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Experiences with
Primary ciliary dyskinesia (PCD)
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C/L induced Dsytonia - extreme pain.
Hi all, My mother 57 years old is on C/L Controlled Release tablet (Syndopa 125mg CR) thrice a day with the dosage split as 1/2-1/4-1/4-1/2 , (i.e 62.5mg-31.25mg-31.35mg-62.5mg). Her afternoon dose is split as 1/2 again and hence the 1/4th -1/4th. She also takes Ropinirole 1mg and MAO-B Inhibitor
Hi all, My mother 57 years old is on C/L Controlled Release tablet (Syndopa 125mg CR) thrice a day with the dosage split as 1/2-1/4-1/4-1/2 , (i.e 62.5mg-31.25mg-31.35mg-62.5mg). Her afternoon dose is split as 1/2 again and hence the 1/4th -1/4th. She also takes Ropinirole 1mg and MAO-B Inhibitor
gdineshnathan
in
Cure Parkinson's
1 year ago
intense itching, and Lipo atrophy and taking amantadine and mucuna
I have intense itching on my back and stomach and toes an hour after taking amantadine and mucuna. I don’t know if it is an allergy. I also have significant Lipoatrophy which seems to be exacerbated with the amantadine and sinamer and mucuna… does this happen to anyone else? What do you recommend I
I have intense itching on my back and stomach and toes an hour after taking amantadine and mucuna. I don’t know if it is an allergy. I also have significant Lipoatrophy which seems to be exacerbated with the amantadine and sinamer and mucuna… does this happen to anyone else? What do you recommend I
Marcia123
in
Cure Parkinson's
2 years ago
amantadine, and Lipo atrophy
has anyone taking amantadine experienced lLipo atrophy? All of my fat has disappeared, and my buttocks is flaccid. I read that early antiretrovirals could caus Lipo atrophy, and I wonder if amantadine could be doing the same.
has anyone taking amantadine experienced lLipo atrophy? All of my fat has disappeared, and my buttocks is flaccid. I read that early antiretrovirals could caus Lipo atrophy, and I wonder if amantadine could be doing the same.
Marcia123
in
Cure Parkinson's
2 years ago
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Effects from going off of amantadine
I am taking 2 tablets 25-100 C/L 4x per day and 1 tablet of 50-200 at bedtime. Back in August of this year doctor put me on amantadine starting with 2.5 ml. I was supposed to eventually get to 10 ml, but I never got past 7.5 because of the nausea. It seemed to help a little but I still continued to have
I am taking 2 tablets 25-100 C/L 4x per day and 1 tablet of 50-200 at bedtime. Back in August of this year doctor put me on amantadine starting with 2.5 ml. I was supposed to eventually get to 10 ml, but I never got past 7.5 because of the nausea. It seemed to help a little but I still continued to have
mleec
in
Cure Parkinson's
2 years ago
Phase 2b: Trial of Mesdopetam for Levodopa-induced Dyskinesia Nears End
https://parkinsonsnewstoday.com/news/trial-mesdopetam-levodopa-induced-dyskinesia-nears-end/ Mesdopetam is designed to block a dopamine receptor protein called D3 receptor, whose levels are increased in motor-related brain regions with prolonged levodopa treatment and associated dyskinesia. In
https://parkinsonsnewstoday.com/news/trial-mesdopetam-levodopa-induced-dyskinesia-nears-end/ Mesdopetam is designed to block a dopamine receptor protein called D3 receptor, whose levels are increased in motor-related brain regions with prolonged levodopa treatment and associated dyskinesia. In
Hidden
in
Cure Parkinson's
2 years ago
bladder cancer
I have bladder cancer, I am 85 years old, to take out bladder is out of the question. I will have BCG first for 6 weeks and after that probably some chemo. Has anyone had this I would like to know more about it.
I have bladder cancer, I am 85 years old, to take out bladder is out of the question. I will have BCG first for 6 weeks and after that probably some chemo. Has anyone had this I would like to know more about it.
vallen5tuna
in
Pelvic Pain Support Network
1 year ago
Fast acting Levodopa?
I recall that somebody had written about making a quick acting levodopa by grinding up a tab of Sinemet or dissolving it in carbonated water or.... ? My memory is bad on this because I had no need for it at the time. My understanding is that levodopa needs to reach and be absorbed in the small intestine
I recall that somebody had written about making a quick acting levodopa by grinding up a tab of Sinemet or dissolving it in carbonated water or.... ? My memory is bad on this because I had no need for it at the time. My understanding is that levodopa needs to reach and be absorbed in the small intestine
Zardoz
in
Cure Parkinson's
2 years ago
Vibration Plate Therapy
(Canada) As my husband has signs of Parkinsons and wishes to address this issue naturally I recently received a vibrating plate. Note: Due to knee problems his physical activity is limited. I am impressed with the EILISON FitMax KM-818. There are a variety of exercises and settings benefiting improved
(Canada) As my husband has signs of Parkinsons and wishes to address this issue naturally I recently received a vibrating plate. Note: Due to knee problems his physical activity is limited. I am impressed with the EILISON FitMax KM-818. There are a variety of exercises and settings benefiting improved
PD10123
in
Cure Parkinson's
2 years ago
Meds on empty stomach
Does anyone suffer with stomach pains and or diarrhea when taking meds on an empty stomach? I take amantadine and sinemet and selegine?? Thanks
Does anyone suffer with stomach pains and or diarrhea when taking meds on an empty stomach? I take amantadine and sinemet and selegine?? Thanks
Hoffman123
in
Cure Parkinson's
2 years ago
Best approach to reducing Dyskinesia
I was diagnosed with PD 6 years ago. I'm currently taking 6 Stalevo 100mg each day at 6am, 8am, 10am, 1pm, 4pm, and 6pm. I also take Resageline 1mg.Over the last 18 months I have seen an increase in Dyskinesia, mainly later in the day and usually worse as the meds wear off. My Neurologist suggests
I was diagnosed with PD 6 years ago. I'm currently taking 6 Stalevo 100mg each day at 6am, 8am, 10am, 1pm, 4pm, and 6pm. I also take Resageline 1mg.Over the last 18 months I have seen an increase in Dyskinesia, mainly later in the day and usually worse as the meds wear off. My Neurologist suggests
gingerj
in
Cure Parkinson's
2 years ago
Negative levodopa
I first posted this on the Neurotalk forum in 2018. I make a few additions here. Recently I heard the story of a women who controlled her dyskinesia by eating protein. Levodopa induced dyskinesia normally occurs when levodopa levels are at their highest (typically between 30 minutes and 90 minutes
I first posted this on the Neurotalk forum in 2018. I make a few additions here. Recently I heard the story of a women who controlled her dyskinesia by eating protein. Levodopa induced dyskinesia normally occurs when levodopa levels are at their highest (typically between 30 minutes and 90 minutes
johntPM
in
Cure Parkinson's
2 years ago
Graph showing levodopa levels during the day: on/off and dyskinesia
Some time ago I wrote an app that models how levodopa levels vary as a result of the medications that we take. This is based on pharmacokinetic values such as the half-life of a drug. To use it, for every dose that you take per day, you enter the time of the dose, the name of the drug and the size of
Some time ago I wrote an app that models how levodopa levels vary as a result of the medications that we take. This is based on pharmacokinetic values such as the half-life of a drug. To use it, for every dose that you take per day, you enter the time of the dose, the name of the drug and the size of
johntPM
in
Cure Parkinson's
2 years ago
Worried about consistent blood in urine
I’m wondering if anyone else has consistent blood in urine only picked up by a urine test? For the last few months I seem to get symptoms of a urine infection regularly, however when my urine is tested all that comes back is traces of blood? Feeling so anxious about it.
I’m wondering if anyone else has consistent blood in urine only picked up by a urine test? For the last few months I seem to get symptoms of a urine infection regularly, however when my urine is tested all that comes back is traces of blood? Feeling so anxious about it.
Knic
in
Women's Health
1 year ago
C/L induced dyskinesia - severe wrist pain
My mom has severe wrist pain due to Carbidopa Levdopa induced dyskinesia (25/100 x 3 times per day). Otherwise she is fine without any tremor. She says after C/L intake the pain is unbearable in her wrist. Infact, we can see inflammation (redness) in the wrist area. Any suggestions as how the hand tremor
My mom has severe wrist pain due to Carbidopa Levdopa induced dyskinesia (25/100 x 3 times per day). Otherwise she is fine without any tremor. She says after C/L intake the pain is unbearable in her wrist. Infact, we can see inflammation (redness) in the wrist area. Any suggestions as how the hand tremor
gdineshnathan
in
Cure Parkinson's
2 years ago
does anyone have interstitial cystitis?
I have been experiencing pain when peeing for coming up to a year now. I have got my urine tested probably over 8 times over the past year. Every time it comes back clear, or they tell me to take an antibiotic and then send my urine off to the lab but then it comes back normal. I feel a ripping, burning
I have been experiencing pain when peeing for coming up to a year now. I have got my urine tested probably over 8 times over the past year. Every time it comes back clear, or they tell me to take an antibiotic and then send my urine off to the lab but then it comes back normal. I feel a ripping, burning
Sky342
in
Endometriosis UK
1 year ago
Dyskinesia with MP
Hello all! Need some pearls of wisdom. I'm 39 on c/l 25/100 , I take two tablets in one day in divided doses by breaking the tab along with one pramipexole either 0.75 mg ER or 0.375 mg ER. My on time varies every day and the dose too. I thought it'd be worthwhile to try MP, I have got Now dopa mucuna
Hello all! Need some pearls of wisdom. I'm 39 on c/l 25/100 , I take two tablets in one day in divided doses by breaking the tab along with one pramipexole either 0.75 mg ER or 0.375 mg ER. My on time varies every day and the dose too. I thought it'd be worthwhile to try MP, I have got Now dopa mucuna
Divii
in
Cure Parkinson's
2 years ago
shuffling feet
I have been shuffling my feet lately when I am walking, however otherwise I am doing fine. I have had PD since 2005. I take 3 tablets of carbo / levodopa, 25 - 100mg, 3 - 4 times a day, I never take C/L after 5pm and I take Amantadine., 3pm, 5pm &7pm which controls the dyskinesia. I get plenty of exercise
I have been shuffling my feet lately when I am walking, however otherwise I am doing fine. I have had PD since 2005. I take 3 tablets of carbo / levodopa, 25 - 100mg, 3 - 4 times a day, I never take C/L after 5pm and I take Amantadine., 3pm, 5pm &7pm which controls the dyskinesia. I get plenty of exercise
NewHope1961
in
Cure Parkinson's
2 years ago
Neck pain caused by dyskinesia.....
About 6 months ago, my dyskinesia started getting worse, and I noticed I was starting to get a lot of neck pain. I went to a neuro PT who said she thought my neck pain and stiffness were being driven by my dyskinesia and that I needed to reduce the dyskinesia before we could improve my neck. So I tried
About 6 months ago, my dyskinesia started getting worse, and I noticed I was starting to get a lot of neck pain. I went to a neuro PT who said she thought my neck pain and stiffness were being driven by my dyskinesia and that I needed to reduce the dyskinesia before we could improve my neck. So I tried
craigwharris
in
Cure Parkinson's
2 years ago
Interstitial Cystitis - Rigid Cystoscopy
I have a rigid cystoscopy tomorrow under general anaesthetic to investigate possible interstitial cystitis alongside my endometriosis (including bladder endo). has anyone had this op? Any advice for packing for hospital and recovery?
I have a rigid cystoscopy tomorrow under general anaesthetic to investigate possible interstitial cystitis alongside my endometriosis (including bladder endo). has anyone had this op? Any advice for packing for hospital and recovery?
Claire_Alexandra
in
Endometriosis UK
1 year ago
Persistent leukocytes in urine without real UTI infection or problems normal or not?
Asking on behalf of my wife. She never had UTIs before married life, before we started having vaginal penetrative sex. She has since gotten 2 UTIs, this last one while seemingly over (symtoms wise), with the test strips she is still testing faintly/partially positive for leukocytes. She went to doctor
Asking on behalf of my wife. She never had UTIs before married life, before we started having vaginal penetrative sex. She has since gotten 2 UTIs, this last one while seemingly over (symtoms wise), with the test strips she is still testing faintly/partially positive for leukocytes. She went to doctor
sinombre
in
Women's Health
1 year ago
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