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Rituximab
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Antisynthetase syndrome and Rituximab
I would love to hear from anyone who can advise me on
Rituximab
and it's effectiveness. Is this drug more powerful than methotrexate? (is it sign that the illness is beating her or are they just trying a newly available/better drug?).
I would love to hear from anyone who can advise me on
Rituximab
and it's effectiveness. Is this drug more powerful than methotrexate? (is it sign that the illness is beating her or are they just trying a newly available/better drug?).
antarcticadventurer
in
Myositis UK
5 years ago
POST BMT 1-Year & 7 Months, BOY OH BOY!!!
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
NMMP
in
CLL Support
5 years ago
CLL Rituximab - first Rituxan Hycela Shot went well!
Since I was the first woman to have the shot at OHSU yesterday that replaced my routine Rituxan infusion, I thought I would share. I had pre-treatment fear for the first time after watching the administration video, concerns about more severe reactions and after 50 IV's in the last 3 years somehow a
Since I was the first woman to have the shot at OHSU yesterday that replaced my routine Rituxan infusion, I thought I would share. I had pre-treatment fear for the first time after watching the administration video, concerns about more severe reactions and after 50 IV's in the last 3 years somehow a
ChrisLovesLife
in
CLL Support
5 years ago
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Ibrutinib. To take or not?
Hello, I was diagnosed will CLL 9 years ago & immediately put on FCR, after being given 2 red blood transfusions. 3 years later I had one cycle of Bendamustine &
Rituximab
& after another 3 years another cycle of Bendamustine &
Rituximab
.
Hello, I was diagnosed will CLL 9 years ago & immediately put on FCR, after being given 2 red blood transfusions. 3 years later I had one cycle of Bendamustine &
Rituximab
& after another 3 years another cycle of Bendamustine &
Rituximab
.
Benny12
in
CLL Support
5 years ago
Any thoughts on Rituximab
Hi My husband who has MCTD for 20 years ( recently diagnosed with discoid lupus) has been offered
rituximab
. At the time it was offered , he had been recovering from acute liver failure ( hospital says cause unknown), this had limited the choice of medication he was offered.
Hi My husband who has MCTD for 20 years ( recently diagnosed with discoid lupus) has been offered
rituximab
. At the time it was offered , he had been recovering from acute liver failure ( hospital says cause unknown), this had limited the choice of medication he was offered.
Pop007
in
LUPUS UK
5 years ago
FCR VS BR
My father's cytogenetics test shows he's trisomy 12. Zap 70 negative CD 38 positive 45% The oncologist has suggested BR. My father is physically fit 57 years old. Apart from mild fatigue and lymphodentpathy he's fine. I've read on this forum FCR give longer remission. But there's a greater risk of
My father's cytogenetics test shows he's trisomy 12. Zap 70 negative CD 38 positive 45% The oncologist has suggested BR. My father is physically fit 57 years old. Apart from mild fatigue and lymphodentpathy he's fine. I've read on this forum FCR give longer remission. But there's a greater risk of
Haider98
in
CLL Support
5 years ago
M scared...!
Treatment was- Plasma Transfusion was given, Clexane 0.6 mg Injections started twice a day (Continued till now) and
Rituximab
500 ml given for 4 weeks, after that
Rituximab
stopped. Cryoprecipitate started, 4-6 units for every 21 days (Continued till now).
Treatment was- Plasma Transfusion was given, Clexane 0.6 mg Injections started twice a day (Continued till now) and
Rituximab
500 ml given for 4 weeks, after that
Rituximab
stopped. Cryoprecipitate started, 4-6 units for every 21 days (Continued till now).
Abc91
in
Hughes Syndrome APS Forum
5 years ago
Struggling to work with Ra
Iam now about to try
Rituximab
, but don’t know what to do with regards to my job, should this drug not work. I have always loved working but find that I am depressed from the constant pain and now, do not want to go to work. Any advice greatly appreciated.
Iam now about to try
Rituximab
, but don’t know what to do with regards to my job, should this drug not work. I have always loved working but find that I am depressed from the constant pain and now, do not want to go to work. Any advice greatly appreciated.
Callabag64
in
NRAS
5 years ago
Rituximab
Hi peop hope you are all well as you know I dont post a lot but wonder if anyone else has the same problem with
rituximab
had my first full infusion on 14 feb since then have been urinating blood my gp thinks its a bad uti but I am not convinced anyone else had similar Billy
Hi peop hope you are all well as you know I dont post a lot but wonder if anyone else has the same problem with
rituximab
had my first full infusion on 14 feb since then have been urinating blood my gp thinks its a bad uti but I am not convinced anyone else had similar Billy
Bully915
in
NRAS
5 years ago
My story ... journey to a diagnosis
Now we are trying
Rituximab
and I have just had my second transfusion.
Now we are trying
Rituximab
and I have just had my second transfusion.
356bubbles
in
Vasculitis UK
5 years ago
Emotional at 5 months FCR UK
New here Yeah. Thought it would be a breeze. I’m 60. Whoo. My emotions are all over the place. I’m doing well on all “counts” but as a gay man I don’t think my friends quite understand. Everything in the past is coming into my mind like cinema. My first boyfriend died of AIDS so memories are not comfortable.I
New here Yeah. Thought it would be a breeze. I’m 60. Whoo. My emotions are all over the place. I’m doing well on all “counts” but as a gay man I don’t think my friends quite understand. Everything in the past is coming into my mind like cinema. My first boyfriend died of AIDS so memories are not comfortable.I
Gaday
in
CLL Support
5 years ago
Rituximab infusion after effects
It's a
rituximab
hangover haha. Is this normal? What should I do? Give in to rest, or give in to my anxiety about working?
It's a
rituximab
hangover haha. Is this normal? What should I do? Give in to rest, or give in to my anxiety about working?
Savannahseger
in
NRAS
5 years ago
Lupus rash
Hi all, My lupus has been under control for a while now due to
rituximab
infusions. But I have woken up with a lupus rash this morning. Is it possible to have a lupus rash and lupus to still be under control? Or does this mean my lupus is active again? Sorry bit confused/worried. Sarah x
Hi all, My lupus has been under control for a while now due to
rituximab
infusions. But I have woken up with a lupus rash this morning. Is it possible to have a lupus rash and lupus to still be under control? Or does this mean my lupus is active again? Sorry bit confused/worried. Sarah x
Sarahjj87
in
LUPUS UK
5 years ago
cost of Plasmapheresis in India?
Also the cost of IVIG and
Rituximab
? Thanks
Also the cost of IVIG and
Rituximab
? Thanks
Balap
in
Kidney Transplant
5 years ago
Good News
I have had the results of my bone marrow biopsy this week and my six months of FCR chemo have done the trick, I am now clear of any signs of cll cancer cells. This obviously is a great relief and although fatigue is still part of my life I am hoping for many years of being cancer free. I wish every single
I have had the results of my bone marrow biopsy this week and my six months of FCR chemo have done the trick, I am now clear of any signs of cll cancer cells. This obviously is a great relief and although fatigue is still part of my life I am hoping for many years of being cancer free. I wish every single
dandelup
in
CLL Support
5 years ago
FCR or BR?
Hi all, My dad is 69 years old and he has CLL. His blood values are oke but his lymphs are very big so he needs to be treated. His IGHV is unmutated and tp53 also unmutated. We visited two hospitals, one says FCR and the other one says BR. We really don’t know what to do. Any advice is welcome! Thanks
Hi all, My dad is 69 years old and he has CLL. His blood values are oke but his lymphs are very big so he needs to be treated. His IGHV is unmutated and tp53 also unmutated. We visited two hospitals, one says FCR and the other one says BR. We really don’t know what to do. Any advice is welcome! Thanks
TOFK
in
CLL Support
5 years ago
Rituximab and flare ups
Hello I have just had my second infusion infusion and am just recovering from an awful flare up in my arm that lasted a whole week ( whilst I was on holiday ! ☹️). I noticed I had a similar flare up exactly a week after my first infusion. Has this happened to anyone else? It totally wiped me out for
Hello I have just had my second infusion infusion and am just recovering from an awful flare up in my arm that lasted a whole week ( whilst I was on holiday ! ☹️). I noticed I had a similar flare up exactly a week after my first infusion. Has this happened to anyone else? It totally wiped me out for
Phoo2
in
NRAS
5 years ago
Treatment card holders
I now have to carry a steroid card, warfarin card and a
Rituximab
card. Don't always need to carry a wallet and just wondering if there's any lightweight card holders out there for them and where to get them too
I now have to carry a steroid card, warfarin card and a
Rituximab
card. Don't always need to carry a wallet and just wondering if there's any lightweight card holders out there for them and where to get them too
Hidden
in
LUPUS UK
5 years ago
CLL treatment options
I have CLL diagnosed 1 year back. Till recently on watch and wait. Now doctors started FCR chemotherapy because of decrease in Hb. One cycle given. FISH shows Del 13q14.3 30% and 14q32 IGH gene 86% Hypermutated IGVH. Age 62 years also Hypertension and Diabetes. Hb 5.9 TLC 368000 Platelets 68000. Please
I have CLL diagnosed 1 year back. Till recently on watch and wait. Now doctors started FCR chemotherapy because of decrease in Hb. One cycle given. FISH shows Del 13q14.3 30% and 14q32 IGH gene 86% Hypermutated IGVH. Age 62 years also Hypertension and Diabetes. Hb 5.9 TLC 368000 Platelets 68000. Please
drvksethi
in
CLL Support
5 years ago
New Treatment Guidelines for Blood Clotting Disorder
.,
rituximab
) or complement inhibition (e.g., eculizumab) therapies may be considered based on data from case reports.
REFERENCE
: Tektonidou M, Andreoli L, Limper M, et al.
.,
rituximab
) or complement inhibition (e.g., eculizumab) therapies may be considered based on data from case reports.
REFERENCE
: Tektonidou M, Andreoli L, Limper M, et al.
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
5 years ago
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