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Experiences with
Sinemet CR
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Side effect of Sinemet
- [ ] I am 70 years old,was diagnosed PD 5 years ago. The first 4 years, I was OK with Sinemet as 100/25, 3 times a day. But from last Summer, after taking the same amount of Sinemet 30 minutes or one hour, my left body got Muscle tightness and serious dystonia of left foot and shoulder until off time
- [ ] I am 70 years old,was diagnosed PD 5 years ago. The first 4 years, I was OK with Sinemet as 100/25, 3 times a day. But from last Summer, after taking the same amount of Sinemet 30 minutes or one hour, my left body got Muscle tightness and serious dystonia of left foot and shoulder until off time
Grandsonlover
in
Cure Parkinson's
2 months ago
Sinemet has saved my life, for now.
Great depressive crisis last night with accelerated breathing, tremors, stiffening. When you have no one competent to share your condition with and have some comfort, it is dangerous not to have Sinemet at hand. I had to run and get it while I was still sane enough to avoid taking another kind of pills
Great depressive crisis last night with accelerated breathing, tremors, stiffening. When you have no one competent to share your condition with and have some comfort, it is dangerous not to have Sinemet at hand. I had to run and get it while I was still sane enough to avoid taking another kind of pills
michelagvolpe
in
Cure Parkinson's
2 months ago
Minimum of 70 mg Carbidopa daily???
https://www.pdr.net/drug-summary/
Sinemet
-
CR
-carbidopa-levodopa-389.1769 Does anyone know the reason and possibly the link of the medical justification for this recommendation? Merci 🍀
https://www.pdr.net/drug-summary/
Sinemet
-
CR
-carbidopa-levodopa-389.1769 Does anyone know the reason and possibly the link of the medical justification for this recommendation? Merci 🍀
Esperanto
in
Cure Parkinson's
1 year ago
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Off Dyskinesia-anyone else have it? What's your fix?
Approximate 11 years into taking sinemet my pharmacy started only carrying generic versions. Which I'd when I started experiencing dyskinesia when the Carbidopa/levadopa started to wear off. And was told snd treated by a movement specialist that I was over medicated and attempted to reduce my dosage
Approximate 11 years into taking sinemet my pharmacy started only carrying generic versions. Which I'd when I started experiencing dyskinesia when the Carbidopa/levadopa started to wear off. And was told snd treated by a movement specialist that I was over medicated and attempted to reduce my dosage
YOParky
in
Cure Parkinson's
3 months ago
Parkinson sufferer looking insomnia cure
I was diagnosed with Parkinsons about 3 years ago … I am currently on no medication but for the last few months I have been suffering from chronic insomnia and now it’s so bad I only get about 1 hour of rest per night … I am looking for advice on any medication people found helpful or any tips that helped
I was diagnosed with Parkinsons about 3 years ago … I am currently on no medication but for the last few months I have been suffering from chronic insomnia and now it’s so bad I only get about 1 hour of rest per night … I am looking for advice on any medication people found helpful or any tips that helped
MgtMc
in
Cure Parkinson's
3 months ago
B1 HDT Protocol with Sinemet
Does anyone happen to know should the thiamine be taken before, after, or at the same time as sinemet?Or does it even matter?
Does anyone happen to know should the thiamine be taken before, after, or at the same time as sinemet?Or does it even matter?
lionessroar
in
Cure Parkinson's
3 months ago
Request for Information
Request for Information Hi from the UK, I take trihexyphenidyl (2 mg 2 x day) I want to take Citicoline but I’m sure I read somewhere that the two are not compatible as one stops the other from working. I’d be very glad if anyone has any experience of this. I am twenty years in and have been taking
Request for Information Hi from the UK, I take trihexyphenidyl (2 mg 2 x day) I want to take Citicoline but I’m sure I read somewhere that the two are not compatible as one stops the other from working. I’d be very glad if anyone has any experience of this. I am twenty years in and have been taking
Palmar
in
Cure Parkinson's
3 months ago
IPX203 shows sustained safety, efficacy in RISE-PD extension trial
Using IPX203, an extended-release formulation of carbidopa/levodopa (CD/LD), was associated with a sustained control of symptoms for Parkinson’s disease patients who participated in the open-label extension of the RISE-PD Phase 3 trial. Final results from the nine-month extension study (NCT03877510
Using IPX203, an extended-release formulation of carbidopa/levodopa (CD/LD), was associated with a sustained control of symptoms for Parkinson’s disease patients who participated in the open-label extension of the RISE-PD Phase 3 trial. Final results from the nine-month extension study (NCT03877510
Farooqji
in
Cure Parkinson's
4 months ago
Frightening Experience
Last night, we were returning from the mall and when we reached home, I could not get out of the car. My wife was driving as she always does. I had started the day off with a later than usual dose of Sinemet (25/250) and had given enough time - about an hour for the most recent dose to kick in. Yet
Last night, we were returning from the mall and when we reached home, I could not get out of the car. My wife was driving as she always does. I had started the day off with a later than usual dose of Sinemet (25/250) and had given enough time - about an hour for the most recent dose to kick in. Yet
pdpatient
in
Cure Parkinson's
4 months ago
Interesting paper
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8634393/ Dietary approaches to supplement Sinemet therapy.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8634393/ Dietary approaches to supplement Sinemet therapy.
pdpatient
in
Cure Parkinson's
4 months ago
Mucuna without Sinemet?
Can anyone tell me how to get more symptom relief from just taking mucuna, (specifically NOW brand) alone, WITHOUT taking any Sinemet? I’ve read about green tea enhancing its effectiveness….any other ideas?
Can anyone tell me how to get more symptom relief from just taking mucuna, (specifically NOW brand) alone, WITHOUT taking any Sinemet? I’ve read about green tea enhancing its effectiveness….any other ideas?
Ob6842
in
Cure Parkinson's
4 months ago
Horizant tapering
Dear All: Apologies- I might be unintentionally reposting this: I have been on Horizant for about seven months, at 600mg in the morning and 600mg in the evening (1,200 mg total). Before that, I was on 600mg Gabapentin daily for two years. Recently, my doctor and I have agreed to reduce my Horizant
Dear All: Apologies- I might be unintentionally reposting this: I have been on Horizant for about seven months, at 600mg in the morning and 600mg in the evening (1,200 mg total). Before that, I was on 600mg Gabapentin daily for two years. Recently, my doctor and I have agreed to reduce my Horizant
JustVisiting23
in
Restless Legs Syndrome
4 months ago
Need advice on my tremor symptoms
Hi all, I would very much appreciate some advice on my symptoms. I am not on medication yet but am taking mucana, b1, l-tyryosine, b complex and magnesium. I am a year away from diagnosis. Is this typical of PD? My Dr. is unsure as well. He is going to probably put me on sinemet to see how I respond
Hi all, I would very much appreciate some advice on my symptoms. I am not on medication yet but am taking mucana, b1, l-tyryosine, b complex and magnesium. I am a year away from diagnosis. Is this typical of PD? My Dr. is unsure as well. He is going to probably put me on sinemet to see how I respond
Hope-full1970
in
Cure Parkinson's
5 months ago
Bladder problems..... the saga continues......
Well husband has has his bladder control review report. We alreeady know only part of it is functional. (we've been enquiring about a catheter. I guess this is the 1st step).The conclusion. His diabetic medication needs reviewing. His Sinemet may be causing the problem (even though it started long before
Well husband has has his bladder control review report. We alreeady know only part of it is functional. (we've been enquiring about a catheter. I guess this is the 1st step).The conclusion. His diabetic medication needs reviewing. His Sinemet may be causing the problem (even though it started long before
Schmall
in
Multiple System Atrophy Trust
5 months ago
any CARNIVORE DIETers out there?
As an experiment, I've gone Carnivore! I have been hearing a lot of amazing testimonials recently. Many are from doctors that have done this themselves. I figured I'd try it out myself. What's the worst that can happen? I already have Parkinsons Disease! I know, I know! What about FIBERRRRR? What
As an experiment, I've gone Carnivore! I have been hearing a lot of amazing testimonials recently. Many are from doctors that have done this themselves. I figured I'd try it out myself. What's the worst that can happen? I already have Parkinsons Disease! I know, I know! What about FIBERRRRR? What
bassofspades
in
Cure Parkinson's
5 months ago
PD with Peripheral neuropathy ? (not diabetic) Taking Sinemet with Gabapentin...
These 2 drugs make me dizzy and spacy I can barely function as day goes on.Anyone out there have some advice? I'm at my wits end!!
These 2 drugs make me dizzy and spacy I can barely function as day goes on.Anyone out there have some advice? I'm at my wits end!!
Lyrics19
in
Cure Parkinson's
5 months ago
K0706 Clinical Trial
I'm recently diagnosed and have not started any PD meds, though my neurologist says Sinemet would probably help my symptoms. I'm not having terrible or disruptive symptoms, just an annoying leg tremor, fatigue and stiffness. I see a PT and exercise, which really helps with the stiffness. I'm postponing
I'm recently diagnosed and have not started any PD meds, though my neurologist says Sinemet would probably help my symptoms. I'm not having terrible or disruptive symptoms, just an annoying leg tremor, fatigue and stiffness. I see a PT and exercise, which really helps with the stiffness. I'm postponing
Salted
in
Cure Parkinson's
6 months ago
Get off Sinemet?
My husband does not have tremors, but definitely has drooling, is stooped, is stiff and slow, at times has fast gait and/ or severe hesitation with moving, all classic PD symptoms as well as has some cognitive decline. Diagnosed with atypical PD in May 2022. He is doing many wonderful alternative therapies
My husband does not have tremors, but definitely has drooling, is stooped, is stiff and slow, at times has fast gait and/ or severe hesitation with moving, all classic PD symptoms as well as has some cognitive decline. Diagnosed with atypical PD in May 2022. He is doing many wonderful alternative therapies
Kat343
in
Cure Parkinson's
6 months ago
Parkinson's wife
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
veronicacoath
in
Cure Parkinson's
6 months ago
Food and "off" times
Hi Everyone! Recently I've had frustrating issues with eating a meal followed by "off" times of a few hours. I know about keeping proteins away from sinemet as they compete for the same receptors in the gut. I can time my dose of sinemet (a generic, 25/100, 3 x day) an hour before eating a meal, feeling
Hi Everyone! Recently I've had frustrating issues with eating a meal followed by "off" times of a few hours. I know about keeping proteins away from sinemet as they compete for the same receptors in the gut. I can time my dose of sinemet (a generic, 25/100, 3 x day) an hour before eating a meal, feeling
PDFree
in
Cure Parkinson's
6 months ago
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