Today I had a colonoscopy. Friday I stopped all the PD medication including the vitamins and I ate a little and after that nothing for a day and I cleansed my digestive system. Guess what: all my symptoms almost gone, just a little tremor left on my RH.
The tremor intensified just before the procedure as I was stressed up they may find something bad. But everything was perfect and I calmed down and now I took only the 1g of B1 and feel good. Mentally I feel much better without C/L and Amantadine which does not seem to help too much with the tremor. I may continue C/L but Amantadine not sure yet as it gave me some foggy mind.
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ion_ion
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Something like that happened once to me after I ate something that seriously disagreed with me, and it just went right through me. After I left the bathroom I was almost normal for about 8hrs. PURE BLISS.
By bliss i meant all PD symptoms VANISHED !
I've considered trying to duplicate it using a laxative. Def some gut connection.
3x100/25 c/l per day and 2x100 amantadine and 2d HTD. I just suddenly stopped them Friday. But yesterday I resumed the HDT. So far so good. I'm curios how long will last before I start c/l again.
Please keep us posted as I want to stop my C/L also (just stay on HDT) as it does not seen to help anything.
Nice to hear about your experience. I have written here before that my Gastroenterologist told me that almost all patients with Parkinson’s who underwent colonoscopy reported that they had massive improvement in their Parkinson’s symptoms. She speculated that the profofol used as the anesthetic might be the reason. However, she did not have any followup feedback and no studies or formal reporting were done. I have not undergone the colonoscopy myself, so I don’t have personal experience to offer.
My question: did you receive propofol as your anesthetic?
I told them I have PD and I may need special recipe of anesthesia but they say that's not the case. And I felt better before going to hospital after I reduced and later stopped the food.
Hi, ion_ion, is there any way you can ask your doctor about what anesthesia was used? If we can rule out propofol, then embarking on fasting might help.
PLEASE TRLL US HOW MUCH OF THESE MEDICATIONS YOU WERE TAKING - and when and for how long/?and did you drop everything abruptly You just stopped me taking your sinemet ?
Fingers crossed. I noticed the tendency: when PwPD suddenly change something like diet, or have a trip to another country, or experience some unplanned physical activity, or even have a glass of beer after several months break - they do feel sudden improvements.
It’s like something inside of us is afraid of changes, scared to leave its “comfort zone”.
I still started C/L but only 2x100/25 a day instead 3x and I got rid of amantadine. Also I'm taking 1 g or 2 g of HDT a day depending how I feel. I have some RH tremor but I feel better than before colonoscopy. Also periodically I'll try to complete empty my digestive system through fasting and cleansing.
Other interesting thing I just noticed. Yesterday and today I took 2x81mg chewable baby aspirins and my symptoms went down a lot. I noticed that one more time in the past but I taught it was just coincidence. Anyone else noticed it? Also I feel similar everytime I take a break of B1 for few days (3-4 days). One time I stopped B1 for 3 weeks and the bad non-motor symptoms came back.
Very possible, but should be close to the right dose. If I go lower the tremor may reduce but other symptoms may get worse. I tried in the past. I think 1g is good for me.
I said the B-1 dose may be a bit high because you said, ' Also I feel similar (symptom improvement) every time I take a break of B1 for few days (3-4 days). '
This is classically what Dr. Costantini might call a B-1 overdose, where symptoms improve after briefly stopping B-1 and the B-1 level starts drifting downward. The sooner the symptoms improve after stopping, the closer you were to your ideal dose. The longer it takes to see symptom improvement, the further you are from that ideal dose. That was how Dr. C saw it and of course he would also include a push test to help determine exactly how close you are to that ideal dose. A push test score of "0" or no full step backward indicated an ideal push test and that the B-1 dose was optimal or very close to optimal. It may only be a 25, 50 or 100 mg reduction or possibly skipping one day each week, but he would consider the dose a bit high if your symptoms improve for a short while, once stopping B-1. This sounds exactly like what you are describing. Generally he would ask the patient to stop B-1 completely for 3 days to a week and restart at a lower dose or restart at the same dose and skip a day or two per week in order to help determine a more optimal dose and then report back your results in two weeks to him.
Thanks Art. I was aware of everything you said. That's why periodically I take shorts breaks of B1. Probably 750 mg would be my ideal dose but I prefer to take 1g for 5 days a week plus two days break. The pills are 500 mg and it's easier that way.
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