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Primary ciliary dyskinesia (PCD)
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Low-Dose Niacin Supplementation Improves Motor Function in US Veterans with Parkinson’s Disease: A Single-Center, Randomized, Placebo-Contro
A single-center, randomized, placebo-controlled study finds that low-dose niacin supplementation improves motor function in US Veterans with #Parkinsons; N=47, 6 months double blind followed by 6 months open label; Treatment well tolerated. "Niacin is, therefore, a promising choice as an adjunct therapy
A single-center, randomized, placebo-controlled study finds that low-dose niacin supplementation improves motor function in US Veterans with #Parkinsons; N=47, 6 months double blind followed by 6 months open label; Treatment well tolerated. "Niacin is, therefore, a promising choice as an adjunct therapy
Hidden
in
Cure Parkinson's
3 years ago
Oral Molecule PD13R Safely Eases Dyskinesia Tied to Levodopa in Primate Model
A newly discovered oral molecule, called PD13R, significantly lessened levodopa-induced dyskinesia, its involuntary and jerky movements, while maintaining the therapy’s benefits in a non-human primate model of Parkinson’s disease. Notably, in contrast to Gocovri (amantadine) — an approved therapy to
A newly discovered oral molecule, called PD13R, significantly lessened levodopa-induced dyskinesia, its involuntary and jerky movements, while maintaining the therapy’s benefits in a non-human primate model of Parkinson’s disease. Notably, in contrast to Gocovri (amantadine) — an approved therapy to
Hidden
in
Cure Parkinson's
3 years ago
Niacin Cures Systemic NAD+ Deficiency and Improves Muscle Performance in Adult-Onset Mitochondrial Myopathy 2021
So I take Niacin 250 mg time released per the Augusta study to reduce inflammation through binding to the GPR109A https://www.researchgate.net/publication/352486597_Niacin_Enhancement_for_Parkinson's_Disease_An_Effectiveness_Trial. NAD+ is disrupted in PD patients "Progresses in both basic research and
So I take Niacin 250 mg time released per the Augusta study to reduce inflammation through binding to the GPR109A https://www.researchgate.net/publication/352486597_Niacin_Enhancement_for_Parkinson's_Disease_An_Effectiveness_Trial. NAD+ is disrupted in PD patients "Progresses in both basic research and
Bolt_Upright
in
Cure Parkinson's
3 years ago
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Help to support PSP sufferer
I'm new here, first post. Really want to help counsel someone with PSP. Any tips from anyone would be so useful. Has anyone had counselling and what helped most in terms of helping with the emotional trauma of living with the condition and the way to deal with the prognosis. So far I think I have
I'm new here, first post. Really want to help counsel someone with PSP. Any tips from anyone would be so useful. Has anyone had counselling and what helped most in terms of helping with the emotional trauma of living with the condition and the way to deal with the prognosis. So far I think I have
JazzyOne2One
in
PSP Association
3 years ago
Mucuna dosage question
I am into my sixth year of PD. Up until now, I have avoided taking any PD drugs, relying entirely on supplements, in particular high dose B1. About 10 days ago, I started taking mucuna. I have been taking capsules from piping rock, one in the morning and one in the evening. Not feeling any particular
I am into my sixth year of PD. Up until now, I have avoided taking any PD drugs, relying entirely on supplements, in particular high dose B1. About 10 days ago, I started taking mucuna. I have been taking capsules from piping rock, one in the morning and one in the evening. Not feeling any particular
Vt11
in
Cure Parkinson's
3 years ago
Is Interstitial Cystitis linked to Autoimmune thyroid disease?
I saw a urologist 3 weeks ago as I have been suffering with occasional bladder issues- pain, bloating, urgency, slight leaking & strong smelling urine since symptoms related to my thyroid. I also get a upset stomach when it happens and occasionally a temperature. It flares up for a week or so and then
I saw a urologist 3 weeks ago as I have been suffering with occasional bladder issues- pain, bloating, urgency, slight leaking & strong smelling urine since symptoms related to my thyroid. I also get a upset stomach when it happens and occasionally a temperature. It flares up for a week or so and then
sunshineisbetter
in
Thyroid UK
3 years ago
Dyskinesia Question
I was officially diagnosed with PD at 44yrs old and have been taking 1 x tablets of Sinemet Plus 25mg/100mg three times daily at 12pm, 3pm and 6pm for the past year since diagnosis. I have gait issues including dropfoot which disappeared with the meds however over the past couple of months I've started
I was officially diagnosed with PD at 44yrs old and have been taking 1 x tablets of Sinemet Plus 25mg/100mg three times daily at 12pm, 3pm and 6pm for the past year since diagnosis. I have gait issues including dropfoot which disappeared with the meds however over the past couple of months I've started
Wilso77
in
Cure Parkinson's
3 years ago
False Labeling of Supplements
I suggested to my neurologist that instead of taking Gabapentin and Quetiapine for anxiety, that I try various supplements (such as Ashwagandha, Chamomile Extract, Hops, Lavender, Rhodiola, etc.) instead, since there may be short- and long-term side effects from taking the two drugs. She said
I suggested to my neurologist that instead of taking Gabapentin and Quetiapine for anxiety, that I try various supplements (such as Ashwagandha, Chamomile Extract, Hops, Lavender, Rhodiola, etc.) instead, since there may be short- and long-term side effects from taking the two drugs. She said
Alock2020
in
Cure Parkinson's
3 years ago
MRigFUS in Switzerland - 9 months update
If i wrote this post 3 days ago, i probably wouldn’t be so positive about it, it was an hard day, with difficult controlling tremor most of the day. But it was a bad day among very good days. Today was a virtually no tremor day. I got used to this roller coaster now, but i had a quite pleasant but also
If i wrote this post 3 days ago, i probably wouldn’t be so positive about it, it was an hard day, with difficult controlling tremor most of the day. But it was a bad day among very good days. Today was a virtually no tremor day. I got used to this roller coaster now, but i had a quite pleasant but also
Markbit
in
Cure Parkinson's
3 years ago
Swaying but not moving
I am hoping someone can help explain this to me. I’m only two years in for my diagnosis and currently take ropinirole and rasagline and occasionally a very small dose of CL. My body internally feels like it is continually swaying back-and-forth. However my husband stated that my body is not moving at
I am hoping someone can help explain this to me. I’m only two years in for my diagnosis and currently take ropinirole and rasagline and occasionally a very small dose of CL. My body internally feels like it is continually swaying back-and-forth. However my husband stated that my body is not moving at
Ley0
in
Cure Parkinson's
3 years ago
Ketamine
Has anyone tried Ketamine for PD dyskinesia or depression associated with PD? There is a clinical trial opening in my area and I am trying to decide whether or not to participate. My dyskinesia is mild. Thanks!
Has anyone tried Ketamine for PD dyskinesia or depression associated with PD? There is a clinical trial opening in my area and I am trying to decide whether or not to participate. My dyskinesia is mild. Thanks!
Canddy
in
Cure Parkinson's
3 years ago
Update on hubby
Just an update on how hubby is doing. He is feeling better than he has been for years! Something seems to have had a positive effect and he is positively energetic and laughing and talking and back to helping with housework, and joining in with the family. He has even got into our spa pool with me that
Just an update on how hubby is doing. He is feeling better than he has been for years! Something seems to have had a positive effect and he is positively energetic and laughing and talking and back to helping with housework, and joining in with the family. He has even got into our spa pool with me that
LAJ12345
in
Cure Parkinson's
3 years ago
Primary ciliary dyskinesia
Hey, Anyone has
Primary
ciliary
dyskinesia
! any advice with style life.
Hey, Anyone has
Primary
ciliary
dyskinesia
! any advice with style life.
Moekhalid
in
Lung Conditions Community Forum
3 years ago
New extended release Levodopa formulation
Amneal Announces Positive Topline Results from Pivotal Phase 3 RISE-PD Clinical Trial of IPX-203 in Patients with Parkinson’s Disease Who Experience Motor Fluctuations. IPX-203 (CD/LD extended-release capsules) In individuals who experience motor fluctuations; have 0.53 more hours of “Good On” time.
Amneal Announces Positive Topline Results from Pivotal Phase 3 RISE-PD Clinical Trial of IPX-203 in Patients with Parkinson’s Disease Who Experience Motor Fluctuations. IPX-203 (CD/LD extended-release capsules) In individuals who experience motor fluctuations; have 0.53 more hours of “Good On” time.
Buckholt
in
Cure Parkinson's
3 years ago
AMANTADINE FOR DYSKINESIA. HAVE YOU AN EXPERIENCE WITH THIS DRUG? PLEASE HELP.
Hi, I might consider this drug for Dyskinesia, if it gets too severe. My MDS is a little reluctant to prescribe it, because he says it may cause insomnia. Nevertheless, is this drug working for your dyskinesia? How long before it started working for you? My doctor said it could take 4 to 8 weeks.
Hi, I might consider this drug for Dyskinesia, if it gets too severe. My MDS is a little reluctant to prescribe it, because he says it may cause insomnia. Nevertheless, is this drug working for your dyskinesia? How long before it started working for you? My doctor said it could take 4 to 8 weeks.
OREOLU
in
Cure Parkinson's
3 years ago
More Bee Stuff: Synergistic action of propolis with levodopa in the management of Parkinsonism in Drosophila melanogaster - 2020
http://idr.kab.ac.ug/bitstream/handle/20.500.12493/439/synergistic-action-of-propolis-with-levodopa-in-the-management-of-parkinsonism-indrosophila-.pdf?sequence=1&isAllowed=y The study showed that the administration of ethanolic extract of propolis (500 mg/mL) with levodopa (250 mg/kg) not only significantly
http://idr.kab.ac.ug/bitstream/handle/20.500.12493/439/synergistic-action-of-propolis-with-levodopa-in-the-management-of-parkinsonism-indrosophila-.pdf?sequence=1&isAllowed=y The study showed that the administration of ethanolic extract of propolis (500 mg/mL) with levodopa (250 mg/kg) not only significantly
Bolt_Upright
in
Cure Parkinson's
3 years ago
Is anyone else taking rhodiola rosea?
Hubby has been taking rhodiola now for a month, 1 per day for 2 weeks then 2 per day. He is doing very well this winter considering usually winter is when he falls to pieces. He is better than he has been for 5 winters! He is laughing, proactively doing things, and is interested in things. The rhodiola
Hubby has been taking rhodiola now for a month, 1 per day for 2 weeks then 2 per day. He is doing very well this winter considering usually winter is when he falls to pieces. He is better than he has been for 5 winters! He is laughing, proactively doing things, and is interested in things. The rhodiola
LAJ12345
in
Cure Parkinson's
3 years ago
Eyes closing after medication
Hi, it is 18 months since my wife's first visit to a neurologist, initially they suspected Parkinson's or Parkinson's plus; PSP was mentioned quite early on and now her diagnosis is suspected PSP. Her main symptoms are eyes closing involuntarily (eyelid opening apraxia) and very quite speech (profound
Hi, it is 18 months since my wife's first visit to a neurologist, initially they suspected Parkinson's or Parkinson's plus; PSP was mentioned quite early on and now her diagnosis is suspected PSP. Her main symptoms are eyes closing involuntarily (eyelid opening apraxia) and very quite speech (profound
Zerachiel
in
PSP Association
3 years ago
ARE YOU A NON TREMOR DOMINANT PD PATIENT WITH DYSKINESIA? IF SO, PLEASE HELP.
Hi, your suggestions would help a lot. I am beginning to have dyskinesia more frequently. Mostly worse at night. I take Rytary 3pills 145mg, (8am,12noon,4pm and 8pm). My MDS thinks it is motor fluctuations, caused by uneven plasma level of Levodopa. He suggested that I should add two more pills,
Hi, your suggestions would help a lot. I am beginning to have dyskinesia more frequently. Mostly worse at night. I take Rytary 3pills 145mg, (8am,12noon,4pm and 8pm). My MDS thinks it is motor fluctuations, caused by uneven plasma level of Levodopa. He suggested that I should add two more pills,
OREOLU
in
Cure Parkinson's
3 years ago
Sinemet v carbo levodopa g
Sinemet is the Origina make/brand for levodopa and I have always had this made by Merrick Sharp Dohme Recently in found to my cost that it longer under special licence and it can be made by anyone now, but I was unaware that they would have such a different effect on me. They don’t work well at
Sinemet is the Origina make/brand for levodopa and I have always had this made by Merrick Sharp Dohme Recently in found to my cost that it longer under special licence and it can be made by anyone now, but I was unaware that they would have such a different effect on me. They don’t work well at
Connie18
in
Cure Parkinson's
3 years ago
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