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Fed Up
Hi I posted a while ago about the brand of thyroxine I’m on (Accord), just had my blood results. Recently moved doctors. After getting my results doctor has advised if you take thyroxine the NHS will only test TSH now. My old doctors used to do T4 and TSH. I could never get T3 done. On a positive
Hi I posted a while ago about the brand of thyroxine I’m on (Accord), just had my blood results. Recently moved doctors. After getting my results doctor has advised if you take thyroxine the NHS will only test TSH now. My old doctors used to do T4 and TSH. I could never get T3 done. On a positive
Sam_antha1234
in
Thyroid UK
4 months ago
not PA, next steps
Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
AJackson21
in
Pernicious Anaemia Society
4 months ago
Out of interest......what were you initially (mis)diagnosed with?
I'm just wondering what people were initially misdiagnosed with? When I was at my most unwell my GP at the time wanted to diagnose me with Fibromyalgia. I was adamant it wasn't that, and would not accept that diagnosis. Another GP at the surgery was talking about going down the MS route. That was until
I'm just wondering what people were initially misdiagnosed with? When I was at my most unwell my GP at the time wanted to diagnose me with Fibromyalgia. I was adamant it wasn't that, and would not accept that diagnosis. Another GP at the surgery was talking about going down the MS route. That was until
BeachArt
in
Pernicious Anaemia Society
4 months ago
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help please, liothyronine, Roma brand
please forgive how long winded this will be I’m spaced out and not with it at all. I only posted a few months ago and my T4 results were a little on the high side. I was on 200mcg of Levo and alternate day 225mcg. I’ve reduce this down to 200mcg over 5 days and two doses of 25mcg over 2 days. Example
please forgive how long winded this will be I’m spaced out and not with it at all. I only posted a few months ago and my T4 results were a little on the high side. I was on 200mcg of Levo and alternate day 225mcg. I’ve reduce this down to 200mcg over 5 days and two doses of 25mcg over 2 days. Example
Cheekycharlie1981
in
Thyroid UK
4 months ago
Blood results - Any Advice?
Hi! Just looking for maintenance recommendations and any advice is greatly appreciated! Went to a new doctor (endocrinologist) to get a 2nd opinion on my thyroid condition. Of course, my goal is to heal and get off meds completely one day but she said she does not feel it is possible. Was first
Hi! Just looking for maintenance recommendations and any advice is greatly appreciated! Went to a new doctor (endocrinologist) to get a 2nd opinion on my thyroid condition. Of course, my goal is to heal and get off meds completely one day but she said she does not feel it is possible. Was first
Kim327
in
Thyroid UK
4 months ago
UPDATE: NEW RESULTS
Hi all hope you are all ok. I apologise this is a long post, sit down with a drink before you start Or ignore if it’s too much 🤣 Some may remember I posted in December (I think) as I had seen a private Endo who told me after 30 years of being Hypothyroid I was now Hyperthyroid (I know, impossible
Hi all hope you are all ok. I apologise this is a long post, sit down with a drink before you start Or ignore if it’s too much 🤣 Some may remember I posted in December (I think) as I had seen a private Endo who told me after 30 years of being Hypothyroid I was now Hyperthyroid (I know, impossible
irishacres
in
Thyroid UK
4 months ago
Zypan?
Hi everyone. Just wondering if anybody here is taking Zypan or have taken it before? Just watched a really helpful video from Dr Berg on YouTube on PA where he mentions this helps to absorb B12 if there is a lack of intrinsic factor
Hi everyone. Just wondering if anybody here is taking Zypan or have taken it before? Just watched a really helpful video from Dr Berg on YouTube on PA where he mentions this helps to absorb B12 if there is a lack of intrinsic factor
MLJ2024
in
Pernicious Anaemia Society
4 months ago
Is this too little or too much NDT Armour symptom?
Hi All Still here, feeling dreadfully weak. Im having weird weak quads and calves (weaker than usual) 5-10 mins after food and also 5-10 mins after Armour. I take 1 1/4 grains in 2 split doses AM and 3 PM ish, giving a TSH of 0.09 (0.27-4.2) FT4 15.3 (12-22) FT3 4.6 (3.1-6.8) Recent NHS Iron
Hi All Still here, feeling dreadfully weak. Im having weird weak quads and calves (weaker than usual) 5-10 mins after food and also 5-10 mins after Armour. I take 1 1/4 grains in 2 split doses AM and 3 PM ish, giving a TSH of 0.09 (0.27-4.2) FT4 15.3 (12-22) FT3 4.6 (3.1-6.8) Recent NHS Iron
Gillybean1
in
Thyroid UK
4 months ago
B12 ampules
I have noticed that my B12 ampules are a few months out of date, will they still be effective? I had a fall and brain injury in December and wonder if the extra fatigue is due to the injury. Thank you
I have noticed that my B12 ampules are a few months out of date, will they still be effective? I had a fall and brain injury in December and wonder if the extra fatigue is due to the injury. Thank you
bethmoggie
in
Pernicious Anaemia Society
4 months ago
are my labs showing anything?
Hi all, wondered if anyone could offer some advice, i started B12 injections a couple weeks ago i only did a few days as i started to get symptoms of severe neuropathy n breathing & this cold sensation all over my body, ended up in A&E 🙄 I didnt know if it was because of injections or an advancement
Hi all, wondered if anyone could offer some advice, i started B12 injections a couple weeks ago i only did a few days as i started to get symptoms of severe neuropathy n breathing & this cold sensation all over my body, ended up in A&E 🙄 I didnt know if it was because of injections or an advancement
M-usher
in
Pernicious Anaemia Society
4 months ago
Rang gp surgery 🤦♀️
So after my last posts about the gp prescribing me a antihistamine which I have recived today...( Fexofenadine Hydrochloride) I assume the gp wants me to take this antihistamine with my thyroid medication 🤔 although she never actually said this🤷♀️.Maby she's thinks the antihistamine will help me stomach
So after my last posts about the gp prescribing me a antihistamine which I have recived today...( Fexofenadine Hydrochloride) I assume the gp wants me to take this antihistamine with my thyroid medication 🤔 although she never actually said this🤷♀️.Maby she's thinks the antihistamine will help me stomach
birkie
in
Thyroid UK
4 months ago
Low Carb or even Keto why is not recommended with low thyroid - can I control prediabetes with diet ?
Help please wise, kind people. I am autoimmune underactive and gluten intolerant but also pre diabetic. As thyroid stabilising and generally fine, I am now trying to sort the Pre diabetes and take it off the back burner. I have been reading around this on and off for ages and never got out of the
Help please wise, kind people. I am autoimmune underactive and gluten intolerant but also pre diabetic. As thyroid stabilising and generally fine, I am now trying to sort the Pre diabetes and take it off the back burner. I have been reading around this on and off for ages and never got out of the
Sleepman
in
Thyroid UK
4 months ago
The ratty feeling won't go!
My temper can be pretty short. I got angry yesterday, my husband, who won't take instructions and won't educate himself about gardening was hacking away "helping" on the allotment. Obviously at the moment I don't have much energy for it, but I don't want it done wrong, because that creates more work
My temper can be pretty short. I got angry yesterday, my husband, who won't take instructions and won't educate himself about gardening was hacking away "helping" on the allotment. Obviously at the moment I don't have much energy for it, but I don't want it done wrong, because that creates more work
Oneash
in
Pernicious Anaemia Society
4 months ago
Help with Results and Hair Loss
Hi, I was diagnosed with hypothyroidism formally in July 2020, and put on 50mg Levo initially although my TSH levels had been over 5 for the 2 years prior to 2020 with the GP saying they would just monitor 🤦🏼♀️ subsequent blood tests after starting Levo showed the TSH was up and down, but GP kept
Hi, I was diagnosed with hypothyroidism formally in July 2020, and put on 50mg Levo initially although my TSH levels had been over 5 for the 2 years prior to 2020 with the GP saying they would just monitor 🤦🏼♀️ subsequent blood tests after starting Levo showed the TSH was up and down, but GP kept
Henwood
in
Thyroid UK
4 months ago
need advice
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Tiredycake
in
Pernicious Anaemia Society
4 months ago
Itchy and soreness.
I’ve was diagnosed with lupus in 2013. I’ve had a few flares with the skin and last summer was one of the worst. I was put on hydroxychloroquine at first, but last year I had methotrexate and folic acid to my medication as well as still taking hydroxychloroquine. I’ve now developed a rash again on my
I’ve was diagnosed with lupus in 2013. I’ve had a few flares with the skin and last summer was one of the worst. I was put on hydroxychloroquine at first, but last year I had methotrexate and folic acid to my medication as well as still taking hydroxychloroquine. I’ve now developed a rash again on my
elizabeth-57
in
LUPUS UK
4 months ago
Worried about TSH levels :( 0.04mlU/L
I am taking a small 3mg of T3 with a private prescription and my NHS endo has said, this prescription is causing my lower TSH - but that feels like I'm being gaslight again. I'm feeling soo fatigued and stressed trying to get it sorted. I know I need to my levels on the lower side due to previous thyroid
I am taking a small 3mg of T3 with a private prescription and my NHS endo has said, this prescription is causing my lower TSH - but that feels like I'm being gaslight again. I'm feeling soo fatigued and stressed trying to get it sorted. I know I need to my levels on the lower side due to previous thyroid
LittleMissTeapot
in
Thyroid UK
4 months ago
Advice
How long should you supplement b12 before starting folate?
How long should you supplement b12 before starting folate?
Popcorn12345
in
Pernicious Anaemia Society
4 months ago
How to persuade TSH-obsessed Endo I'm not over-replaced (on T3-only)?
Hello, I am posting because I'm hoping for some advice for an Endo meeting on Tuesday. There is a possibility that the NHS Endocrinology team at my local hospital might just be contemplating 'widening' their approach to T3 (historically for me, a violent slam in the face 'NO! Get off T3 immediately or
Hello, I am posting because I'm hoping for some advice for an Endo meeting on Tuesday. There is a possibility that the NHS Endocrinology team at my local hospital might just be contemplating 'widening' their approach to T3 (historically for me, a violent slam in the face 'NO! Get off T3 immediately or
lolapops1978
in
Thyroid UK
4 months ago
stopping vitamins before tests
hi everyone, I can’t remember if I have to stop my vitamin b12 and D before doing my medichecks test - the one that tests for t3, t4, tsh, folate, b12, D, ferritin and inflammation. I’m taking the vitamins in spray form now so no biotin - is there any other reason I have to stop before testing? Thanks
hi everyone, I can’t remember if I have to stop my vitamin b12 and D before doing my medichecks test - the one that tests for t3, t4, tsh, folate, b12, D, ferritin and inflammation. I’m taking the vitamins in spray form now so no biotin - is there any other reason I have to stop before testing? Thanks
Mazes
in
Thyroid UK
4 months ago
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