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Primary ciliary dyskinesia (PCD)
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Today I had a colonoscopy. Friday I stopped all the PD medication including the vitamins and I ate a little and after that nothing for a day and I cleansed my digestive system. Guess what: all my symptoms almost gone, just a little tremor left on my RH. The tremor intensified just before the procedure
Today I had a colonoscopy. Friday I stopped all the PD medication including the vitamins and I ate a little and after that nothing for a day and I cleansed my digestive system. Guess what: all my symptoms almost gone, just a little tremor left on my RH. The tremor intensified just before the procedure
ion_ion
in
Cure Parkinson's
5 years ago
Recurrent UTI
Just wondering if having endo on your bladder can cause UTI's? I haven't been diagnosed with endo but I do have an endometrioma behind my right ovary. Has anyone who has endo on the bladder suffered from UTI's?
Just wondering if having endo on your bladder can cause UTI's? I haven't been diagnosed with endo but I do have an endometrioma behind my right ovary. Has anyone who has endo on the bladder suffered from UTI's?
HE12
in
Endometriosis UK
5 years ago
Generic Treatment for Parkinson Disease Receives FDA Approval
Alembic Pharmaceuticals has received FDA approval for its Carbidopa and Levodopa Extended-Release Tablets USP, 2.5 mg/100 mg and 50 mg/200 mg, according to the company. The drug is therapeutically equivalent to Merck’s Sinemet CR Tablets, 25 mg/100 mg and 50 mg/200 mg. https://www.pharmacytimes.com/news
Alembic Pharmaceuticals has received FDA approval for its Carbidopa and Levodopa Extended-Release Tablets USP, 2.5 mg/100 mg and 50 mg/200 mg, according to the company. The drug is therapeutically equivalent to Merck’s Sinemet CR Tablets, 25 mg/100 mg and 50 mg/200 mg. https://www.pharmacytimes.com/news
Farooqji
in
Cure Parkinson's
5 years ago
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Age old question: does PD or L/C cause Dyskinesia?
I know there are recent studies out there that say that L/C doesn't - that PD's progression does. So someone just diagnosed might as well start on L/C straight away, right? But does anyone [i]really [/i]know? Are the studies funded by the drug companies somehow? Asking for a recently diagnosed friend
I know there are recent studies out there that say that L/C doesn't - that PD's progression does. So someone just diagnosed might as well start on L/C straight away, right? But does anyone [i]really [/i]know? Are the studies funded by the drug companies somehow? Asking for a recently diagnosed friend
JAS9
in
Cure Parkinson's
5 years ago
Awful lot of levodopa for such a short disease duration
Anyone on 6 x Carbidopa Levodopa 25/100 mg, less than 2 years after diagnosis? My neuro is increasing my c/l from 1 tablet 3 x a day to 2 tablets 3 x a day. It seems to me like it's an awful lot of levodopa for such a short disease duration. Anyone else on such a dose under 2 years since diagnosis
Anyone on 6 x Carbidopa Levodopa 25/100 mg, less than 2 years after diagnosis? My neuro is increasing my c/l from 1 tablet 3 x a day to 2 tablets 3 x a day. It seems to me like it's an awful lot of levodopa for such a short disease duration. Anyone else on such a dose under 2 years since diagnosis
Parkie-
in
Cure Parkinson's
5 years ago
Anyone taking B6? Notice any improvements?
From Kaiser Permanent about C\L and Vitamin B6 and B3 - https://wa.kaiserpermanente.org/kbase/topic.jhtml?docId=hn-1339004 B6 - "Test tube, animal, and preliminary human studies suggest that carbidopa may cause depletion of vitamin B6. However, the use of carbidopa with levodopa reduces the vitamin B6
From Kaiser Permanent about C\L and Vitamin B6 and B3 - https://wa.kaiserpermanente.org/kbase/topic.jhtml?docId=hn-1339004 B6 - "Test tube, animal, and preliminary human studies suggest that carbidopa may cause depletion of vitamin B6. However, the use of carbidopa with levodopa reduces the vitamin B6
MWLE
in
Cure Parkinson's
5 years ago
The Cause Of Vitamin B-6 Toxicity (Updated)
Different forms of vitamin B-6. Credit: https://openi.nlm.nih.gov/detailedresult?img=PMC3412620_pone.0040954.g001&req=4. Carbidopa uses up vitamin B6. Vitamin B6 is essential for all manner of biochemical wizardry, so it is not something we want to be short of. Vitamin B6 and carbidopa bind together
Different forms of vitamin B-6. Credit: https://openi.nlm.nih.gov/detailedresult?img=PMC3412620_pone.0040954.g001&req=4. Carbidopa uses up vitamin B6. Vitamin B6 is essential for all manner of biochemical wizardry, so it is not something we want to be short of. Vitamin B6 and carbidopa bind together
park_bear
in
Cure Parkinson's
5 years ago
I can't get rid of my right hand tremor
I was diagnosed two years ago and I did not take any medication except HDT which helped a lot except the tremor. Four month ago I started C/L 3x100/25 per day to help the tremor but without luck. In March I saw my neuro who gave me amantadine 3x100 and doubled the C/L. I started amantadine 2x100mg/day
I was diagnosed two years ago and I did not take any medication except HDT which helped a lot except the tremor. Four month ago I started C/L 3x100/25 per day to help the tremor but without luck. In March I saw my neuro who gave me amantadine 3x100 and doubled the C/L. I started amantadine 2x100mg/day
ion_ion
in
Cure Parkinson's
5 years ago
Primary Ciliary Dyskinesia?
It seems like I’m always chasing An Answer haha I have recently been in hospital with sputum showing P. aeruginosa and S. aureus. Sputum sample #2 went missing, and I couldn’t produce a 3rd sample but my inflammatory markers — which I assume were raised when I was admitted — came down. I have only been
It seems like I’m always chasing An Answer haha I have recently been in hospital with sputum showing P. aeruginosa and S. aureus. Sputum sample #2 went missing, and I couldn’t produce a 3rd sample but my inflammatory markers — which I assume were raised when I was admitted — came down. I have only been
Hidden
in
Lung Conditions Community Forum
5 years ago
From Amantadine To Entacapone..... I emailed my neurologist explaining all the bad symptoms I am having.....
Very dizzy, lightheaded,nauseous and feeling chest pressure,fast heart beating, so I did a little research on each medication I am taking and the only one that came with the side effects I am having is amantadine. Emailed dr. letting her know I was stopping amantadine, last yr she had given me entacapone
Very dizzy, lightheaded,nauseous and feeling chest pressure,fast heart beating, so I did a little research on each medication I am taking and the only one that came with the side effects I am having is amantadine. Emailed dr. letting her know I was stopping amantadine, last yr she had given me entacapone
Chicafromchitown
in
Cure Parkinson's
5 years ago
Annual neurological check
This morning I made the annual neurological check from my PD diagnosis of May 2018. The therapy was 2 tablet Sinemet 100+25 mg. per day. Compared to the previous control, has been confirmed the substantial stability of the general situation. Pull test ok, cognitive tests ok, engine tests ok, balance
This morning I made the annual neurological check from my PD diagnosis of May 2018. The therapy was 2 tablet Sinemet 100+25 mg. per day. Compared to the previous control, has been confirmed the substantial stability of the general situation. Pull test ok, cognitive tests ok, engine tests ok, balance
Fed1000
in
Cure Parkinson's
5 years ago
Need Help and Advice On What I Can Do To Relieve The Intensity Level of My Current and Parkinsons Disease Symptoms
I was diagnosed with Parkinsons disease in 2003 disease. I have the rigidity type of Parkinsons disease and the symptoms have changed as to intensity level to be almost unbearable. It started out on the left side, but is now resident at a lesser level on my right side.The symptoms when I go into
I was diagnosed with Parkinsons disease in 2003 disease. I have the rigidity type of Parkinsons disease and the symptoms have changed as to intensity level to be almost unbearable. It started out on the left side, but is now resident at a lesser level on my right side.The symptoms when I go into
neilp02
in
Cure Parkinson's
5 years ago
Neurocrine Biosciences Presents Phase III Data Analysis Demonstrating That Opicapone Added To Levodopa Resulted In A Significant improvement
Neurocrine Biosciences Presents Phase III Data Analysis Demonstrating That Opicapone Added To Levodopa Resulted In A Significant And Sustained Increase In ON Time Without Troublesome Dyskinesia In Parkinson's Disease Patients With Motor Fluctuations https://www.gurufocus.com/news/870917/neurocrine-biosciences-presents-phase-iii-data-analysis-demonstrating-that-opicapone-added-to-levodopa-resulted-in-a-significant-and-sustained-increase-in-on-time-without-troublesome-dyskinesia-in-parkinsons-disease-patients-with-motor-fluctuations
Neurocrine Biosciences Presents Phase III Data Analysis Demonstrating That Opicapone Added To Levodopa Resulted In A Significant And Sustained Increase In ON Time Without Troublesome Dyskinesia In Parkinson's Disease Patients With Motor Fluctuations https://www.gurufocus.com/news/870917/neurocrine-biosciences-presents-phase-iii-data-analysis-demonstrating-that-opicapone-added-to-levodopa-resulted-in-a-significant-and-sustained-increase-in-on-time-without-troublesome-dyskinesia-in-parkinsons-disease-patients-with-motor-fluctuations
Farooqji
in
Cure Parkinson's
5 years ago
Amantadine..... can I take it only when needed??
I take 1 25/100 c/l 3x/day with 1 mirapex, but lately I was having too much dyskinesia neuro gave amantadine, but never started it, usually I only have 2hrs before meds wear off, so I have to rush to do what I have to do like grocery shopping and there goes my 2hrs On a day when I was gonna need extra
I take 1 25/100 c/l 3x/day with 1 mirapex, but lately I was having too much dyskinesia neuro gave amantadine, but never started it, usually I only have 2hrs before meds wear off, so I have to rush to do what I have to do like grocery shopping and there goes my 2hrs On a day when I was gonna need extra
Chicafromchitown
in
Cure Parkinson's
5 years ago
Matcha green tea
Hi everyone! For those of you mixing green tea with your mucuna I attached a link for Japanese organically-grown matcha green tea. With matcha you drink the entire ground up leaf it has more egcg in it then the steeping kind. Nutrivitashop sells the l-dopa as well as the green tea. I guess my point is
Hi everyone! For those of you mixing green tea with your mucuna I attached a link for Japanese organically-grown matcha green tea. With matcha you drink the entire ground up leaf it has more egcg in it then the steeping kind. Nutrivitashop sells the l-dopa as well as the green tea. I guess my point is
Stevenmast
in
Cure Parkinson's
5 years ago
Diphasic dyskinesia
I been taking Rytary for about six months now. What I read that Dyskinesia can occur when the level of levodopa in the body is at a maximum,referred to as peak dose dyskinesia,or when the levels of levodopa are rising or falling,referred to as Diphasic dyskinesia.are some times referred as silly Foot
I been taking Rytary for about six months now. What I read that Dyskinesia can occur when the level of levodopa in the body is at a maximum,referred to as peak dose dyskinesia,or when the levels of levodopa are rising or falling,referred to as Diphasic dyskinesia.are some times referred as silly Foot
Fishaholic
in
Cure Parkinson's
5 years ago
Constant Burning/Stinging Inside Vagina/Urethra
Hello, I have been dealing with this issue for about 3 months now. I would like any insight on what you guys think this might be or what may help. The pain is so debilitating/scary that I have turned to God. I'll start by saying I've had these feelings/small episodes of this as a kid and teenager. I
Hello, I have been dealing with this issue for about 3 months now. I would like any insight on what you guys think this might be or what may help. The pain is so debilitating/scary that I have turned to God. I'll start by saying I've had these feelings/small episodes of this as a kid and teenager. I
cassie14
in
Pelvic Pain Support Network
5 years ago
why are my pupils dilated in the evening and why do I get olfactory hallucinations?
I was started on 1 tab of sinemet 3x's per day, needed more it seemed, my doc increased to 2 tabs 3x's per day of the 25/100. still had alot of off time. heard about taking 1 tab 6x's per day and that helped with coverage but caused the dilation and hallucinations or at least i think it did because
I was started on 1 tab of sinemet 3x's per day, needed more it seemed, my doc increased to 2 tabs 3x's per day of the 25/100. still had alot of off time. heard about taking 1 tab 6x's per day and that helped with coverage but caused the dilation and hallucinations or at least i think it did because
Jockboy17
in
Cure Parkinson's
5 years ago
L Dopa, the drug which makes Parkinson's worse?
What do you think? From my negative experience of Sinemet, I surmise that it brings some initial improvement in movement issues along with some devastating side effects. It wears off, so more is taken, and after a while dyskinesias can occur solely because of the drug. Also 'on - off' can occur due to
What do you think? From my negative experience of Sinemet, I surmise that it brings some initial improvement in movement issues along with some devastating side effects. It wears off, so more is taken, and after a while dyskinesias can occur solely because of the drug. Also 'on - off' can occur due to
Yoginipoet
in
Cure Parkinson's
5 years ago
Amantadine or Mirapex?? I’ve noticed that my C/L 25/100 is only lasting 2hrs afterwards am like in slow motion....
But by the time it kicks in (1hr) am left with basically 1hr 1/2 and noticed that right hand tremor is more dominant now, I wanted to know if just taking c/l is enough for someone who has been with Pd for 10yrs? I was taking mirapex 1tab 3x/day for almost 8 months then I stopped taking them. On my last
But by the time it kicks in (1hr) am left with basically 1hr 1/2 and noticed that right hand tremor is more dominant now, I wanted to know if just taking c/l is enough for someone who has been with Pd for 10yrs? I was taking mirapex 1tab 3x/day for almost 8 months then I stopped taking them. On my last
Chicafromchitown
in
Cure Parkinson's
5 years ago
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