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Sinemet
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Balance issues
I have only ever taken
Sinemet
plus (25x100) four times daily for my PD, it is not helping my worsening balance problem, has any pwp found a medication that can help me, I am 79 and fed up withfalling over. just got through 100 tablets of thiamine in desperation, unfortunately it did not help in any
I have only ever taken
Sinemet
plus (25x100) four times daily for my PD, it is not helping my worsening balance problem, has any pwp found a medication that can help me, I am 79 and fed up withfalling over. just got through 100 tablets of thiamine in desperation, unfortunately it did not help in any
Ramondo
in
Cure Parkinson's
6 years ago
Ubiquino--L--
. :-( https://www.naturalmedicinejournal.com/journal/2016-02/reconsidering-coenzyme-q10-parkinsons-disease Tuesday appointment with my neurologist, after some months finally,......I think he will say,,, simply increase your
Sinemet
........
. :-( https://www.naturalmedicinejournal.com/journal/2016-02/reconsidering-coenzyme-q10-parkinsons-disease Tuesday appointment with my neurologist, after some months finally,......I think he will say,,, simply increase your
Sinemet
........
JANVAN
in
Cure Parkinson's
6 years ago
Holiday relief
Normally take 6 half-
Sinemet
CR a day and generally pretty well controlled. On holiday I was walking an average of 15000 steps every day including doing 1/2hr of running every other day (Couch to 5K program in case anyone has heard of it).
Normally take 6 half-
Sinemet
CR a day and generally pretty well controlled. On holiday I was walking an average of 15000 steps every day including doing 1/2hr of running every other day (Couch to 5K program in case anyone has heard of it).
buzbyc
in
Cure Parkinson's
6 years ago
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Flu and Parkinson's
Hi all I've recently had a very bad dose of flu and since then have experienced a worsening of my symptoms which until then have been mild and responding well to
Sinemet
. I'm now experiencing dyskenesia. I was diagnosed in December 2017 have been on
sinemet
25/100 3 x a day.
Hi all I've recently had a very bad dose of flu and since then have experienced a worsening of my symptoms which until then have been mild and responding well to
Sinemet
. I'm now experiencing dyskenesia. I was diagnosed in December 2017 have been on
sinemet
25/100 3 x a day.
SFLR
in
Cure Parkinson's
6 years ago
Sinemet: trial period?
What is the typical trial period of
Sinemet
to establish a PD diagnosis? Should improvement be apparent after several days of initiating therapy, or after several months?
What is the typical trial period of
Sinemet
to establish a PD diagnosis? Should improvement be apparent after several days of initiating therapy, or after several months?
Syncletica
in
Cure Parkinson's
6 years ago
Entacapon(comtan)
My neurologist prescribed Entacapon for me in order to prolong my
sinemet
effectiveness. Unfortunately it causes sleeplessness for me and that was at a very low dose just starting to take it. I have mixed feelings about this because I really do not like starting any new meds.
My neurologist prescribed Entacapon for me in order to prolong my
sinemet
effectiveness. Unfortunately it causes sleeplessness for me and that was at a very low dose just starting to take it. I have mixed feelings about this because I really do not like starting any new meds.
Enidah
in
Cure Parkinson's
6 years ago
Sinemet (carbidoba/levodoba) side effects
I would like to know if anybody who takes
Sinemet
had any trouble. I'm taking only B1 at this time.
I would like to know if anybody who takes
Sinemet
had any trouble. I'm taking only B1 at this time.
ion_ion
in
Cure Parkinson's
6 years ago
Side effects
About 4 years ago my symptoms started getting worse and my doctor started me on Carbodopa/Levadopa generic for
Sinemet
. I stared on a low dose for 3years with no problems that I was aware of.
About 4 years ago my symptoms started getting worse and my doctor started me on Carbodopa/Levadopa generic for
Sinemet
. I stared on a low dose for 3years with no problems that I was aware of.
Annie81963
in
Cure Parkinson's
6 years ago
Dry Mouth Using Thiamin
The first three days at 500mg once a day in am one hour after taking
sinemet
. The forth day he took 500mg in am as usual and 500mg around 11:00am. The two doses were four hours apart. He reported that he had dry mouth that day so bad he could hardly talk. Has anyone else experienced this?
The first three days at 500mg once a day in am one hour after taking
sinemet
. The forth day he took 500mg in am as usual and 500mg around 11:00am. The two doses were four hours apart. He reported that he had dry mouth that day so bad he could hardly talk. Has anyone else experienced this?
ramsey1717
in
Cure Parkinson's
6 years ago
CBD
I dont currently take any medication as
Sinemet
made no difference. I started to get muscle spasms about 2 months ago in a limb but this has now spread to all parts of my body. Its similar to cramp but not as bad, does anybody else have this?
I dont currently take any medication as
Sinemet
made no difference. I started to get muscle spasms about 2 months ago in a limb but this has now spread to all parts of my body. Its similar to cramp but not as bad, does anybody else have this?
Confusedandlost
in
PSP Association
6 years ago
Carbilev ( Sinemet ) advice please
When I was first diagnosed I was told to take 3 x 25/100 Carbilev a day. At that time my only problems were tremor in my right hand, no arm swing unless I thought about it and a tendency to fall because I was dragging my feet. I put off taking it for about 9 months and when I did I got very uncomfortable
When I was first diagnosed I was told to take 3 x 25/100 Carbilev a day. At that time my only problems were tremor in my right hand, no arm swing unless I thought about it and a tendency to fall because I was dragging my feet. I put off taking it for about 9 months and when I did I got very uncomfortable
Celtis
in
Cure Parkinson's
6 years ago
Over medicated reaction to Sinemet
My wife has PD and takes a very low dose of
Sinemet
. While it helps her with movement it also causes her to "peak" as I am told. When this happens she will appear over medicated for a couple of hours after taking the med.
My wife has PD and takes a very low dose of
Sinemet
. While it helps her with movement it also causes her to "peak" as I am told. When this happens she will appear over medicated for a couple of hours after taking the med.
chubbs1
in
Cure Parkinson's
6 years ago
So many medications
I know other PWP take more meds than me and I shouldn’t complain but my
Sinemet
gets me down as even with taking them in short intervals I still have off times where my gait is lousy and my tremors are terrible also my whole body goes stiff!
I know other PWP take more meds than me and I shouldn’t complain but my
Sinemet
gets me down as even with taking them in short intervals I still have off times where my gait is lousy and my tremors are terrible also my whole body goes stiff!
Shakinginnc
in
Cure Parkinson's
6 years ago
After Sinemet
I really am stuck with getting quick and expert advice here in Spain I am very aware that Ian is becoming less responsive to the
Sinemet
he has been on for the last 4 years. He is on the strongest dosage. He also takes Xadago, or Safinamide.
I really am stuck with getting quick and expert advice here in Spain I am very aware that Ian is becoming less responsive to the
Sinemet
he has been on for the last 4 years. He is on the strongest dosage. He also takes Xadago, or Safinamide.
JCRy
in
PSP Association
6 years ago
Mucana pruriens question
I’m thinking of swiping from 50-200
sinemet
xr to mucana. I see my neurologist tomorrow
I’m thinking of swiping from 50-200
sinemet
xr to mucana. I see my neurologist tomorrow
1953bullard
in
Cure Parkinson's
6 years ago
Achtenon-Biperidene
hey .my neurologist add to me a drug called Achtenon .im using
sinemet
and mirapex so did any one try it ,any benefits,side effect ?
hey .my neurologist add to me a drug called Achtenon .im using
sinemet
and mirapex so did any one try it ,any benefits,side effect ?
jack-carpenter
in
Cure Parkinson's
6 years ago
Follow up on B1 journey
It was doing a great job for the last 18months making the
sinemet
stable and long lasting and we took it for granted. Hubby has been on
Sinemet
for far too long and it works pathetically for him. Sorry for the rant but it gets really frustrating and scary sometimes.
It was doing a great job for the last 18months making the
sinemet
stable and long lasting and we took it for granted. Hubby has been on
Sinemet
for far too long and it works pathetically for him. Sorry for the rant but it gets really frustrating and scary sometimes.
nellie58
in
Cure Parkinson's
6 years ago
What is Parkinsons
I said that I seem to need more
Sinemet
, or nearer together when I was more active. Ah that is more like Parkinson’s. Have had a lot of thinking to do. Some days are good Some parts of some days are good.
I said that I seem to need more
Sinemet
, or nearer together when I was more active. Ah that is more like Parkinson’s. Have had a lot of thinking to do. Some days are good Some parts of some days are good.
M-o-ggy
in
Cure Parkinson's
6 years ago
Shortness of breath
I am on pretty heavy doses of
Sinemet
, having to take two tablets of 25/100 every two hours. Symptoms well under control. Dys comes when wear off begins. Quite manageable.
I am on pretty heavy doses of
Sinemet
, having to take two tablets of 25/100 every two hours. Symptoms well under control. Dys comes when wear off begins. Quite manageable.
martinstevens1
in
Cure Parkinson's
6 years ago
SOB
Anybody experience shortness of breath as
Sinemet
wearing off?
Anybody experience shortness of breath as
Sinemet
wearing off?
BNeal636
in
Cure Parkinson's
6 years ago
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