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3rd Covid Vaccine!! 🥳
Well, I decided to try a walk-in vaccine centre this evening with my prescriptions in hand, along with evidence of my
Rituximab
infusions...and I actually got my 3rd Covid vaccine - Pfizer!!!
Well, I decided to try a walk-in vaccine centre this evening with my prescriptions in hand, along with evidence of my
Rituximab
infusions...and I actually got my 3rd Covid vaccine - Pfizer!!!
Moomin8
in
NRAS
3 years ago
Rituximab and Dental Treatment
I am currently on antibiotics for the tooth infection and hopefully will be good to go for
Rituximab
on Thursday. I have asked the dentist and my Rheumatology helpline, to see how long I should leave it after
Rituximab
to have the dental treatment..I'm thinking a month??
I am currently on antibiotics for the tooth infection and hopefully will be good to go for
Rituximab
on Thursday. I have asked the dentist and my Rheumatology helpline, to see how long I should leave it after
Rituximab
to have the dental treatment..I'm thinking a month??
3LittleBirds2
in
NRAS
3 years ago
Sjogrens Disease
I start
Rituximab
infusions today as my Sjogrens has become severe- I have lost 9 teeth over 15 months and can’t have implants as bones have shrunk - terrified!
I start
Rituximab
infusions today as my Sjogrens has become severe- I have lost 9 teeth over 15 months and can’t have implants as bones have shrunk - terrified!
Dynamic63
in
The Australian Sjögren's Syndrome Association
3 years ago
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3rd Covid vaccine for some - will be Pfizer. This is NOT a Booster vaccine.
https://news.sky.com/story/covid-19-people-with-severely-weakened-immune-systems-to-be-offered-third-coronavirus-vaccine-dose-12396839 I don't know who's making the list - I'm just hoping I get on it having
Rituximab
and Methotrexate 🤞
https://news.sky.com/story/covid-19-people-with-severely-weakened-immune-systems-to-be-offered-third-coronavirus-vaccine-dose-12396839 I don't know who's making the list - I'm just hoping I get on it having
Rituximab
and Methotrexate 🤞
Moomin8
in
NRAS
3 years ago
The quest for Rituximab
At appoint in June the new doc said I don’t tick enough boxes for
rituximab
and this shouldn’t have been promised to me.
At appoint in June the new doc said I don’t tick enough boxes for
rituximab
and this shouldn’t have been promised to me.
Dramaticharlie
in
Vasculitis UK
3 years ago
End of the 7-year FLAIR trial in the FCR arm
Well, I’ve made it to the end of the 7-year FLAIR trial in the FCR chemoimmunotherapy arm (treated in 2014/2015) I went to my last review in December at the Churchill hospital in Oxford with a somewhat feeling of dread that I’m about to fall off the end of the conveyor so to speak. The Haematology is
Well, I’ve made it to the end of the 7-year FLAIR trial in the FCR chemoimmunotherapy arm (treated in 2014/2015) I went to my last review in December at the Churchill hospital in Oxford with a somewhat feeling of dread that I’m about to fall off the end of the conveyor so to speak. The Haematology is
Ernest2
in
CLL Support
2 years ago
Rituximab not working at all after 3 months
Gateshead NHS trust say "
Rituximab
will work within 3 months if it is going to work at all. " https://www.qegateshead.nhs.uk/sites/default/files/users/user15637/IL73v5%20Rituximab.pdf My question is do any of you have the experience of
rituximab
not working at all for 3 months or longer and then starting
Gateshead NHS trust say "
Rituximab
will work within 3 months if it is going to work at all. " https://www.qegateshead.nhs.uk/sites/default/files/users/user15637/IL73v5%20Rituximab.pdf My question is do any of you have the experience of
rituximab
not working at all for 3 months or longer and then starting
ma73jon
in
NRAS
3 years ago
Baricitinib??
This was prescribed as I have exhausted methotraxte,
rituximab
, cellcept treatments. I’m also on steroids (deltacortril 7.5mg) for the past 26yr and plaquenil. Many thanks
This was prescribed as I have exhausted methotraxte,
rituximab
, cellcept treatments. I’m also on steroids (deltacortril 7.5mg) for the past 26yr and plaquenil. Many thanks
Carbar
in
LUPUS UK
3 years ago
HELP!!!
He was on high dose methylpredisone 1g for 3 days (twice),
rituximab
injection twice, eltrombopag oral for 14 days and velpatasvir-sofosbuvir for his HCV apart from oral steroids for 8 months, tapering on and off from 60mg and HCQ due to his APS and sudden fall in platelets 4 weeks back.
He was on high dose methylpredisone 1g for 3 days (twice),
rituximab
injection twice, eltrombopag oral for 14 days and velpatasvir-sofosbuvir for his HCV apart from oral steroids for 8 months, tapering on and off from 60mg and HCQ due to his APS and sudden fall in platelets 4 weeks back.
Akam
in
Hughes Syndrome APS Forum
3 years ago
Blood test capsule shortage
I'm on Methotrexate and
Rituximab
and feel OK but the tests have bought a problem up in the past!!
I'm on Methotrexate and
Rituximab
and feel OK but the tests have bought a problem up in the past!!
trenarren
in
NRAS
3 years ago
Cytogenetics interpretation help needed
Obinutuzumab initially which generated a dramatic and severe reaction, then ramped on Venetoclax with
Rituximab
introduced after a month.
Obinutuzumab initially which generated a dramatic and severe reaction, then ramped on Venetoclax with
Rituximab
introduced after a month.
Dawson21
in
CLL Support
3 years ago
Fcr not improving symptoms
Have cll and started fcr treatment. Went to have 4th treatment yesterday. Was tired and weak since last treatment. On discovering this they have delayed any treatment for 2 weeks and will have out patient appointment with consultant in 2 weeks. My bloods are great but they reckon treatment might not
Have cll and started fcr treatment. Went to have 4th treatment yesterday. Was tired and weak since last treatment. On discovering this they have delayed any treatment for 2 weeks and will have out patient appointment with consultant in 2 weeks. My bloods are great but they reckon treatment might not
Kitty
in
CLL Support
2 years ago
Parking lot 10, elevator B, floor 8 - venetoclax edition
Some people on here who treat at MD Anderson (MDA) or have read my previous reports of my visits there will recognize the 8th floor as the leukemia ward at MDA. You get there by parking in parking lot 10 and taking elevator B. MDA is so vast a complex that there are multiple thousand car garages and
Some people on here who treat at MD Anderson (MDA) or have read my previous reports of my visits there will recognize the 8th floor as the leukemia ward at MDA. You get there by parking in parking lot 10 and taking elevator B. MDA is so vast a complex that there are multiple thousand car garages and
cajunjeff
in
CLL Support
2 years ago
Thickening of the lining of lungs, GPA diagnosed 2008
Managed on Methotrexate now for a long time, until a recent flare where I had
Rituximab
although only half dosage due to low blood levels.
Managed on Methotrexate now for a long time, until a recent flare where I had
Rituximab
although only half dosage due to low blood levels.
Beaver
in
Vasculitis UK
3 years ago
Itp treatments
Hi would anyone know if my platelets will go up, there sitting at 1 but I’m currently on
rituximab
treatment for 4 weeks and I’m currently on avatrombopag tablets for 4 weeks and I’m just so stressed and have no faith at all, just so scared Iv been in hospital for week now and just want home but platlets
Hi would anyone know if my platelets will go up, there sitting at 1 but I’m currently on
rituximab
treatment for 4 weeks and I’m currently on avatrombopag tablets for 4 weeks and I’m just so stressed and have no faith at all, just so scared Iv been in hospital for week now and just want home but platlets
caralanmccool1
in
ITP Support Association
3 years ago
Hi, I had my first round of rituximab, 5 weeks ago. I’ve been told I can have the covid booster and flu jab together. Is this advisable?
Covid vaccine and flu jab together
Covid vaccine and flu jab together
debjw
in
NRAS
3 years ago
After Rituximab
Finally had my 2 infusions of Ritixamub, feeling better, pain wise, but it has totally wiped me out. Anyone else had this after effect.? My very first infusion was only half dose because of side effects, my next infusion was 8 months later, when I had full dose. This time, I have had 2 doses, 2 weeks
Finally had my 2 infusions of Ritixamub, feeling better, pain wise, but it has totally wiped me out. Anyone else had this after effect.? My very first infusion was only half dose because of side effects, my next infusion was 8 months later, when I had full dose. This time, I have had 2 doses, 2 weeks
Callabag64
in
NRAS
3 years ago
What Now?
Been on benepali which didn't work, humira caused a rash,
rituximab
infusions which stopped working and then toxicilzumab. This was the last and rheumy was happy it worked on my RA but it caused extreme pain in shoulders. I tried it for 16 weeks then stopped it for 5 shoulder got much less painful.
Been on benepali which didn't work, humira caused a rash,
rituximab
infusions which stopped working and then toxicilzumab. This was the last and rheumy was happy it worked on my RA but it caused extreme pain in shoulders. I tried it for 16 weeks then stopped it for 5 shoulder got much less painful.
28maggie11
in
NRAS
3 years ago
Statins and Rituximab
Has anyone been advised to have Statins with Rheumatoid Arthritis , and on a biologic like
Rituximab
, did you experience any side effects?
Has anyone been advised to have Statins with Rheumatoid Arthritis , and on a biologic like
Rituximab
, did you experience any side effects?
-Mii
in
NRAS
3 years ago
First dose of Rituximab
Another 12 days and I’m due to go for my first
Rituximab
infusion. I’ve been quite happy on methotrexate and enteracept (embrel then benapali) injections for many years. Then I had severe pneumonia which left me with an interstitial lung disease.
Another 12 days and I’m due to go for my first
Rituximab
infusion. I’ve been quite happy on methotrexate and enteracept (embrel then benapali) injections for many years. Then I had severe pneumonia which left me with an interstitial lung disease.
Lotphie
in
NRAS
3 years ago
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