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PSA from .08 to 2.1, after 2yrs ADT with zytiga and RT @59 yr
so seems to be back and waiting on PSMA PER SCAN. From what I understand, they usually look for something and do a scavenge RT treatment. Anyone who’s gone through this did you have to go back on ADT because that just sucks.. I had high risk Gleason score 9 anybody deal with this? I’m sure. Let me know
so seems to be back and waiting on PSMA PER SCAN. From what I understand, they usually look for something and do a scavenge RT treatment. Anyone who’s gone through this did you have to go back on ADT because that just sucks.. I had high risk Gleason score 9 anybody deal with this? I’m sure. Let me know
Eieio
in
Advanced Prostate Cancer
2 months ago
Pulmonary Node revealed with PET scan not growing
During my treatment for PC the first Pet scan showed a pulmonary node. There were no Mets beyound the prostate. Three DRs., Urologist, Oncologist and Pulmonary, did not attribute the node to the PC, since it was so far removed and there were no other mets revealed. A subsquent MRI 3 months later indicated
During my treatment for PC the first Pet scan showed a pulmonary node. There were no Mets beyound the prostate. Three DRs., Urologist, Oncologist and Pulmonary, did not attribute the node to the PC, since it was so far removed and there were no other mets revealed. A subsquent MRI 3 months later indicated
Eadgbe
in
Advanced Prostate Cancer
2 months ago
Proton Beam radiation
83 ys old, gleason 9, ADT since Feb 22=6 sessions until now. No prostatectomie. Proton beam radiation: 30 sessions = 72 Gy, result PSA 0,014 (undetectable), minor inkontinence (pads). I am very happy about the outcome. Living in Germany: insurances cover the cost( approx 50k)
83 ys old, gleason 9, ADT since Feb 22=6 sessions until now. No prostatectomie. Proton beam radiation: 30 sessions = 72 Gy, result PSA 0,014 (undetectable), minor inkontinence (pads). I am very happy about the outcome. Living in Germany: insurances cover the cost( approx 50k)
EBBEFLUT
in
Advanced Prostate Cancer
2 months ago
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Decided on brachyboost plus 6 months ADT
My husband made his treatment decision today. After a lot of research, questions and consults, he has decided on brachyboost (EBRT plus brachytherapy) plus 6 months of ADT. It was a tough decision and we both know way more about prostate cancer now that we ever wanted to, but I am glad we did our due
My husband made his treatment decision today. After a lot of research, questions and consults, he has decided on brachyboost (EBRT plus brachytherapy) plus 6 months of ADT. It was a tough decision and we both know way more about prostate cancer now that we ever wanted to, but I am glad we did our due
EvFC
in
Advanced Prostate Cancer
2 months ago
Seasonal Affective Disorder and photosensitive retinal ganglion cells
I think I suffer from Seasonal Affective Disorder (SAD) and it has got much worse since I lost most. of trhe vision in my left eye and some peripheral vision in both eyes in 2021. I've seen some interesting reports into the recently discovered third set of photoreceptive cells in teh retina "photosensitive
I think I suffer from Seasonal Affective Disorder (SAD) and it has got much worse since I lost most. of trhe vision in my left eye and some peripheral vision in both eyes in 2021. I've seen some interesting reports into the recently discovered third set of photoreceptive cells in teh retina "photosensitive
Tarsius
in
Anxiety and Depression Support
9 months ago
Latest blood test results
I did a private blood test with monitor my health on Tuesday 2nd January 2024, It was done at 9.30am, no levo that morning, no B complex for a week before.The test for folate, B12, ect had clotted in the phial so they are sending me another one. The results I have are: VITAMIN D
I did a private blood test with monitor my health on Tuesday 2nd January 2024, It was done at 9.30am, no levo that morning, no B complex for a week before.The test for folate, B12, ect had clotted in the phial so they are sending me another one. The results I have are: VITAMIN D
Dawney63
in
Thyroid UK
6 months ago
Pulmonary Complications Post Lutetium-177-PSMA-617 Therapy in Metastatic Castration-Resistant Prostate Cancer #Pluvicto
We present the case of a patient with heavily pretreated metastatic castration-resistant prostate cancer (mCRPC) who underwent treatment with lutetium Lu-177 vipivotide tetraxetan (also known as 177Lu-PSMA-617) due to progressive disease despite multiple lines of therapy, including chemotherapy, hormonal
We present the case of a patient with heavily pretreated metastatic castration-resistant prostate cancer (mCRPC) who underwent treatment with lutetium Lu-177 vipivotide tetraxetan (also known as 177Lu-PSMA-617) due to progressive disease despite multiple lines of therapy, including chemotherapy, hormonal
God_Loves_Me
in
Advanced Prostate Cancer
2 months ago
Msa 7 months on
The symptoms still kicking on 7 months in. Still out of wheelchair (I'd say just)I've bought a mobility scooter. The council have been really helpful and speech therapy have been excellent. Old friends have been good to catch up with for an hour or so but I don't know if it's common but insomnia and
The symptoms still kicking on 7 months in. Still out of wheelchair (I'd say just)I've bought a mobility scooter. The council have been really helpful and speech therapy have been excellent. Old friends have been good to catch up with for an hour or so but I don't know if it's common but insomnia and
thedjsupreme
in
Multiple System Atrophy Trust
9 months ago
New here
Hello everyone. I am 61 next month. 18 months ago I had a hip replacement and I never thought I'd be able to run again, I have been walking and open water swimming for a while and I thought I would have ago at the C25K. Well I am nearly at the end of week 3 and it is going so well.
Hello everyone. I am 61 next month. 18 months ago I had a hip replacement and I never thought I'd be able to run again, I have been walking and open water swimming for a while and I thought I would have ago at the C25K. Well I am nearly at the end of week 3 and it is going so well.
GM11
in
Couch to 5K
10 months ago
Making a Case for Intermittent ADT in Metastatic Hormone Sensitive Prostate Cancer
FPC'ers, Many times, we hear people claim that you should only stop ADT if you can't tolerate it any longer, and that it will not slow castrate resistance; that it increases risk for stroke, and heart attack; that it will likely take years for your testosterone to recover; that it increases mortality
FPC'ers, Many times, we hear people claim that you should only stop ADT if you can't tolerate it any longer, and that it will not slow castrate resistance; that it increases risk for stroke, and heart attack; that it will likely take years for your testosterone to recover; that it increases mortality
NPfisherman
in
Fight Prostate Cancer
2 months ago
Phase III Study: Saruparib Combo with New Hormonal Agents in mCSPC +/- HRR Mutations: AUA 2024 EvoPAR-Prostate01 Trial
AUA 2024: EvoPAR-Prostate01: Phase III, Double-Blind, Placebo-Controlled, 2-Cohort, Randomized Study of Saruparib (AZD5305) in Combination with New Hormonal Agents in Patients with mCSPC +/- HRR Mutations (UroToday.com) The 2024 American Urological Association (AUA) annual meeting featured a session
AUA 2024: EvoPAR-Prostate01: Phase III, Double-Blind, Placebo-Controlled, 2-Cohort, Randomized Study of Saruparib (AZD5305) in Combination with New Hormonal Agents in Patients with mCSPC +/- HRR Mutations (UroToday.com) The 2024 American Urological Association (AUA) annual meeting featured a session
God_Loves_Me
in
Advanced Prostate Cancer
2 months ago
Any guidance appreciated!
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
LDC2024
in
Advanced Prostate Cancer
2 months ago
oligometastic
I had a PSMA scan that found 3 small spots. My MO and Radiation O decided to radiate the spots without ADT. PSA is 0.28
I had a PSMA scan that found 3 small spots. My MO and Radiation O decided to radiate the spots without ADT. PSA is 0.28
Howard53545
in
Advanced Prostate Cancer
2 months ago
TRAP trial: radiotherapy combined with hormone therapy can help some advanced prostate cancer patients avoid chemotherapy
TRAP is maybe not the best name for a clinical trial, but hey… https://www.icr.ac.uk/news-archive/new-trial-finds-radiotherapy-combined-with-hormone-therapy-can-help-some-advanced-prostate-cancer-patients-avoid-chemotherapy
TRAP is maybe not the best name for a clinical trial, but hey… https://www.icr.ac.uk/news-archive/new-trial-finds-radiotherapy-combined-with-hormone-therapy-can-help-some-advanced-prostate-cancer-patients-avoid-chemotherapy
Maxone73
in
Advanced Prostate Cancer
2 months ago
A-Dream iADT Protocol
It has been awhile since my last post. Short story is I responded well to the doublet therapy in Arasec (lupron+daro). MO believes there is some chance my M1B diagnosis at the start was incorrect (he refers to my case as 'discordant' - due to conflicting data - Gleason 6 but some spots lit up on
It has been awhile since my last post. Short story is I responded well to the doublet therapy in Arasec (lupron+daro). MO believes there is some chance my M1B diagnosis at the start was incorrect (he refers to my case as 'discordant' - due to conflicting data - Gleason 6 but some spots lit up on
Heykm01
in
Advanced Prostate Cancer
2 months ago
Self Anthem - Music therapy
So, I was remembering when I had a major breakdown when my life was falling apart everywhere I turned - after I realized that the life/relationship that I had invested so much of everything into was a big fat lie ... And I started to pick myself up and I heard this song and kept playing it over and over
So, I was remembering when I had a major breakdown when my life was falling apart everywhere I turned - after I realized that the life/relationship that I had invested so much of everything into was a big fat lie ... And I started to pick myself up and I heard this song and kept playing it over and over
HopeforMiami
in
Anxiety and Depression Support
9 months ago
Post Menopausal Fibroids
I am 62 and have been diagnosed with fibroids as a result of CT and US scans. Pelvic pain is constant, often severe. My HRT has been switched to Tibolone which I am told will not ‘feed’ the fibroids. I am waiting for an NHS gynae referral appointment which will not be anytime soon as there is a huge
I am 62 and have been diagnosed with fibroids as a result of CT and US scans. Pelvic pain is constant, often severe. My HRT has been switched to Tibolone which I am told will not ‘feed’ the fibroids. I am waiting for an NHS gynae referral appointment which will not be anytime soon as there is a huge
Juno09
in
Women's Health
1 year ago
CBT-I (Cognitive Behavioral Therapy Insomnia) for Parkinson's Insomnia
I have read in multiple places that Cognitive Behavioral Therapy for Insomnia works for people with Parkinson's. I can't seem to find anyone who has tried it. Has anyone here tried it? Did it work?
I have read in multiple places that Cognitive Behavioral Therapy for Insomnia works for people with Parkinson's. I can't seem to find anyone who has tried it. Has anyone here tried it? Did it work?
staceysack
in
Cure Parkinson's
6 months ago
update
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Hidden
in
Neuropathy Support
9 months ago
update
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Hidden
in
Restless Legs Syndrome
9 months ago
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