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Experiences with
Primary ciliary dyskinesia (PCD)
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Sinamet amantadine comtan
I’m 61. Diagnosed 8 years ago. I take two 25/100 sinamet, one comtan and one amantadine around 8:00 am. About 4 hours latepr I take another two 25/100 sinamet with one amantadine then another two 25/100 about 3 1/2 to 4 hours later my last 25/100 sinamet. I am having a hard time getting dressed before
I’m 61. Diagnosed 8 years ago. I take two 25/100 sinamet, one comtan and one amantadine around 8:00 am. About 4 hours latepr I take another two 25/100 sinamet with one amantadine then another two 25/100 about 3 1/2 to 4 hours later my last 25/100 sinamet. I am having a hard time getting dressed before
Blake0488
in
Cure Parkinson's
2 years ago
Rytary in Canada?
I went to see my neurologist today to discuss the possibility of switching from sinemet to Rytary, as well as from Amentadine to Gocovri. Sadly I’ve been told that neither Rytary nor Gocovri are available in Canada, since they have not been approved by Health Canada. I was really shocked when I heard
I went to see my neurologist today to discuss the possibility of switching from sinemet to Rytary, as well as from Amentadine to Gocovri. Sadly I’ve been told that neither Rytary nor Gocovri are available in Canada, since they have not been approved by Health Canada. I was really shocked when I heard
LauraYu
in
Cure Parkinson's
2 years ago
pressery ring
afternoon ladys , on the 22nd july i felt like i had auti infection as i had the systoms i normaly have when i get one ache down below ,head hurting off meals so i had it tested and i had got one. i was given three day course of ciprofloxacin 500mg twice aday . i felt ok untill the 5th of augest and
afternoon ladys , on the 22nd july i felt like i had auti infection as i had the systoms i normaly have when i get one ache down below ,head hurting off meals so i had it tested and i had got one. i was given three day course of ciprofloxacin 500mg twice aday . i felt ok untill the 5th of augest and
Mrshappyme
in
Pelvic Pain Support Network
2 years ago
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Lactobacillus and Levodopa
Has anyone seen the uTube video re the Gastro Intestinal doctor who advised against taking probiotics because of the adverse action of lactobacillus on Levodopa? I saw it recently and can't find it now - I am interested in reading further about the lactobacillus impact on Levodopa. I would appreciate
Has anyone seen the uTube video re the Gastro Intestinal doctor who advised against taking probiotics because of the adverse action of lactobacillus on Levodopa? I saw it recently and can't find it now - I am interested in reading further about the lactobacillus impact on Levodopa. I would appreciate
Puddi
in
Cure Parkinson's
2 years ago
Is the "tetrahydrofurfury disulfide in (TTFD)" a B1 with a "DMSO" attached?
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** I am not into chemistry. Asked another way: Did Japanese Researchers in 1951 attach a DSMO to a B1 to make it more absorbable to cure B
eriberi or were they trying to
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** I am not into chemistry. Asked another way: Did Japanese Researchers in 1951 attach a DSMO to a B1 to make it more absorbable to cure B
eriberi or were they trying to
Gcf51
in
Cure Parkinson's
2 years ago
cystitis with hypothyroidism
is it normal to have reoccurring cystitis with hypothyroidism? I have this now and again and only lasts a few hours to a couple of days but I’m wondering if it’s something I should be worried about or whether it’s linked to my thyroid or even medication? My thyroid has jumped to 6.4 so I have been
is it normal to have reoccurring cystitis with hypothyroidism? I have this now and again and only lasts a few hours to a couple of days but I’m wondering if it’s something I should be worried about or whether it’s linked to my thyroid or even medication? My thyroid has jumped to 6.4 so I have been
Emmajane1994
in
Thyroid UK
2 years ago
Dyskinesia after short term use of Levo-Dopa?
I was diagnosed with PD 2 and a half years ago and since May 2021 have been taking (l-Dopa) sinemet plus 125mg tds (0800, 1300, 1800). Since Jan/Feb this year I have been experiencing involuntary pursing of my lips, sucking and chewing movements in my cheeks and my tongue pressing against my lower
I was diagnosed with PD 2 and a half years ago and since May 2021 have been taking (l-Dopa) sinemet plus 125mg tds (0800, 1300, 1800). Since Jan/Feb this year I have been experiencing involuntary pursing of my lips, sucking and chewing movements in my cheeks and my tongue pressing against my lower
Tomkins
in
Cure Parkinson's
2 years ago
Brain Gamma Oscillations: A Novel Target in Schizophrenia?
"AUT00206, a novel compound that targets potassium channels in brain interneurons, not only improves gamma oscillations in patients with schizophrenia, it also improves their symptoms, new randomized trial data suggest. In a randomized, double-blind study that included two dozen men with schizophrenia
"AUT00206, a novel compound that targets potassium channels in brain interneurons, not only improves gamma oscillations in patients with schizophrenia, it also improves their symptoms, new randomized trial data suggest. In a randomized, double-blind study that included two dozen men with schizophrenia
Bolt_Upright
in
Cure Parkinson's
2 years ago
AUSTEDO; Finally, a pharmaceutical that causes Parkinson's!! A drug for tardive-dyskinesia, dyskinesia caused by other drugs.
"Other possible serious side effects include:" "Parkinsonism. Symptoms include: slight shaking, body stiffness, trouble moving, trouble keeping your balance, or falls." "AUSTEDO; for HUNTINGTON DISEASE Chorea in Adults "Do not take AUSTEDO if you: have Huntington’s disease..." https://www.austedo.com
"Other possible serious side effects include:" "Parkinsonism. Symptoms include: slight shaking, body stiffness, trouble moving, trouble keeping your balance, or falls." "AUSTEDO; for HUNTINGTON DISEASE Chorea in Adults "Do not take AUSTEDO if you: have Huntington’s disease..." https://www.austedo.com
MBAnderson
in
Cure Parkinson's
2 years ago
Promoting Sirtuins is the target, NAD+ is the fuel
Known as the “guardians of genomes,” sirtuins are genes that protect organisms, from plants to mammals, against deterioration and diseases. When the genes sense the body is under physical stress, such as exercising or hunger, it sends out troops to defend the body. Sirtuins sustain genome integrity,
Known as the “guardians of genomes,” sirtuins are genes that protect organisms, from plants to mammals, against deterioration and diseases. When the genes sense the body is under physical stress, such as exercising or hunger, it sends out troops to defend the body. Sirtuins sustain genome integrity,
Gcf51
in
Cure Parkinson's
2 years ago
Primary Ciliary Dyskinesia PCD
I was born with PCD, causes bronchiectasis, sinusitis, and all my organs are transposed! Everyone has cilia, little hair like linings of lungs etc. As poems are the current fashion, here’s mine about PCD Cilia, little hairs, you’re so important Cilia, why don’t you wave There’s lot of lives you could
I was born with PCD, causes bronchiectasis, sinusitis, and all my organs are transposed! Everyone has cilia, little hair like linings of lungs etc. As poems are the current fashion, here’s mine about PCD Cilia, little hairs, you’re so important Cilia, why don’t you wave There’s lot of lives you could
Morrison10
in
Lung Conditions Community Forum
3 years ago
Is Viagra neuroprotective
A 2021 study suggests that sildenafil (Viagra, Revatio), which is used to treat erectile dysfunction and pulmonary arterial hypertension, might also protect against Alzheimers disease: https://www.health.harvard.edu/mens-health/erectile-dysfunction-drug-may-lower-alzheimers-risk?utm_content=buffer7ef07&
A 2021 study suggests that sildenafil (Viagra, Revatio), which is used to treat erectile dysfunction and pulmonary arterial hypertension, might also protect against Alzheimers disease: https://www.health.harvard.edu/mens-health/erectile-dysfunction-drug-may-lower-alzheimers-risk?utm_content=buffer7ef07&
Farooqji
in
Cure Parkinson's
2 years ago
Any advice about weaning off of levodopa and starting amantadine.
I have developed dyskinesia and doctors tried reducing levodopa thinking I was getting too much but dyskinesia persisted.
I have developed dyskinesia and doctors tried reducing levodopa thinking I was getting too much but dyskinesia persisted.
Hidden
in
Cure Parkinson's
2 years ago
Does Ongentys work in the body or the gut?
Never mind - Says to take on empty stomach (no eating 1 hour before or after). So in my case would make no difference. So, maybe the question is does Ongentys work only because of (no eating 1 hour before or after).
Never mind - Says to take on empty stomach (no eating 1 hour before or after). So in my case would make no difference. So, maybe the question is does Ongentys work only because of (no eating 1 hour before or after).
Gcf51
in
Cure Parkinson's
2 years ago
How I went from 13 to 4 a day (Carbidopa 25/Levodopa 100)?
How I went from 13 to 4 a day (Carbidopa 25/Levodopa 100)? I started taking my L-dopa on an empty stomach (no eating 30 minutes before or 1 hour after). My prescription was written for 1-1/2 tablets 6 times a day (9 a day). With my Movement Disorder Specialist’s knowledge, I was taking 1 tablet every
How I went from 13 to 4 a day (Carbidopa 25/Levodopa 100)? I started taking my L-dopa on an empty stomach (no eating 30 minutes before or 1 hour after). My prescription was written for 1-1/2 tablets 6 times a day (9 a day). With my Movement Disorder Specialist’s knowledge, I was taking 1 tablet every
Gcf51
in
Cure Parkinson's
2 years ago
What do you think of Low-Dose Lithium?
1) How long have you taken? [Since 1/6/22 (18 days)] 2) What improvements have you noticed? [Positive effect on Mood, Less Anxiety, more Social.] 3) What improvements in PD have you noticed? [I feel very positive, but too early to tell for sure. I have cut back on on l-dopa (5 to 4 a day).] 4) What
1) How long have you taken? [Since 1/6/22 (18 days)] 2) What improvements have you noticed? [Positive effect on Mood, Less Anxiety, more Social.] 3) What improvements in PD have you noticed? [I feel very positive, but too early to tell for sure. I have cut back on on l-dopa (5 to 4 a day).] 4) What
Gcf51
in
Cure Parkinson's
2 years ago
DRUG REPURPOSING - DOES IT WORK? by Dr. Simon Stott
"The answer to the question in the title of this post is “Yes, drug repurposing does work” and in this short blog we shall discuss examples of its utility in Parkinson’s. But first it would be wise to explain the drug development process and why drug repurposing is an exciting area of research that is
"The answer to the question in the title of this post is “Yes, drug repurposing does work” and in this short blog we shall discuss examples of its utility in Parkinson’s. But first it would be wise to explain the drug development process and why drug repurposing is an exciting area of research that is
Hidden
in
Cure Parkinson's
2 years ago
HOW CAN I REDUCE MY DYSKINESIA?
I am desperate for suggestions on reducing dyskinesia. I have had gate and balance dominant PD for 11 years now and have always struggled with dyskinesia. Recently I had a fractured femur and am attempting to resume walking with the the help of a walker. However, the dyskinesia is so strong I cannot
I am desperate for suggestions on reducing dyskinesia. I have had gate and balance dominant PD for 11 years now and have always struggled with dyskinesia. Recently I had a fractured femur and am attempting to resume walking with the the help of a walker. However, the dyskinesia is so strong I cannot
Joanne_Joyce
in
Cure Parkinson's
2 years ago
How I went from 13 to 4 a day (Carbidopa 25/Levodopa 100)?
I started taking my L-dopa on an empty stomach (no eating 30 minutes before or 1 hour after). My prescription was written for 1-1/2 tablets 6 times a day (9 a day). With my Movement Disorder Specialist’s knowledge, I was taking 1 tablet every 50 minutes using keeping my neck pain to a medium as a gauge
I started taking my L-dopa on an empty stomach (no eating 30 minutes before or 1 hour after). My prescription was written for 1-1/2 tablets 6 times a day (9 a day). With my Movement Disorder Specialist’s knowledge, I was taking 1 tablet every 50 minutes using keeping my neck pain to a medium as a gauge
Gcf51
in
Cure Parkinson's
3 years ago
Hypothyroidism is prevalent among adult women with chronic lower urinary tract symptoms (LUTS)
A very recent paper with a potentially important indicator of hypothyroidism. My conclusion is that chronic LUTS should automatically be given a full thyroid panel (unless already diagnosed hypothyroid). One third is a very large proportion. Also, need to consider the current treatment of those who
A very recent paper with a potentially important indicator of hypothyroidism. My conclusion is that chronic LUTS should automatically be given a full thyroid panel (unless already diagnosed hypothyroid). One third is a very large proportion. Also, need to consider the current treatment of those who
helvella
Thyroid UK
in
Thyroid UK
2 years ago
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