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Experiences with
Primary ciliary dyskinesia (PCD)
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shuffling feet
I have been shuffling my feet lately when I am walking, however otherwise I am doing fine. I have had PD since 2005. I take 3 tablets of carbo / levodopa, 25 - 100mg, 3 - 4 times a day, I never take C/L after 5pm and I take Amantadine., 3pm, 5pm &7pm which controls the dyskinesia. I get plenty of exercise
I have been shuffling my feet lately when I am walking, however otherwise I am doing fine. I have had PD since 2005. I take 3 tablets of carbo / levodopa, 25 - 100mg, 3 - 4 times a day, I never take C/L after 5pm and I take Amantadine., 3pm, 5pm &7pm which controls the dyskinesia. I get plenty of exercise
NewHope1961
in
Cure Parkinson's
2 years ago
Persistent leukocytes in urine without real UTI infection or problems normal or not?
Asking on behalf of my wife. She never had UTIs before married life, before we started having vaginal penetrative sex. She has since gotten 2 UTIs, this last one while seemingly over (symtoms wise), with the test strips she is still testing faintly/partially positive for leukocytes. She went to doctor
Asking on behalf of my wife. She never had UTIs before married life, before we started having vaginal penetrative sex. She has since gotten 2 UTIs, this last one while seemingly over (symtoms wise), with the test strips she is still testing faintly/partially positive for leukocytes. She went to doctor
sinombre
in
Women's Health
1 year ago
Neck pain caused by dyskinesia.....
About 6 months ago, my dyskinesia started getting worse, and I noticed I was starting to get a lot of neck pain. I went to a neuro PT who said she thought my neck pain and stiffness were being driven by my dyskinesia and that I needed to reduce the dyskinesia before we could improve my neck. So I tried
About 6 months ago, my dyskinesia started getting worse, and I noticed I was starting to get a lot of neck pain. I went to a neuro PT who said she thought my neck pain and stiffness were being driven by my dyskinesia and that I needed to reduce the dyskinesia before we could improve my neck. So I tried
craigwharris
in
Cure Parkinson's
2 years ago
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Anyone taking GOCOVRI?
I've been taking GOCOVRI for a little longer than a year. I take it for dyskinesia and to extend my "on" time. It helps the dyskinesia and helps "on" time a bit. No side effects that I know about. I tried Entacapone before that and it gave me bad dreams. My questions are; 1) Have you used
I've been taking GOCOVRI for a little longer than a year. I take it for dyskinesia and to extend my "on" time. It helps the dyskinesia and helps "on" time a bit. No side effects that I know about. I tried Entacapone before that and it gave me bad dreams. My questions are; 1) Have you used
laglag
in
Cure Parkinson's
2 years ago
update
hi all I had to do another urine sample and there still was blood in urine, doctor is referring me to a urologist I’m so scared to be honest
hi all I had to do another urine sample and there still was blood in urine, doctor is referring me to a urologist I’m so scared to be honest
Prettywoman73
in
Women's Health
1 year ago
Has anybody had dyskinesia symptoms from Sinemet?
I wanted to get a better understanding of first the conditions one got the dyskinesia symptoms. What was the dosage of Sinemet (or other Carbidupa/Levidupa based med). How long were you on this dosage before experiencing symptoms? Also I wanted to get a better understanding of the symptoms? Are they
I wanted to get a better understanding of first the conditions one got the dyskinesia symptoms. What was the dosage of Sinemet (or other Carbidupa/Levidupa based med). How long were you on this dosage before experiencing symptoms? Also I wanted to get a better understanding of the symptoms? Are they
checkmat
in
Cure Parkinson's
2 years ago
Mucuna Pruriens
I would appreciate some advice on the following. I recently started giving Mucuna Pruriens to my wife hoping to start reducing her usual dopamine medication and replace this with the natural L-Dopa that Mucuna has as this should have far less side effects. However, after the third day, I stopped
I would appreciate some advice on the following. I recently started giving Mucuna Pruriens to my wife hoping to start reducing her usual dopamine medication and replace this with the natural L-Dopa that Mucuna has as this should have far less side effects. However, after the third day, I stopped
Rafiki2
in
Cure Parkinson's
2 years ago
Medication for PSP
I would like to discuss with anyone else who has my symptoms and is taking my medication. Carbidopa and Levodopa and Amantadine
I would like to discuss with anyone else who has my symptoms and is taking my medication. Carbidopa and Levodopa and Amantadine
Zarzuela
in
PSP Association
2 years ago
New Phase 3 Trial Data Back P2B001 as Therapy for Early Parkinson’s
P2B001 is an extended-release or ER formulation, meaning that the medication is formulated so that it is released slowly over time. It contains low doses of pramipexole (0.6 mg) and rasagiline (0.75 mg). Both compounds are approved therapies for Parkinson’s — marketed as Mirapex (pramipexole) and Azilect
P2B001 is an extended-release or ER formulation, meaning that the medication is formulated so that it is released slowly over time. It contains low doses of pramipexole (0.6 mg) and rasagiline (0.75 mg). Both compounds are approved therapies for Parkinson’s — marketed as Mirapex (pramipexole) and Azilect
Farooqji
in
Cure Parkinson's
2 years ago
URI and thyroid -fighting infection
Hi - I have had the misfortune of some how getting a UTI . I have had this for 3 weeks now. The first urine sample given at my surgery indicated some infection and 3 days prescription of antibiotics given - I have under-active thyroid so I knew this was not enough.. after the 3 days the UTI returned
Hi - I have had the misfortune of some how getting a UTI . I have had this for 3 weeks now. The first urine sample given at my surgery indicated some infection and 3 days prescription of antibiotics given - I have under-active thyroid so I knew this was not enough.. after the 3 days the UTI returned
Mandica
in
Thyroid UK
2 years ago
Phase 2 Clinical Trial of DopaFuse Delivery System
The DopaFuse Delivery System is a patented, intra-oral system that continuously and noninvasively delivers levodopa and carbidopa at a controlled rate for patients with PD. The DopaFuse System consists of an oral retainer, its case, and a prefilled, single-use drug container that continuously releases
The DopaFuse Delivery System is a patented, intra-oral system that continuously and noninvasively delivers levodopa and carbidopa at a controlled rate for patients with PD. The DopaFuse System consists of an oral retainer, its case, and a prefilled, single-use drug container that continuously releases
Farooqji
in
Cure Parkinson's
2 years ago
Hand tremors
I was diagnosed with PD a few months ago although I had a hand tremor on the right side for one and half years ago. My hand tremor gets better during mid week usually Wednesday and Thursday, and gets worse after that. I don't take any regular medication as C/L and Amantadine didn't work for me. So I
I was diagnosed with PD a few months ago although I had a hand tremor on the right side for one and half years ago. My hand tremor gets better during mid week usually Wednesday and Thursday, and gets worse after that. I don't take any regular medication as C/L and Amantadine didn't work for me. So I
Astronomer90
in
Cure Parkinson's
2 years ago
urinary tract infections
Does anybody else have a problem with recurring UTIs? And does anyone take low dose antibiotics regularly?
Does anybody else have a problem with recurring UTIs? And does anyone take low dose antibiotics regularly?
22buteo22
in
Women's Health
2 years ago
sinemet and mucuna pruriens
Dear Comunity I am anxious about my mother age 76. She is taking 6 tbl. of sinemet a day. I found out that Mucuna Pruriens is an option. I was able to find MP with 15% of L-Dopa. How to use it ? Thanks for helping.
Dear Comunity I am anxious about my mother age 76. She is taking 6 tbl. of sinemet a day. I found out that Mucuna Pruriens is an option. I was able to find MP with 15% of L-Dopa. How to use it ? Thanks for helping.
stop-parkinson
in
Cure Parkinson's
2 years ago
Parkinson’s and eyes
Yesterday, I had an eye test and my vision has improved. This is great but I spent a lot of money on some new glasses last year because my vision and had declined. I have poor eyesight and wear complex lenses. Looking at the times of each eye test, last years was done first thing in the morning and
Yesterday, I had an eye test and my vision has improved. This is great but I spent a lot of money on some new glasses last year because my vision and had declined. I have poor eyesight and wear complex lenses. Looking at the times of each eye test, last years was done first thing in the morning and
forest1
in
Cure Parkinson's
2 years ago
Levodopa and magnesium oxide
Based on in vtro results and a n=1 case study: "Levodopa and carbidopa are reported to be degraded by magnesium oxide (MgO), which is often used as a laxative for patients with Parkinson's disease (PD). Ascorbic acid (AsA) can stabilize levodopa and carbidopa solutions; however, the effect of AsA on
Based on in vtro results and a n=1 case study: "Levodopa and carbidopa are reported to be degraded by magnesium oxide (MgO), which is often used as a laxative for patients with Parkinson's disease (PD). Ascorbic acid (AsA) can stabilize levodopa and carbidopa solutions; however, the effect of AsA on
johntPM
in
Cure Parkinson's
2 years ago
Levodopa and food: slows uptake but gives you more in the long run?
According to FDA prescribing information: "In healthy adults, oral administration of Rytary after a high-fat, high-calorie meal reduced Cmax approximately 21% and increased AUCinf approximately 13% for levodopa compared to administration in the fasted state. There may be a delay by 2 hours in the absorption
According to FDA prescribing information: "In healthy adults, oral administration of Rytary after a high-fat, high-calorie meal reduced Cmax approximately 21% and increased AUCinf approximately 13% for levodopa compared to administration in the fasted state. There may be a delay by 2 hours in the absorption
johntPM
in
Cure Parkinson's
2 years ago
2 am crowd...Could it be that we are lucky to have pd? advanced pd suggestions.
So.....if you were offered a cure to pd...b1, hinz, mucuna, stem cell...amino acid balance, mitochondrial support, wahles protocol... B-1 .amino acid l- tyrosine, l-tryptofan supplement....acetyl l whatever...qui gong , shifke, chinese foot therapy.....walking fast ......name it etc.....woud you actually
So.....if you were offered a cure to pd...b1, hinz, mucuna, stem cell...amino acid balance, mitochondrial support, wahles protocol... B-1 .amino acid l- tyrosine, l-tryptofan supplement....acetyl l whatever...qui gong , shifke, chinese foot therapy.....walking fast ......name it etc.....woud you actually
beehive23
in
Cure Parkinson's
2 years ago
Cystatin C and dyskinesia
Serum Cys C levels were independently associated with dyskinesia and may be a valuable screening tool for differentiating dyskinesia in PD patients. https://pubmed.ncbi.nlm.nih.gov/31054924/
Serum Cys C levels were independently associated with dyskinesia and may be a valuable screening tool for differentiating dyskinesia in PD patients. https://pubmed.ncbi.nlm.nih.gov/31054924/
House2
in
Cure Parkinson's
2 years ago
I’m a B1er (one that has found success in B1), A few questions to others.
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** I’m a B1er (one that has found success in B1), A few questions to others. 1) Do you have a Boost in energy? (I do) 2) Do Mosquitoes avoid you? (Delighted) 3) Have most
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** I’m a B1er (one that has found success in B1), A few questions to others. 1) Do you have a Boost in energy? (I do) 2) Do Mosquitoes avoid you? (Delighted) 3) Have most
Gcf51
in
Cure Parkinson's
2 years ago
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