cystitis with hypothyroidism : is it normal to... - Thyroid UK

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cystitis with hypothyroidism

Emmajane1994 profile image
5 Replies

is it normal to have reoccurring cystitis with hypothyroidism?

I have this now and again and only lasts a few hours to a couple of days but I’m wondering if it’s something I should be worried about or whether it’s linked to my thyroid or even medication?

My thyroid has jumped to 6.4 so I have been given extra meds so now on 125mg can it be a symptom?

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Emmajane1994
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SlowDragon profile image
SlowDragonAdministrator

Yes increasing frequently of UTIs is a common hypothyroid symptom

Your CKD result in previous post shows kidney function was impaired

academic.oup.com/jcem/artic...

Being hypothyroid affects kidney function and will improve when thyroid levels are optimal

Which brand of levothyroxine is the 25mcg tablet

Can see in previous post you were on Teva 100mcg tablets

Are you still taking Teva brand

healthunlocked.com/thyroidu...

ESSENTIAL to improve low vitamin levels as detailed by @SeasideSusie

Ferritin, folate, vitamin D were all far too low

What vitamin supplements are you currently taking?

Have you had coeliac blood test done yet

If not request GP do so

Only 5% of Hashimoto’s patients are diagnosed as coeliac, but a further 80% find strictly gluten free diet helps or is essential to make improvements

Thyroid levels will need retesting in 6-8 weeks after increasing dose levothyroxine

ALWAYS Test thyroid levels early morning, ideally before 9am and last dose levothyroxine 24 hours before test

On levothyroxine TSH should always be below 2

Most people when adequately treated will have TSH around or below one

Most important results are always Ft3 - at least 50-60% through range and Ft4 nearer 60-70% through range minimum

Emmajane1994 profile image
Emmajane1994 in reply to SlowDragon

I did not know about the kidney function as no one has ever mentioned it to me.

I am still on Teva, I did get given accord for a month and then back to Teva but that’s when my levels seemed to have gone down as I’ve always been on Teva.

I’m not on many supplements just vitamin D and a berroca but the doctor hasn’t given me anything.

Also the doctor said and I quote “the less you check your thyroid the better it is” I have no words tbh 🙈 he wants me to wait till at least January to get it checked again.

I had a coecilac test years ago and all was fine but I haven’t had one since.

SlowDragon profile image
SlowDragonAdministrator in reply to Emmajane1994

Bloods should be retested 6-8 weeks after increasing levothyroxine to 125mcg every day

And retested 6-8 weeks after change of brand of levothyroxine

Suggest you get FULL Thyroid and vitamin testing done yourself in 8 weeks

Only do private testing early Monday or Tuesday morning, not in a heatwave

Test early morning, ideally before 9am and last dose levothyroxine 24 hours before test

Recommend getting a good quality vitamin B complex

one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

chriskresser.com/folate-vs-...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate methyl folate supplement and separate B12

Low B12 symptoms

b12deficiency.info/signs-an...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a B12 supplement as well as a B Complex (to balance all the B vitamins) initially for first 2-4 months.

once your serum B12 is over 500 (or Active B12 level has reached 70), stop the B12 and just carry on with the B Complex.

B12 sublingual lozenges

amazon.co.uk/Jarrow-Methylc...

cytoplan.co.uk/shop-by-prod...

healthunlocked.com/thyroidu...

How other member saw how effective improving low B vitamins has been

healthunlocked.com/thyroidu...

arTistapple profile image
arTistapple

I have recently been reviewing my records from my practice. I am amazed at the number of incidents of cystitis/urine infections. I did discuss this with a doctor at the time because I am always on the cusp of Type 2 diabetes and I knew about the connection with that illness. I have only just realised the connection. It’s in information all over the place. Another is huge babies! Again at the time I was checked for diabetes. Even then I knew there was something not right but as I had previously been told in no uncertain terms that I could not possibly be hypothyroid “It’s extremely rare”. I believed.

SlowDragon profile image
SlowDragonAdministrator

Always worth trying strictly gluten free diet

Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

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