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Sinemet CR
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100% Pure Mucuna Pruriens
Hello! I realize that everyone is different, but, to hear your experience will be a great help. I’ve seen a couple of PWP in this forum WHO are in the 100% pure MP. My husband started taking the mucuna 3 months ago, he’s currently taking one Barlowe’s, 5 tsp 3.3 mucuna powder and one sinemet every
Hello! I realize that everyone is different, but, to hear your experience will be a great help. I’ve seen a couple of PWP in this forum WHO are in the 100% pure MP. My husband started taking the mucuna 3 months ago, he’s currently taking one Barlowe’s, 5 tsp 3.3 mucuna powder and one sinemet every
pdwife41yrs
in
Cure Parkinson's
4 years ago
How I cope with RLS for 20 years
I believe I've had RLS since I was a child. I was diagnosed 20 years ago and given Sinemet 25/100. I take 1 to 3 at bedtime and it serves me well. I have had several doctors try to take me off this drug and have had me try numerous gourmet drugs and all had side effects that made it not worth it.
I believe I've had RLS since I was a child. I was diagnosed 20 years ago and given Sinemet 25/100. I take 1 to 3 at bedtime and it serves me well. I have had several doctors try to take me off this drug and have had me try numerous gourmet drugs and all had side effects that made it not worth it.
stathal
in
Restless Legs Syndrome
4 years ago
Anyone prepare their PD meds in water the night before?
My dad has a lot of trouble in the morning, getting up, taking his meds... He is currently on 1 sinemet and 2.5 barlowe's 40% extract. We are wondering about crushing his sinemet and emptying the barlowe capsules and mixing them all up into lemon water the night before so that in the morning all he
My dad has a lot of trouble in the morning, getting up, taking his meds... He is currently on 1 sinemet and 2.5 barlowe's 40% extract. We are wondering about crushing his sinemet and emptying the barlowe capsules and mixing them all up into lemon water the night before so that in the morning all he
pdkid
in
Cure Parkinson's
4 years ago
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Can't seem to stop constant underarm odor
Hello, My wife has had PD for around four years. This strong underarm odor always returns in 1-2 days after a good cleaning. The anti-perspirant deodorants make no difference at all, because she very seldom, if ever, perspires/sweats. I've started using my Brut deodorant on her but that was no help either
Hello, My wife has had PD for around four years. This strong underarm odor always returns in 1-2 days after a good cleaning. The anti-perspirant deodorants make no difference at all, because she very seldom, if ever, perspires/sweats. I've started using my Brut deodorant on her but that was no help either
389poncho
in
Cure Parkinson's
4 years ago
I am starting Sinemet tomorrow...
What foods should I stay away from while taking Sinemet?? Thanks
What foods should I stay away from while taking Sinemet?? Thanks
Plindrnbs
in
Cure Parkinson's
4 years ago
Sinemet induced dementia
I was talking to a friend recently whose husband is a PwP. She said he had developed dementia from taking Sinemet for a long period of time, 20 years in his case. I had never heard of this before, and none of my doctors have mentioned it. Has anyone else heard about this?
I was talking to a friend recently whose husband is a PwP. She said he had developed dementia from taking Sinemet for a long period of time, 20 years in his case. I had never heard of this before, and none of my doctors have mentioned it. Has anyone else heard about this?
health_detective
in
Cure Parkinson's
4 years ago
URINARY URGE.DO YOU EXPERIENCE THIS AS A PWP?
Hi everyone,do you or have you experienced the increasing urge to urinate,which can sometimes lead to accidents, especially during off periods? I am 3 1/4 years post diagnosis and on sinemet. I was on Azilect for about six months post diagnosis,before starting on sinemet and I also experience this symptom
Hi everyone,do you or have you experienced the increasing urge to urinate,which can sometimes lead to accidents, especially during off periods? I am 3 1/4 years post diagnosis and on sinemet. I was on Azilect for about six months post diagnosis,before starting on sinemet and I also experience this symptom
OREOLU
in
Cure Parkinson's
4 years ago
Reducing Sinemet
I recently posted a question about reducing Sinemet doses do you see if there was anybody else out there who had done this successfully. Maybe I am an anomaly but I’ve been able to reduce from 6 pills a day to less than 2 over the past 10 years and some days I can manage on 1 pill. It’s taken a lot of
I recently posted a question about reducing Sinemet doses do you see if there was anybody else out there who had done this successfully. Maybe I am an anomaly but I’ve been able to reduce from 6 pills a day to less than 2 over the past 10 years and some days I can manage on 1 pill. It’s taken a lot of
Kt088
in
Cure Parkinson's
4 years ago
Reducing Sinemet doses
Has anyone been able to successfully reduce their Sinemet doses?
Has anyone been able to successfully reduce their Sinemet doses?
Kt088
in
Cure Parkinson's
4 years ago
Is anyone elses hand functionally directly related to taking Sinemet (Kinson) and/or is anyone taking 12 or more tablets per day?
I was just wondering if anyone: 1. Experiences an almost instant “on”, “off” effect with their hand functionality when taking Sinemet/Kinson (ie 100 levodopa/25 carbidopa which I will call for the resot of this post as "Sinemet" ) and/or 2. has been taking, over a long period of time, equal to o
I was just wondering if anyone: 1. Experiences an almost instant “on”, “off” effect with their hand functionality when taking Sinemet/Kinson (ie 100 levodopa/25 carbidopa which I will call for the resot of this post as "Sinemet" ) and/or 2. has been taking, over a long period of time, equal to o
Hanmonih
in
Cure Parkinson's
4 years ago
Mucuna sinemet equivalent?
We have successfully been reducing my dad's sinemet intake and replacing it with mucuna. We started off with the raw powder but for convenience sake, have switched to the now brand 15% capsules. I am just trying to figure out equivalent doses. Can anyone clarify? Based on my understanding, 1 tablet
We have successfully been reducing my dad's sinemet intake and replacing it with mucuna. We started off with the raw powder but for convenience sake, have switched to the now brand 15% capsules. I am just trying to figure out equivalent doses. Can anyone clarify? Based on my understanding, 1 tablet
pdkid
in
Cure Parkinson's
4 years ago
Carbidopa in Sinemet very harmful.
I recently ran across a research study on the serious damage done by the carbidopa in Sinemet (generic = carbidopa levodopa). It is a documented cause of a striking increase in deaths in Parkinson’s sufferers since it was added to L-dopa (levodopa), and since people with RLS often are prescribed the
I recently ran across a research study on the serious damage done by the carbidopa in Sinemet (generic = carbidopa levodopa). It is a documented cause of a striking increase in deaths in Parkinson’s sufferers since it was added to L-dopa (levodopa), and since people with RLS often are prescribed the
grandpianoman
in
Restless Legs Syndrome
4 years ago
B1 Thiamin
To PWP who are taking B1, kindly share the first time you took it, what time of the day, how much and it’s effect on you and when is the next dose. I’m just overwhelmed at the moment and excited. Today, my husband started when he woke up at 5 a.m, 1-1/2 tab sinemet, 4 dopa mucuna pills and 2 (500 mg
To PWP who are taking B1, kindly share the first time you took it, what time of the day, how much and it’s effect on you and when is the next dose. I’m just overwhelmed at the moment and excited. Today, my husband started when he woke up at 5 a.m, 1-1/2 tab sinemet, 4 dopa mucuna pills and 2 (500 mg
pdwife41yrs
in
Cure Parkinson's
4 years ago
Hello again, I need help from all the knowledgeable experts here please.
I have withdrawn from 0.75 mg Pramipexole at bedtime once daily and 100/25 Sinemet once at bedtime starting August 2019. You all know how miserable that was .. I then went onto Gabapentin , increasing to 1200 mg in divided doses at bedtime, with Targin 25 mg at the same time. I have struggled with
I have withdrawn from 0.75 mg Pramipexole at bedtime once daily and 100/25 Sinemet once at bedtime starting August 2019. You all know how miserable that was .. I then went onto Gabapentin , increasing to 1200 mg in divided doses at bedtime, with Targin 25 mg at the same time. I have struggled with
wairoa36
in
Restless Legs Syndrome
4 years ago
Would you call this a step towards "recovery" from PD?
My purpose in writing this is to get feedback on whether my experiences are similar to anyone else's and to get your opinion about where I stand now and where I might be going. I'm not claiming to be recovered, but if you read the rest of this rather long post, you'll see that my condition has improved
My purpose in writing this is to get feedback on whether my experiences are similar to anyone else's and to get your opinion about where I stand now and where I might be going. I'm not claiming to be recovered, but if you read the rest of this rather long post, you'll see that my condition has improved
JerMan22
in
Cure Parkinson's
4 years ago
How many hours do you sleep?
Does anyone sleep at least 6 hours straight at night? Or is it always fragmented for you? What do you do to have a good night's sleep. My dad can't seem to get more than 4-5 hours a night. Sometimes he takes a cbd/melatonin/valarian tincture, other times an Aleve night pill... He has taken marijuana
Does anyone sleep at least 6 hours straight at night? Or is it always fragmented for you? What do you do to have a good night's sleep. My dad can't seem to get more than 4-5 hours a night. Sometimes he takes a cbd/melatonin/valarian tincture, other times an Aleve night pill... He has taken marijuana
pdkid
in
Cure Parkinson's
4 years ago
Timing of Medication
I am a 72 year old woman who has had pd for 4.5 years. I can't seem to get my dosing of sinemet correct and suffer terrible off periods at least 3 times a day or more. I take 3 C/L ER 3 times a day and 1 C/L IR 25/100 4 times a day and I don't know what time to take the meds to keep my dopamine
I am a 72 year old woman who has had pd for 4.5 years. I can't seem to get my dosing of sinemet correct and suffer terrible off periods at least 3 times a day or more. I take 3 C/L ER 3 times a day and 1 C/L IR 25/100 4 times a day and I don't know what time to take the meds to keep my dopamine
schatsie
in
Cure Parkinson's
4 years ago
Rytary overdosage
My husband has been on Rytary since 11-19-19! Sinemet for 20 years before! We changed bc he was freezing a lot and we heard good things about Rytary! He has still been freezing, but under control! His 1:00 pm time had been his hardest so we upped it from three to four pills (48.75-195mg) and left
My husband has been on Rytary since 11-19-19! Sinemet for 20 years before! We changed bc he was freezing a lot and we heard good things about Rytary! He has still been freezing, but under control! His 1:00 pm time had been his hardest so we upped it from three to four pills (48.75-195mg) and left
grannma
in
Cure Parkinson's
4 years ago
Significant cost increase for ER Sinemet?
Copay Cost of extended release Sinemet increased significantly in 2020. (10x) for me Regular release did not change anyone else notice this?
Copay Cost of extended release Sinemet increased significantly in 2020. (10x) for me Regular release did not change anyone else notice this?
Coot18
in
Cure Parkinson's
4 years ago
Sinemet cr
I was talking to someone else with PD and told them I took 100cr every 2+half hours and they told me that it was dangerous to take them so often as the were designed to be take every 4+ hours . I’m worried now as are regular Sinemet,gives me even less on time Has anyone heard this I would like to
I was talking to someone else with PD and told them I took 100cr every 2+half hours and they told me that it was dangerous to take them so often as the were designed to be take every 4+ hours . I’m worried now as are regular Sinemet,gives me even less on time Has anyone heard this I would like to
Connie18
in
Cure Parkinson's
5 years ago
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