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Kindly seeking advice about my options
I'm metastatic HSPCa on Lupron/Erleada over two years now. Three periaortic lymph nodes and two ribs lesions. Sooner or later, I will go metastatic HRPCa (average about 3 years to become hormone resistant). So, my question is what kind of treatment coming next Thanks for your input
I'm metastatic HSPCa on Lupron/Erleada over two years now. Three periaortic lymph nodes and two ribs lesions. Sooner or later, I will go metastatic HRPCa (average about 3 years to become hormone resistant). So, my question is what kind of treatment coming next Thanks for your input
Maxi54
in
Advanced Prostate Cancer
3 months ago
PSA Testing Scandal Repost
This was my first post two years ago. It was about the scandal of my diagnosis. I don't think much has changed. Basically PSA testing is a good thing. https://healthunlocked.com/advanced-prostate-cancer/posts/148930895/psa-testing-scandal-lost-years-of-life-updated-re-qol [i]Posted later - please see
This was my first post two years ago. It was about the scandal of my diagnosis. I don't think much has changed. Basically PSA testing is a good thing. https://healthunlocked.com/advanced-prostate-cancer/posts/148930895/psa-testing-scandal-lost-years-of-life-updated-re-qol [i]Posted later - please see
JohnInTheMiddle
in
Advanced Prostate Cancer
3 months ago
Chronic sinus issues
I’m currently on an Xtandi, Zometa and Lupron treatment plan. Could there be a correlation between one of these drugs and chronic sinus stuffiness? I also take a cholesterol drug and 3 different blood pressure meds. Thanks in advance if anyone has information. My Best Jim
I’m currently on an Xtandi, Zometa and Lupron treatment plan. Could there be a correlation between one of these drugs and chronic sinus stuffiness? I also take a cholesterol drug and 3 different blood pressure meds. Thanks in advance if anyone has information. My Best Jim
NDJIM
in
Advanced Prostate Cancer
3 months ago
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Will Existing Drugs Stop Cancer's Bone Spread? I don't know but it's driving me crazy!
Just because I cannot know which are the two repurposed drugs that seem to have such great results with metastasis. The chief researcher is Neta Erez who has great reputation in research about bone metastasis. I am inclined to think about Ivermectin as one of the possible components of the cocktail,
Just because I cannot know which are the two repurposed drugs that seem to have such great results with metastasis. The chief researcher is Neta Erez who has great reputation in research about bone metastasis. I am inclined to think about Ivermectin as one of the possible components of the cocktail,
Maxone73
in
Fight Prostate Cancer
3 months ago
Is Orgovyx as effective as Lupron/Degarelix ?
My Dad , 83 , with bone mets has started bicalutamide since a week and is soon to take the Lupron shot. But he has a fear of injections as many years back he has developed an abscess due to an injection wrongly given. Is orgovyx as effective as the injections in reducing testesterone ? One doctor
My Dad , 83 , with bone mets has started bicalutamide since a week and is soon to take the Lupron shot. But he has a fear of injections as many years back he has developed an abscess due to an injection wrongly given. Is orgovyx as effective as the injections in reducing testesterone ? One doctor
Tinkudi
in
Advanced Prostate Cancer
3 months ago
My Scan Story
Hi all...great info shared here that has helped me after my RP...I went from PSA of 2.4 in 2021 to a 4.91 in 10/23..Dr did a 12 core biopsy cause of 3 bro's and Dad all with PC. 2 cores came back with Gleason 7 and an 8. They did a PSMA test with nuclear dye that showed it confined to gland.(also did
Hi all...great info shared here that has helped me after my RP...I went from PSA of 2.4 in 2021 to a 4.91 in 10/23..Dr did a 12 core biopsy cause of 3 bro's and Dad all with PC. 2 cores came back with Gleason 7 and an 8. They did a PSMA test with nuclear dye that showed it confined to gland.(also did
wharr
in
Prostate Cancer Network
3 months ago
Mikemike
Hello....I am here and happy to help in any way I can. Will try to be concise. G-9...radiation only(28 sessions IMRT) a breeze. Declined lupron...because of a continuing anxiety condition. Metastices showed up 14 most later...PSA 6.7 up to 16.2 in 6 weeks. PSMA pet showed two rib mets and 1 other on
Hello....I am here and happy to help in any way I can. Will try to be concise. G-9...radiation only(28 sessions IMRT) a breeze. Declined lupron...because of a continuing anxiety condition. Metastices showed up 14 most later...PSA 6.7 up to 16.2 in 6 weeks. PSMA pet showed two rib mets and 1 other on
Poppy1952
in
Advanced Prostate Cancer
3 months ago
Lupron - are there heart risks?
My father , 83 , recently got diagnosed with Prostate cancer with mets to some bones , as per PSMA test. We have not done a biopsy as one doctor said there is no need to do it as treatment options won’t change but another doctor says it’s good to do it in case later down the line we need to add treatments
My father , 83 , recently got diagnosed with Prostate cancer with mets to some bones , as per PSMA test. We have not done a biopsy as one doctor said there is no need to do it as treatment options won’t change but another doctor says it’s good to do it in case later down the line we need to add treatments
Tinkudi
in
Advanced Prostate Cancer
3 months ago
PSA is back
I was 51 yr old diagnosed with Prostate cancer state 1 with a PSA 4.7. Gleasons mixed of 3+3's and 3+4's.I had robotic prostatectomy. Psa was undetectable until January 2023 and slowly creeped back up to .19 now in April 2024 . Just started Hormonal Therapy with radiation scheduled for August.
I was 51 yr old diagnosed with Prostate cancer state 1 with a PSA 4.7. Gleasons mixed of 3+3's and 3+4's.I had robotic prostatectomy. Psa was undetectable until January 2023 and slowly creeped back up to .19 now in April 2024 . Just started Hormonal Therapy with radiation scheduled for August.
LBbeachbum
in
Prostate Cancer Network
3 months ago
Oncologist visit today
Finished visit with oncologist. We are going to monitor PSA every 6 weeks to watch for doubling time. Next meds may be abiraterone and prednisone, but that still remains to be determined.
Finished visit with oncologist. We are going to monitor PSA every 6 weeks to watch for doubling time. Next meds may be abiraterone and prednisone, but that still remains to be determined.
ppulatie
in
Advanced Prostate Cancer
3 months ago
Please join us Tuesday,May 21st, for our Living Room discussion on Is a Clinical Trial Right for You?
Hello, Please join us in our San Carlos office Tuesday May 21st in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jorge J. Nieva, MD, Associate Professor of Clinical Medicine, Keck School of Medicine of USC, Medical Oncologist
Hello, Please join us in our San Carlos office Tuesday May 21st in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jorge J. Nieva, MD, Associate Professor of Clinical Medicine, Keck School of Medicine of USC, Medical Oncologist
Michelezeh
Partner
in
Lung Cancer Support
3 months ago
New approval for treatment of Small Cell Lung Cancer (SCLC)
FDA Approves Imdelltra (tarlatamab-dlle) for Extensive Stage Small Cell Lung Cancer Written by colleague, Matthew Reiss, MSE, PhD, Manager, Precision Medicine & Navigation, GO2 for Lung Cancer On May 16, 2024, the U.S. Food and Drug Administration (FDA) granted Imdelltra (tarlatamab-dlle) accelerated
FDA Approves Imdelltra (tarlatamab-dlle) for Extensive Stage Small Cell Lung Cancer Written by colleague, Matthew Reiss, MSE, PhD, Manager, Precision Medicine & Navigation, GO2 for Lung Cancer On May 16, 2024, the U.S. Food and Drug Administration (FDA) granted Imdelltra (tarlatamab-dlle) accelerated
Miranda_GO2
Partner
in
Lung Cancer Support
3 months ago
Dad,83 - is biopsy necessary ?
My dad , 83 had an elevated psa at 18. Dr ordered MRI which showed a pirads 5 with 2-3 bone metastases in the pelvic region and femur. Went to an oncologist who said to do a PSMA and then to start him on Lupron and bicalutamide. And maybe radiation for the bone met pain. He said he did not really
My dad , 83 had an elevated psa at 18. Dr ordered MRI which showed a pirads 5 with 2-3 bone metastases in the pelvic region and femur. Went to an oncologist who said to do a PSMA and then to start him on Lupron and bicalutamide. And maybe radiation for the bone met pain. He said he did not really
Tinkudi
in
Advanced Prostate Cancer
3 months ago
Rise in psa
I had rp in 2021 with recurrence 12 months later to 1 lymph node. RT to 9lymph nodes and zoladex hormone therapy for 18 months. Psa has been undetectable for 12 months but just rose to 0.03. Do I need to wait until it rises to 2.0 as I've seen advice before or is there a more proactive approach? Thanks
I had rp in 2021 with recurrence 12 months later to 1 lymph node. RT to 9lymph nodes and zoladex hormone therapy for 18 months. Psa has been undetectable for 12 months but just rose to 0.03. Do I need to wait until it rises to 2.0 as I've seen advice before or is there a more proactive approach? Thanks
Runner1957
in
Advanced Prostate Cancer
3 months ago
Drugs and high Calcium
My Oncologist wants me to take Prolia, but the Insurance will not pay for it and wants me to take Zometa. However, I did research on Zometa and its reputation is questionable. What are the alternatives? Xgeva seems better. Any thoughts about this.
My Oncologist wants me to take Prolia, but the Insurance will not pay for it and wants me to take Zometa. However, I did research on Zometa and its reputation is questionable. What are the alternatives? Xgeva seems better. Any thoughts about this.
Poollover
in
Advanced Prostate Cancer
3 months ago
What Next After Xtandi Fail?
Morning all. Don't post much but now is the time. Been fighting the Beast since Nov 2016. On Lupron from the beginning and Xtandi since Nov 2019. Hit Nadir of .21 in Dec 2022. Since then, PSA has been jumping around, but trending upward. End of 2023, it was at .67. Feb 2024, PSA up to .87. Yesterday
Morning all. Don't post much but now is the time. Been fighting the Beast since Nov 2016. On Lupron from the beginning and Xtandi since Nov 2019. Hit Nadir of .21 in Dec 2022. Since then, PSA has been jumping around, but trending upward. End of 2023, it was at .67. Feb 2024, PSA up to .87. Yesterday
ppulatie
in
Advanced Prostate Cancer
3 months ago
Non invasive detection of neuroendocrine PCa
An innovation to detect neuroendocrine PCa...and one of the researchers is a friend so I wanted to promote this paper :-P https://www.urotoday.com/video-lectures/prostate-cancer/video/mediaitem/3995-non-invasive-detection-of-neuroendocrine-prostate-cancer-through-targeted-cell-free-dna-methylation-himisha-beltran-francesca-demichelis.html
An innovation to detect neuroendocrine PCa...and one of the researchers is a friend so I wanted to promote this paper :-P https://www.urotoday.com/video-lectures/prostate-cancer/video/mediaitem/3995-non-invasive-detection-of-neuroendocrine-prostate-cancer-through-targeted-cell-free-dna-methylation-himisha-beltran-francesca-demichelis.html
Maxone73
in
Advanced Prostate Cancer
3 months ago
Toronto Prostate Cancer Specialist for Dad
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
My dad (68 years old) is visiting me (For my delivery in the first week of June) from India and he is going to be in Ontario, Canada for the next 3 months. He was diagnosed in Feb 2024 with a PSA of 24 and is completely asymptomatic. He is on hormone therapy with Gleason 8 and distant mets in his bones
Justgettingitright
in
Advanced Prostate Cancer
3 months ago
whenever i raise euthyrox100mg i get hbp headache nausea
is two weeks now i raised euthyrox from 75 yo 100mg and i dont think i can tolerate twice i tried and got hbp that even pills dont take it down
is two weeks now i raised euthyrox from 75 yo 100mg and i dont think i can tolerate twice i tried and got hbp that even pills dont take it down
morcan54
in
Thyroid UK
3 months ago
Update, small cell
Hi everyone, It's been a while since I posted but check in time to time. I'm not really sure of the purpose of this update is except we don't have a lot of family so I'm hoping writing it down will help. Please be sensitive as I'm struggling. I really can't hear about should of dones. My husband was
Hi everyone, It's been a while since I posted but check in time to time. I'm not really sure of the purpose of this update is except we don't have a lot of family so I'm hoping writing it down will help. Please be sensitive as I'm struggling. I really can't hear about should of dones. My husband was
Fdccs
in
Advanced Prostate Cancer
3 months ago
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