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8 months waiting to not be given a diagnosis...?
Hi there. I wrote on here a few months ago now... I had a battle with my GP and finally got referred to a gastroenterologist who sent me for a colonoscopy, MRI scan and calprotectin stool test... I initially thought I had IBS, but wondered if I could possibly have Crohn's disease... I fought so hard
Hi there. I wrote on here a few months ago now... I had a battle with my GP and finally got referred to a gastroenterologist who sent me for a colonoscopy, MRI scan and calprotectin stool test... I initially thought I had IBS, but wondered if I could possibly have Crohn's disease... I fought so hard
kiisa
in
IBS Network
5 years ago
Leading the Troops by Example
Hey Troops, This is a challenging time of year for us with finicky livers so I thought I would post daily to show what I am doing to maintain a good state. The transplant doctor that has been monitoring me says I am nothing short of the poster girl for adherence to instruction as nobody ever does what
Hey Troops, This is a challenging time of year for us with finicky livers so I thought I would post daily to show what I am doing to maintain a good state. The transplant doctor that has been monitoring me says I am nothing short of the poster girl for adherence to instruction as nobody ever does what
canadaliz
in
British Liver Trust
5 years ago
The Strengths and Keys of my Recovery
Hey Troops, Potty Mouth is back as several of you have messaged me to ask about what I have done to support such a great response to health so here it is. I began August 9, 2018 with decompensated stage 4 cirrhosis. I had ascites, HE, jaundice, crazy itching and liver values off the chart. I also had
Hey Troops, Potty Mouth is back as several of you have messaged me to ask about what I have done to support such a great response to health so here it is. I began August 9, 2018 with decompensated stage 4 cirrhosis. I had ascites, HE, jaundice, crazy itching and liver values off the chart. I also had
canadaliz
in
British Liver Trust
5 years ago
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Explosive d* - anxiety?
I almost went 3 whole weeks without my one Imodium per week (took one last on the 22 of December) and managed Christmas just fine, normal stools and quite a change in diet (no broccoli, sprouts, risky fruits and alot less chocolate and cake). Along with this I had no work, gigs or nerve inducing plans
I almost went 3 whole weeks without my one Imodium per week (took one last on the 22 of December) and managed Christmas just fine, normal stools and quite a change in diet (no broccoli, sprouts, risky fruits and alot less chocolate and cake). Along with this I had no work, gigs or nerve inducing plans
Cheesecake17
in
IBS Network
5 years ago
Syncope diagnosis
I have always been prone to light headed ness and fainting but not that regularly until the last 18 months. I had brain surgery 12 months ago to remove benign tumour and now the symptoms are daily and I have been advised that brain surgery can exaggerate the condition. Initially I was told my first episode
I have always been prone to light headed ness and fainting but not that regularly until the last 18 months. I had brain surgery 12 months ago to remove benign tumour and now the symptoms are daily and I have been advised that brain surgery can exaggerate the condition. Initially I was told my first episode
Syncopesister
in
STARS
5 years ago
I there a better diet tracker?
Does anyone know of a diet tracker other than the Davita one, that shows nutritional values for food by weight (ounces, grams, lb., etc.)? One thing that makes it difficult to be completely accurate with the Davita tracker, is that sometimes the measurements for a particular item are very difficult (
Does anyone know of a diet tracker other than the Davita one, that shows nutritional values for food by weight (ounces, grams, lb., etc.)? One thing that makes it difficult to be completely accurate with the Davita tracker, is that sometimes the measurements for a particular item are very difficult (
Whitetail66
in
Kidney Disease
5 years ago
Extreme fatigue. Could it be the trileptal? Low sodium?
My soon to be 9 year old son has been on Guanfacine for 1.5 years. We are on 3mg. Once a day. Started having more issues at home and the school too. Psychiatrist added trileptal - 75mg am, and 75 mg after school. It’s been 3 weeks and 2 days since we started. If anything, his moods have gotten worse
My soon to be 9 year old son has been on Guanfacine for 1.5 years. We are on 3mg. Once a day. Started having more issues at home and the school too. Psychiatrist added trileptal - 75mg am, and 75 mg after school. It’s been 3 weeks and 2 days since we started. If anything, his moods have gotten worse
Doglady28
in
CHADD's ADHD Parents Together
5 years ago
Levo and Sodium
Hi everyone it’s been awhile since I’ve been here. So I have a question I’ve taken the RAI pill two years ago and I’m on 112 mg of my Levo it has Sodium in it. I also have early stages of Cirrhosis and I don’t have any trace of Hep-c so I been reading up on my meds and noticed it will make my liver worse
Hi everyone it’s been awhile since I’ve been here. So I have a question I’ve taken the RAI pill two years ago and I’m on 112 mg of my Levo it has Sodium in it. I also have early stages of Cirrhosis and I don’t have any trace of Hep-c so I been reading up on my meds and noticed it will make my liver worse
Hidden
in
Thyroid UK
5 years ago
Wanting to add t3 to NDT
Hello, once again I went to another dr that didnt know what to do with me! Short story of 2019- had an adrenal crash in June, looked around for another doctor, previous one just wanted to run test and not listen to symptoms. Was told about functional medicine doctor so thought she could help. Saw her
Hello, once again I went to another dr that didnt know what to do with me! Short story of 2019- had an adrenal crash in June, looked around for another doctor, previous one just wanted to run test and not listen to symptoms. Was told about functional medicine doctor so thought she could help. Saw her
GentleSoul
in
Thyroid UK
5 years ago
IBS-D - Silicogel
For anyone like me, who suffers from IBS-D, I would thoroughly recommend Solicogel, which you can buy from any natural health shop, such as Holland and Barratt. I have tried many things over the last few years since my problem got worse, but other than the usual Imodium type of tablets, this works very
For anyone like me, who suffers from IBS-D, I would thoroughly recommend Solicogel, which you can buy from any natural health shop, such as Holland and Barratt. I have tried many things over the last few years since my problem got worse, but other than the usual Imodium type of tablets, this works very
laurajn087
in
IBS Network
5 years ago
Radium 223 success/advice?
My 82 year old dad has prostate cancer that has spread to the bones and after becoming hormone resistant he will be starting Radium 223 soon, as long as his next scan doesn't show any nasties. Does anyone have any success stories of this? Does it work better with anything else? Any advice would be appreciated
My 82 year old dad has prostate cancer that has spread to the bones and after becoming hormone resistant he will be starting Radium 223 soon, as long as his next scan doesn't show any nasties. Does anyone have any success stories of this? Does it work better with anything else? Any advice would be appreciated
Luucy
in
Advanced Prostate Cancer
5 years ago
Need a little bit of help/advice
Hi, New here, so hopefully this post is correct? I moved to Vietnam 2 years ago, whilst over there, I’m very careful in what I eat & where I eat but I have diarrhoea/loose bowl movements at least once a week. I came to the UK for Xmas for 2 weeks (I’m still here) & I still had diarrhoea, I had it on
Hi, New here, so hopefully this post is correct? I moved to Vietnam 2 years ago, whilst over there, I’m very careful in what I eat & where I eat but I have diarrhoea/loose bowl movements at least once a week. I came to the UK for Xmas for 2 weeks (I’m still here) & I still had diarrhoea, I had it on
Uncle7
in
IBS Network
5 years ago
9 months after Chemo PSA on the rise.
Saw Oncologist today, my PSA has been steady 0.028 since the Chemo ended, today it's 0.70. I had the surgery (subcapsular orchiectomy) in Nov so maybe my body just needs to settle from the trauma. I asked about Testosterone levels, he didn't know and he asked for another blood test. He did say the Chemo
Saw Oncologist today, my PSA has been steady 0.028 since the Chemo ended, today it's 0.70. I had the surgery (subcapsular orchiectomy) in Nov so maybe my body just needs to settle from the trauma. I asked about Testosterone levels, he didn't know and he asked for another blood test. He did say the Chemo
Zetabow
in
Advanced Prostate Cancer
5 years ago
Jaws, cheecks and neck pain persisting!! Should I need a parathyroid blood level test?
Just received calcium, phosphorum, magnesium, etc., results... In my last post I asked about hypoparathyroidism symptoms and I decided to get the blood test done, these are the results: Calcium 9.4 mg/dl 8.6-10.0 Phosphorum 4.3 mg/dl 2.5-4.5 Magnesium 2.3 mg/dl
Just received calcium, phosphorum, magnesium, etc., results... In my last post I asked about hypoparathyroidism symptoms and I decided to get the blood test done, these are the results: Calcium 9.4 mg/dl 8.6-10.0 Phosphorum 4.3 mg/dl 2.5-4.5 Magnesium 2.3 mg/dl
Lois71
in
Thyroid UK
5 years ago
FDA investigating Metformin for Carcinogens
The investigation by the FDA of Metformin (probably the most investigated drug of all time given its long history for use with Type 2 diabetes) for the carcinogen NMDA is of some concern given the plethora of generic manufacturers of this drug, especially from India and China. NDMA or NMN is usually
The investigation by the FDA of Metformin (probably the most investigated drug of all time given its long history for use with Type 2 diabetes) for the carcinogen NMDA is of some concern given the plethora of generic manufacturers of this drug, especially from India and China. NDMA or NMN is usually
sharoncrayn
in
Cure Parkinson's
5 years ago
IBS-C & low sodium levels in blood test
Hi all Does anyone else have low sodium levels in their bloods? If so, did you experience any adverse effects? I think mine is low because I drink about 4 litres of water a day (I came out of the womb thirsty :) - however i think being low in blood sodium could be contributing to my IBS-C. The reason
Hi all Does anyone else have low sodium levels in their bloods? If so, did you experience any adverse effects? I think mine is low because I drink about 4 litres of water a day (I came out of the womb thirsty :) - however i think being low in blood sodium could be contributing to my IBS-C. The reason
SydneySider123
in
IBS Network
5 years ago
**UPDATE** Bloods: consistent low sodium levels (Bit freaked out!)
**Update:
I just spoke with my Dr - my urine sample came back normal - no Addison's or anything else! Wow, what a massive relief. Thanks to all who have contributed and offered support. I am on day three of cutting back water and adding salt back into my diet.
All the best
Narelle
**Update:
I just spoke with my Dr - my urine sample came back normal - no Addison's or anything else! Wow, what a massive relief. Thanks to all who have contributed and offered support. I am on day three of cutting back water and adding salt back into my diet.
All the best
Narelle
SydneySider123
in
Thyroid UK
5 years ago
New to the group looking to find some information CKD stage 2 from stage 3.
Hi I'm 58 yrs old and I am looking for others in common CKD stage 2 now lowered after stopping NSAIDs and controlling HBP. from stage 3. I also diagnosed in 2004 Rheumatoid arthritis, Osteoarthritis, and Fibro, Osterpenia. Need help with what type of diet is best to follow I need to omit salt watch
Hi I'm 58 yrs old and I am looking for others in common CKD stage 2 now lowered after stopping NSAIDs and controlling HBP. from stage 3. I also diagnosed in 2004 Rheumatoid arthritis, Osteoarthritis, and Fibro, Osterpenia. Need help with what type of diet is best to follow I need to omit salt watch
Linda08
in
Early CKD Support
5 years ago
Terrible guts after flu
I have had a fluey virus since the 10th of December. The flu symptoms went away after about 11 days, but during that time I’ve been feeling nauseous and have had diarrhoea. I also had such an acidic stomach I lost my appetite. I got an emergency appointment at my GP on Friday 20th. I was acutely anxious
I have had a fluey virus since the 10th of December. The flu symptoms went away after about 11 days, but during that time I’ve been feeling nauseous and have had diarrhoea. I also had such an acidic stomach I lost my appetite. I got an emergency appointment at my GP on Friday 20th. I was acutely anxious
weegmack
in
IBS Network
5 years ago
latest bloods
stopped ALL supplements including spatone and b12 blood results...holy moly no wonder i feel like poop SERUM B12 AND FOLATE Serum vitamin B12 level 745 ng/L [180.0 - 915.0] Serum folate level 6.5 ug/L [3.1 - 19.9] SERUM FOLATE COMMENT Please note new reference range due to restandardisation to World
stopped ALL supplements including spatone and b12 blood results...holy moly no wonder i feel like poop SERUM B12 AND FOLATE Serum vitamin B12 level 745 ng/L [180.0 - 915.0] Serum folate level 6.5 ug/L [3.1 - 19.9] SERUM FOLATE COMMENT Please note new reference range due to restandardisation to World
mandy72
in
Thyroid UK
5 years ago
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