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Thank You All For Your Well Wishes- Happy New Year- The Best For us In 2023!
My rheumatologist put me in immediate emergency
rituximab
infusion. I gave compartment syndrome a very bad Yelp review on line- do not recommend.
My rheumatologist put me in immediate emergency
rituximab
infusion. I gave compartment syndrome a very bad Yelp review on line- do not recommend.
KellyInTexas
Administrator
in
Hughes Syndrome APS Forum
1 year ago
CLL Staging
Either
Rituximab
or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me as he thinks he is way off becoming unwell. He also doesn't want to worry me. I would like to know if anyone can give me an idea of what stage of CLL he has.
Either
Rituximab
or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me as he thinks he is way off becoming unwell. He also doesn't want to worry me. I would like to know if anyone can give me an idea of what stage of CLL he has.
Rocky0181
in
CLL Support
1 year ago
Progressed
If it has - has given me two options: Venetoclax +
Rituximab
OR LOXO 305 trial . Any thoughts folks? Anybody on one of these 2nd line treatments? Thanks Steve
If it has - has given me two options: Venetoclax +
Rituximab
OR LOXO 305 trial . Any thoughts folks? Anybody on one of these 2nd line treatments? Thanks Steve
steve_canada
in
CLL Support
2 years ago
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R-CHOP Treatment
After FCR chemo 15 years ago and numerous oral medications since I am in chemo again. They tried a milder chemo to reduce my lymph nodes (they were huge). Some success, but not as much as I needed. So now I've had one round of R-CHOP. All that it has done for me so far is take my wbc's to 0.4. I'm
After FCR chemo 15 years ago and numerous oral medications since I am in chemo again. They tried a milder chemo to reduce my lymph nodes (they were huge). Some success, but not as much as I needed. So now I've had one round of R-CHOP. All that it has done for me so far is take my wbc's to 0.4. I'm
scorpio74944
in
CLL Support
7 months ago
Lupus & Sjogrens skin rash
On 6 monthly
Rituximab
Infusions and maintenance, steroids, 5 mg alternate days. I was with Dermatilogist last week at the time had a few spots on my shoulders she changed cream to Protopic 0.03% from Dermovate. Skin was not burning at the time just a bit itchy.
On 6 monthly
Rituximab
Infusions and maintenance, steroids, 5 mg alternate days. I was with Dermatilogist last week at the time had a few spots on my shoulders she changed cream to Protopic 0.03% from Dermovate. Skin was not burning at the time just a bit itchy.
Haired
in
LUPUS UK
1 year ago
secondary cancers
Hello I recently read an abstract on 6 year follow up of Ven + Obin. About 20% developed secondary cancers, half of these succumbed to these. The abstract did not address what types of cancers nor recommend specific screening. Does anyone have any DATA on 1. How this 20% compares to CLL patients
Hello I recently read an abstract on 6 year follow up of Ven + Obin. About 20% developed secondary cancers, half of these succumbed to these. The abstract did not address what types of cancers nor recommend specific screening. Does anyone have any DATA on 1. How this 20% compares to CLL patients
skipro
in
CLL Support
7 months ago
Rituximab or Baricitinib
I saw my RA consultant today after having a flare up in the last week, he has temporarily put me on prednisone for 4 weeks as well as my methotrexate, he has suggested I go on one of the above biological drugs but worried about side effects, can anyone advise or recommend either
I saw my RA consultant today after having a flare up in the last week, he has temporarily put me on prednisone for 4 weeks as well as my methotrexate, he has suggested I go on one of the above biological drugs but worried about side effects, can anyone advise or recommend either
taximark
in
NRAS
2 years ago
The bumpy journey of a relapsed CLL with a weird and confusing chest CT scan
Due to my poor blood picture, it was decided that I should start treatment (
Rituximab
and venetoclax) asap and the lung situation monitored and hopefully respond to treatment as there was discussion it could be cll in the lungs.
Due to my poor blood picture, it was decided that I should start treatment (
Rituximab
and venetoclax) asap and the lung situation monitored and hopefully respond to treatment as there was discussion it could be cll in the lungs.
Bethan49
in
CLL Support
1 year ago
Heard of the Biologic Ocreluzimab (Ocrevus) used for treating MCTD/RA?
Onwards & upwards for 2023š My daughter with MCTD was offered Ocreluzimab following a near anaphylactic reaction to the 2nd dose of the 2nd cycle of
Rituximab
in April 2021She had the 1st 2 primary infusion of Ocreluzimab in March 2022 with no ill effects & seemed to help with her joint pains & improved
Onwards & upwards for 2023š My daughter with MCTD was offered Ocreluzimab following a near anaphylactic reaction to the 2nd dose of the 2nd cycle of
Rituximab
in April 2021She had the 1st 2 primary infusion of Ocreluzimab in March 2022 with no ill effects & seemed to help with her joint pains & improved
Wangpaupau
in
NRAS
1 year ago
Rituximab
Good morningā¦itās 5.00 and it appears to be Duracell bunny time after my second
Rituximab
infusion yesterday! Please can I ask you lovely people on RTX a couple of questions.
Good morningā¦itās 5.00 and it appears to be Duracell bunny time after my second
Rituximab
infusion yesterday! Please can I ask you lovely people on RTX a couple of questions.
Nordywalker
in
NRAS
2 years ago
āTame The Beastā ā¦.. Iām sharing for anyone whoās never seen this & am interested in your thoughts ā¦.. https://youtu.be/ikUzvSph7Z4
My 62 year old husband has Rheumatoid Arthritis - his treatment includes
Rituximab
IV infusions, DMARDS & various pain meds.
My 62 year old husband has Rheumatoid Arthritis - his treatment includes
Rituximab
IV infusions, DMARDS & various pain meds.
Turquoise-1
in
LUPUS UK
1 year ago
ļ»æRituximab
ļ»æIm about to have my first infusion of
rituximab
. Can anyone who has been on it tell me if they've had many infections as a result? And have they cut out certain foods that are known to be risky i.e patƩ, soft cheeses etc?
ļ»æIm about to have my first infusion of
rituximab
. Can anyone who has been on it tell me if they've had many infections as a result? And have they cut out certain foods that are known to be risky i.e patƩ, soft cheeses etc?
BernardBear
in
NRAS
2 years ago
CLL Society interview - Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023
- How do monoclonal antibody therapies like
rituximab
and obinutuzumab affect the immune response? Anti-CD20 monoclonal antibodies like
rituximab
and obinutuzumab are commonly used therapies for treating CLL/SLL. They target the CD20 protein that is expressed on the surface of all B cells.
- How do monoclonal antibody therapies like
rituximab
and obinutuzumab affect the immune response? Anti-CD20 monoclonal antibodies like
rituximab
and obinutuzumab are commonly used therapies for treating CLL/SLL. They target the CD20 protein that is expressed on the surface of all B cells.
lankisterguy
Volunteer
in
CLL Support
1 year ago
Rituximab
Iāve just had my 2nd infusion of
rituximab
and not had any benefits from it yet. Before my infusion I was on 15 mil but be told to come off them but as soon as I get to 10 Iām just breathless and no energy .
Iāve just had my 2nd infusion of
rituximab
and not had any benefits from it yet. Before my infusion I was on 15 mil but be told to come off them but as soon as I get to 10 Iām just breathless and no energy .
Laceygreen
in
NRAS
2 years ago
Viral infection to Covid and Flu booster gap.
Diag 2015. FCR 2018, 2023 still in full remission (FISH), My Lymphocyte count is 0.8. I am hypogammaglobulinaemic - IgA, G and M. I have been very fortunate in not having any infection since before diagnosis. Six weeks ago I became suddenly very unwell over the space of 2 hours. What followed was
Diag 2015. FCR 2018, 2023 still in full remission (FISH), My Lymphocyte count is 0.8. I am hypogammaglobulinaemic - IgA, G and M. I have been very fortunate in not having any infection since before diagnosis. Six weeks ago I became suddenly very unwell over the space of 2 hours. What followed was
JigFettler
Volunteer
in
CLL Support
9 months ago
upset stomach
Hi I have HUVS .After
rituximab
l have generally improved . This is my fourth set of
rituximab
infusions . However each time I have suffered from upset and painful stomach pains . This does not kick in until four months after treatment.
Hi I have HUVS .After
rituximab
l have generally improved . This is my fourth set of
rituximab
infusions . However each time I have suffered from upset and painful stomach pains . This does not kick in until four months after treatment.
artists
in
Vasculitis UK
2 years ago
Fully Funded Ibrutinib is finally coming to New Zealand!
Venetoclax +
Rituximab
is already fully funded here ""Ibrutinib to be funded in New Zealand People with chronic lymphocytic leukaemia (CLL) and certain clinical circumstances will have access to funded ibrutinib (Imbruvica) from 1 December 2022.
Venetoclax +
Rituximab
is already fully funded here ""Ibrutinib to be funded in New Zealand People with chronic lymphocytic leukaemia (CLL) and certain clinical circumstances will have access to funded ibrutinib (Imbruvica) from 1 December 2022.
morepork
in
CLL Support
2 years ago
FDA Approves Zanubrutinib for Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphom
Findings from SEQUOIA showed that at a median follow-up of 25.0 months, the median progression-free survival (PFS) was not reached (95% CI, not estimable [NE]āNE) with zanubrutinib vs 33.7 months (95% CI, 28.1-NE) with bendamustine and
rituximab
(Rituxan; BR) in patients with treatment-naĆÆve CLL/SLL
Findings from SEQUOIA showed that at a median follow-up of 25.0 months, the median progression-free survival (PFS) was not reached (95% CI, not estimable [NE]āNE) with zanubrutinib vs 33.7 months (95% CI, 28.1-NE) with bendamustine and
rituximab
(Rituxan; BR) in patients with treatment-naĆÆve CLL/SLL
lankisterguy
Volunteer
in
CLL Support
1 year ago
2022 - Reflection and Thank You
As I lay on the sofa this morning recovering from my latest infusion of
Rituximab
it dawned on me how far we have all come on these voyages we are all on. In different boats and in different parts of the sea in different conditions all trying to dock in the same port.
As I lay on the sofa this morning recovering from my latest infusion of
Rituximab
it dawned on me how far we have all come on these voyages we are all on. In different boats and in different parts of the sea in different conditions all trying to dock in the same port.
Investigator1
in
Vasculitis UK
2 years ago
moving on to next treatment-considering Nurex
I have had CLL for 25 yrs with not the greatest genetics/markers TP 53, 13q unmutated. Have had multiple treatments FCR,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would
I have had CLL for 25 yrs with not the greatest genetics/markers TP 53, 13q unmutated. Have had multiple treatments FCR,Bent&R,Ibrutinib and most recently clin trial Loxo 305 (40 months) numbers are changing along with resistance (mut PLg2). I know several members are on degrader (nurex) trial and would
Osprey69
in
CLL Support
9 months ago
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