Search
Search
About
Log in
Join
Experiences with
Rytary
Posts
Communities
324 public posts
Filter results
Levadopa (Rytary) should I keep trying to cut back?
Hi all — I take a boatload of
Rytary
; I got kind of scared about it and asked the Dr if I could try cutting back. So I was trying the next level lower which is 100 mg below. Which seems like a lot but the higher is just awful in terms of dyskinesia and feeling bad. It just seems like too much.
Hi all — I take a boatload of
Rytary
; I got kind of scared about it and asked the Dr if I could try cutting back. So I was trying the next level lower which is 100 mg below. Which seems like a lot but the higher is just awful in terms of dyskinesia and feeling bad. It just seems like too much.
Godiv
in
Cure Parkinson's
7 months ago
Repost with more info: peripheral neuropathy
I tried
Rytary
end of last year, found it difficult to manage. May still be an option. 5. Spinal stenosis? Thanks again to those who responded to my first post. Rebecca
I tried
Rytary
end of last year, found it difficult to manage. May still be an option. 5. Spinal stenosis? Thanks again to those who responded to my first post. Rebecca
rebtar
in
Cure Parkinson's
3 months ago
Wearing off symptoms
I am not sure but I think I may have worse brain fog with
Rytary
, any one else experience this? Thanks my friends... Rebecca
I am not sure but I think I may have worse brain fog with
Rytary
, any one else experience this? Thanks my friends... Rebecca
rebtar
in
Cure Parkinson's
10 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Apathy, compulsiveness, and how to manage?
I was prescribed
Rytary
3x145 three times per day. I felt like I was on speed. Dropped to 2x145 plus 1x95. At 8am, 1-1:30 pm and 6-6:30pm. 200 C/L ER at bedtime. Big slump mid afternoon, MDS said ok to take 1/2-1 C/L IR around 2:30 as needed.
I was prescribed
Rytary
3x145 three times per day. I felt like I was on speed. Dropped to 2x145 plus 1x95. At 8am, 1-1:30 pm and 6-6:30pm. 200 C/L ER at bedtime. Big slump mid afternoon, MDS said ok to take 1/2-1 C/L IR around 2:30 as needed.
rebtar
in
Cure Parkinson's
7 months ago
Rytary update
I know some say not to mix
Rytary
with regular C/L, but my neuro is ok with it.
I know some say not to mix
Rytary
with regular C/L, but my neuro is ok with it.
rebtar
in
Cure Parkinson's
11 months ago
Is Rytary really working better than Carbidopa/Levodopa?
Anyway the tie toe curling has been worsening interfering with sleep and activities so the doctor suggested I try
Rytary
. I’ve been on it for 8 days. Toe curling is even worse! While I’m not napping too much like I had been, I’m also not sleeping much which is awful.
Anyway the tie toe curling has been worsening interfering with sleep and activities so the doctor suggested I try
Rytary
. I’ve been on it for 8 days. Toe curling is even worse! While I’m not napping too much like I had been, I’m also not sleeping much which is awful.
Gallowglass
in
Cure Parkinson's
10 months ago
hopeless
I have also tried azilect, neupro, ropinerole, c/l ,
rytary
. I was taking 3 25/100 c/l 5 x/ day and I was experiencing akathisia in OFF time. MDS switched me to
Rytary
; no more off time and I am taking less pills each day.
I have also tried azilect, neupro, ropinerole, c/l ,
rytary
. I was taking 3 25/100 c/l 5 x/ day and I was experiencing akathisia in OFF time. MDS switched me to
Rytary
; no more off time and I am taking less pills each day.
Jmellano
in
Cure Parkinson's
10 months ago
High Dose CL ?
I have not found anyone taking this high of dose: 8am: 25/100 CL x 3 11am: 25/100 CL x3 2pm: 25/100 CL x3 5pm: 25/100 CL x3 8pm: 25/100 CL x3 11pm: 25/100 CL x 1 but then a
Rytary
along with 3mg Melatonin.
I have not found anyone taking this high of dose: 8am: 25/100 CL x 3 11am: 25/100 CL x3 2pm: 25/100 CL x3 5pm: 25/100 CL x3 8pm: 25/100 CL x3 11pm: 25/100 CL x 1 but then a
Rytary
along with 3mg Melatonin.
Furch
in
Cure Parkinson's
9 months ago
Rytary update
Now on
Rytary
, my sleep is much worse. I’m waking up between 1-3 and spend the rest of the night sedated from the sleep meds but not sleeping.
Rytary
also seems to worsen my brain fog, that’s not only due to the poor sleep, as I noticed it the first day I took
Rytary
.
Now on
Rytary
, my sleep is much worse. I’m waking up between 1-3 and spend the rest of the night sedated from the sleep meds but not sleeping.
Rytary
also seems to worsen my brain fog, that’s not only due to the poor sleep, as I noticed it the first day I took
Rytary
.
rebtar
in
Cure Parkinson's
1 year ago
"Off periods"
After 4 years on Sinemet or
Rytary
I'd occasionally stop the treatment. I decided to stop
Rytary
two months ago. And no problems happened.. More importantly, no return of the double vision. A positive effect was a return of libido.
After 4 years on Sinemet or
Rytary
I'd occasionally stop the treatment. I decided to stop
Rytary
two months ago. And no problems happened.. More importantly, no return of the double vision. A positive effect was a return of libido.
kaypeeoh
in
Cure Parkinson's
11 months ago
Sinemet vs. Rytary
Does anyone have experience with these? How does Sinemet perform vs. Rotary. Which do you prefer and why. My neurologist recommended the latter, but I'm not so sure that's the best choice. Would love your opinions.
Does anyone have experience with these? How does Sinemet perform vs. Rotary. Which do you prefer and why. My neurologist recommended the latter, but I'm not so sure that's the best choice. Would love your opinions.
JimmyA1974
in
Cure Parkinson's
1 year ago
Rytary… might stop??
I also feel more sedated on
Rytary
, and between the afternoon slump and the med schedule, my exercise schedule of hiking late in the afternoon is disrupted. I walk in the AM, but not as much. Sleep seems lighter. I don’t know if this is because of the
Rytary
, or not exercising in the afternoon.
I also feel more sedated on
Rytary
, and between the afternoon slump and the med schedule, my exercise schedule of hiking late in the afternoon is disrupted. I walk in the AM, but not as much. Sleep seems lighter. I don’t know if this is because of the
Rytary
, or not exercising in the afternoon.
rebtar
in
Cure Parkinson's
1 year ago
Rytary switching, tips from your success?
My MDS has recommended switching to
Rytary
. She says "most" people do better on
Rytary
. I have been taking one 25/100 immediate release and one 25/100 Continuous release generic C/L at 8, 12, 3:30-4ish and 7:30ish. I also have added citicoline.
My MDS has recommended switching to
Rytary
. She says "most" people do better on
Rytary
. I have been taking one 25/100 immediate release and one 25/100 Continuous release generic C/L at 8, 12, 3:30-4ish and 7:30ish. I also have added citicoline.
rebtar
in
Cure Parkinson's
1 year ago
Rytary
1 -25/100 and 145 mg
Rytary
helps with off time when I run out of dopamine, I have to sit down and wait for pills to kick in, but the
Rytary
helps with that now, but I’m very stiff and achy in leg and arm since on
Rytary
, anyone else experiencing stiffness with
Rytary
?
1 -25/100 and 145 mg
Rytary
helps with off time when I run out of dopamine, I have to sit down and wait for pills to kick in, but the
Rytary
helps with that now, but I’m very stiff and achy in leg and arm since on
Rytary
, anyone else experiencing stiffness with
Rytary
?
akgirlsrock
in
Cure Parkinson's
1 year ago
Hypochondria
[/i] [i]Dealing with this caused me to forget my daily
Rytary
. So without PD medication for the past month I should be deep into the "Off" period. But no, my main symptom being double vision, I an symptom-free.
[/i] [i]Dealing with this caused me to forget my daily
Rytary
. So without PD medication for the past month I should be deep into the "Off" period. But no, my main symptom being double vision, I an symptom-free.
kaypeeoh
in
Cure Parkinson's
11 months ago
Diabetes, A1C level 6.1, RYTARY re: to kindey disease???
My A1C is 6.1, i have read articles diabetes and PD are inter twined? ALong with kidney function?
My A1C is 6.1, i have read articles diabetes and PD are inter twined? ALong with kidney function?
cjCardio53
in
Cure Parkinson's
1 year ago
reasons for bad balance/dizzziness
nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+
rytary
) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort of vertigo mentioned by Dr. Bas Bloem) ----- Any experience with Revastigmine for balance?
nOH (neurogenic orthostatic hypotension) Can be caused by rasagilene+
rytary
) 4. side effect of midodrine (increases when combined with rasagiline) 5. BPPV (a sort of vertigo mentioned by Dr. Bas Bloem) ----- Any experience with Revastigmine for balance?
pmmargo
in
Cure Parkinson's
6 months ago
Sweat every day
Results: much less stiffness, better sleep, occasionally skip 1 dose of
Rytary
at night since I don't feel symptoms much or have been able to delay earlier doses. My dosage:
Rytary
245 x 4 / day Get out there and sweat people! Plus you feel a lot better.
Results: much less stiffness, better sleep, occasionally skip 1 dose of
Rytary
at night since I don't feel symptoms much or have been able to delay earlier doses. My dosage:
Rytary
245 x 4 / day Get out there and sweat people! Plus you feel a lot better.
SanMateoPD
in
Cure Parkinson's
1 year ago
Rytary and Deep Brain Stimulation
my husband has been taking
Rytary
for a year. We noticed his veins get large and tingle which he says at time hurts. It gives him a terrible headache more then the the plain C/L. The Dr wants him to consider DBS now . He said it has benefits but won’t last forever then back to square one.
my husband has been taking
Rytary
for a year. We noticed his veins get large and tingle which he says at time hurts. It gives him a terrible headache more then the the plain C/L. The Dr wants him to consider DBS now . He said it has benefits but won’t last forever then back to square one.
Blueyedgirlky
in
Cure Parkinson's
1 year ago
rytary
Does anyone take
Rytary
around the clock. My dr told me to play with it to figure out what works best. I know this is an unusual dosage, but to prevent dyskinesia I take one 195 every three hours until eight pm, after that very little sleep until my next dose at 5 am.
Does anyone take
Rytary
around the clock. My dr told me to play with it to figure out what works best. I know this is an unusual dosage, but to prevent dyskinesia I take one 195 every three hours until eight pm, after that very little sleep until my next dose at 5 am.
Ep0522
in
Cure Parkinson's
1 year ago
1
2
3
...
17
Next page
10
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
303 results
Scleroderma & Raynaud's UK (SRUK)
5 results
NRAS
4 results
View top 10 communities
Sort by
Most Relevant
Newest