Search
Search
About
Log in
Join
Experiences with
Rytary
Posts
Communities
324 public posts
Filter results
Is the Parkinson's honeymoon over for me?
On
Rytary
145’s 2 at 7am, 2 at 11am, 2at 3pm and 1 at 7pm. Prior to that I was on c/l 5 times/day, but I started to experience akathisia as I was going into off time. No akathisia with
Rytary
.
On
Rytary
145’s 2 at 7am, 2 at 11am, 2at 3pm and 1 at 7pm. Prior to that I was on c/l 5 times/day, but I started to experience akathisia as I was going into off time. No akathisia with
Rytary
.
Jmellano
in
Cure Parkinson's
1 year ago
Bisoporol instead of Tildiem
Hoping for some advice. My wife has HCM and has had an ablation a few years ago. Her Afib seemed to calm down but recently it has increased dramatically. The ablation was carried out in London and appointments were not too difficult to obtain. We now live in Gloucestershire and it seems that getting
Hoping for some advice. My wife has HCM and has had an ablation a few years ago. Her Afib seemed to calm down but recently it has increased dramatically. The ablation was carried out in London and appointments were not too difficult to obtain. We now live in Gloucestershire and it seems that getting
sharpedge
in
Atrial Fibrillation Support
27 days ago
My visit to a new MDS
He RX’d
Rytary
which seems to be “smoother” than the CL I was taking. Just started, so we’ll see how it goes over time. Overall the visit was outstanding.
He RX’d
Rytary
which seems to be “smoother” than the CL I was taking. Just started, so we’ll see how it goes over time. Overall the visit was outstanding.
House2
in
Cure Parkinson's
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Lots of OFF and Food interference
I've been offered to consider Entacapone, Neupro patch, Apomorphine sublingual,
Rytary
. All have pros and cons. I don't want to add to anticholinergic load, so as I understand, that leaves either adding Neupro low dose, or switching to
Rytary
.
I've been offered to consider Entacapone, Neupro patch, Apomorphine sublingual,
Rytary
. All have pros and cons. I don't want to add to anticholinergic load, so as I understand, that leaves either adding Neupro low dose, or switching to
Rytary
.
rebtar
in
Cure Parkinson's
1 year ago
Rytary and new side effect
my husband has been on
Rytary
for several months. He has noticed shortly after that when the medication begins to work his veins in his arms are noticeably visible and his hair on his arms stand up. Anyone else notice this?
my husband has been on
Rytary
for several months. He has noticed shortly after that when the medication begins to work his veins in his arms are noticeably visible and his hair on his arms stand up. Anyone else notice this?
Blueyedgirlky
in
Cure Parkinson's
1 year ago
No Longer Have PD.
Since the diagnosis, i have weaned myself from
Rytary
and have been prescribed Baclofen. The symptoms of PLS have not changed for me - slight tremor, weakness, freezing and inability to move.
Since the diagnosis, i have weaned myself from
Rytary
and have been prescribed Baclofen. The symptoms of PLS have not changed for me - slight tremor, weakness, freezing and inability to move.
billPD
in
Cure Parkinson's
1 year ago
Rytary - can your recommend where can I get it at cheapest price?
Our doctor recommends
Rytary
but it is not available in Hungary, so we have to order it from abroad US, Canada or New Zeiland. Can you give me source/pharmacy where can we get it at lowest price? We will solve somehow the delivery. thank you!!!!
Our doctor recommends
Rytary
but it is not available in Hungary, so we have to order it from abroad US, Canada or New Zeiland. Can you give me source/pharmacy where can we get it at lowest price? We will solve somehow the delivery. thank you!!!!
rancsikanna
in
Cure Parkinson's
1 year ago
Lewy body disease
I'm heartbroken that it probably is LBD since he exhibits every single symptom and his
Rytary
meds just aren't working any more. Does anyone have any input? I'm guessing if you have LBD you probably aren't able to post. I know he's not able but maybe a caregiver can? And what do I do?
I'm heartbroken that it probably is LBD since he exhibits every single symptom and his
Rytary
meds just aren't working any more. Does anyone have any input? I'm guessing if you have LBD you probably aren't able to post. I know he's not able but maybe a caregiver can? And what do I do?
slimweiss
in
Cure Parkinson's
1 year ago
Akathisia or dyskinesia?
i take
rytary
now since october 2021 which I think helped what I thought was akathisia( I felt I needed to move my body) which happened about 30 minutes before next c/l dosE (i was taking c/l 5x/ day. The
rytary
seemed to correct this symptom.
i take
rytary
now since october 2021 which I think helped what I thought was akathisia( I felt I needed to move my body) which happened about 30 minutes before next c/l dosE (i was taking c/l 5x/ day. The
rytary
seemed to correct this symptom.
Jmellano
in
Cure Parkinson's
2 years ago
Rytary?
Due to dyskinesia he told me to try reducing my
Rytary
from 245.Mg to 195s., since I already had some at home. I did fine on that until recently. I don’t know if the excess is just leaving my body or what the issue is. But for the past two days my symptoms have not been under control.
Due to dyskinesia he told me to try reducing my
Rytary
from 245.Mg to 195s., since I already had some at home. I did fine on that until recently. I don’t know if the excess is just leaving my body or what the issue is. But for the past two days my symptoms have not been under control.
Ep0522
in
Cure Parkinson's
1 year ago
rytary
I haven’t started the
rytary
yet because it’s only a 5 day supply until it’s approved by my insurance. How do I switch to it from my other medicine and what should I expect? I’m 2 yrs into my diagnosis and I’m not really informed as I should be.
I haven’t started the
rytary
yet because it’s only a 5 day supply until it’s approved by my insurance. How do I switch to it from my other medicine and what should I expect? I’m 2 yrs into my diagnosis and I’m not really informed as I should be.
Paulaandamy
in
Cure Parkinson's
2 years ago
Libido?
BUT, since stopping the
Rytary
thing are different. Stopping
rytary
had several effects. First, Suddenly my arms and legs hurt as if I've been spending hours a day in the gym and on the treadmill. I haven't been. Second, 'morning wood' has returned.
BUT, since stopping the
Rytary
thing are different. Stopping
rytary
had several effects. First, Suddenly my arms and legs hurt as if I've been spending hours a day in the gym and on the treadmill. I haven't been. Second, 'morning wood' has returned.
kaypeeoh
in
Cure Parkinson's
2 years ago
Rytary withdrawal?
What are the signs when you quit taking it? I stopped two weeks ago. I just wondered if I needed it. So far no PD signs: No stiffness or bradykinesia or balance problems. But I never had any signs except for a positive DAT scan. I assumed there would be withdrawal similar to withdrawal
What are the signs when you quit taking it? I stopped two weeks ago. I just wondered if I needed it. So far no PD signs: No stiffness or bradykinesia or balance problems. But I never had any signs except for a positive DAT scan. I assumed there would be withdrawal similar to withdrawal
kaypeeoh
in
Cure Parkinson's
2 years ago
Back on meds
So 5 weeks ago I stopped taking
Rytary
. During the 5 weeks I had periods that led me to think I was having withdrawal symptoms. It's only been two days back on the meds but so far nothing much happening. Along with
Rytary
I've been taking Linzess, a new constipation medicine.
So 5 weeks ago I stopped taking
Rytary
. During the 5 weeks I had periods that led me to think I was having withdrawal symptoms. It's only been two days back on the meds but so far nothing much happening. Along with
Rytary
I've been taking Linzess, a new constipation medicine.
kaypeeoh
in
Cure Parkinson's
2 years ago
Atypical Parkinson’s Posture and Gait
These symptoms improve when I take my 12
Rytary
and 4 Mirapex daily but when I’m in an OFF state these symptoms return. Does anyone have experience of these atypical symptoms?
These symptoms improve when I take my 12
Rytary
and 4 Mirapex daily but when I’m in an OFF state these symptoms return. Does anyone have experience of these atypical symptoms?
robclem
in
Cure Parkinson's
2 years ago
Madopar CR v Rytary
Morning all. Just trying to get my head around the difference between these two? Also, Neurologist has me on Madopar CR during the night and immediate release during the day. I’m trying to work out what the purpose of immediate release is? Why not CR twice a day? Thanks guys 💊😀
Morning all. Just trying to get my head around the difference between these two? Also, Neurologist has me on Madopar CR during the night and immediate release during the day. I’m trying to work out what the purpose of immediate release is? Why not CR twice a day? Thanks guys 💊😀
jeeves19
in
Cure Parkinson's
2 years ago
Neck pain caused by dyskinesia.....
Now I'm experimenting with
Rytary
. No luck yet. If I can't eliminate dyskinesia, is there any kind of PT that can at least help reduce neck pain? This is a major problem for me because beyond the pain, I was reliant on running and exercise as therapy.
Now I'm experimenting with
Rytary
. No luck yet. If I can't eliminate dyskinesia, is there any kind of PT that can at least help reduce neck pain? This is a major problem for me because beyond the pain, I was reliant on running and exercise as therapy.
craigwharris
in
Cure Parkinson's
2 years ago
A new symptom?
I take
Rytary
. I've had a resting tremor in my dominant arm for 4 years. I have lousy handwriting, I don't have stiffness or slowness or balance problems. For the past few days I go to bed at 3AM but I wake 3 hours later. I might nap for an hour in the afternoon.
I take
Rytary
. I've had a resting tremor in my dominant arm for 4 years. I have lousy handwriting, I don't have stiffness or slowness or balance problems. For the past few days I go to bed at 3AM but I wake 3 hours later. I might nap for an hour in the afternoon.
kaypeeoh
in
Cure Parkinson's
2 years ago
Tildiem retard/diltiazem question
Hi, My cardiologist has taken me off bisoprolol and put me on tildiem retard due to me still getting angina pain on walking despite having two stents. I've also been referred for a stress echocardiogram on 24 April to see if I have another narrowing. He doesn't want to do an angiogram/CT unless absolutely
Hi, My cardiologist has taken me off bisoprolol and put me on tildiem retard due to me still getting angina pain on walking despite having two stents. I've also been referred for a stress echocardiogram on 24 April to see if I have another narrowing. He doesn't want to do an angiogram/CT unless absolutely
LucyBoo21
in
British Heart Foundation
1 year ago
New and current hope for Parkinson's Disease
Tx with CL,
Rytary
and more Off periods than controlled times. Tried Kynobi and was wishing and praying for some positive results but was a disaster and I am not saying anything wrong with the drug or the clinician, it was just not good for us.
Tx with CL,
Rytary
and more Off periods than controlled times. Tried Kynobi and was wishing and praying for some positive results but was a disaster and I am not saying anything wrong with the drug or the clinician, it was just not good for us.
Furch
in
Cure Parkinson's
2 years ago
1
2
3
4
...
17
Next page
10
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
303 results
Scleroderma & Raynaud's UK (SRUK)
5 results
NRAS
4 results
View top 10 communities
Sort by
Most Relevant
Newest