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After Ibrutinib failure, lymphocytes up again. Maybe another trial with Idealisib
Now 8 months since I had to stop the FLAIR trial of Ibrutinib and
Rituximab
due to side effects (severe and debilitating muscle and joint pain) I have been pretty well with bloods within normal limits. Now, sigh, the lymphocyte count is up again and the concern is how quickly this will increase.
Now 8 months since I had to stop the FLAIR trial of Ibrutinib and
Rituximab
due to side effects (severe and debilitating muscle and joint pain) I have been pretty well with bloods within normal limits. Now, sigh, the lymphocyte count is up again and the concern is how quickly this will increase.
romarin
in
CLL Support
8 years ago
Nervous
I am being given
Rituximab
. Don't know what to expect after first round. How long does it take to notice a difference? Any advice gratefully received. Thanks.
I am being given
Rituximab
. Don't know what to expect after first round. How long does it take to notice a difference? Any advice gratefully received. Thanks.
Ellieellie
in
NRAS
8 years ago
Dealing with malaria and mosquito's on holiday
Hi Everyone. My husband has CLL and finished FCR treatment 21/2 years ago. So far all is good - bloods normal WBC in normal range and stable. We are now considering a holiday in India (Goa) and I have maybe unwisely chosen a hotel with no aircon so I am worried about the risk of mosquito borne disease
Hi Everyone. My husband has CLL and finished FCR treatment 21/2 years ago. So far all is good - bloods normal WBC in normal range and stable. We are now considering a holiday in India (Goa) and I have maybe unwisely chosen a hotel with no aircon so I am worried about the risk of mosquito borne disease
Hidden
in
CLL Support
7 years ago
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Update for followers
I note I have 11 followers and I'm surprised I have not provided an update for quite a while. I started Obinutuzumab and venetoclax in march 2016 with 75 percent CLL in my bone marrow aged 47. I had some early challenges but by August I had only 0.08 percent! Mrd positive. Next bone marrow biopsy
I note I have 11 followers and I'm surprised I have not provided an update for quite a while. I started Obinutuzumab and venetoclax in march 2016 with 75 percent CLL in my bone marrow aged 47. I had some early challenges but by August I had only 0.08 percent! Mrd positive. Next bone marrow biopsy
Corin850
in
CLL Support
7 years ago
New member
Hi my name is KEITH and I am 66 years old and was diagnosed with Vasculitis Wenegers 12 months ago.Spent 2 weeks in St James Leeds having plasma exchange and then 5 months of cyclphos.Then on azothiprine and steroids but recently kidney function dropped dramaticaly so I start
rituximab
tomorrow with
Hi my name is KEITH and I am 66 years old and was diagnosed with Vasculitis Wenegers 12 months ago.Spent 2 weeks in St James Leeds having plasma exchange and then 5 months of cyclphos.Then on azothiprine and steroids but recently kidney function dropped dramaticaly so I start
rituximab
tomorrow with
Keithtim10
in
Vasculitis UK
8 years ago
Low dose Rituximab ITP treatment - any experience ?
Hi, I've just completed my 4 weeks of
Rituximab
infusions in response to Platelet counts that fell to single figures. I have been given the low dose regimen of 100ml per infusion which is was told was the standard ITP dose in my region. Does anyone have any experience ?
Hi, I've just completed my 4 weeks of
Rituximab
infusions in response to Platelet counts that fell to single figures. I have been given the low dose regimen of 100ml per infusion which is was told was the standard ITP dose in my region. Does anyone have any experience ?
prudencepayes
in
ITP Support Association
8 years ago
Nephrologist
So,
Rituximab
was started 375mg/m2 weekly for 4 doses in addition to prednisolone 1 mg/kg/day. what is next? How to decide whether maintenance therapy should be given or not? how long after the last
Rituximab
dose shall we wait to decide on therapy failure or the need for maintenance therapy?
So,
Rituximab
was started 375mg/m2 weekly for 4 doses in addition to prednisolone 1 mg/kg/day. what is next? How to decide whether maintenance therapy should be given or not? how long after the last
Rituximab
dose shall we wait to decide on therapy failure or the need for maintenance therapy?
hassbeeb
in
Vasculitis UK
8 years ago
CLL Patient, unmutated CD 38-, FCR 10/13 - 4/14, MRD-, best blood results since then even t-Cells climbing to normal, IgG 650, IgA, IgM norm
After now three years ending FCR I am still pleased to feel great, no health problems at all. Blood counts in best shape. three times a week gym for 1 1/2 hour, and two/three times fast walking for one hour. having lots of raw vegetabiles and fruits, drinking green tea from leafs and little mango juice
After now three years ending FCR I am still pleased to feel great, no health problems at all. Blood counts in best shape. three times a week gym for 1 1/2 hour, and two/three times fast walking for one hour. having lots of raw vegetabiles and fruits, drinking green tea from leafs and little mango juice
seoul
in
CLL Support
7 years ago
House Moving Horror
Unsurprisingly, I am flaring badly, despite being on 10 mgs Prednisilone on top of MTX and
Rituximab
. Still, at least I have a home and I think of poor souls around the world who aren't so lucky.
Unsurprisingly, I am flaring badly, despite being on 10 mgs Prednisilone on top of MTX and
Rituximab
. Still, at least I have a home and I think of poor souls around the world who aren't so lucky.
Jora
in
NRAS
8 years ago
Bendamustine and Rituximab
Hi, I will be starting BR on Dec. 2nd and would love to hear from those who have had this treatment...pros and cons. Anything I need to know? I had R-CHOP in 2007 for Richter's, looks like the remission is over.
Hi, I will be starting BR on Dec. 2nd and would love to hear from those who have had this treatment...pros and cons. Anything I need to know? I had R-CHOP in 2007 for Richter's, looks like the remission is over.
emmiekay
in
CLL Support
8 years ago
Steroids & IVig only works briefly, anybody experienced this?
They are starting him on
Rituximab
this Friday. So fingers & toes crossed. Has anybody had this experience ? Thank you !!
They are starting him on
Rituximab
this Friday. So fingers & toes crossed. Has anybody had this experience ? Thank you !!
Thewakey31
in
ITP Support Association
8 years ago
Bendamustine and effect on stem cells
He has currently taken two sessions of Bendamustine/
Rituximab
. He will be getting an ASCT by end of 6 sessions. It has been brought to our attention that Bendamustine could have a toxic effect on stem cells.
He has currently taken two sessions of Bendamustine/
Rituximab
. He will be getting an ASCT by end of 6 sessions. It has been brought to our attention that Bendamustine could have a toxic effect on stem cells.
Reem-ayoub
in
Lymphoma Canada
8 years ago
FCR Cycle 4 (For CLL) - Itchy Rash
Hello all CLL enthusiasts. I have just finished cycle 4 of my 6 cycle FCR treatment after being on 8-9 years W&W. I am on the FLAIR trial, but got randomly sorted into the current treatment. In hindsight I am not too disappointed as FCR is the current gold standard treatment, it hasn't been too bad to
Hello all CLL enthusiasts. I have just finished cycle 4 of my 6 cycle FCR treatment after being on 8-9 years W&W. I am on the FLAIR trial, but got randomly sorted into the current treatment. In hindsight I am not too disappointed as FCR is the current gold standard treatment, it hasn't been too bad to
Rich316
in
CLL Support
7 years ago
rituximab infusion
Had my first
rituximab
infusion on Tuesday, have felt quite ill achey and tired ever since. Is this normal ? Has anyone else on here has
rituximab
and seen benefits?
Had my first
rituximab
infusion on Tuesday, have felt quite ill achey and tired ever since. Is this normal ? Has anyone else on here has
rituximab
and seen benefits?
Charlottelauren
in
LUPUS UK
8 years ago
Rituximab
Have see a locum consultant on Sunday. He told me stop taking Lefludomid straight away as my blood pressure is very high. He examined me, read my history and says I am a candidate for biological treatment. He then arranged for me to have a steroid injection. I then returned to the hospital Tuesday
Have see a locum consultant on Sunday. He told me stop taking Lefludomid straight away as my blood pressure is very high. He examined me, read my history and says I am a candidate for biological treatment. He then arranged for me to have a steroid injection. I then returned to the hospital Tuesday
Ellieellie
in
NRAS
8 years ago
‘Tis the season for food poisoning: a Christmas warning
So please, have a safe and enjoyable Christmas by being careful what you eat, taking particular care to avoid foods that have not been adequately refrigerated and for those under treatment or recently treated with anti-CD20 antibodies like
Rituximab
/Mabthera or Gazyva/Obinutuzumab, foods not recommended
So please, have a safe and enjoyable Christmas by being careful what you eat, taking particular care to avoid foods that have not been adequately refrigerated and for those under treatment or recently treated with anti-CD20 antibodies like
Rituximab
/Mabthera or Gazyva/Obinutuzumab, foods not recommended
AussieNeil
Partner
in
CLL Support
8 years ago
IVIG Infusions
Hi, I am four years post FCR and have been suffering with lingering coughs following winter colds. At the end of last year i developed pneumonia following a cold in November. My hematologist has decided that I would benefit from IVIG infusions during the winter months, as he is worried I could damage
Hi, I am four years post FCR and have been suffering with lingering coughs following winter colds. At the end of last year i developed pneumonia following a cold in November. My hematologist has decided that I would benefit from IVIG infusions during the winter months, as he is worried I could damage
Colnegirl
in
CLL Support
7 years ago
Rituximab??
I have just been told that my next treatment will be the
rituximab
infusion as the methotrexate does not seem to be working for me even though I feel good but my ESR and CRP levels are high. Has anyone had success with this treatment and did you suffer from any side affects of the drug.
I have just been told that my next treatment will be the
rituximab
infusion as the methotrexate does not seem to be working for me even though I feel good but my ESR and CRP levels are high. Has anyone had success with this treatment and did you suffer from any side affects of the drug.
Carbar
in
LUPUS UK
8 years ago
Nearly there
I'll then go onto maintenance therapy with
Rituximab
for 2 years administered by sub-cutaneous injection every 2 months. I have been very lucky to have tolerated the treatment really well (no hair thinning or sickness). I'm just more tired than normal but hey ho!
I'll then go onto maintenance therapy with
Rituximab
for 2 years administered by sub-cutaneous injection every 2 months. I have been very lucky to have tolerated the treatment really well (no hair thinning or sickness). I'm just more tired than normal but hey ho!
Hidden
in
Non Hodgkin's Lymphoma Friends
8 years ago
Fitness during and after FCR treatment
Hi All, I hope you are 'well'. This is my first post. I was diagnosed with CLL in 2011 aged 44yrs. Have considered myself very fit enjoying long hikes and swimming. In June 2016 I did a 5k charity open water swim in 90minutes. I now find myself, next week, requiring a 6 x 1month treatment with FCR. Can
Hi All, I hope you are 'well'. This is my first post. I was diagnosed with CLL in 2011 aged 44yrs. Have considered myself very fit enjoying long hikes and swimming. In June 2016 I did a 5k charity open water swim in 90minutes. I now find myself, next week, requiring a 6 x 1month treatment with FCR. Can
rsw147
in
CLL Support
7 years ago
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