Search
Search
About
Log in
Join
Experiences with
Qmiiz ODT
Posts
Communities
13,561 public posts
Filter results
concerns
I recently tried a batch of NDT from Vietnam. I have taken another brand for years but was hesitant to order the new batches after reading about all the problems. I have not used batches made after 2019 (my latest batch was mfg 06/19, exp 06/22). Also because my supplier of many years sells. [the
I recently tried a batch of NDT from Vietnam. I have taken another brand for years but was hesitant to order the new batches after reading about all the problems. I have not used batches made after 2019 (my latest batch was mfg 06/19, exp 06/22). Also because my supplier of many years sells. [the
Hidden
in
Thyroid UK
7 months ago
PCA Cure and when?
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
7 months into my fight against castration sensitive prostate cancer. PSA is 0 on ADT and Abiraterone and methylprednisolone. Averaged 8,600 steps/day. I have just started to add occasional sprinting. I am taking multiple supplements. I am greatful that my PSA is 0. I work everyday and pray for
Nowhereman9
in
Advanced Prostate Cancer
7 months ago
Confused about latest blood tests - why are FT4 and FT3 rising, but I still feel awful and I'm undiagnosed and not on any meds?
Sorry for the super long post.... I would very much appreciate the help of you wonderful people on this forum. I am a bit confused with my latest blood test results that I just received yesterday, and am hoping that you will be able to help me understand what's going on. I'll try to keep it brief, while
Sorry for the super long post.... I would very much appreciate the help of you wonderful people on this forum. I am a bit confused with my latest blood test results that I just received yesterday, and am hoping that you will be able to help me understand what's going on. I'll try to keep it brief, while
Overlooked
in
Thyroid UK
7 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
latest results & pericaridal effusion
currently on 75mcg of tirosint 6 days a week and 1 day 100mcg, also on NDT 1 1/4 grain. I do feel awful at the moment most days with extreme fatigue, hair loss, muscle weakness and spasms, pain. I have had terrible heart problems I already have PoTs but for the past year I have had pericardial
currently on 75mcg of tirosint 6 days a week and 1 day 100mcg, also on NDT 1 1/4 grain. I do feel awful at the moment most days with extreme fatigue, hair loss, muscle weakness and spasms, pain. I have had terrible heart problems I already have PoTs but for the past year I have had pericardial
Ajva
in
Thyroid UK
7 months ago
ADT & Mets
Quick question. Let's say that you have Mets and don't know it. You think the PCa is contained because our last Pet-scan 2 months earlier said so. Are we wasting time going onto ADT if that treatment is mainly for contained PCa? Or will the ADT put a lid on the Mets wherever they are in our body?
Quick question. Let's say that you have Mets and don't know it. You think the PCa is contained because our last Pet-scan 2 months earlier said so. Are we wasting time going onto ADT if that treatment is mainly for contained PCa? Or will the ADT put a lid on the Mets wherever they are in our body?
CJ1958
in
Advanced Prostate Cancer
7 months ago
Long term results of high dose radiation and long term ADT
https://www.targetedonc.com/view/high-dose-radiation-plus-long-term-adt-improves-survival-in-high-risk-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter Seems I've read very similar papers with very similar results dating back at least 5 years (and they were one of the deciding
https://www.targetedonc.com/view/high-dose-radiation-plus-long-term-adt-improves-survival-in-high-risk-prostate-cancer?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter Seems I've read very similar papers with very similar results dating back at least 5 years (and they were one of the deciding
Don_1213
in
Advanced Prostate Cancer
7 months ago
AlteraAI test
Has anyone tried the AlteraAI test that uses AI to analyze the tumor samples and can predict the risk of developing metastatic disease after radiation for localized tumor with or without ADT. It has just been approved by Medicare. https://www.youtube.com/watch?v=z6UOmj7z8Jw&t=10s&ab_channel=ProstateForumofOrangeCounty
Has anyone tried the AlteraAI test that uses AI to analyze the tumor samples and can predict the risk of developing metastatic disease after radiation for localized tumor with or without ADT. It has just been approved by Medicare. https://www.youtube.com/watch?v=z6UOmj7z8Jw&t=10s&ab_channel=ProstateForumofOrangeCounty
7OaksTom
in
Advanced Prostate Cancer
7 months ago
Am I over medicated?
My Free T4 always comes up low. I understand from this grp that this means I am over medicated. I do not feel over medicated, but am I doing myself long term damage? I currently take 45mgs of NDT & an extra 12.5mcgs of T3. (In one dose) each day. (& supplements) Thanks in advance.
My Free T4 always comes up low. I understand from this grp that this means I am over medicated. I do not feel over medicated, but am I doing myself long term damage? I currently take 45mgs of NDT & an extra 12.5mcgs of T3. (In one dose) each day. (& supplements) Thanks in advance.
EleanorM-G
in
Thyroid UK
7 months ago
PET Scan Results
Can anyone help me interpret my PET scan results from yesterday, and suggest possible courses of action? They seemed bad, but not disastrous. “Focal uptake in the right prostate bed (max SUV 5.3) as well as the right lesser trochanter (max SUV 4.5), not present on the prior study, suspicious for
Can anyone help me interpret my PET scan results from yesterday, and suggest possible courses of action? They seemed bad, but not disastrous. “Focal uptake in the right prostate bed (max SUV 5.3) as well as the right lesser trochanter (max SUV 4.5), not present on the prior study, suspicious for
Murph256
in
Advanced Prostate Cancer
7 months ago
Update on my journey of elimination
Hello everyone, I'm a 39 yrs old female. Some months ago I started my elimination process. I haven't been feeling well for the last 6.5 years, in and out of jobs and life in general. I was doing great on 3 gr of Armour for 2 years up until mid 2017 and then crashed. Trying to resolve the mystery of
Hello everyone, I'm a 39 yrs old female. Some months ago I started my elimination process. I haven't been feeling well for the last 6.5 years, in and out of jobs and life in general. I was doing great on 3 gr of Armour for 2 years up until mid 2017 and then crashed. Trying to resolve the mystery of
Incoguto
in
Thyroid UK
7 months ago
New data about ARASENS trial: it seems to work well after longer observation
Post-Hoc Analysis of ARASENS Reinforces Use of Darolutamide/ADT/Docetaxel Combo as SOC in mHSPC https://www.onclive.com/view/post-hoc-analysis-of-arasens-reinforces-use-of-darolutamide-adt-docetaxel-combo-as-soc-in-mhspc
Post-Hoc Analysis of ARASENS Reinforces Use of Darolutamide/ADT/Docetaxel Combo as SOC in mHSPC https://www.onclive.com/view/post-hoc-analysis-of-arasens-reinforces-use-of-darolutamide-adt-docetaxel-combo-as-soc-in-mhspc
Maxone73
in
Advanced Prostate Cancer
7 months ago
Who takes high T3/ T4/NDT dosages?
I take 200 T3 and still hypo. My doctor said i should increase to 260 T3. Who takes also a high dosage?
I take 200 T3 and still hypo. My doctor said i should increase to 260 T3. Who takes also a high dosage?
charley123
in
Thyroid UK
7 months ago
Great paper on long-term side effects of various treatments for PCa..
You may need to create a guest account to view this - but it's worth it: https://jamanetwork.com/journals/jama/fullarticle/2814131 It's a paper (2024) of a study of long term side effects, treatment effectiveness and mortality based on 4 different treatments (2 only for high-risk treatments.) The
You may need to create a guest account to view this - but it's worth it: https://jamanetwork.com/journals/jama/fullarticle/2814131 It's a paper (2024) of a study of long term side effects, treatment effectiveness and mortality based on 4 different treatments (2 only for high-risk treatments.) The
Don_1213
in
Advanced Prostate Cancer
7 months ago
What is my best treatment option?
Details in bio. Summary - Diagnosed June 2021 PSA 331, mets to spine Started Lupron and Abiraterone [u]Stopped treatment June 2023[/u] Since stopping treatment in June 2023, my [u]PSA has risen[/u] along with my testosterone.
PSA 11/2023 1.3
PSA 12/2023
Details in bio. Summary - Diagnosed June 2021 PSA 331, mets to spine Started Lupron and Abiraterone [u]Stopped treatment June 2023[/u] Since stopping treatment in June 2023, my [u]PSA has risen[/u] along with my testosterone.
PSA 11/2023 1.3
PSA 12/2023
davidw777
in
Advanced Prostate Cancer
7 months ago
Help, bad Decipher results, this changes everything, please advise (NE WI area but will travel)
Hi everyone~ I just wrote recently but this Decipher test seems to have up-ended our lives. My husband, 75, overweight w/Watchman, was dx'ed late Nov. w/what was originally classified as Favorable Risk Intermediate after random biopsy; we went to a urologic oncologist out of Froedtert in Milwaukee
Hi everyone~ I just wrote recently but this Decipher test seems to have up-ended our lives. My husband, 75, overweight w/Watchman, was dx'ed late Nov. w/what was originally classified as Favorable Risk Intermediate after random biopsy; we went to a urologic oncologist out of Froedtert in Milwaukee
AliceinW57
in
Prostate Cancer Network
7 months ago
Looking for a doctor / functional medicine
Hi everyone, I am on 4 grains NDT and 20 mcg T3 per day. My FT4 is just beneath normal range, FT3 upper third of range and suppressed TSH. My endo is supportive but says he has never seen anyone on so much thyroid replacement! I am wondering why I need so much (and have a few symptoms I would like
Hi everyone, I am on 4 grains NDT and 20 mcg T3 per day. My FT4 is just beneath normal range, FT3 upper third of range and suppressed TSH. My endo is supportive but says he has never seen anyone on so much thyroid replacement! I am wondering why I need so much (and have a few symptoms I would like
Pooh10
in
Thyroid UK
7 months ago
Protecting our Manhood
OK, I'm going to be open and honest and looking for the same from my fellow compatriots. From what I know, ADT, once it gets going, will physically affect our family jewels. Shrinkage is one of the things that is likely to happen. What is the best way to try and reduce these effects? I see that
OK, I'm going to be open and honest and looking for the same from my fellow compatriots. From what I know, ADT, once it gets going, will physically affect our family jewels. Shrinkage is one of the things that is likely to happen. What is the best way to try and reduce these effects? I see that
CJ1958
in
Prostate Cancer Network
7 months ago
Rising PSA
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
Going into 7 years. No prostate. ADT on and off. Recently while on Lupron & NUBEQA PSA continues to rise. Now at 10.1 and Testosterone nondectable. PSMA/PET/CT scan last weeks states no metastases present. We meet with Dr. Aggarwal next week. Last month at our visit he told us at this point “Scans
JolleySprings
in
Advanced Prostate Cancer
7 months ago
Just had hysterectomy due to prolapsed bladder and think it's come back due to severe constipation.
Completely fed up. Does this mean I have to have surgery again? I have also ran out of ndt again for about the fifth time due to it being so expensive and my tsh was really high about 6.5 when I had blood test for my pre op. It was also high the previous time as I had ran out then as well. I hate
Completely fed up. Does this mean I have to have surgery again? I have also ran out of ndt again for about the fifth time due to it being so expensive and my tsh was really high about 6.5 when I had blood test for my pre op. It was also high the previous time as I had ran out then as well. I hate
bobbyb
in
Thyroid UK
7 months ago
Dental Issues on Finesteride
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
Five weeks after starting on finesteride 5 mg I developed painfully sensitive teeth both top and bottom on left side of my mouth. Here's what a google search turned up: https://forum.propeciahelp.com/t/propecia-and-dental-problems/1254 https://www.ehealthme.com/ds/finasteride/toothaches/ I became
fast_eddie
in
Fight Prostate Cancer
7 months ago
1
...
37
38
39
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
7952 results
Advanced Prostate Cancer
4081 results
Prostate Cancer Network
444 results
View top 10 communities
Sort by
Most Relevant
Newest