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Should it take this long to taper with PMR/GCA?
I am so sorry to be needing advice again, but I am wondering if anyone else has struggled to wean from higher doses of
Prednisone
for PMR and GCA. Since late January I have been on dosages of 65mg. and weaned down to 45mg. by early April.
I am so sorry to be needing advice again, but I am wondering if anyone else has struggled to wean from higher doses of
Prednisone
for PMR and GCA. Since late January I have been on dosages of 65mg. and weaned down to 45mg. by early April.
Bummed24
in
PMRGCAuk
3 days ago
Extreme fatigue
I have been taking
Prednisone
since October of 2020- 80 mg for GCA. I am now down to 10 1/5 mg.In between I was diagnosed with PMR. It has been a very hard ride but I managed.
I have been taking
Prednisone
since October of 2020- 80 mg for GCA. I am now down to 10 1/5 mg.In between I was diagnosed with PMR. It has been a very hard ride but I managed.
Miacaro45
in
PMRGCAuk
4 months ago
Prednisone tapering
I've been tapering off
prednisone
which initially was 30 mg daily by 1 mg every 3 days on dr's and rheumatologist advice. (Was diagnosed with PMR then changed to fibromyalgia). I was also taking tumeric supplements which i stopped on saturday. As of today I am on 7 mg.
I've been tapering off
prednisone
which initially was 30 mg daily by 1 mg every 3 days on dr's and rheumatologist advice. (Was diagnosed with PMR then changed to fibromyalgia). I was also taking tumeric supplements which i stopped on saturday. As of today I am on 7 mg.
Monkey321
in
PMRGCAuk
9 months ago
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Perineum Irritation / Pain
I’m doing Lupron shots every 3months + Abiraterone with
Prednisone
daily, will start radiation in a couple weeks. I was tested on day 8 and my PSA had already fallen from 8.7 to 2.78. I had been feeling very good with virtually no side effects.
I’m doing Lupron shots every 3months + Abiraterone with
Prednisone
daily, will start radiation in a couple weeks. I was tested on day 8 and my PSA had already fallen from 8.7 to 2.78. I had been feeling very good with virtually no side effects.
Willie51
in
Prostate Cancer And Gay Men
13 days ago
Constipation
I am on 40 mg or
prednisone
for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the
prednisone
or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days.
I am on 40 mg or
prednisone
for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the
prednisone
or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days.
Groda
in
PMRGCAuk
7 months ago
Pred again
Hi I have been diagnosed with PMR again and put back on
prednisone
I really did not want to go back on the steroids I had a awful time 2 years ago when I was put on them, I gained 3 stone I just could not stop eating!!!
Hi I have been diagnosed with PMR again and put back on
prednisone
I really did not want to go back on the steroids I had a awful time 2 years ago when I was put on them, I gained 3 stone I just could not stop eating!!!
24paula
in
PMRGCAuk
22 days ago
Helpful forum
My head CT was negative .He says to consider Actemra infusions so I can reduce my
Prednisone
. Yesterday my CRP dropped to 6.5, and sed rate to 6. Your thoughts. I value your knowledge and experiences. Thanks!
My head CT was negative .He says to consider Actemra infusions so I can reduce my
Prednisone
. Yesterday my CRP dropped to 6.5, and sed rate to 6. Your thoughts. I value your knowledge and experiences. Thanks!
Bummed24
in
PMRGCAuk
3 months ago
History of Hypothyroidism on Maternal Side (Gma, mom, aunt, sister). HELP! Should I get tested?
I was put on a
Prednisone
taper starting at 60mg. Throughout the time between 2006 and 2024, I have regular flare ups. I’ve torn two rotator cuffs, awoken to swollen hands or feet that cannot move (imaging shows calcium deposits).
I was put on a
Prednisone
taper starting at 60mg. Throughout the time between 2006 and 2024, I have regular flare ups. I’ve torn two rotator cuffs, awoken to swollen hands or feet that cannot move (imaging shows calcium deposits).
Chronichives
in
Thyroid UK
27 days ago
I just found out the cause of my autoimmune chronic pancreatitis and it’s not good. I have Sjögren’s syndrome.
I have osteoporosis, not from
prednisone
but from lack of nutrients from the pancreatitis. I need to go on a steroid to help stop my body from effecting multiple lungs, kidney’s, liver and pancreas. I have 4 cysts on my pancreas too. I had lymphoma from Sjogren’s but didn’t know why at the time.
I have osteoporosis, not from
prednisone
but from lack of nutrients from the pancreatitis. I need to go on a steroid to help stop my body from effecting multiple lungs, kidney’s, liver and pancreas. I have 4 cysts on my pancreas too. I had lymphoma from Sjogren’s but didn’t know why at the time.
Joanhappy21
in
Chronic Pancreatitis Support
4 months ago
Exhausted now that I’m down to 7mg
Well I’m finally down to 7 mg
Prednisone
and I’m feeling exhausted. Doing ok as far as pain is concerned but feel as if I’ve run 10 miles. Diagnosed with PMR in 2016 and have slowly reduced to get to this point.
Well I’m finally down to 7 mg
Prednisone
and I’m feeling exhausted. Doing ok as far as pain is concerned but feel as if I’ve run 10 miles. Diagnosed with PMR in 2016 and have slowly reduced to get to this point.
rocketman42
in
PMRGCAuk
5 months ago
Not sure what's gone wrong??
I'm curious to know why I'm experiencing some rather unusual symptoms 22 months in with p.m.r.Recently I have tapered very slowly down to 1mg of
prednisone
, and for the last two weeks have difficulty falling asleep at night, waves of nausea during the day as well as episodes of dizziness several times
I'm curious to know why I'm experiencing some rather unusual symptoms 22 months in with p.m.r.Recently I have tapered very slowly down to 1mg of
prednisone
, and for the last two weeks have difficulty falling asleep at night, waves of nausea during the day as well as episodes of dizziness several times
Brooklyn747
in
PMRGCAuk
5 months ago
Ketogenic diet for High risk PCA? American Ginseng for fatigue?
Husband is Gleason 9, PSA 46.6 when diagnosed, completed 28 Proton treatments, on Orgovyx and started Abiraterone and
prednisone
recently. Being treated as high risk and following Stampede trial protocol for high risk localized PCA.
Husband is Gleason 9, PSA 46.6 when diagnosed, completed 28 Proton treatments, on Orgovyx and started Abiraterone and
prednisone
recently. Being treated as high risk and following Stampede trial protocol for high risk localized PCA.
CancerConcierge
in
Advanced Prostate Cancer
5 months ago
Prednisone
He put me on
Prednisone
40 mg for 5 days it helped immensely but is it common a week after I take them for pain to return because it has and he said if it does I need to go back to rheumatologist. Thank you
He put me on
Prednisone
40 mg for 5 days it helped immensely but is it common a week after I take them for pain to return because it has and he said if it does I need to go back to rheumatologist. Thank you
Hurting2012
in
NRAS
10 months ago
Return of PMR
When I tapered off of
prednisone
I used a super slow method which I don't remember. Can someone please tell me that method? Has anyone out there had it in their hands? Any different than the usual hips and shoulders? Thank you, Skip
When I tapered off of
prednisone
I used a super slow method which I don't remember. Can someone please tell me that method? Has anyone out there had it in their hands? Any different than the usual hips and shoulders? Thank you, Skip
skipspmr
in
PMRGCAuk
6 months ago
Is it the Shingles vaccination or Prednisone reduction?
I was on the third week of lowering pred dose from 5mg to 4.5 using the five week go slow method. I was feeling good. The day after the Shingles injection I began to feel ill with severe stomach pains digestive upset, headache, lightheaded, Insomnia but extreme tiredness. Could it be simply the fact
I was on the third week of lowering pred dose from 5mg to 4.5 using the five week go slow method. I was feeling good. The day after the Shingles injection I began to feel ill with severe stomach pains digestive upset, headache, lightheaded, Insomnia but extreme tiredness. Could it be simply the fact
Sumojo
in
PMRGCAuk
5 months ago
PMR and chronic fatigue syndrome- is there a link?
with Rheumatologist a week later who confirmed diagnosis and upped
prednisone
to 30 mg - following Rhumetologist appointment diagnosed with additional RA went on methotrexate tablets and vitamin d and folic acid tablets -gradually tapered
prednisone
by approximately 2.5 each fortnight, to 10.5 in
with Rheumatologist a week later who confirmed diagnosis and upped
prednisone
to 30 mg - following Rhumetologist appointment diagnosed with additional RA went on methotrexate tablets and vitamin d and folic acid tablets -gradually tapered
prednisone
by approximately 2.5 each fortnight, to 10.5 in
MegfromOz
in
PMRGCAuk
8 months ago
SHOULD I GO UP
I started my 20mg of
prednisone
2days ago. I’m still quite achy. Although I can get by during the day. . Should I try going up a little or just be patient and see if I need a couple more days?
I started my 20mg of
prednisone
2days ago. I’m still quite achy. Although I can get by during the day. . Should I try going up a little or just be patient and see if I need a couple more days?
Jampel
in
PMRGCAuk
5 months ago
Question about muscle weakness
But if that is true, then why do I still have muscle weakness if the
prednisone
I am taking is effectively treating the inflammation?
But if that is true, then why do I still have muscle weakness if the
prednisone
I am taking is effectively treating the inflammation?
montebello
in
PMRGCAuk
5 months ago
Is enteric Prednisone available in France? Does anyone know? Flare!!
Hi my drama with foot and ankle pain has developed into. PMR story. My rheumatologist sent me to a foot ankle doc he trusts who was very thorough and listened to both of us. First doc:?MRI showed only mild Achilles Tendinitis but that was Diagnosis. Rheumie said not where most pain is. Couldn’t do
Hi my drama with foot and ankle pain has developed into. PMR story. My rheumatologist sent me to a foot ankle doc he trusts who was very thorough and listened to both of us. First doc:?MRI showed only mild Achilles Tendinitis but that was Diagnosis. Rheumie said not where most pain is. Couldn’t do
bluegirl7
in
PMRGCAuk
4 months ago
GCA and Vision update
I was given 120 mg of
prednisone
intravenously in the emergency room. That was on a Saturday. No visual symptoms. The next day, Sunday, through the following Thursday I was only on my usual 10 mg of
prednisone
.
I was given 120 mg of
prednisone
intravenously in the emergency room. That was on a Saturday. No visual symptoms. The next day, Sunday, through the following Thursday I was only on my usual 10 mg of
prednisone
.
Lenore58
in
PMRGCAuk
5 months ago
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