Experiences with

Prostate disease

My wonderful husband passed away yesterday after fighting the beast for 15 years. Gleason 8 all but one core positive. He was so strong tried so hard, 2 clinical trials radiation, Zytiga, Xofigo, lupron for the entire time. Finally at age 65 his body could take no more, he lost over 40 pounds, no energy

Hi folks, So I have just had my cholesterol test done by my GP with the following results. HDL - 1.5 LDL - 6.8 TRIGLYCERIDES - 1.7 Total 8.3 risk factor 26% They want to start me on Statins asap. I am keen to avoid drugs and believe that some of the increased numbers above could actually be good

I have never posted anything here. you all seem to have the lingo down and are using acronyms like a boss. never the less, here I am. I will be 67 this year and have had afib for over 10 years. I have been on all the medications for rhythm and rate. I have had 3 cryo ablations. The last one in Dec

ok, I am exposing myself to j-o-h-n in more than one way with that title... This is for regional leagues (locally advanced PCa), while we are the NFL of prostate cancer here, but the fact that a cold cancer was turned hot is very promising as it has always been the main limit of immuno therapies applied

Hi , I have persistent AF, mitral value regurgitation and cardiomyopathy and for some months have been suffered with constant sweats. My medication is Nebivolol, Dejoxin, Edoxaban, Rosuvastatin and water tablets. Having had all manner of test no explanation can be offered for this. Has anyone else experienced

My aim is to reduce my AFib frequency which is currently about 3 episodes per month. In August I had episodes on the 3rd, the 14th and the 26th. The duration was respectively 18, 16 and 18 hours. The intensity of the palpitations was mild for the first few hours and for the last few hours I was unaware

Hello and happy New year distinguished gentlemen. I was wondering if I may please get your input on my latest PSA which bounced from 1.2 to 1.6. Why did this happen and is this something I should be concerned about? Thanks so much. Regards.

We have a range of information and resources available to make it easier to find out more about arrhythmias, atrial fibrillation, and Syncope. Please download our information booklet ‘Patient Resources Directory’ UK: https://api.heartrhythmalliance.org/files/download/b83f1aa4dbb8c275af20a5cd76fb14f2

I take 5 mg of Bisoporol and 5 mg of Apixaban in the morning and 2.5 mg bisoporol and 5 mg Apixaban 9pm then when I go to bed 2.5 mg Ramipril and 40mg of atorvastatin. Is anyone else on this regime?

Focal ablation laser can be successful,for early stage PCa. 10-21 . GLEASON 3-4 , 5% PSA , 4.7. After treatment. No major erection issues long term, no need for tadalafil. PSA steadily declined. Recent MRI clear 3-24. and my ejaculate ducts were saved as well. PSA 0.4. So so far so good. Get an 2nd

A few months ago I finally got a portable Inogen Oxygen unit and kept finding the tubing kinked where it comes out of the unit (impeding oxygen flow.) I finally found this little doodad on Amazon which clips to the tubing and shapes it into a curve, preventing it from kinking. I don’t know if I can post

After ADT, my MO told me that handling things like Prolia management won't be in her bailiwick. I didn't ask about post-ADT SE's and recovery from same. Hot flashes, low T, BMD loss, and last not least sarcopenia. What is the community's experience with how post-treatment SE's are best handled? Are

This great podcast, "You are not broken," is by a female urologist, Dr. Kelly Casperson. She often explores misconceptions about hormones. This episode with Dr. Morgentaler takes a fascinating look at the theories about castration and prostate cancer. Spoiler alert: it may shake your confidence in the

I use both for checking my heart rate and checking for Afib, and my cardio consultant endorsed the Kardio monitor. He was though rather sceptical about Fitbit watch saying it was very limited. I wondered what experiences others had about these devices. I also had a question about heart rate versus

Hi My partner has cirrhosis and a spot on the liver which is monitored every 6 months. Following an ultrasound, more spots have now been identified and is going for an MRI and blood tests soon. I am very worried and was wondering if anyone has had a similar situation and does this always result in a

PET scan 8/21 following PSA 54.5 showed numerous bone lesions. Zytiga, prednisone, Eligard knocked PSA to <.064 until 1/23 PET showed new small lesion in left hip. Radiation 35 Gray 5/5 completed 3/15/23 with PSA drop then bounce from 0.24 to 5.9 triggered another PET on 9/6/23 which showed a new metastasis

I do now feel like a fraud being here 😔 and my apologies to anybody here who feels I’ve created a storm in a teacup for myself and that I should clear the cyber waves for genuine issues. But in fairness to myself my GPs have been expressing serious concerns to me, I feel suggesting that I’m bound to

It is early in the morning and I felt that I needed to tell somebody this info. It needs to be people that can really understand….. that’s where the people in this community come in, since you understand what we go through! Six years ago today I was diagnosed with stage 4, 4 plus 3 w over 25 metastases

hi I had a afib attack 3 weeks ago and was admitted for cardio version. 2 days after I felt worse, heart rate was normal but experienced numbness on left side, dizzy and nausea. Was admitted to the icu for surveillance as they thought I had a stroke. Luckily it wasn’t but the neurologist said sometimes

I have a question for tamoxifen users. Not a big deal but I am curious. I am 76 and have been on tamoxifen for a year and a half. I have gray hair - quite long. The hair is thinning but my curiosity is about my hair darkening. It is turning a dark brunette. Just seems kind of weird. Anyone else had that