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Actinium/Keytruda/Xtandi trial update after 24 weeks.
At the 24 week mark of my trial at Weill Cornell, I had updated NM whole body bone scan and CTs of chest/abdomen/pelvis. Also had updated blood work. Was expecting my next 6 week infusion of Keytruda the next day. While waiting in the treatment area, there was some kind of a delay. Nurse came over
At the 24 week mark of my trial at Weill Cornell, I had updated NM whole body bone scan and CTs of chest/abdomen/pelvis. Also had updated blood work. Was expecting my next 6 week infusion of Keytruda the next day. While waiting in the treatment area, there was some kind of a delay. Nurse came over
HopingForTheBest1
in
Advanced Prostate Cancer
3 years ago
Vitamin advice
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
CornishChick
in
Thyroid UK
3 years ago
Radium 223
Hi there Just wondering does radium 223 act the same as chemo when it comes to xtandi versus abiterone? My hubby has done 6 months of radium 223 while on xtandi and will now have scans in feb. Will he be able to try abiterone now or will he be faced with chemo? I know it might not work for long anyhow
Hi there Just wondering does radium 223 act the same as chemo when it comes to xtandi versus abiterone? My hubby has done 6 months of radium 223 while on xtandi and will now have scans in feb. Will he be able to try abiterone now or will he be faced with chemo? I know it might not work for long anyhow
Omc64
in
Advanced Prostate Cancer
3 years ago
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Doctor re sodium.
At the beginning of September I received a copy of a letter sent by my GCA Consultant to my Doctor. In it she said my sodium was low - 128 - and would my Doctor look into it. I have heard nothing. Should I be worried?
At the beginning of September I received a copy of a letter sent by my GCA Consultant to my Doctor. In it she said my sodium was low - 128 - and would my Doctor look into it. I have heard nothing. Should I be worried?
prunus
in
PMRGCAuk
3 years ago
Does anyone have a Low sodium level?
My levels are super low, Hyponatremia like. Docs have told me it’s related to AMN, but they seem to blame it for everything 😊
My levels are super low, Hyponatremia like. Docs have told me it’s related to AMN, but they seem to blame it for everything 😊
3WheelWonder
in
AMN EASIER
3 years ago
Rapid decline in GFR, getting no answers.
I am a 46 year old male. In Jan. 2019 my GFR was 63 - when it was checked in Early 2021 it had dropped to 27. Now only a few months later I am down to an 18. I do have Type II Diabetes but it has been controlled for several years (5.4 - 6.5 A1c). We would not have caught the GFR drop had my BP not gone
I am a 46 year old male. In Jan. 2019 my GFR was 63 - when it was checked in Early 2021 it had dropped to 27. Now only a few months later I am down to an 18. I do have Type II Diabetes but it has been controlled for several years (5.4 - 6.5 A1c). We would not have caught the GFR drop had my BP not gone
MSWwv
in
Kidney Disease
3 years ago
Sodium levels
Hi. Wonder if anyone has had this My blood sodium levels was 130 range 135-145 Retested , then 133 . No further investigation. GP said it was normal . I looked this up and hypothyroidism is the only thing that applies to me. I noticeable pee less in the day . I did end up in hospital going
Hi. Wonder if anyone has had this My blood sodium levels was 130 range 135-145 Retested , then 133 . No further investigation. GP said it was normal . I looked this up and hypothyroidism is the only thing that applies to me. I noticeable pee less in the day . I did end up in hospital going
Gcart
in
Thyroid UK
3 years ago
Can’t figure it all out
So my husband went to the hospital today they said his GFR has dropped from 32 about a month ago now it’s 27, his creatinine is 216 umo1/L Sodium 140mmo1/L Potassium 3.9mmo1/L So maybe you could shine more light on it for me. Thank you
So my husband went to the hospital today they said his GFR has dropped from 32 about a month ago now it’s 27, his creatinine is 216 umo1/L Sodium 140mmo1/L Potassium 3.9mmo1/L So maybe you could shine more light on it for me. Thank you
42108
in
Kidney Disease
3 years ago
The strangest place this 5 and 1/2 year journey has taken me to date.
I was diagnosed in june of 2016 with a 9 gleason score. Had rad prostectomy, then salvage. Followed by 18mos of milage from zytiga and a Brief minute with xtandi, until it failed. Onward, to a couple of clinical trials, Bombesin which failed miserbly putting me in the hospital. Then the harpoon
I was diagnosed in june of 2016 with a 9 gleason score. Had rad prostectomy, then salvage. Followed by 18mos of milage from zytiga and a Brief minute with xtandi, until it failed. Onward, to a couple of clinical trials, Bombesin which failed miserbly putting me in the hospital. Then the harpoon
Costarica1961
in
Advanced Prostate Cancer
3 years ago
CKD minerals and labs?
Hello. New here and new to ckd. I’m just wondering, with your lab results, when you have high potassium do you also have high everything else? Sodium calcium etc? Asking because my dad has consistently high potassium and low sodium. But right now he’s having mild edema on his legs. Our nephro keeps saying
Hello. New here and new to ckd. I’m just wondering, with your lab results, when you have high potassium do you also have high everything else? Sodium calcium etc? Asking because my dad has consistently high potassium and low sodium. But right now he’s having mild edema on his legs. Our nephro keeps saying
Slaxx
in
Kidney Disease
3 years ago
Salt or no salt
Just after I had 2 stents fitted just over 4 years ago, I was advised to cut salt out of my diet as it was considered that there was enough salt in the food already. Recently had a blood test that reveals that I’m low in sodium. Anyone shed any light on this? Cheers.
Just after I had 2 stents fitted just over 4 years ago, I was advised to cut salt out of my diet as it was considered that there was enough salt in the food already. Recently had a blood test that reveals that I’m low in sodium. Anyone shed any light on this? Cheers.
TeflonT
in
British Heart Foundation
3 years ago
Imodium IBS relief
Has anyone tried the new IBS relief Imodium.I find them much better than normal ones,they don’t give me stomach cramps or bung me up as badly.
Has anyone tried the new IBS relief Imodium.I find them much better than normal ones,they don’t give me stomach cramps or bung me up as badly.
Poorlypatient
in
IBS Network
3 years ago
Update - ADT with Zytiga Failure (Castration Resistant) after 6 Months (PSA 90.3); Firmagon still Working; PSMA PET Scan Ordered
I came right out of the gate with Gleason 9 Stage 4 Advanced Prostate Cancer with more than 5 Metastases in January of this year. Firmagon brought the Testosterone down to < 7 almost right away, but PSA went to 160. Zytiga and Prednisone were added in March and brought the PSA back down to 5. The PSA
I came right out of the gate with Gleason 9 Stage 4 Advanced Prostate Cancer with more than 5 Metastases in January of this year. Firmagon brought the Testosterone down to < 7 almost right away, but PSA went to 160. Zytiga and Prednisone were added in March and brought the PSA back down to 5. The PSA
diamondrn
in
Advanced Prostate Cancer
3 years ago
Blood test
Wonder if anyone can help with these Ferritin. 64. Range. 144-156 Redblood. 3,38. 3.80-5.30 Haemoglobin 109. 120-150 Haematocrit 0.32. 0.37-0.45 MCH. 32.2. 27.0-32.0 These are marked abnormal. Just wondered what I can do to help. I get so achy and tired with
Wonder if anyone can help with these Ferritin. 64. Range. 144-156 Redblood. 3,38. 3.80-5.30 Haemoglobin 109. 120-150 Haematocrit 0.32. 0.37-0.45 MCH. 32.2. 27.0-32.0 These are marked abnormal. Just wondered what I can do to help. I get so achy and tired with
Gcart
in
Thyroid UK
3 years ago
Spironolactone and sodium
Should doctor monitor kidneys and sodium/potassium levels while taking spironolactone 50mg? If yes how often?
Should doctor monitor kidneys and sodium/potassium levels while taking spironolactone 50mg? If yes how often?
Bazinga89
in
British Liver Trust
3 years ago
Is there anyone that can further educate me on the combination of POTS, FND, and other medical issues one of my best friends is facing?
One of my best friends is struggling with many medical conditions and has been diagnosed with having POTS, a FND, has what we call “episodes” in the middle of classes and at times will run out of rooms to avoid being made a spectacle of in front of others. They shortest amount of time they usually last
One of my best friends is struggling with many medical conditions and has been diagnosed with having POTS, a FND, has what we call “episodes” in the middle of classes and at times will run out of rooms to avoid being made a spectacle of in front of others. They shortest amount of time they usually last
ShallowWater
in
Functional Neurological Disorder - FND Hope
3 years ago
ACR Ratio Confusion
My PCP has issued labs to monitor my kidneys. To date no formal diagnosis. My blood sodium, potassium, creatinine; always in the normal range. My urine pH, Protein, Glucose, Ketones, Erythrocytes, Nitrate, and Leukocytes are also always in the normal range. Two generations of Acute Nephritis in family
My PCP has issued labs to monitor my kidneys. To date no formal diagnosis. My blood sodium, potassium, creatinine; always in the normal range. My urine pH, Protein, Glucose, Ketones, Erythrocytes, Nitrate, and Leukocytes are also always in the normal range. Two generations of Acute Nephritis in family
lakeheadguy
in
Kidney Disease
3 years ago
Comments, advice, info, etc
I was dx with CKD, Phase3, in 2018. GRF stayed between 55-60, I spill protein and have since being dx with diabetes in 2003. In the last 8 months or so, protein in urine has gone way up, as has my potassium. Now trying to stay low potassium, cutting sodium. My question is: I rarely salt my food
I was dx with CKD, Phase3, in 2018. GRF stayed between 55-60, I spill protein and have since being dx with diabetes in 2003. In the last 8 months or so, protein in urine has gone way up, as has my potassium. Now trying to stay low potassium, cutting sodium. My question is: I rarely salt my food
jodaer
in
Kidney Disease
3 years ago
Primary Billary Cholongitis/Low Sodium
Does anyone know or has experienced low Sodium due to or having PBC? What are the causes, symptoms on treatment. Thanks Stevie
Does anyone know or has experienced low Sodium due to or having PBC? What are the causes, symptoms on treatment. Thanks Stevie
stevie1
in
PBC Foundation
3 years ago
Test results
Hi all, Was wondering if anyone could offer advice on my latest test results? I was also being tested for diabetes at the same time so unsure if some of the results are from that test. T3, T4 and TSH all look within normal ranges to me but Sodium and Potassium are out of normal range and don’t know
Hi all, Was wondering if anyone could offer advice on my latest test results? I was also being tested for diabetes at the same time so unsure if some of the results are from that test. T3, T4 and TSH all look within normal ranges to me but Sodium and Potassium are out of normal range and don’t know
ALW198
in
Thyroid UK
3 years ago
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