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Experiences with
Sjogren-Larsson syndrome
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Hydrocodone?
My doctor is prescribing hydrocodone for help with my restless legs during plane flights, in addition to my regular meds, ropinirole and pregabalin. Has anyone had experience with this? Thank you.
My doctor is prescribing hydrocodone for help with my restless legs during plane flights, in addition to my regular meds, ropinirole and pregabalin. Has anyone had experience with this? Thank you.
MountainWanderer
in
Restless Legs Syndrome
7 months ago
Conundrum Gastrin
Hi everyone, does anyone have advice when trying to increase weight when diagnosed with Intestinal Metaplasia and Hyperplasia. I have been doing some research regarding the damage that Gastrin can do when it doesn't switch off (NET's tumours) because of low stomach acid and as the Gastrin is activated
Hi everyone, does anyone have advice when trying to increase weight when diagnosed with Intestinal Metaplasia and Hyperplasia. I have been doing some research regarding the damage that Gastrin can do when it doesn't switch off (NET's tumours) because of low stomach acid and as the Gastrin is activated
Helliborous
in
Pernicious Anaemia Society
4 months ago
PMR again ?
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
I stopped pred on 8th October after 4 years and was OK until now. I have developed stiffness and aching in hips down to knees and am wondering whether the PMR has come again due to stress. I was diagnosed with breast cancer on 11th October and am currently on Letrozole to (hopefully !) shrink the tumour
Retallack
in
PMRGCAuk
7 months ago
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A tooth with a life of it's own!
Hi, all. I wrote in several months ago about a painful tooth. My dentist couldn't find anything wrong with it. He finally referred me to an endodontist, and he did a root canal. Found several issues. Would have been nice if that had been the end of it, but no! The pain would not go away, and I
Hi, all. I wrote in several months ago about a painful tooth. My dentist couldn't find anything wrong with it. He finally referred me to an endodontist, and he did a root canal. Found several issues. Would have been nice if that had been the end of it, but no! The pain would not go away, and I
orangemax
in
PMRGCAuk
10 months ago
buprenorphine study
Just wondering what people think about the recent study below? Study population was people with opioid use disorder (OUD) who are taking buprenorphine to manage it. Apparently an unusually high percentage of participants had RLS symptoms. I thought Bup alleviated symptoms? I’m in the process of getting
Just wondering what people think about the recent study below? Study population was people with opioid use disorder (OUD) who are taking buprenorphine to manage it. Apparently an unusually high percentage of participants had RLS symptoms. I thought Bup alleviated symptoms? I’m in the process of getting
707twitcher
in
Restless Legs Syndrome
7 months ago
Restless Leg Syndrome, neuromodulation..
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
House2
in
Restless Legs Syndrome
7 months ago
Co-codamol any good for RLS or PLMD?
I asked my GP for buprenorphine. He gave me co-codamol. Does anyone have any personal experience of this opioid? I'm not in pain, but have PLMD. I'd love to know if anyone has used co-codamol - and how they took it - and what their experience of it has been.
I asked my GP for buprenorphine. He gave me co-codamol. Does anyone have any personal experience of this opioid? I'm not in pain, but have PLMD. I'd love to know if anyone has used co-codamol - and how they took it - and what their experience of it has been.
pianoplayerPLMD
in
Restless Legs Syndrome
7 months ago
Pain management
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
JustVisiting23
in
Restless Legs Syndrome
7 months ago
Success Story (so far, anyway)
I've had RLS for decades, starting in my 30s. Was on carb/levidopa for a while till it became no longer effective, then switched to Roprinirole, which worked just great, but had to keep upping the dosage to keep it's effectiveness. At 4MG of Roprinirole, I was running out of options, did some research
I've had RLS for decades, starting in my 30s. Was on carb/levidopa for a while till it became no longer effective, then switched to Roprinirole, which worked just great, but had to keep upping the dosage to keep it's effectiveness. At 4MG of Roprinirole, I was running out of options, did some research
buzzin247
in
Restless Legs Syndrome
7 months ago
One Small Setback...
I reported to the forum four plus weeks ago, the RLS symptoms had temporarily disappeared, due to extreme attention and focus on two tennis tournaments I conducted at our community. I began to taper down from 20 mg methadone to 7.5 mg today. The jerkiness I experienced in the past were absent, with
I reported to the forum four plus weeks ago, the RLS symptoms had temporarily disappeared, due to extreme attention and focus on two tennis tournaments I conducted at our community. I began to taper down from 20 mg methadone to 7.5 mg today. The jerkiness I experienced in the past were absent, with
vikkitennis
in
Restless Legs Syndrome
7 months ago
Oxycodone OR Bupenerole
I have RLS and have been taking the hell tablet Pramipexole for over 20 years. I am now down to 2.5 tablets a day 0.088mg at night. I also take 20mg Oxycodone, one in the morning and one at night. My biggest problem at present is that at certain times of the day, I am fatigued to the point where I cannot
I have RLS and have been taking the hell tablet Pramipexole for over 20 years. I am now down to 2.5 tablets a day 0.088mg at night. I also take 20mg Oxycodone, one in the morning and one at night. My biggest problem at present is that at certain times of the day, I am fatigued to the point where I cannot
JoeR
in
Restless Legs Syndrome
8 months ago
Sjogrens
Hi All Does anyone have Sjogrens as well as RA? I have many of the symptoms of Sjogrens but I can’t see my rheumy for a while so I am self diagnosing but I’m pretty sure that’s what it is. I wondered whether anyone has found any otc remedies that help? The worst symptom at the moment is that my
Hi All Does anyone have Sjogrens as well as RA? I have many of the symptoms of Sjogrens but I can’t see my rheumy for a while so I am self diagnosing but I’m pretty sure that’s what it is. I wondered whether anyone has found any otc remedies that help? The worst symptom at the moment is that my
Bizzie
in
NRAS
1 year ago
Ferritin level
Hi all. I am a 74 year old man and I have had RLS for about 30 years. Resently it has become quite severe. I take .5mg of ropinirole at 7am, 12 noon, 5pm along with 480mg magnesium and at 8pm I take 1mg ropinirole along with 200 mg of gabapentin. I am having issues controling RLS and am unable to get
Hi all. I am a 74 year old man and I have had RLS for about 30 years. Resently it has become quite severe. I take .5mg of ropinirole at 7am, 12 noon, 5pm along with 480mg magnesium and at 8pm I take 1mg ropinirole along with 200 mg of gabapentin. I am having issues controling RLS and am unable to get
Hotrodder
in
Restless Legs Syndrome
8 months ago
Restless legs.
I have severe restless legs, as previously discussed within this forum. Over the past few years intercourse has become quite painful - middle age woman syndrome. Recently my GP started me on 10 milligrams estradiol vagifem pessaries. I understand that hrt has a significant impact on rls. My rls was
I have severe restless legs, as previously discussed within this forum. Over the past few years intercourse has become quite painful - middle age woman syndrome. Recently my GP started me on 10 milligrams estradiol vagifem pessaries. I understand that hrt has a significant impact on rls. My rls was
Trish8433
in
Restless Legs Syndrome
8 months ago
Gum Restore Plus
Since taking Suboxone I have been reading a lot of articles concerning the damaging effects on tooth and gum. To say the least, I am worried about the toothless future in my old age. Fortunately I stumbled upon a product, Gum Restore Plus by Tierra Essential, It seems to address the problems relating
Since taking Suboxone I have been reading a lot of articles concerning the damaging effects on tooth and gum. To say the least, I am worried about the toothless future in my old age. Fortunately I stumbled upon a product, Gum Restore Plus by Tierra Essential, It seems to address the problems relating
halperinchen
in
Restless Legs Syndrome
8 months ago
How to use the prone position more efficiently
In a post on HealthUnlocked https://healthunlocked.com/rlsuk/posts/150167349/could-this-be-why-some-of-us-have-less-rls-while-sleeping-in-the-prone-position?responses=150181979&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response , it's mentioned that the prone position is
In a post on HealthUnlocked https://healthunlocked.com/rlsuk/posts/150167349/could-this-be-why-some-of-us-have-less-rls-while-sleeping-in-the-prone-position?responses=150181979&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response , it's mentioned that the prone position is
VladimirF
in
Restless Legs Syndrome
8 months ago
BUPROPION
I received an email from Goodrx saying that Bupropion caused hair loss. I am loosing hair quite frequently and was wondering if anybody is having the same results. Also, if this is the cause of my hair loss, what other antidepressants will not aggravate my RLS. They are asleep right now because of
I received an email from Goodrx saying that Bupropion caused hair loss. I am loosing hair quite frequently and was wondering if anybody is having the same results. Also, if this is the cause of my hair loss, what other antidepressants will not aggravate my RLS. They are asleep right now because of
Josana13
in
Restless Legs Syndrome
10 months ago
4 months post TT
hi everyone! I am writing because I wanted to see if anybody had similar experiences. I am four months post total thyroidectomy, and in the first month or so I didn’t really feel many or any symptoms. Now in the past two months, I feel like I am feeling more symptoms of hypothyroidism than I did, in
hi everyone! I am writing because I wanted to see if anybody had similar experiences. I am four months post total thyroidectomy, and in the first month or so I didn’t really feel many or any symptoms. Now in the past two months, I feel like I am feeling more symptoms of hypothyroidism than I did, in
Rfranzoni
in
Thyroid UK
8 months ago
Alternating cannabis and pramipexole
I've been prescribed pramipexole by sleep specialist and my doctor. They're following the Mayo algorithm so I have to do this before they'll consider opioids. I've tried pregabalin, etc without success. Starting pramipexole on .125mg, up to max .75mg. I'm too scared to take them due to potential augmentation
I've been prescribed pramipexole by sleep specialist and my doctor. They're following the Mayo algorithm so I have to do this before they'll consider opioids. I've tried pregabalin, etc without success. Starting pramipexole on .125mg, up to max .75mg. I'm too scared to take them due to potential augmentation
Rayme
in
Restless Legs Syndrome
8 months ago
Drug Holidays
I’m among the relatively fortunately RLS sufferers that along with gabapentin can get decent relief from a 5mg dose of oxycodone immediate release. However, I am very concerned about limiting my dependence to this drug due to its power and am determined to avoid having this dosage increased. I believe
I’m among the relatively fortunately RLS sufferers that along with gabapentin can get decent relief from a 5mg dose of oxycodone immediate release. However, I am very concerned about limiting my dependence to this drug due to its power and am determined to avoid having this dosage increased. I believe
Nikos64
in
Restless Legs Syndrome
8 months ago
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