Search
Search
About
Log in
Join
Experiences with
Rituximab
Posts
Communities
2,514 public posts
Filter results
Methetrexate and rituximab
I haven't been on in ages and wondering if anyone is on
rituximab
without methetrexate. I never ever felt methetrexate helped me even when I was on a high dose. Now I am on
rituximab
and I have been told I must take mtx along with it or else I will have to come off it.
I haven't been on in ages and wondering if anyone is on
rituximab
without methetrexate. I never ever felt methetrexate helped me even when I was on a high dose. Now I am on
rituximab
and I have been told I must take mtx along with it or else I will have to come off it.
mille
in
NRAS
6 years ago
Yet another side effect after FCR
After the acute anaemia, disappearing neutrophils and infection in both eyes, I now have a rash all over me, except my face. It’s 3 weeks since first FCR. The antibiotics i’m taking list a rash as a possible side effect. Has anyone else suffered this? No raised welts, just an annoying mildly itchy unattractive
After the acute anaemia, disappearing neutrophils and infection in both eyes, I now have a rash all over me, except my face. It’s 3 weeks since first FCR. The antibiotics i’m taking list a rash as a possible side effect. Has anyone else suffered this? No raised welts, just an annoying mildly itchy unattractive
Mandy56
in
CLL Support
6 years ago
Was anyone else frightened to start Ivig treatments ?
I like to consider myself a pretty tough chick but for some reason I’m scared to start then for fear of long term side effects like the FCR did to me by giving me autoimmune neutropenia. In order to supposedly fix that I need these Ivig drips two days in a row for 5 hours every 3 weeks..... I worry
I like to consider myself a pretty tough chick but for some reason I’m scared to start then for fear of long term side effects like the FCR did to me by giving me autoimmune neutropenia. In order to supposedly fix that I need these Ivig drips two days in a row for 5 hours every 3 weeks..... I worry
Luckyliss
in
CLL Support
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Rituximab
Hello everyone I have lupus and tried lots of different treatments my consultant has now decided on
Rituximab
as the next step anyone out there who has had this if so could you give me your opinion
Hello everyone I have lupus and tried lots of different treatments my consultant has now decided on
Rituximab
as the next step anyone out there who has had this if so could you give me your opinion
Motherof4withlupus
in
LUPUS UK
6 years ago
Rituximab
seen early.Now i am aware of side effects of
Rituximab
but i just wondered if anybody had similar experience and peoples views on this.
seen early.Now i am aware of side effects of
Rituximab
but i just wondered if anybody had similar experience and peoples views on this.
Keithtim10
in
Vasculitis UK
6 years ago
Be positive
Evening everyone - as usual this place gives me a lift - so much help and support from everyone. I'm reminded that a year ago I was mid FCR (6 rounds) and feeling awful. This evening I ran 10kilometres in 52 minutes as I train for the Westminster 10K that I am running in support of CLLSA. My overriding
Evening everyone - as usual this place gives me a lift - so much help and support from everyone. I'm reminded that a year ago I was mid FCR (6 rounds) and feeling awful. This evening I ran 10kilometres in 52 minutes as I train for the Westminster 10K that I am running in support of CLLSA. My overriding
MattGGibson
in
CLL Support
6 years ago
Alcohol
Hi guys can anyone tell me if they had a few beers when on the FCR Treatment programme after their 5 day tablets were finished. Hubby wants a beer in this nice weather ??
Hi guys can anyone tell me if they had a few beers when on the FCR Treatment programme after their 5 day tablets were finished. Hubby wants a beer in this nice weather ??
Sailormoon11
in
CLL Support
6 years ago
My cancer is in remission – what does this mean?
[i]"In the 1970s, only one cancer patient in three made it through the first five years after diagnosis. Today, this figure is around 70%, and exceeds 85% for some cancers that were previously fatal. So, remission might mean cure but we only know that over time." [/i] So concludes Ian Olver, Director
[i]"In the 1970s, only one cancer patient in three made it through the first five years after diagnosis. Today, this figure is around 70%, and exceeds 85% for some cancers that were previously fatal. So, remission might mean cure but we only know that over time." [/i] So concludes Ian Olver, Director
AussieNeil
Administrator
in
CLL Support
6 years ago
Muscle Spasms - Not dehydrated
Post round five FCR with Neulasta (this week). I am experiencing moderate spasms / muscular seizures. Has anyone had similar experiences? Suggestions for overcoming these? At their worse, they actually pulse in intensity with the beating of my heart – yes, the intensity worsens with the beating of my
Post round five FCR with Neulasta (this week). I am experiencing moderate spasms / muscular seizures. Has anyone had similar experiences? Suggestions for overcoming these? At their worse, they actually pulse in intensity with the beating of my heart – yes, the intensity worsens with the beating of my
Paul_Mangold
in
CLL Support
6 years ago
Hospital response to lack of monitoring after first FCR
Just had a call back from a (lady) doctor after my call to the (male) consultant and (male) trial nurse to complain about lack of monitoring by the hospital. Take what inference you will from this! Unreserved apologies. A new team had taken over the discharge papers when I left hospital. I pointed out
Just had a call back from a (lady) doctor after my call to the (male) consultant and (male) trial nurse to complain about lack of monitoring by the hospital. Take what inference you will from this! Unreserved apologies. A new team had taken over the discharge papers when I left hospital. I pointed out
Mandy56
in
CLL Support
6 years ago
Rituximab
Went for the second part of my infusion yesterday and my blood pressure was high and my heart rate. The first part of the infusion left me with this and they kept me back 2 hours and took an ECG. Anyway, in I went yesterday not having slept, terrible weather to drive through and my anxiety level was
Went for the second part of my infusion yesterday and my blood pressure was high and my heart rate. The first part of the infusion left me with this and they kept me back 2 hours and took an ECG. Anyway, in I went yesterday not having slept, terrible weather to drive through and my anxiety level was
Ellieellie
in
NRAS
6 years ago
Rituximab infusion 1 so far so good
Hi everyone just got back from hospital after my first infusion of
Rituximab
. All went well no hiccups thank goodness. Started Ibrutinib the day before. I know I am not out of the wood reaction wise yet but so far so good.🤞for the road ahead.
Hi everyone just got back from hospital after my first infusion of
Rituximab
. All went well no hiccups thank goodness. Started Ibrutinib the day before. I know I am not out of the wood reaction wise yet but so far so good.🤞for the road ahead.
annmcgowan
in
CLL Support
6 years ago
Infusion
I would like them to offer an alternative to the
rituximab
. So sitting here feeling really rough and Very sorry for myself.
I would like them to offer an alternative to the
rituximab
. So sitting here feeling really rough and Very sorry for myself.
Ellieellie
in
NRAS
6 years ago
Anyone had FCR as second line treatment?
Hi all has any one had FCR for second line treatment if so how were your results. I'm going back on treatment after 22nd May and discussing what's best.
Hi all has any one had FCR for second line treatment if so how were your results. I'm going back on treatment after 22nd May and discussing what's best.
Mick491
in
CLL Support
6 years ago
Questions for consultant?
49 Years old, in UK (Yorkshire) Diagnosed 2 years ago, blood counts steadily rising. I am no longer working (As a p/t Teacher) due to fatigue. Started FCR Chemo due to fatigue (On Cycle 1) . No swollen lymph nodes etc but CT scan showed Spleen enlarged and lesions on Liver. Biopsy revealed CLL progression
49 Years old, in UK (Yorkshire) Diagnosed 2 years ago, blood counts steadily rising. I am no longer working (As a p/t Teacher) due to fatigue. Started FCR Chemo due to fatigue (On Cycle 1) . No swollen lymph nodes etc but CT scan showed Spleen enlarged and lesions on Liver. Biopsy revealed CLL progression
AntonMB
in
CLL Support
6 years ago
Treatmant for cll
Hello!My name is Lidia.My husband has cll from 2012 and now his wbc is 140000 and the platelets are 101000.The doctor said that is time for therapy.He will start FCR on tuesday.Is there anybody who knows something about it?Does it work?My husband has also del 11q.
Hello!My name is Lidia.My husband has cll from 2012 and now his wbc is 140000 and the platelets are 101000.The doctor said that is time for therapy.He will start FCR on tuesday.Is there anybody who knows something about it?Does it work?My husband has also del 11q.
nikolle
in
CLL America Support
6 years ago
First. FCR treatment
Happy to report first day (of two) of treatment done and feel fine. Bit od a sticky moment half an hour in, feeling palpitations and breathless. Nurses think this was due to steroids I’d been given initially to counter any adverse reaction. After ECG and doctor checking me over, treatment continued
Happy to report first day (of two) of treatment done and feel fine. Bit od a sticky moment half an hour in, feeling palpitations and breathless. Nurses think this was due to steroids I’d been given initially to counter any adverse reaction. After ECG and doctor checking me over, treatment continued
Mandy56
in
CLL Support
6 years ago
Foot and heel problems
I'm already having regular
Rituximab
infusions and Methotrexate and prednisone...running out of options after trying quite a few other biologics etc. Thanks for your ideas :-)
I'm already having regular
Rituximab
infusions and Methotrexate and prednisone...running out of options after trying quite a few other biologics etc. Thanks for your ideas :-)
Talmalmo
in
NRAS
6 years ago
Hello my name is Donna. 56 yrs old, CLL diagnosis 2002, started FCR in Jan.
I was looking online for info on neurological side effects of FCR because I keep feeling "brain zaps". I found this page and signed up. So anyone else experience thos kind of side effect? I finished round 4 3 weeks ago and the symptoms are lessening a bit, but in the evening I still feel off on the
I was looking online for info on neurological side effects of FCR because I keep feeling "brain zaps". I found this page and signed up. So anyone else experience thos kind of side effect? I finished round 4 3 weeks ago and the symptoms are lessening a bit, but in the evening I still feel off on the
Hidden
in
CLL Support
6 years ago
Starting FCR on Monday
After lots of ups and downs, I am on the FLAIR trial and starting FCR on Monday. I’ve tapped into a wealth of advice here, but would welcome any pearls of wisdom anyone can offer. I do have a question though - does the treatment get worse the longer into it you go? I was hoping to book a holiday in
After lots of ups and downs, I am on the FLAIR trial and starting FCR on Monday. I’ve tapped into a wealth of advice here, but would welcome any pearls of wisdom anyone can offer. I do have a question though - does the treatment get worse the longer into it you go? I was hoping to book a holiday in
Mandy56
in
CLL Support
6 years ago
1
...
61
62
63
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1013 results
NRAS
562 results
Vasculitis UK
327 results
View top 10 communities
Sort by
Most Relevant
Newest