Search
Search
About
Log in
Join
Experiences with
Radian B
Posts
Communities
2,392 public posts
Filter results
Radium 223 instead of enzalutamide
My dad mentioned that he’d like to come off enzalutamide because of always feeling tired and the doc has agreed and is now starting him on a course of Radium 223. The aim is to target 2 small bone mets and bring them under control. Apparently they are becoming more active so the enzalutamide hasn’t held
My dad mentioned that he’d like to come off enzalutamide because of always feeling tired and the doc has agreed and is now starting him on a course of Radium 223. The aim is to target 2 small bone mets and bring them under control. Apparently they are becoming more active so the enzalutamide hasn’t held
SC19
in
Advanced Prostate Cancer
2 years ago
What's up with Choline?
I have seen a number of posts where people have referenced avoiding eggs due to their Choline content. Is this a real concern for APC patients? A recent article brought these concerns to mind: Part of the vitamin B family, choline helps the body use fats more efficiently by breaking them into smaller
I have seen a number of posts where people have referenced avoiding eggs due to their Choline content. Is this a real concern for APC patients? A recent article brought these concerns to mind: Part of the vitamin B family, choline helps the body use fats more efficiently by breaking them into smaller
JRPnSD
in
Advanced Prostate Cancer
2 years ago
radium 223
I am 6 years into stage 4 prostate cancer. Have had SOC treatment in UK. Best PSA was 0.08 about 2 years ago. Since then have had bicalutimide, enzalutimide some localised radiotherapy for back pain. Also been on cabazitaxel, which eventually failed. I am now into my 2nd. treatment of radium 223. So
I am 6 years into stage 4 prostate cancer. Have had SOC treatment in UK. Best PSA was 0.08 about 2 years ago. Since then have had bicalutimide, enzalutimide some localised radiotherapy for back pain. Also been on cabazitaxel, which eventually failed. I am now into my 2nd. treatment of radium 223. So
tonmead
in
Advanced Prostate Cancer
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
NAD, Thiamine (B1) and Day 63 of TTDF 7/18/22.
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Someone asked, if I ever heard of NADH? I believe when a cure is found for PD, it will a combination of factors. I take NMN which supposedly increases NAD which is the
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Someone asked, if I ever heard of NADH? I believe when a cure is found for PD, it will a combination of factors. I take NMN which supposedly increases NAD which is the
Gcf51
in
Cure Parkinson's
2 years ago
Study of Systemic Immune-Inflammation Index for determining survival after radical prostatectomy.
https://www.mdpi.com/1797758 Go to link and download the pdf. This article talks about determining if a radical prostatectomy is beneficial for non metastatic prostate cancer. For those of us considering the procedure it may help with your determination (definitely not me as my cancer is metastatic
https://www.mdpi.com/1797758 Go to link and download the pdf. This article talks about determining if a radical prostatectomy is beneficial for non metastatic prostate cancer. For those of us considering the procedure it may help with your determination (definitely not me as my cancer is metastatic
marc_andersun
in
Advanced Prostate Cancer
2 years ago
Help with test results please!
Hi all, I’ve just received my test results for the advanced thyroid function test via Medichecks after increasing my Levothyroxine from 125mcg to 150mcg. I had the blood drawn 25 hours after my last Levothyroxine dose and before 9am, fasting. I also stopped iron and any supplements containing B vitamins
Hi all, I’ve just received my test results for the advanced thyroid function test via Medichecks after increasing my Levothyroxine from 125mcg to 150mcg. I had the blood drawn 25 hours after my last Levothyroxine dose and before 9am, fasting. I also stopped iron and any supplements containing B vitamins
TiredMummy
in
Thyroid UK
2 years ago
Post radical prostatectomy rising
This is my first post asking for opinions for further treatment. Had radical prostatectomy at Keck USC from Dr. Monish Aron in November, 2018. Psa was subsequently .02 for close to 3 years. Climbed to .08 in Jan. 2022 then .10 in March 2022 Most recent psa was .239 on 8/5/22 Seeing my urologist
This is my first post asking for opinions for further treatment. Had radical prostatectomy at Keck USC from Dr. Monish Aron in November, 2018. Psa was subsequently .02 for close to 3 years. Climbed to .08 in Jan. 2022 then .10 in March 2022 Most recent psa was .239 on 8/5/22 Seeing my urologist
drjg
in
Advanced Prostate Cancer
2 years ago
How long do b vitamins take to work
Hi guys I hope you can give me some hope. I’ve had bilateral paresthesias in my feet and lower legs for a good year now and 2 months ago I realised that b 12 deficiency is a strong possibility. ( I’ve had loads of other treatment previously from chiropractor, physio and doing lots of core strengthening
Hi guys I hope you can give me some hope. I’ve had bilateral paresthesias in my feet and lower legs for a good year now and 2 months ago I realised that b 12 deficiency is a strong possibility. ( I’ve had loads of other treatment previously from chiropractor, physio and doing lots of core strengthening
Cookiedough2022
in
Pernicious Anaemia Society
2 years ago
PSMA PET/CT study from Renal and Urology News
In a study of 207 patients with a median age of 62 years who underwent 68Ga-PSMA PET/CT, investigators found that PSA levels and time to BCR at the time of PSMA PET/CT affect the probability of positive findings at PSMA PET. Among men with early recurrence or PSA persistence after RP, the study showed
In a study of 207 patients with a median age of 62 years who underwent 68Ga-PSMA PET/CT, investigators found that PSA levels and time to BCR at the time of PSMA PET/CT affect the probability of positive findings at PSMA PET. Among men with early recurrence or PSA persistence after RP, the study showed
Graham49
in
Advanced Prostate Cancer
2 years ago
Are very high levels of b12 a concern?
Hello again friends. I wrote a post about this yesterday but I think I complicated it . ( brain fog) So I'm writing again for assistance please. My recent blood tests showed very high vitamin b12 956ng/L. (197-771) I hadn't taken any B vitamins for over a week. I hadn't supplimented with high b12 for
Hello again friends. I wrote a post about this yesterday but I think I complicated it . ( brain fog) So I'm writing again for assistance please. My recent blood tests showed very high vitamin b12 956ng/L. (197-771) I hadn't taken any B vitamins for over a week. I hadn't supplimented with high b12 for
Everdean
in
Pernicious Anaemia Society
2 years ago
appendix removal for BOTs
has anyone else had a complete radical hysterectomy after a 20cm MBOT and no mention of removal of appendix? It just occurred to me when doing some research that most people mention removal of appendix when they remove the cyst, my cyst was removed in 2019 and now I have had radical hysterectomy but
has anyone else had a complete radical hysterectomy after a 20cm MBOT and no mention of removal of appendix? It just occurred to me when doing some research that most people mention removal of appendix when they remove the cyst, my cyst was removed in 2019 and now I have had radical hysterectomy but
Sabby81
in
My Ovacome
2 years ago
Should I be concerned?
My recent blood test results:- Serum vitamin B12 level 956 ng/L [197.0 - 771.0] Above high reference limit Interpretation of haematinics: https://tinyurl.com/BiochemInfo Weblink also available via VoY RSS Pathology tab. High B12 may be due to supplements or fortified food. High levels can be observed
My recent blood test results:- Serum vitamin B12 level 956 ng/L [197.0 - 771.0] Above high reference limit Interpretation of haematinics: https://tinyurl.com/BiochemInfo Weblink also available via VoY RSS Pathology tab. High B12 may be due to supplements or fortified food. High levels can be observed
Everdean
in
Pernicious Anaemia Society
2 years ago
Mind-Map of Lone AF, Thyroid, Gilbert's and Autism
I'm new to forums about the above. So, forgive me if I'm going over old ground. My medical history is really only remarkable for mild Gilbert's Syndrome (hyperbilirubinaemia) and mercury fillings (in common with much of the UK of my generation!). However, 13 years ago I was diagnosed with lone paroxysmal
I'm new to forums about the above. So, forgive me if I'm going over old ground. My medical history is really only remarkable for mild Gilbert's Syndrome (hyperbilirubinaemia) and mercury fillings (in common with much of the UK of my generation!). However, 13 years ago I was diagnosed with lone paroxysmal
TeaFree
in
Atrial Fibrillation Support
2 years ago
considering Treatment Options
I am a 61 year old man of otherwise good health. In December 2022 my PSA came back at around 10. Since then I have had 2 other PSAs, one at 9.4 and one at 11. My Gleason is 6. My prostate is only modestly enlarged (about 30%). I am only having minor symptoms, and frankly could live with these for the
I am a 61 year old man of otherwise good health. In December 2022 my PSA came back at around 10. Since then I have had 2 other PSAs, one at 9.4 and one at 11. My Gleason is 6. My prostate is only modestly enlarged (about 30%). I am only having minor symptoms, and frankly could live with these for the
Tacker
in
Active Surveillance - Prostate Cancer
2 years ago
+* Found Info 🙃 ALINAMIN EX PLUS... ingredients (B1)
+* Found Info 🙃 ALINAMIN EX PLUS... ingredients https://alinamin-kenko.jp/en/products/vitamin/al_ex.html Fursultiamine (vitamin B1 derivative) 100mg** (in fursultiamine hydrochloride equivalent, 109.16mg)plus other stuff.... I assume since it says 2 - 3 a day, it is not as active as TTFD.... 🙃 ** In
+* Found Info 🙃 ALINAMIN EX PLUS... ingredients https://alinamin-kenko.jp/en/products/vitamin/al_ex.html Fursultiamine (vitamin B1 derivative) 100mg** (in fursultiamine hydrochloride equivalent, 109.16mg)plus other stuff.... I assume since it says 2 - 3 a day, it is not as active as TTFD.... 🙃 ** In
Gcf51
in
Cure Parkinson's
2 years ago
Ferrous sulphate tablets 200mg - any advice much appreciated
Hi, I had my iron levels checked which came back as ferritin: 8 ug/L and given a prescription for ferrous sulphate 200mg. The box is saying to take 2-3 times a day on an empty stomach, or avoiding certain foods (milk, grains, tea, coffee) I'm pregnant and having extreme nausea and sickness, nibbling
Hi, I had my iron levels checked which came back as ferritin: 8 ug/L and given a prescription for ferrous sulphate 200mg. The box is saying to take 2-3 times a day on an empty stomach, or avoiding certain foods (milk, grains, tea, coffee) I'm pregnant and having extreme nausea and sickness, nibbling
NaomiMay
in
Thyroid UK
2 years ago
Help with bone marrow not working
desperate seeking any advice on how to kick start his bone marrow - he only got through 3 cycles of the Radium 223 and HGB and platelets have dropped - he has received platlets twice , and blood. Have to get levels up before we can even think about next treatment - any suggestions ? We are doing papyea
desperate seeking any advice on how to kick start his bone marrow - he only got through 3 cycles of the Radium 223 and HGB and platelets have dropped - he has received platlets twice , and blood. Have to get levels up before we can even think about next treatment - any suggestions ? We are doing papyea
danyelpolo
in
Advanced Prostate Cancer
2 years ago
Catch 22 - Hormone sensitive but can't tolerate hormone therapy
This is related to my posts about Lupron giving me intolerable and treatment resistant depression. The Lupron did work so far as bringing my PSA down to essentially zero which should mean it is suppressing the cancer. It is the front line SOC (Standard of Care) - FDA approved, proven in practice, etc
This is related to my posts about Lupron giving me intolerable and treatment resistant depression. The Lupron did work so far as bringing my PSA down to essentially zero which should mean it is suppressing the cancer. It is the front line SOC (Standard of Care) - FDA approved, proven in practice, etc
maggiedrum
in
Advanced Prostate Cancer
2 years ago
healthy and fit 55 year old with advanced local PC
Greetings gents. They are, of course, offering me a choice between radical prostatectomy and radical radiation + hormone therapy. I am aware of all of the likely and possible side effects of both treatments. I would love to hear
from someone my age and health level - I am extremely fit
- about
Greetings gents. They are, of course, offering me a choice between radical prostatectomy and radical radiation + hormone therapy. I am aware of all of the likely and possible side effects of both treatments. I would love to hear
from someone my age and health level - I am extremely fit
- about
HU-man
in
Advanced Prostate Cancer
2 years ago
Good news to share!
After radical prostatectomy, chemo clinical trial, and radiation during 2001-2002, I watched my psa do its long slow climb. I began Lupron injections about five years ago. The number dropped to about 0.84, then began another long slow climb. After a PSMA PET scan revealed that there were "no distant
After radical prostatectomy, chemo clinical trial, and radiation during 2001-2002, I watched my psa do its long slow climb. I began Lupron injections about five years ago. The number dropped to about 0.84, then began another long slow climb. After a PSMA PET scan revealed that there were "no distant
Okay4now
in
Prostate Cancer Network
2 years ago
1
...
23
24
25
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
699 results
Thyroid UK
560 results
Pernicious Anaemia Society
183 results
View top 10 communities
Sort by
Most Relevant
Newest