good quality) and how much he should
gigi9
in
Cure Parkinson's
2 months ago
Noninvasive deep brain stimulation shows promise for Parkinson’s. Is it an advanced form of CUE1?
Stimvia’s URIS device uses electrodes placed near the peroneal nerve in the lower leg to modulate electrical activity that stimulates specific nerve pathways in the brain. It functions as a noninvasive alternative for DBS to modulate the activity of specific brain nerve pathways. A built-in monitoring
Stimvia’s URIS device uses electrodes placed near the peroneal nerve in the lower leg to modulate electrical activity that stimulates specific nerve pathways in the brain. It functions as a noninvasive alternative for DBS to modulate the activity of specific brain nerve pathways. A built-in monitoring
Farooqji
in
Cure Parkinson's
2 months ago
Deep Brain Stimulation Therapy
I am seriously considering having DBS but am wondering if there are others who have successfully had this surgery to alleviate pain in the neck, shoulders, upper back & lower back. Please share any experiences with this as well as anything else you may have found that works. I am desperate. Thank you
I am seriously considering having DBS but am wondering if there are others who have successfully had this surgery to alleviate pain in the neck, shoulders, upper back & lower back. Please share any experiences with this as well as anything else you may have found that works. I am desperate. Thank you
Kingsdaughter1
in
Cure Parkinson's
2 months ago
Aside from easing motor symptoms of Parkinson’s disease, deep brain stimulation (DBS) may also slow disease progression
https://parkinsonsnewstoday.com/news/dbs-reduces-toxic-clumping-parkinsons-rat-brain-cells-study/
https://parkinsonsnewstoday.com/news/dbs-reduces-toxic-clumping-parkinsons-rat-brain-cells-study/
Farooqji
in
Cure Parkinson's
3 months ago
Anyone tried Vagus Nerve Stimulation?
https://jcsm.aasm.org/doi/10.5664/jcsm.9404
https://jcsm.aasm.org/doi/10.5664/jcsm.9404
wantokporo
in
Restless Legs Syndrome
3 months ago
VNS query
hello everyone, Please can you help?? My daughter has epilepsy and as part of her management she has a VNS device. She is currently still at school and as part of her GCSE course she has been given the opportunity to participate in a parenting simulation project. she is very keen to do this as essentially
hello everyone, Please can you help?? My daughter has epilepsy and as part of her management she has a VNS device. She is currently still at school and as part of her GCSE course she has been given the opportunity to participate in a parenting simulation project. she is very keen to do this as essentially
Hidden
in
Epilepsy Society
3 months ago
The battle is over
Good morning, A week ago my brother aka Savkid passed away. He fought valiantly this cancer for just over 2 years since diagnosis. I am ever grateful that we had the time we did. I will miss him alot In the last month, he became increasingly weak after the second chemo (docetaxel) treatment, so treatments
Good morning, A week ago my brother aka Savkid passed away. He fought valiantly this cancer for just over 2 years since diagnosis. I am ever grateful that we had the time we did. I will miss him alot In the last month, he became increasingly weak after the second chemo (docetaxel) treatment, so treatments
Hidden
in
Advanced Prostate Cancer
1 year ago
DBS operation
I’ve been approved by Kaiser for a DBS (Deep Brain Stimulation) operation for my MS/essential tremors. Would like to talk to someone who’s had the same operation. I need to know: About your experience during the operation, Post operation pain & discomfort The after care involved The after
I’ve been approved by Kaiser for a DBS (Deep Brain Stimulation) operation for my MS/essential tremors. Would like to talk to someone who’s had the same operation. I need to know: About your experience during the operation, Post operation pain & discomfort The after care involved The after
Potatoskins
in
My MSAA Community
4 months ago
Any info or experience with light headedness and circulation issues with PD?
My husband has PD, 9 years in, He had DBS surgery a year ago and that has been a miraculous positive change, however he has this symptom of getting really lightheaded when going from sitting to standing or any quick movements, ( he passed out a while ago and hit his head) or happens like playing pickleball
My husband has PD, 9 years in, He had DBS surgery a year ago and that has been a miraculous positive change, however he has this symptom of getting really lightheaded when going from sitting to standing or any quick movements, ( he passed out a while ago and hit his head) or happens like playing pickleball
whitdemo
in
Cure Parkinson's
4 months ago
Next NoSilverBullet Zoom Webinar on 13 May: Live interview of Dr M Okun on "Practical strategies for living a happier life with Parkinson's"
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7pm London time on Monday, the 13th of May. I will have the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7pm London time on Monday, the 13th of May. I will have the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide
Michel0220
in
Cure Parkinson's
4 months ago
mannitol challenge test
has anyone had mannitol challenge test an didn't need to stop montelukast? Was your test positive (you had your asthma confirmed)?
has anyone had mannitol challenge test an didn't need to stop montelukast? Was your test positive (you had your asthma confirmed)?
sciencepotato
in
Lung Conditions Community Forum
9 months ago
Very interesting video on controversial issues regarding managing Parkinson’s at different stages (from 2 guys that seem smart).
Controversies in the Use of Medications, Herbs, and Early DBS for Parkinson's April 2024:
https://youtu.be/RhaUZFczGmc?si=R0Nb5tfh3jFnvZdg Movement Disorders Foundation of Arizona: Movement disorders neurologists Dr. Paarth Shah and Dr. Virgilio Gerald Evidente will be discussing in a panel discussion
Controversies in the Use of Medications, Herbs, and Early DBS for Parkinson's April 2024:
https://youtu.be/RhaUZFczGmc?si=R0Nb5tfh3jFnvZdg Movement Disorders Foundation of Arizona: Movement disorders neurologists Dr. Paarth Shah and Dr. Virgilio Gerald Evidente will be discussing in a panel discussion
Bolt_Upright
in
Cure Parkinson's
4 months ago
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